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Volumn 26, Issue 6, 2012, Pages 842-850

Motor Neurone Disease family carers' experiences of caring, palliative care and bereavement: An exploratory qualitative study

Author keywords

Amyotrophic Lateral Sclerosis; bereavement; coping behaviour; family caregivers; Motor Neurone Disease; palliative care; qualitative research; Western Australia

Indexed keywords

ADULT; AGED; ARTICLE; AUSTRALIA; BEREAVEMENT; CAREGIVER; CAREGIVER BURDEN; CAREGIVER SUPPORT; CLINICAL ARTICLE; COPING BEHAVIOR; EMOTIONAL DISORDER; EXPERIENCE; FEMALE; GRIEF; HEALTH CARE AVAILABILITY; HUMAN; MALE; MOTOR NEURON DISEASE; PALLIATIVE THERAPY; QUALITATIVE RESEARCH;

EID: 84859984906     PISSN: 02692163     EISSN: 1477030X     Source Type: Journal    
DOI: 10.1177/0269216311416036     Document Type: Article
Times cited : (91)

References (35)
  • 1
    • 0038545193 scopus 로고    scopus 로고
    • Mapping the journey: Family carers' perceptions of issues related to end-stage care of individuals with Muscular Dystrophy or Motor Neurone Disease
    • Dawson S, Kristjanson L. Mapping the journey: family carers' perceptions of issues related to end-stage care of individuals with Muscular Dystrophy or Motor Neurone Disease. J Palliat Care. 2003 ; 19: 36-42
    • (2003) J Palliat Care , vol.19 , pp. 36-42
    • Dawson, S.1    Kristjanson, L.2
  • 4
    • 0141646530 scopus 로고    scopus 로고
    • Quality of life and psychosocial issues in ventilated patients with amyotrophic lateral sclerosis and their caregivers
    • Kaub-Wittemer D, Von Steinbuchel N, Wasner M, Laier-Groeneveld G, Borasio GD. Quality of life and psychosocial issues in ventilated patients with amyotrophic lateral sclerosis and their caregivers. J Pain Symptom Manage. 2003 ; 26: 890-896
    • (2003) J Pain Symptom Manage , vol.26 , pp. 890-896
    • Kaub-Wittemer, D.1    Von Steinbuchel, N.2    Wasner, M.3    Laier-Groeneveld, G.4    Borasio, G.D.5
  • 5
    • 33846858359 scopus 로고    scopus 로고
    • The challenges and unmet needs of people with neurodegenerative conditions and their carers
    • Aoun S, Kristjanson L, Oldham L. The challenges and unmet needs of people with neurodegenerative conditions and their carers. J Community Nurses. 2006 ; 11: 17-20
    • (2006) J Community Nurses , vol.11 , pp. 17-20
    • Aoun, S.1    Kristjanson, L.2    Oldham, L.3
  • 7
    • 0037447741 scopus 로고    scopus 로고
    • A study comparing patients with amyotrophic lateral sclerosis and their caregivers on measures of quality of life, depression, and their attitudes toward treatment options
    • Trail M, Nelson ND, Van JN, Appel SH, Lai EC. A study comparing patients with amyotrophic lateral sclerosis and their caregivers on measures of quality of life, depression, and their attitudes toward treatment options. J Neurol Sci. 2003 ; 209: 79-85
    • (2003) J Neurol Sci , vol.209 , pp. 79-85
    • Trail, M.1    Nelson, N.D.2    Van, J.3    Appel, S.H.4    Lai, E.C.5
  • 8
    • 33749506040 scopus 로고    scopus 로고
    • Are supportive services meeting the needs of Australians with neurodegenerative conditions and their families?
    • Kristjanson L, Aoun S, Yates P. Are supportive services meeting the needs of Australians with neurodegenerative conditions and their families?. J Palliat Care. 2006 ; 22: 151-157
    • (2006) J Palliat Care , vol.22 , pp. 151-157
    • Kristjanson, L.1    Aoun, S.2    Yates, P.3
  • 9
    • 34248346415 scopus 로고    scopus 로고
    • Supportive and palliative care needs of individuals with neurodegenerative conditions and their family carers
    • Kristjanson L, Aoun S, Oldham L. Supportive and palliative care needs of individuals with neurodegenerative conditions and their family carers. Int J Palliat Nurs. 2006 ; 12: 368-377
    • (2006) Int J Palliat Nurs , vol.12 , pp. 368-377
    • Kristjanson, L.1    Aoun, S.2    Oldham, L.3
  • 10
    • 0033675585 scopus 로고    scopus 로고
    • The ALS Health Profile Study: Quality of life of amyotrophic lateral sclerosis patients and carers in Europe
    • Jenkinson C, Fitzpatrick R, Swash M, Peto V. The ALS Health Profile Study: quality of life of amyotrophic lateral sclerosis patients and carers in Europe. J Neurol. 2000 ; 247: 835-840
    • (2000) J Neurol , vol.247 , pp. 835-840
    • Jenkinson, C.1    Fitzpatrick, R.2    Swash, M.3    Peto, V.4
  • 12
    • 0035738295 scopus 로고    scopus 로고
    • Lasting impact in families after death from ALS
    • Martin J, Turnbull J. Lasting impact in families after death from ALS. Amyotroph Lateral Scler. 2001 ; 2: 181-187
    • (2001) Amyotroph Lateral Scler , vol.2 , pp. 181-187
    • Martin, J.1    Turnbull, J.2
  • 13
    • 77954435978 scopus 로고    scopus 로고
    • Caregivers of people with neurodegenerative diseases: Profile and unmet needs from a population-based survey in South Australia
    • Aoun S, McConigley R, Abernethy A, Currow DC. Caregivers of people with neurodegenerative diseases: profile and unmet needs from a population-based survey in South Australia. J Palliat Med. 2010 ; 13: 653-661
    • (2010) J Palliat Med , vol.13 , pp. 653-661
    • Aoun, S.1    McConigley, R.2    Abernethy, A.3    Currow, D.C.4
  • 14
    • 0037273016 scopus 로고    scopus 로고
    • What is the best way to help care givers in cancer and palliative care? A systematic literature review of interventions and their effectiveness
    • Harding R, Higginson IJ. What is the best way to help care givers in cancer and palliative care? A systematic literature review of interventions and their effectiveness. Palliat Med. 2003 ; 17: 63-74
    • (2003) Palliat Med , vol.17 , pp. 63-74
    • Harding, R.1    Higginson, I.J.2
  • 15
    • 77951839649 scopus 로고    scopus 로고
    • Meeting the needs of family carers: An evaluation of three home-based palliative care services in Australia
    • Thomas K, Hudson P, Oldham L, Kelly B, Trauer T. Meeting the needs of family carers: an evaluation of three home-based palliative care services in Australia. Palliat Med. 2010 ; 24: 183-191
    • (2010) Palliat Med , vol.24 , pp. 183-191
    • Thomas, K.1    Hudson, P.2    Oldham, L.3    Kelly, B.4    Trauer, T.5
  • 16
    • 0030710981 scopus 로고    scopus 로고
    • Home care of patients with amyotrophic lateral sclerosis (ALS)
    • Krivickas LS, Shockley L, Mitsumoto H. Home care of patients with amyotrophic lateral sclerosis (ALS). J Neurol Sci. 1997 ; 152: 82-89
    • (1997) J Neurol Sci , vol.152 , pp. 82-89
    • Krivickas, L.S.1    Shockley, L.2    Mitsumoto, H.3
  • 17
    • 0036701604 scopus 로고    scopus 로고
    • Palliative care: The World Health Organization's global perspective
    • Seplveda C, Marlin A, Yoshida T, Ullrich A. Palliative care: the World Health Organization's global perspective. J Pain Symptom Manage. 2002 ; 24: 91-96
    • (2002) J Pain Symptom Manage , vol.24 , pp. 91-96
    • Seplveda, C.1    Marlin, A.2    Yoshida, T.3    Ullrich, A.4
  • 18
    • 36549007003 scopus 로고    scopus 로고
    • Health outcomes of bereavement
    • Stroebe M, Schut H, Stroebe W. Health outcomes of bereavement. Lancet. 2007 ; 370: 1960-1973
    • (2007) Lancet , vol.370 , pp. 1960-1973
    • Stroebe, M.1    Schut, H.2    Stroebe, W.3
  • 20
    • 33748542338 scopus 로고    scopus 로고
    • The prediction of bereavement outcome: Development of an integrative risk factor framework
    • Stroebe MS, Folkman S, Hansson RO, Schut H. The prediction of bereavement outcome: development of an integrative risk factor framework. Soc Sci Med. 2006 ; 63: 2440-2451
    • (2006) Soc Sci Med , vol.63 , pp. 2440-2451
    • Stroebe, M.S.1    Folkman, S.2    Hansson, R.O.3    Schut, H.4
  • 21
    • 63149148765 scopus 로고    scopus 로고
    • Bereavement help-seeking following an 'expected' death: A cross-sectional randomised face-to-face population survey
    • (accessed September 2010)
    • CurrowDCAllenKPlummerLAounSHegartyMAbernethyAP. Bereavement help-seeking following an 'expected' death: a cross-sectional randomised face-to-face population survey. BMC Palliat Care2008; 7: available from: http://www. biomedcentral.com/1472-684X/7/19 (accessed September 2010)
    • (2008) BMC Palliat Care , vol.7
    • Currow, D.C.1    Allen, K.2    Plummer, L.3    Aoun, S.4    Hegarty, M.5    Abernethy, A.P.6
  • 24
    • 41549111991 scopus 로고    scopus 로고
    • Identifying and responding to ethical and methodological issues in after-death interviews with next-of-kin
    • Williams BR, Woodby LL, Bailey FA, Burgio KL. Identifying and responding to ethical and methodological issues in after-death interviews with next-of-kin. Death Stud. 2008 ; 32: 197-236
    • (2008) Death Stud , vol.32 , pp. 197-236
    • Williams, B.R.1    Woodby, L.L.2    Bailey, F.A.3    Burgio, K.L.4
  • 27
    • 63549150786 scopus 로고    scopus 로고
    • Informal carer bereavement outcome: Relation to quality of end of life support and achievement of preferred place of death
    • Grande GE, Ewing G. Informal carer bereavement outcome: relation to quality of end of life support and achievement of preferred place of death. Palliat Med. 2009 ; 23: 248-256
    • (2009) Palliat Med , vol.23 , pp. 248-256
    • Grande, G.E.1    Ewing, G.2
  • 29
    • 49149089115 scopus 로고    scopus 로고
    • The nature and use of bereavement support services in a hospice setting
    • Roberts A, McGilloway S. The nature and use of bereavement support services in a hospice setting. Palliat Med. 2008 ; 22: 612-625
    • (2008) Palliat Med , vol.22 , pp. 612-625
    • Roberts, A.1    McGilloway, S.2
  • 31
    • 34748875343 scopus 로고    scopus 로고
    • Clinical practice guidelines for communicating prognosis and end-of-life issues with adults in the advanced stages of a life-limiting illness and their caregivers
    • Clayton JM, Hancock KM, Butow PN, Tattersall MHN, Currow DC. Clinical practice guidelines for communicating prognosis and end-of-life issues with adults in the advanced stages of a life-limiting illness and their caregivers. Med J Aust. 2007 ; 186: s77 - s108
    • (2007) Med J Aust , vol.186
    • Clayton, J.M.1    Hancock, K.M.2    Butow, P.N.3    Tattersall, M.H.N.4    Currow, D.C.5
  • 33
    • 0035754729 scopus 로고    scopus 로고
    • Interviews with patients, family, and caregivers in amytrophic lateral sclerosis: Comparing needs
    • Bolmsjo I, Hermeren G. Interviews with patients, family, and caregivers in amytrophic lateral sclerosis: comparing needs. J Palliat Care. 2001 ; 17: 236-240
    • (2001) J Palliat Care , vol.17 , pp. 236-240
    • Bolmsjo, I.1    Hermeren, G.2
  • 34
    • 0033588967 scopus 로고    scopus 로고
    • Breaking bad news: Explaining cancer diagnosis and prognosis
    • Maguire GP. Breaking bad news: explaining cancer diagnosis and prognosis. Med J Aust. 1999 ; 171: 288-289
    • (1999) Med J Aust , vol.171 , pp. 288-289
    • Maguire, G.P.1


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.