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Volumn 7, Issue 3, 2006, Pages 161-166

How does current care practice influence the experience of a new diagnosis of motor neuron disease? A qualitative study of current guidelines-based practice

Author keywords

Amyotrophic lateral sclerosis; Diagnosis; Patient care; Quality of life

Indexed keywords

ADULT; AGED; ARTICLE; CLINICAL ARTICLE; CLINICAL PROTOCOL; COPING BEHAVIOR; DATA ANALYSIS; DELAYED DIAGNOSIS; FAMILY ATTITUDE; FEMALE; HEALTH CENTER; HEALTH SERVICE; HUMAN; INTERPERSONAL COMMUNICATION; INTERVIEW; LONGITUDINAL STUDY; MALE; MOTOR NEURON DISEASE; PATIENT ATTITUDE; PATIENT CARE; PATIENT INFORMATION; PHENOMENOLOGY; PHYSICAL DISABILITY; PRACTICE GUIDELINE; PRIORITY JOURNAL; QUALITATIVE RESEARCH; QUALITY OF LIFE; SATISFACTION; SOCIAL SUPPORT;

EID: 33750452320     PISSN: 17482968     EISSN: 1471180X     Source Type: Journal    
DOI: 10.1080/14660820600601051     Document Type: Article
Times cited : (30)

References (15)
  • 1
    • 33750493510 scopus 로고    scopus 로고
    • Diseases of Motor Nerves
    • In 1 Oxford: Oxford University Press
    • Oliver, D. and Borasio, G. D. (2004) Diseases of Motor Nerves. In Palliative care in neurology. 1. (pp. 79-86). Oxford: Oxford University Press.
    • (2004) Palliative Care in Neurology , pp. 79-86
    • Oliver, D.1    Borasio, G.D.2
  • 2
    • 0033594347 scopus 로고    scopus 로고
    • Practice parameter: The care of the patient with amyotrophic lateral sclerosis (an evidence-based review): Report of the Quality Standards Subcommittee of the American Academy of Neurology: ALS Practice Parameters Task Force
    • Miller, R. G. and Rosenberg, J. A. and Gelinas, D. F. and Mitsumoto, H. and Newman, D. and Sufit, R. and (1999) Practice parameter: The care of the patient with amyotrophic lateral sclerosis (an evidence-based review): Report of the Quality Standards Subcommittee of the American Academy of Neurology: ALS Practice Parameters Task Force. Neurology, 52, pp. 1311-23.
    • (1999) Neurology , vol.52 , pp. 1311-1323
    • Miller, R.G.1    Rosenberg, J.A.2    Gelinas, D.F.3    Mitsumoto, H.4    Newman, D.5    Sufit, R.6
  • 4
    • 33750478221 scopus 로고    scopus 로고
    • http://www.theabn.org/education/guidelines.html
  • 5
    • 0027508435 scopus 로고
    • Multidiciplinary management from day 1: The neuro-care approach to motor neuron disease
    • Oxtoby, M. and Eikaas, M. (1993) Multidiciplinary management from day 1: the neuro-care approach to motor neuron disease. Palliat Medicine, 7(Suppl. 2), pp. 31-6.
    • (1993) Palliat Medicine , vol.7 , Issue.SUPPL. 2 , pp. 31-36
    • Oxtoby, M.1    Eikaas, M.2
  • 6
    • 0028142392 scopus 로고
    • El Escorial World Federation of Neurology criteria for the diagnosis of amyotrophic lateral sclerosis
    • World Federation of Neurology Research Group on neuromuscular diseases
    • World Federation of Neurology Research Group on neuromuscular diseases. (1994) El Escorial World Federation of Neurology criteria for the diagnosis of amyotrophic lateral sclerosis. J Neurol Sci, 124(Suppl), pp. 96-107.
    • (1994) J Neurol Sci , vol.124 , Issue.SUPPL. , pp. 96-107
  • 7
    • 0001075654 scopus 로고    scopus 로고
    • Beyond the divide between cognition and discourse: Using interpretative phenomenological analysis in health psychology
    • Smith, J. A. (1996) Beyond the divide between cognition and discourse: using interpretative phenomenological analysis in health psychology. Psychol Health, 11, pp. 261-71.
    • (1996) Psychol Health , vol.11 , pp. 261-271
    • Smith, J.A.1
  • 8
    • 0032692481 scopus 로고    scopus 로고
    • The ALSFRS-R: A revised ALS functional rating scale that incorporates assessments of respiratory function. BDNF ALS Study Group (Phase III)
    • Cedarbaum, J. M. and Stambler, N. and Malta, E. and Fuller, C. and Hilt, D. and Thurmond, B. and Nakanishi, A. (1999) The ALSFRS-R: A revised ALS functional rating scale that incorporates assessments of respiratory function. BDNF ALS Study Group (Phase III). J Neurol Sci, 169, pp. 13-21.
    • (1999) J Neurol Sci , vol.169 , pp. 13-21
    • Cedarbaum, J.M.1    Stambler, N.2    Malta, E.3    Fuller, C.4    Hilt, D.5    Thurmond, B.6    Nakanishi, A.7
  • 9
    • 0020527558 scopus 로고
    • The hospital anxiety and depression scale
    • Zigmond, A. S. and Snaith, R. P. (1983) The hospital anxiety and depression scale. Acta Psychiatr Scand, 67, pp. 361-70.
    • (1983) Acta Psychiatr Scand , vol.67 , pp. 361-370
    • Zigmond, A.S.1    Snaith, R.P.2
  • 10
    • 0035886617 scopus 로고    scopus 로고
    • Patients' assessment of quality of life instruments: A randomized study of SIP, SF-36 and SEIQoL-DW in patients with amyotrophic lateral sclerosis
    • Neudert, C. and Wasner, M. and Borasio, G. D. (2001) Patients' assessment of quality of life instruments: A randomized study of SIP, SF-36 and SEIQoL-DW in patients with amyotrophic lateral sclerosis. J Neurol Sci, 191, pp. 103-9.
    • (2001) J Neurol Sci , vol.191 , pp. 103-109
    • Neudert, C.1    Wasner, M.2    Borasio, G.D.3
  • 14
    • 0027454590 scopus 로고
    • Coping with motor neuron disease: An analysis using self-regulating theory
    • Earll, L. and Johnston, M. and Mitchell, E. (1993) Coping with motor neuron disease: An analysis using self-regulating theory. Palliat Medicine, 7(Suppl 2), pp. 21-30.
    • (1993) Palliat Medicine , vol.7 , Issue.SUPPL. 2 , pp. 21-30
    • Earll, L.1    Johnston, M.2    Mitchell, E.3
  • 15
    • 0021907126 scopus 로고
    • The relative efficacy of avoidant and non-avoidant coping strategies: A meta-analysis
    • Suls, J. and Fletcher, B. (1985) The relative efficacy of avoidant and non-avoidant coping strategies: A meta-analysis. Health Psychol, 4, pp. 249-88.
    • (1985) Health Psychol , vol.4 , pp. 249-288
    • Suls, J.1    Fletcher, B.2


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.