메뉴 건너뛰기




Volumn 298, Issue 2, 2007, Pages 207-216

Palliative care for patients with amyotrophic lateral sclerosis: "Prepare for the worst and hope for the best"

Author keywords

[No Author keywords available]

Indexed keywords

CELECOXIB; RILUZOLE;

EID: 34447281327     PISSN: 00987484     EISSN: 15383598     Source Type: Journal    
DOI: 10.1001/jama.298.2.207     Document Type: Review
Times cited : (109)

References (92)
  • 2
    • 0003528344 scopus 로고    scopus 로고
    • Institute of Medicine, Washington, DC: National Academy Press;
    • Institute of Medicine. Approaching Death: Improving Care at the End of Life. Washington, DC: National Academy Press; 1997:31.
    • (1997) Approaching Death: Improving Care at the End of Life , pp. 31
  • 3
    • 33745904588 scopus 로고    scopus 로고
    • Hereditary and acquired motor neuron diseases
    • Rowland LP, ed, 11th ed. Philadelphia, PA: Lippincott Williams & Wilkins;
    • Rowland LP, Mitsumoto H, De Vivo D. Hereditary and acquired motor neuron diseases. In: Rowland LP, ed. Merritt's Neurology. 11th ed. Philadelphia, PA: Lippincott Williams & Wilkins; 2005:861-870.
    • (2005) Merritt's Neurology , pp. 861-870
    • Rowland, L.P.1    Mitsumoto, H.2    De Vivo, D.3
  • 4
    • 34447342642 scopus 로고    scopus 로고
    • The clinical features and prognosis in ALS
    • Mitsumoto H, Munsat T, eds, 2nd ed. New York, NY: Demos;
    • Mitsumoto H. The clinical features and prognosis in ALS. In: Mitsumoto H, Munsat T, eds. Amyotrophic Lateral Sclerosis: A Guide for Patients and Families. 2nd ed. New York, NY: Demos; 2001:27.
    • (2001) Amyotrophic Lateral Sclerosis: A Guide for Patients and Families , pp. 27
    • Mitsumoto, H.1
  • 5
    • 34447340612 scopus 로고    scopus 로고
    • Epidemiology of ALS
    • Mitsumoto H, Przedborski S, Gordon P, eds, New York, NY: Taylor & Francis;
    • McGuire V, Nelson LM. Epidemiology of ALS. In: Mitsumoto H, Przedborski S, Gordon P, eds. Amyotrophic Lateral Sclerosis. New York, NY: Taylor & Francis; 2006:17-41.
    • (2006) Amyotrophic Lateral Sclerosis , pp. 17-41
    • McGuire, V.1    Nelson, L.M.2
  • 6
    • 31544466502 scopus 로고    scopus 로고
    • Amyotrophic lateral sclerosis associated with mutations in the CuZn superoxide dismutase gene
    • Andersen PM. Amyotrophic lateral sclerosis associated with mutations in the CuZn superoxide dismutase gene. Curr Neurol Neurosci Rep. 2006;6(1):37-46.
    • (2006) Curr Neurol Neurosci Rep , vol.6 , Issue.1 , pp. 37-46
    • Andersen, P.M.1
  • 7
    • 34247475338 scopus 로고    scopus 로고
    • Astrocytes expressing ALS-linked mutated SOD1 release factors selectively toxic to motor neurons
    • Nagai M, Re DB, Nagata T, et al. Astrocytes expressing ALS-linked mutated SOD1 release factors selectively toxic to motor neurons. Nat Neurosci. 2007;10(5):615-622.
    • (2007) Nat Neurosci , vol.10 , Issue.5 , pp. 615-622
    • Nagai, M.1    Re, D.B.2    Nagata, T.3
  • 8
    • 3943102116 scopus 로고    scopus 로고
    • Unraveling the mechanisms involved in motor neuron degeneration in ALS
    • Bruijn LI, Miller TM, Cleveland DW. Unraveling the mechanisms involved in motor neuron degeneration in ALS. Annu Rev Neurosci. 2004;27:723-749.
    • (2004) Annu Rev Neurosci , vol.27 , pp. 723-749
    • Bruijn, L.I.1    Miller, T.M.2    Cleveland, D.W.3
  • 9
    • 33747605320 scopus 로고    scopus 로고
    • Molecular biology of amyotrophic lateral sclerosis: Insights from genetics
    • Pasinelli P, Brown RH. Molecular biology of amyotrophic lateral sclerosis: insights from genetics. Nat Rev Neurosci. 2006;7(9):710-723.
    • (2006) Nat Rev Neurosci , vol.7 , Issue.9 , pp. 710-723
    • Pasinelli, P.1    Brown, R.H.2
  • 10
    • 0035978743 scopus 로고    scopus 로고
    • Amyotrophic lateral sclerosis
    • Rowland LP, Schneider NA. Amyotrophic lateral sclerosis. N Engl J Med. 2001;344(22):1688-1700.
    • (2001) N Engl J Med , vol.344 , Issue.22 , pp. 1688-1700
    • Rowland, L.P.1    Schneider, N.A.2
  • 12
    • 34447344579 scopus 로고    scopus 로고
    • The ALS Patient CARE Program - North American CARE database
    • Mitsumoto H, Przedborski S, Gordon P, eds, New York, NY: Taylor & Francis;
    • Miller RG, Anderson F, Gowda N, et al. The ALS Patient CARE Program - North American CARE database. In: Mitsumoto H, Przedborski S, Gordon P, eds. Amyotrophic Lateral Sclerosis. New York, NY: Taylor & Francis; 2006:633-648.
    • (2006) Amyotrophic Lateral Sclerosis , pp. 633-648
    • Miller, R.G.1    Anderson, F.2    Gowda, N.3
  • 13
    • 34447343405 scopus 로고    scopus 로고
    • Prognosis of amyotrophic lateral sclerosis in southern Italy: Results from a population-based registry SLAP
    • Zoccolella S, Beghi E, Guerra V, et al. Prognosis of amyotrophic lateral sclerosis in southern Italy: results from a population-based registry SLAP. Amyotroph Lateral Scler. 2006;7(suppl 1):100.
    • (2006) Amyotroph Lateral Scler , vol.7 , Issue.SUPPL. 1 , pp. 100
    • Zoccolella, S.1    Beghi, E.2    Guerra, V.3
  • 14
    • 34447345766 scopus 로고    scopus 로고
    • Natural history and prognosis in amyotrophic lateral sclerosis
    • Mitsumoto H, Przedborski S, Gordon P, eds, New York, NY: Taylor & Francis;
    • Murray B. Natural history and prognosis in amyotrophic lateral sclerosis. In: Mitsumoto H, Przedborski S, Gordon P, eds. Amyotrophic Lateral Sclerosis. New York, NY: Taylor & Francis; 2006:227-255.
    • (2006) Amyotrophic Lateral Sclerosis , pp. 227-255
    • Murray, B.1
  • 15
    • 0012770024 scopus 로고    scopus 로고
    • ALS patients on TPPV: Totally locked-in state, neurologic findings and ethical implications
    • Hayashi H, Oppenheimer A. ALS patients on TPPV: totally locked-in state, neurologic findings and ethical implications. Neurology. 2003;61(1):135-137.
    • (2003) Neurology , vol.61 , Issue.1 , pp. 135-137
    • Hayashi, H.1    Oppenheimer, A.2
  • 16
    • 34447302099 scopus 로고    scopus 로고
    • Cwik V. ALS Clinical Motor Signs and Symptoms. In: Mitsumoto H, Przedborski S, Gordon P, eds. Amyotrophic Lateral Sclerosis. New York, NY: Taylor & Francis; 2006:99-115.
    • Cwik V. ALS Clinical Motor Signs and Symptoms. In: Mitsumoto H, Przedborski S, Gordon P, eds. Amyotrophic Lateral Sclerosis. New York, NY: Taylor & Francis; 2006:99-115.
  • 17
    • 0025695793 scopus 로고
    • Clinical features and associations of 560 cases of motor neuron disease
    • Li T-M, Alberman E, Swash M. Clinical features and associations of 560 cases of motor neuron disease. J Neurol Neurosurg Psychiatry. 1990;53(12):1043-1045.
    • (1990) J Neurol Neurosurg Psychiatry , vol.53 , Issue.12 , pp. 1043-1045
    • Li, T.-M.1    Alberman, E.2    Swash, M.3
  • 18
    • 34447332041 scopus 로고    scopus 로고
    • Prognostic factors in amyotrophic lateral sclerosis within southwestern Ontario, Canada
    • Shoesmith CL, Rowe A, Strong MJ, Findlater K. Prognostic factors in amyotrophic lateral sclerosis within southwestern Ontario, Canada. Amyotroph Lateral Scler. 2006;7(suppl 1):101.
    • (2006) Amyotroph Lateral Scler , vol.7 , Issue.SUPPL. 1 , pp. 101
    • Shoesmith, C.L.1    Rowe, A.2    Strong, M.J.3    Findlater, K.4
  • 19
    • 32644467636 scopus 로고    scopus 로고
    • Validation of vital capacity as the primary tool for predicting patient timing for formal palliative care intervention
    • Del Bene ML, Albert S, Brandis M, Mitsumoto H. Validation of vital capacity as the primary tool for predicting patient timing for formal palliative care intervention. Amyotroph Lateral Scler Other Motor Neuron Disord. 2003;4(suppl 1):64-65.
    • (2003) Amyotroph Lateral Scler Other Motor Neuron Disord , vol.4 , Issue.SUPPL. 1 , pp. 64-65
    • Del Bene, M.L.1    Albert, S.2    Brandis, M.3    Mitsumoto, H.4
  • 20
  • 21
    • 0032735247 scopus 로고    scopus 로고
    • Diagnostic challenges in ALS
    • Belsh JM. Diagnostic challenges in ALS. Neurology. 1999;53(8)(suppl 5):S26-S30.
    • (1999) Neurology , vol.53 , Issue.8 SUPPL. 5
    • Belsh, J.M.1
  • 22
    • 0034574407 scopus 로고    scopus 로고
    • World Federation of Neurology Group on Motor Neuron Diseases. El Escorial revisited: Revised criteria for the diagnosis of amyotrophic lateral sclerosis
    • Brooks BR, Miller R, Swash M, Munsat T; World Federation of Neurology Group on Motor Neuron Diseases. El Escorial revisited: revised criteria for the diagnosis of amyotrophic lateral sclerosis. Amyotroph Lateral Scler Other Motor Neuron Disord. 2000;1(5):293-299.
    • (2000) Amyotroph Lateral Scler Other Motor Neuron Disord , vol.1 , Issue.5 , pp. 293-299
    • Brooks, B.R.1    Miller, R.2    Swash, M.3    Munsat, T.4
  • 23
    • 33748082704 scopus 로고    scopus 로고
    • Inappropriate surgeries resulting from misdiagnosis of early amyotrophic lateral sclerosis
    • Srinivasan J, Scala S, Jones HR, Saleh F, Russell JA. Inappropriate surgeries resulting from misdiagnosis of early amyotrophic lateral sclerosis. Muscle Nerve. 2006;34(3):359-360.
    • (2006) Muscle Nerve , vol.34 , Issue.3 , pp. 359-360
    • Srinivasan, J.1    Scala, S.2    Jones, H.R.3    Saleh, F.4    Russell, J.A.5
  • 24
    • 27644543719 scopus 로고    scopus 로고
    • Incidence and characteristics of spinal decompression surgery after the onset of symptoms of amyotrophic lateral sclerosis
    • Yoshor D, Klugh A, Appel SH, Haverkamp LJ. Incidence and characteristics of spinal decompression surgery after the onset of symptoms of amyotrophic lateral sclerosis. Neurosurgery. 2005;57(5):984-989.
    • (2005) Neurosurgery , vol.57 , Issue.5 , pp. 984-989
    • Yoshor, D.1    Klugh, A.2    Appel, S.H.3    Haverkamp, L.J.4
  • 26
    • 0029131445 scopus 로고
    • Breaking bad news: Consensus guidelines for medical practitioners
    • Girgis A, Sanson-Fisher RW. Breaking bad news: Consensus guidelines for medical practitioners. J Clin Oncol. 1995;13(9):2449-2456.
    • (1995) J Clin Oncol , vol.13 , Issue.9 , pp. 2449-2456
    • Girgis, A.1    Sanson-Fisher, R.W.2
  • 28
    • 33646453064 scopus 로고    scopus 로고
    • Integrating palliative care for liver transplant candidates
    • Larson AM, Curtis JR. Integrating palliative care for liver transplant candidates. JAMA. 2006;295(18):2168-2175.
    • (2006) JAMA , vol.295 , Issue.18 , pp. 2168-2175
    • Larson, A.M.1    Curtis, J.R.2
  • 29
    • 0037490167 scopus 로고    scopus 로고
    • Complexities in prognostication in advanced cancer
    • Lamont EB, Christakis NA. Complexities in prognostication in advanced cancer. JAMA. 2003;290(1):98-105.
    • (2003) JAMA , vol.290 , Issue.1 , pp. 98-105
    • Lamont, E.B.1    Christakis, N.A.2
  • 30
    • 0032707083 scopus 로고    scopus 로고
    • Honesty and hope: Announcement of diagnosis in ALS
    • Silani V, Borasio G. Honesty and hope: announcement of diagnosis in ALS. Neurology. 1999;53(8)(suppl 5):S37-S39.
    • (1999) Neurology , vol.53 , Issue.8 SUPPL. 5
    • Silani, V.1    Borasio, G.2
  • 31
    • 34247212598 scopus 로고    scopus 로고
    • The multidisciplinary care clinic: The principles and an international perspective
    • Mitsumoto H, Przedborski S, Gordon P, eds, New York, NY: Taylor & Francis;
    • Mitsumoto H, Borasio G, Genge A, et al. The multidisciplinary care clinic: the principles and an international perspective. In: Mitsumoto H, Przedborski S, Gordon P, eds. Amyotrophic Lateral Sclerosis. New York, NY: Taylor & Francis; 2006:605-631.
    • (2006) Amyotrophic Lateral Sclerosis , pp. 605-631
    • Mitsumoto, H.1    Borasio, G.2    Genge, A.3
  • 32
    • 34247274728 scopus 로고    scopus 로고
    • Treatment of patients with ALS in the community: New insights from the web-based ALS patient care database
    • Miller RG, Scholtz D, Moore DH, et al. Treatment of patients with ALS in the community: New insights from the web-based ALS patient care database. Amyotroph Lateral Scler. 2006;7(suppl 1):56.
    • (2006) Amyotroph Lateral Scler , vol.7 , Issue.SUPPL. 1 , pp. 56
    • Miller, R.G.1    Scholtz, D.2    Moore, D.H.3
  • 33
    • 27144448387 scopus 로고    scopus 로고
    • Multidisciplinary ALS care improves quality of life in patients with ALS
    • Van den Berg JP, Kalmijn S, Lindeman E, et al. Multidisciplinary ALS care improves quality of life in patients with ALS. Neurology. 2005;65(8):1264-1267.
    • (2005) Neurology , vol.65 , Issue.8 , pp. 1264-1267
    • Van den Berg, J.P.1    Kalmijn, S.2    Lindeman, E.3
  • 34
    • 0033981057 scopus 로고    scopus 로고
    • ALS C.A.R.E. Study Group. The ALS patient care database: Goals, design, and early results
    • Miller RG, Anderson FA Jr, Bradley WG, et al; ALS C.A.R.E. Study Group. The ALS patient care database: goals, design, and early results. Neurology. 2000;54(1):53-57.
    • (2000) Neurology , vol.54 , Issue.1 , pp. 53-57
    • Miller, R.G.1    Anderson Jr, F.A.2    Bradley, W.G.3
  • 35
    • 0141628879 scopus 로고    scopus 로고
    • Effect of a multidisciplinary amyotrophic lateral sclerosis (ALS) clinic on ALS survival: A population based study, 1996-2000
    • Traynor BJ, Alexander M, Corr B, Frost E, Hardiman O. Effect of a multidisciplinary amyotrophic lateral sclerosis (ALS) clinic on ALS survival: a population based study, 1996-2000. J Neurol Neurosurg Psychiatry. 2003;74(9):1258-1261.
    • (2003) J Neurol Neurosurg Psychiatry , vol.74 , Issue.9 , pp. 1258-1261
    • Traynor, B.J.1    Alexander, M.2    Corr, B.3    Frost, E.4    Hardiman, O.5
  • 36
  • 37
    • 34447333978 scopus 로고    scopus 로고
    • Palliative care: The management of advanced disease
    • Mitsumoto H, Munsat TL, eds, 2nd ed. New York, NY: Demos;
    • Stillman MJ. Palliative care: the management of advanced disease. In: Mitsumoto H, Munsat TL, eds. Amytrophic Lateral Sclerosis: A Guide for Patients and Families. 2nd ed. New York, NY: Demos; 2001:359-372.
    • (2001) Amytrophic Lateral Sclerosis: A Guide for Patients and Families , pp. 359-372
    • Stillman, M.J.1
  • 38
    • 33746668108 scopus 로고    scopus 로고
    • Botulinum toxin improves sialorrhea and quality of living in bulbar amyotrophic lateral sclerosis
    • Verma A, Steele J. Botulinum toxin improves sialorrhea and quality of living in bulbar amyotrophic lateral sclerosis. Muscle Nerve. 2006;34(2):235-237.
    • (2006) Muscle Nerve , vol.34 , Issue.2 , pp. 235-237
    • Verma, A.1    Steele, J.2
  • 39
    • 34247235458 scopus 로고    scopus 로고
    • Symptomatic Pharmacotherapy: Bulbar and constitutional symptoms
    • Mitsumoto H, Przedborski S, Gordon P, eds, New York, NY: Taylor & Francis;
    • Jackson CE, Rosenfeld J. Symptomatic Pharmacotherapy: bulbar and constitutional symptoms. In: Mitsumoto H, Przedborski S, Gordon P, eds. Amyotrophic Lateral Sclerosis. New York, NY: Taylor & Francis; 2006:649-664.
    • (2006) Amyotrophic Lateral Sclerosis , pp. 649-664
    • Jackson, C.E.1    Rosenfeld, J.2
  • 40
    • 0032189722 scopus 로고    scopus 로고
    • Attitudes of patients with amyotrophic lateral sclerosis and their caregivers toward assisted suicide
    • Ganzini L, Johnston W, McFarland B, Tolle S, Lee M. Attitudes of patients with amyotrophic lateral sclerosis and their caregivers toward assisted suicide. N Engl J Med. 1998;339(14):967-973.
    • (1998) N Engl J Med , vol.339 , Issue.14 , pp. 967-973
    • Ganzini, L.1    Johnston, W.2    McFarland, B.3    Tolle, S.4    Lee, M.5
  • 41
    • 22044453281 scopus 로고    scopus 로고
    • Prevalence of depressive disorders and change over time in late-stage ALS
    • Rabkin JG, Albert SM, Del Bene M, et al. Prevalence of depressive disorders and change over time in late-stage ALS. Neurology. 2005;65(1):62-67.
    • (2005) Neurology , vol.65 , Issue.1 , pp. 62-67
    • Rabkin, J.G.1    Albert, S.M.2    Del Bene, M.3
  • 42
    • 33745325155 scopus 로고    scopus 로고
    • Defining and diagnosing involuntary emotional expression disorder
    • Cummings JL, Arciniegas DB, Brooks BR, et al. Defining and diagnosing involuntary emotional expression disorder. CNS Spectr. 2006;11(6):1-7.
    • (2006) CNS Spectr , vol.11 , Issue.6 , pp. 1-7
    • Cummings, J.L.1    Arciniegas, D.B.2    Brooks, B.R.3
  • 43
    • 0030710981 scopus 로고    scopus 로고
    • Home care of patients with amyotrophic lateral sclerosis (ALS)
    • Krivickas LS, Shockley L, Mitsumoto H. Home care of patients with amyotrophic lateral sclerosis (ALS). J Neurol Sci. 1997;152(suppl 1):S82-S89.
    • (1997) J Neurol Sci , vol.152 , Issue.SUPPL. 1
    • Krivickas, L.S.1    Shockley, L.2    Mitsumoto, H.3
  • 45
    • 0023107206 scopus 로고
    • Neuropsychological perspectives in amyotrophic lateral sclerosis
    • Montgomery GK, Erickson LM. Neuropsychological perspectives in amyotrophic lateral sclerosis. Neurol Clin. 1987;5(1):61-81.
    • (1987) Neurol Clin , vol.5 , Issue.1 , pp. 61-81
    • Montgomery, G.K.1    Erickson, L.M.2
  • 47
    • 33947206898 scopus 로고    scopus 로고
    • Frontotemporal dysfunction in amyotrophic lateral sclerosis
    • Mitsumoto H, Przedborski S, Gordon P, eds, New York, NY: Taylor & Francis Group;
    • Lomen Hoerth C, Strong MJ. Frontotemporal dysfunction in amyotrophic lateral sclerosis. In: Mitsumoto H, Przedborski S, Gordon P, eds. Amyotrophic Lateral Sclerosis. New York, NY: Taylor & Francis Group; 2006:117-141.
    • (2006) Amyotrophic Lateral Sclerosis , pp. 117-141
    • Lomen Hoerth, C.1    Strong, M.J.2
  • 48
    • 0037044240 scopus 로고    scopus 로고
    • The overlap of amyotrophic lateral sclerosis and frontotemporal dementia
    • Lomen-Hoerth C, Anderson T, Miller B. The overlap of amyotrophic lateral sclerosis and frontotemporal dementia. Neurology. 2002;59(7):1077-1079.
    • (2002) Neurology , vol.59 , Issue.7 , pp. 1077-1079
    • Lomen-Hoerth, C.1    Anderson, T.2    Miller, B.3
  • 49
    • 0031672540 scopus 로고    scopus 로고
    • Frontotemporal lobar degeneration: A consensus on clinical diagnostic criteria
    • Neary D, Snowden JS, Gustafson L, et al. Frontotemporal lobar degeneration: a consensus on clinical diagnostic criteria. Neurology. 1998;51(6):1546-1554.
    • (1998) Neurology , vol.51 , Issue.6 , pp. 1546-1554
    • Neary, D.1    Snowden, J.S.2    Gustafson, L.3
  • 50
    • 33645065912 scopus 로고    scopus 로고
    • The effects of executive and behavioral dysfunction on the course of ALS
    • Olney RK, Murphy J, Forshew D, et al. The effects of executive and behavioral dysfunction on the course of ALS. Neurology. 2005;65(11):1774-1777.
    • (2005) Neurology , vol.65 , Issue.11 , pp. 1774-1777
    • Olney, R.K.1    Murphy, J.2    Forshew, D.3
  • 52
    • 0033594347 scopus 로고    scopus 로고
    • ALS practice Parameters Task Force. Practice parameter: An evidence-based review
    • Miller RG, Rosenberg JA, Gelinas DF, et al; ALS practice Parameters Task Force. Practice parameter: an evidence-based review. Neurology. 1999;52(7):1311-1323.
    • (1999) Neurology , vol.52 , Issue.7 , pp. 1311-1323
    • Miller, R.G.1    Rosenberg, J.A.2    Gelinas, D.F.3
  • 54
    • 0141614836 scopus 로고    scopus 로고
    • Percutaneous endoscopic gastrostomy (PEG) in patients with ALS and bulbar dysfunction
    • Mitsumoto H, Davidson M, Moore D, et al. Percutaneous endoscopic gastrostomy (PEG) in patients with ALS and bulbar dysfunction. Amyotroph Lateral Scler Other Motor Neuron Disord. 2003;4(3):177-185.
    • (2003) Amyotroph Lateral Scler Other Motor Neuron Disord , vol.4 , Issue.3 , pp. 177-185
    • Mitsumoto, H.1    Davidson, M.2    Moore, D.3
  • 55
    • 0028845946 scopus 로고
    • Percutaneous endoscopic gastrostomy and enteral nutrition in amyotrophic lateral sclerosis
    • Mazzini L, Corra T, Zaccala M, Mora G, Del Piano M, Galante M. Percutaneous endoscopic gastrostomy and enteral nutrition in amyotrophic lateral sclerosis. J Neurol. 1995;242(10):695-698.
    • (1995) J Neurol , vol.242 , Issue.10 , pp. 695-698
    • Mazzini, L.1    Corra, T.2    Zaccala, M.3    Mora, G.4    Del Piano, M.5    Galante, M.6
  • 56
    • 34447310920 scopus 로고    scopus 로고
    • The use of maximal inspiratory pressure (MIP) as an indicator for early initiation of NIPPV in ALS patients
    • Simpson EP, Gonzalez M, Rosenfield D, Pleitez M, Appel S. The use of maximal inspiratory pressure (MIP) as an indicator for early initiation of NIPPV in ALS patients. Amyotroph Lateral Scler. 2006;7(suppl 1):64.
    • (2006) Amyotroph Lateral Scler , vol.7 , Issue.SUPPL. 1 , pp. 64
    • Simpson, E.P.1    Gonzalez, M.2    Rosenfield, D.3    Pleitez, M.4    Appel, S.5
  • 57
    • 0034784364 scopus 로고    scopus 로고
    • Respiratory muscle strength and ventilatory failure in amyotrophic lateral sclerosis
    • Lyall RA, Donaldson N, Polkey MI, Leigh PN, Moxham J. Respiratory muscle strength and ventilatory failure in amyotrophic lateral sclerosis. Brain. 2001;124 (pt 10):2000-2013.
    • (2001) Brain , vol.124 , Issue.PART 10 , pp. 2000-2013
    • Lyall, R.A.1    Donaldson, N.2    Polkey, M.I.3    Leigh, P.N.4    Moxham, J.5
  • 58
    • 30844439854 scopus 로고    scopus 로고
    • Effects of non-invasive ventilation on survival and quality of life in patients with amyotrophic lateral sclerosis: A randomised controlled trial
    • Bourke SC, Tomlinson M, Williams TL, Bullock RE, Shaw PJ, Gibson GJ. Effects of non-invasive ventilation on survival and quality of life in patients with amyotrophic lateral sclerosis: a randomised controlled trial. Lancet Neurol. 2006;5(2):140-147.
    • (2006) Lancet Neurol , vol.5 , Issue.2 , pp. 140-147
    • Bourke, S.C.1    Tomlinson, M.2    Williams, T.L.3    Bullock, R.E.4    Shaw, P.J.5    Gibson, G.J.6
  • 59
    • 33646671515 scopus 로고    scopus 로고
    • The effect of noninvasive ventilation on ALS patients and their caregivers
    • Mustfa N, Walsh E, Bryant V, et al. The effect of noninvasive ventilation on ALS patients and their caregivers. Neurology. 2006;66(8):1211-1217.
    • (2006) Neurology , vol.66 , Issue.8 , pp. 1211-1217
    • Mustfa, N.1    Walsh, E.2    Bryant, V.3
  • 60
    • 0035838372 scopus 로고    scopus 로고
    • A prospective study of quality of life in ALS patients treated with noninvasive ventilation
    • Lyall RA, Donaldson N, Fleming T, et al. A prospective study of quality of life in ALS patients treated with noninvasive ventilation. Neurology. 2001;57(1):153-156.
    • (2001) Neurology , vol.57 , Issue.1 , pp. 153-156
    • Lyall, R.A.1    Donaldson, N.2    Fleming, T.3
  • 61
    • 0031705722 scopus 로고    scopus 로고
    • Mechanical ventilation in amyotrophic lateral sclerosis: A cross-cultural perspective
    • Borasio GD, Gelinas DF, Yanagisawa N. Mechanical ventilation in amyotrophic lateral sclerosis: a cross-cultural perspective. J Neurol. 1998;245(suppl 2):S7-S12.
    • (1998) J Neurol , vol.245 , Issue.SUPPL. 2
    • Borasio, G.D.1    Gelinas, D.F.2    Yanagisawa, N.3
  • 62
    • 1642458586 scopus 로고    scopus 로고
    • Supporting family caregivers at the end of life
    • Rabow MW, Hauser J, Adams J. Supporting family caregivers at the end of life. JAMA. 2004;291(4):483-491.
    • (2004) JAMA , vol.291 , Issue.4 , pp. 483-491
    • Rabow, M.W.1    Hauser, J.2    Adams, J.3
  • 63
    • 18844394047 scopus 로고    scopus 로고
    • Caregiver burden and patients' perception of being a burden in ALS
    • Chiò A, Gauthier A, Calvo A, Ghiglione P, Mutani R. Caregiver burden and patients' perception of being a burden in ALS. Neurology. 2005;64(10):1780-1782.
    • (2005) Neurology , vol.64 , Issue.10 , pp. 1780-1782
    • Chiò, A.1    Gauthier, A.2    Calvo, A.3    Ghiglione, P.4    Mutani, R.5
  • 64
    • 0034326250 scopus 로고    scopus 로고
    • Attributions, strain and depression in carers of partners with MND: A preliminary investigation
    • Goldstein LH, Adamson M, Barby T, Down K, Leigh N. Attributions, strain and depression in carers of partners with MND: A preliminary investigation. J Neurol Sci. 2000;180(1-2):101-106.
    • (2000) J Neurol Sci , vol.180 , Issue.1-2 , pp. 101-106
    • Goldstein, L.H.1    Adamson, M.2    Barby, T.3    Down, K.4    Leigh, N.5
  • 65
    • 0030710981 scopus 로고    scopus 로고
    • Home care of patients with amyotrophic lateral sclerosis (ALS)
    • Krivickas LS, Shockley L, Mitsumoto H. Home care of patients with amyotrophic lateral sclerosis (ALS). J Neurol Sci. 1997;152(suppl 1):S82-S89.
    • (1997) J Neurol Sci , vol.152 , Issue.SUPPL. 1
    • Krivickas, L.S.1    Shockley, L.2    Mitsumoto, H.3
  • 66
    • 33646750919 scopus 로고    scopus 로고
    • Predictors of psychological distress in carers of people with amyotrophic lateral sclerosis: A longitudinal study
    • Goldstein LH, Atkins L, Landau S, Brown R, Leigh P. Predictors of psychological distress in carers of people with amyotrophic lateral sclerosis: a longitudinal study. Psychol Med. 2006;36(6):865-875.
    • (2006) Psychol Med , vol.36 , Issue.6 , pp. 865-875
    • Goldstein, L.H.1    Atkins, L.2    Landau, S.3    Brown, R.4    Leigh, P.5
  • 67
    • 0034085727 scopus 로고    scopus 로고
    • Resilience and distress among amyotrophic lateral sclerosis patients and caregivers
    • Rabkin JG, Wagner G, Del Bene M. Resilience and distress among amyotrophic lateral sclerosis patients and caregivers. Psychosom Med. 2000;62(2):271-279.
    • (2000) Psychosom Med , vol.62 , Issue.2 , pp. 271-279
    • Rabkin, J.G.1    Wagner, G.2    Del Bene, M.3
  • 68
    • 3142719719 scopus 로고    scopus 로고
    • Impact of the cancer patients' quality of life on that of spouse caregivers
    • Chen ML, Chu L, Chen HC. Impact of the cancer patients' quality of life on that of spouse caregivers. Support Care Cancer. 2004;12(7):469-475.
    • (2004) Support Care Cancer , vol.12 , Issue.7 , pp. 469-475
    • Chen, M.L.1    Chu, L.2    Chen, H.C.3
  • 69
    • 0033566899 scopus 로고    scopus 로고
    • Determinants of caregiving experiences and mental health of partners of cancer patients
    • Nijboer C, Triemstra M, Tempelaar R, Sanderman R, van den Bos G. Determinants of caregiving experiences and mental health of partners of cancer patients. Cancer. 1999;86(4):577-588.
    • (1999) Cancer , vol.86 , Issue.4 , pp. 577-588
    • Nijboer, C.1    Triemstra, M.2    Tempelaar, R.3    Sanderman, R.4    van den Bos, G.5
  • 70
    • 33745085245 scopus 로고    scopus 로고
    • Predictors and course of elective long-term mechanical ventilation: A prospective study of ALS patients
    • Rabkin JG, Albert SM, Tider T, et al. Predictors and course of elective long-term mechanical ventilation: a prospective study of ALS patients. Amyotroph Lateral Scler. 2006;7(2):86-95.
    • (2006) Amyotroph Lateral Scler , vol.7 , Issue.2 , pp. 86-95
    • Rabkin, J.G.1    Albert, S.M.2    Tider, T.3
  • 71
    • 4043072487 scopus 로고    scopus 로고
    • Burnout and symptoms of stress in staff working in palliative care
    • Chochinov H, Breitbart W, eds, New York, NY: Oxford University Press;
    • Vachon ML. Burnout and symptoms of stress in staff working in palliative care. In: Chochinov H, Breitbart W, eds. Handbook of Psychiatry in Palliative Medicine. New York, NY: Oxford University Press; 303-319.
    • Handbook of Psychiatry in Palliative Medicine , pp. 303-319
    • Vachon, M.L.1
  • 72
    • 34247230774 scopus 로고    scopus 로고
    • Palliative care at the end of life
    • Mitsumoto H, Przedborski S, Gordon P, eds, New York, NY: Taylor & Francis;
    • Sykes NP. Palliative care at the end of life. In: Mitsumoto H, Przedborski S, Gordon P, eds. Amyotrophic Lateral Sclerosis. New York, NY: Taylor & Francis; 2006:783-797.
    • (2006) Amyotrophic Lateral Sclerosis , pp. 783-797
    • Sykes, N.P.1
  • 73
    • 0030687901 scopus 로고    scopus 로고
    • End of life decisions in amyotrophic lateral sclerosis: A cross-cultural perspective
    • Smyth A, Riedl M, Kimura R, Olick R, Siegler M. End of life decisions in amyotrophic lateral sclerosis: a cross-cultural perspective. J Neurol Sci. 1997;152(suppl 1):S93-S96.
    • (1997) J Neurol Sci , vol.152 , Issue.SUPPL. 1
    • Smyth, A.1    Riedl, M.2    Kimura, R.3    Olick, R.4    Siegler, M.5
  • 74
    • 0034924952 scopus 로고    scopus 로고
    • The course of the terminal phase in patients with amyotrophic lateral sclerosis
    • Neudert C, Oliver D, Wasner M, Borasio G. The course of the terminal phase in patients with amyotrophic lateral sclerosis. J Neurol. 2001;248(7):612-616.
    • (2001) J Neurol , vol.248 , Issue.7 , pp. 612-616
    • Neudert, C.1    Oliver, D.2    Wasner, M.3    Borasio, G.4
  • 75
    • 34447315099 scopus 로고    scopus 로고
    • The long-term communication strategy in patients with TPPV throughout the total course of ALS
    • Hayashi H. The long-term communication strategy in patients with TPPV throughout the total course of ALS. Amyotroph Lateral Scler. 2006;7(suppl 1):25-26.
    • (2006) Amyotroph Lateral Scler , vol.7 , Issue.SUPPL. 1 , pp. 25-26
    • Hayashi, H.1
  • 76
    • 0027534664 scopus 로고
    • Home ventilation for amyotrophic lateral sclerosis patients: Outcomes, costs and patient, family and physician attitudes
    • Moss AH, Casey P, Stocking CB, et al. Home ventilation for amyotrophic lateral sclerosis patients: outcomes, costs and patient, family and physician attitudes. Neurology. 1993;43(2):438-443.
    • (1993) Neurology , vol.43 , Issue.2 , pp. 438-443
    • Moss, A.H.1    Casey, P.2    Stocking, C.B.3
  • 77
    • 0029893212 scopus 로고    scopus 로고
    • Patients with amyotrophic lateral sclerosis receiving long-term mechanical ventilation
    • Moss AH, Oppenheimer EA, Casey P, et al. Patients with amyotrophic lateral sclerosis receiving long-term mechanical ventilation. Chest. 1996;110(1):249-255.
    • (1996) Chest , vol.110 , Issue.1 , pp. 249-255
    • Moss, A.H.1    Oppenheimer, E.A.2    Casey, P.3
  • 78
    • 0141646530 scopus 로고    scopus 로고
    • Quality of life and psychosocial issues in ventilated patients with amyotrophic lateral sclerosis and their caregivers
    • Kaub-Wittemer D, Steinbuchel N, Wasner M, Laier-Groeneveld G, Borasio G. Quality of life and psychosocial issues in ventilated patients with amyotrophic lateral sclerosis and their caregivers. J Pain Symptom Manage. 2003;26(4):890-896.
    • (2003) J Pain Symptom Manage , vol.26 , Issue.4 , pp. 890-896
    • Kaub-Wittemer, D.1    Steinbuchel, N.2    Wasner, M.3    Laier-Groeneveld, G.4    Borasio, G.5
  • 79
    • 0033595270 scopus 로고    scopus 로고
    • A prospective study of preferences and actual treatment choices in amyotrophic lateral sclerosis
    • Albert SM, Murphy PL, Del Bene M, Rowland L. A prospective study of preferences and actual treatment choices in amyotrophic lateral sclerosis. Neurology. 1999;53(2):278-283.
    • (1999) Neurology , vol.53 , Issue.2 , pp. 278-283
    • Albert, S.M.1    Murphy, P.L.2    Del Bene, M.3    Rowland, L.4
  • 80
    • 0037018496 scopus 로고    scopus 로고
    • Understanding the treatment preferences of seriously ill patients
    • Fried TR, Bradley EH, Towle VR, Allore H. Understanding the treatment preferences of seriously ill patients. N Engl J Med. 2002;346(14):1061- 1066.
    • (2002) N Engl J Med , vol.346 , Issue.14 , pp. 1061-1066
    • Fried, T.R.1    Bradley, E.H.2    Towle, V.R.3    Allore, H.4
  • 81
    • 0030921253 scopus 로고    scopus 로고
    • Validation of preferences for life-sustaining treatment: Implications for advance care planning
    • Patrick DL, Pearlman R, Starks H, Cain K, Cole W, Uhlman R. Validation of preferences for life-sustaining treatment: implications for advance care planning. Ann Intern Med. 1997;127(7):509-517.
    • (1997) Ann Intern Med , vol.127 , Issue.7 , pp. 509-517
    • Patrick, D.L.1    Pearlman, R.2    Starks, H.3    Cain, K.4    Cole, W.5    Uhlman, R.6
  • 82
    • 0037018501 scopus 로고    scopus 로고
    • Autonomy reconsidered [editorial]
    • Meier DE, Morrison RS. Autonomy reconsidered [editorial]. N Engl J Med. 2002;346(14):1087-1089.
    • (2002) N Engl J Med , vol.346 , Issue.14 , pp. 1087-1089
    • Meier, D.E.1    Morrison, R.S.2
  • 83
    • 34447311465 scopus 로고    scopus 로고
    • Individual ALS care in the Japanese "Nanbyo" care model: Comparison with palliative care approaches in achieving best quality of life
    • Nakajima T. Individual ALS care in the Japanese "Nanbyo" care model: Comparison with palliative care approaches in achieving best quality of life. Amyotroph Lateral Scler. 2006;7(suppl 1):45.
    • (2006) Amyotroph Lateral Scler , vol.7 , Issue.SUPPL. 1 , pp. 45
    • Nakajima, T.1
  • 84
    • 0031723945 scopus 로고    scopus 로고
    • Quality of life for ventilator-dependent patients and their caregivers
    • Gelinas DF, O'Connor P, Miller R. Quality of life for ventilator-dependent patients and their caregivers. J Neurol Sci. 1998;160(suppl 1):S134-S136.
    • (1998) J Neurol Sci , vol.160 , Issue.SUPPL. 1
    • Gelinas, D.F.1    O'Connor, P.2    Miller, R.3
  • 85
    • 26444493572 scopus 로고    scopus 로고
    • Palliative sedation in dying patients
    • Lo B, Rubenfeld G. Palliative sedation in dying patients. JAMA. 2005;294(14):1810-1816.
    • (2005) JAMA , vol.294 , Issue.14 , pp. 1810-1816
    • Lo, B.1    Rubenfeld, G.2
  • 86
    • 0035925227 scopus 로고    scopus 로고
    • Serving patients who may die soon and their families: The role of hospice and other services
    • Lynn J. Serving patients who may die soon and their families: the role of hospice and other services. JAMA. 2001;285(7):925-932.
    • (2001) JAMA , vol.285 , Issue.7 , pp. 925-932
    • Lynn, J.1
  • 87
    • 0034668805 scopus 로고    scopus 로고
    • Initiating end-of-life discussions with seriously ill patients: Addressing the elephant in the room
    • Quill TE. Initiating end-of-life discussions with seriously ill patients: addressing the "elephant in the room." JAMA. 2000;284(19):2502-2507.
    • (2000) JAMA , vol.284 , Issue.19 , pp. 2502-2507
    • Quill, T.E.1
  • 88
    • 22044449517 scopus 로고    scopus 로고
    • Exit strategies in ALS: An influence of depression or despair? [editorial]
    • Olney RK, Lomen-Hoarth C. Exit strategies in ALS: an influence of depression or despair? [editorial]. Neurology. 2005;65(1):9-10.
    • (2005) Neurology , vol.65 , Issue.1 , pp. 9-10
    • Olney, R.K.1    Lomen-Hoarth, C.2
  • 89
    • 22044450953 scopus 로고    scopus 로고
    • Wish to die in end-stage ALS
    • Albert SM, Rabkin J, Del Bene M, et al. Wish to die in end-stage ALS. Neurology. 2005;65(1):68-74.
    • (2005) Neurology , vol.65 , Issue.1 , pp. 68-74
    • Albert, S.M.1    Rabkin, J.2    Del Bene, M.3
  • 90
    • 34447305831 scopus 로고    scopus 로고
    • End-of-Life decision making
    • Mitsumoto H, Przedborski S, Gordon P, eds, New York, NY: Taylor & Francis;
    • Ganzini L, Johnston W. End-of-Life decision making. In: Mitsumoto H, Przedborski S, Gordon P, eds. Amyotrophic Lateral Sclerosis. New York, NY: Taylor & Francis; 2005:811-824.
    • (2005) Amyotrophic Lateral Sclerosis , pp. 811-824
    • Ganzini, L.1    Johnston, W.2
  • 91
    • 0037014573 scopus 로고    scopus 로고
    • Responding to requests for physician-assisted suicide
    • Bascom PB, Tolle S. Responding to requests for physician-assisted suicide. JAMA. 2002;288(1):91-99.
    • (2002) JAMA , vol.288 , Issue.1 , pp. 91-99
    • Bascom, P.B.1    Tolle, S.2
  • 92
    • 34447315349 scopus 로고    scopus 로고
    • Rabkin JG, Remien R, Wilson C. Good Doctors, Good Patients: Partners in HIV Treatment. New York, NY: NCM; 1995.
    • Rabkin JG, Remien R, Wilson C. Good Doctors, Good Patients: Partners in HIV Treatment. New York, NY: NCM; 1995.


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.