-
1
-
-
0038545193
-
Mapping the journey: Family carers' perceptions of issues related to end-stage care of individuals with Muscular Dystrophy or Motor Neurone Disease
-
Dawson S, Kristjanson L. Mapping the journey: family carers' perceptions of issues related to end-stage care of individuals with Muscular Dystrophy or Motor Neurone Disease. J Palliat Care. 2003 ; 19: 36-42
-
(2003)
J Palliat Care
, vol.19
, pp. 36-42
-
-
Dawson, S.1
Kristjanson, L.2
-
4
-
-
0141646530
-
Quality of life and psychosocial issues in ventilated patients with amyotrophic lateral sclerosis and their caregivers
-
Kaub-Wittemer D, Von Steinbuchel N, Wasner M, Laier-Groeneveld G, Borasio GD. Quality of life and psychosocial issues in ventilated patients with amyotrophic lateral sclerosis and their caregivers. J Pain Symptom Manage. 2003 ; 26: 890-896
-
(2003)
J Pain Symptom Manage
, vol.26
, pp. 890-896
-
-
Kaub-Wittemer, D.1
Von Steinbuchel, N.2
Wasner, M.3
Laier-Groeneveld, G.4
Borasio, G.D.5
-
5
-
-
33846858359
-
The challenges and unmet needs of people with neurodegenerative conditions and their carers
-
Aoun S, Kristjanson L, Oldham L. The challenges and unmet needs of people with neurodegenerative conditions and their carers. J Community Nurses. 2006 ; 11: 17-20
-
(2006)
J Community Nurses
, vol.11
, pp. 17-20
-
-
Aoun, S.1
Kristjanson, L.2
Oldham, L.3
-
7
-
-
0037447741
-
A study comparing patients with amyotrophic lateral sclerosis and their caregivers on measures of quality of life, depression, and their attitudes toward treatment options
-
Trail M, Nelson ND, Van JN, Appel SH, Lai EC. A study comparing patients with amyotrophic lateral sclerosis and their caregivers on measures of quality of life, depression, and their attitudes toward treatment options. J Neurol Sci. 2003 ; 209: 79-85
-
(2003)
J Neurol Sci
, vol.209
, pp. 79-85
-
-
Trail, M.1
Nelson, N.D.2
Van, J.3
Appel, S.H.4
Lai, E.C.5
-
8
-
-
33749506040
-
Are supportive services meeting the needs of Australians with neurodegenerative conditions and their families?
-
Kristjanson L, Aoun S, Yates P. Are supportive services meeting the needs of Australians with neurodegenerative conditions and their families?. J Palliat Care. 2006 ; 22: 151-157
-
(2006)
J Palliat Care
, vol.22
, pp. 151-157
-
-
Kristjanson, L.1
Aoun, S.2
Yates, P.3
-
9
-
-
34248346415
-
Supportive and palliative care needs of individuals with neurodegenerative conditions and their family carers
-
Kristjanson L, Aoun S, Oldham L. Supportive and palliative care needs of individuals with neurodegenerative conditions and their family carers. Int J Palliat Nurs. 2006 ; 12: 368-377
-
(2006)
Int J Palliat Nurs
, vol.12
, pp. 368-377
-
-
Kristjanson, L.1
Aoun, S.2
Oldham, L.3
-
10
-
-
0033675585
-
The ALS Health Profile Study: Quality of life of amyotrophic lateral sclerosis patients and carers in Europe
-
Jenkinson C, Fitzpatrick R, Swash M, Peto V. The ALS Health Profile Study: quality of life of amyotrophic lateral sclerosis patients and carers in Europe. J Neurol. 2000 ; 247: 835-840
-
(2000)
J Neurol
, vol.247
, pp. 835-840
-
-
Jenkinson, C.1
Fitzpatrick, R.2
Swash, M.3
Peto, V.4
-
11
-
-
0038339564
-
Burden of care in amyotrophic lateral sclerosis
-
Hecht MJ, Graesel E, Tigges S, Hillemacher T, Winterholler M, Hilz MJ. Burden of care in amyotrophic lateral sclerosis. J Palliat Med. 2003 ; 17: 327-333
-
(2003)
J Palliat Med
, vol.17
, pp. 327-333
-
-
Hecht, M.J.1
Graesel, E.2
Tigges, S.3
Hillemacher, T.4
Winterholler, M.5
Hilz, M.J.6
-
12
-
-
0035738295
-
Lasting impact in families after death from ALS
-
Martin J, Turnbull J. Lasting impact in families after death from ALS. Amyotroph Lateral Scler. 2001 ; 2: 181-187
-
(2001)
Amyotroph Lateral Scler
, vol.2
, pp. 181-187
-
-
Martin, J.1
Turnbull, J.2
-
13
-
-
77954435978
-
Caregivers of people with neurodegenerative diseases: Profile and unmet needs from a population-based survey in South Australia
-
Aoun S, McConigley R, Abernethy A, Currow DC. Caregivers of people with neurodegenerative diseases: profile and unmet needs from a population-based survey in South Australia. J Palliat Med. 2010 ; 13: 653-661
-
(2010)
J Palliat Med
, vol.13
, pp. 653-661
-
-
Aoun, S.1
McConigley, R.2
Abernethy, A.3
Currow, D.C.4
-
14
-
-
0037273016
-
What is the best way to help care givers in cancer and palliative care? A systematic literature review of interventions and their effectiveness
-
Harding R, Higginson IJ. What is the best way to help care givers in cancer and palliative care? A systematic literature review of interventions and their effectiveness. Palliat Med. 2003 ; 17: 63-74
-
(2003)
Palliat Med
, vol.17
, pp. 63-74
-
-
Harding, R.1
Higginson, I.J.2
-
15
-
-
77951839649
-
Meeting the needs of family carers: An evaluation of three home-based palliative care services in Australia
-
Thomas K, Hudson P, Oldham L, Kelly B, Trauer T. Meeting the needs of family carers: an evaluation of three home-based palliative care services in Australia. Palliat Med. 2010 ; 24: 183-191
-
(2010)
Palliat Med
, vol.24
, pp. 183-191
-
-
Thomas, K.1
Hudson, P.2
Oldham, L.3
Kelly, B.4
Trauer, T.5
-
16
-
-
0030710981
-
Home care of patients with amyotrophic lateral sclerosis (ALS)
-
Krivickas LS, Shockley L, Mitsumoto H. Home care of patients with amyotrophic lateral sclerosis (ALS). J Neurol Sci. 1997 ; 152: 82-89
-
(1997)
J Neurol Sci
, vol.152
, pp. 82-89
-
-
Krivickas, L.S.1
Shockley, L.2
Mitsumoto, H.3
-
18
-
-
36549007003
-
Health outcomes of bereavement
-
Stroebe M, Schut H, Stroebe W. Health outcomes of bereavement. Lancet. 2007 ; 370: 1960-1973
-
(2007)
Lancet
, vol.370
, pp. 1960-1973
-
-
Stroebe, M.1
Schut, H.2
Stroebe, W.3
-
19
-
-
77955889129
-
Predictors of complicated grief: A systematic review of empirical studies
-
Lobb EA, Kristjanson LJ, Aoun SM, Monterosso L, Halkett GKB, Davis A. Predictors of complicated grief: a systematic review of empirical studies. Death Stud. 2010 ; 34: 673-698
-
(2010)
Death Stud
, vol.34
, pp. 673-698
-
-
Lobb, E.A.1
Kristjanson, L.J.2
Aoun, S.M.3
Monterosso, L.4
Halkett, G.K.B.5
Davis, A.6
-
20
-
-
33748542338
-
The prediction of bereavement outcome: Development of an integrative risk factor framework
-
Stroebe MS, Folkman S, Hansson RO, Schut H. The prediction of bereavement outcome: development of an integrative risk factor framework. Soc Sci Med. 2006 ; 63: 2440-2451
-
(2006)
Soc Sci Med
, vol.63
, pp. 2440-2451
-
-
Stroebe, M.S.1
Folkman, S.2
Hansson, R.O.3
Schut, H.4
-
21
-
-
63149148765
-
Bereavement help-seeking following an 'expected' death: A cross-sectional randomised face-to-face population survey
-
(accessed September 2010)
-
CurrowDCAllenKPlummerLAounSHegartyMAbernethyAP. Bereavement help-seeking following an 'expected' death: a cross-sectional randomised face-to-face population survey. BMC Palliat Care2008; 7: available from: http://www. biomedcentral.com/1472-684X/7/19 (accessed September 2010)
-
(2008)
BMC Palliat Care
, vol.7
-
-
Currow, D.C.1
Allen, K.2
Plummer, L.3
Aoun, S.4
Hegarty, M.5
Abernethy, A.P.6
-
24
-
-
41549111991
-
Identifying and responding to ethical and methodological issues in after-death interviews with next-of-kin
-
Williams BR, Woodby LL, Bailey FA, Burgio KL. Identifying and responding to ethical and methodological issues in after-death interviews with next-of-kin. Death Stud. 2008 ; 32: 197-236
-
(2008)
Death Stud
, vol.32
, pp. 197-236
-
-
Williams, B.R.1
Woodby, L.L.2
Bailey, F.A.3
Burgio, K.L.4
-
27
-
-
63549150786
-
Informal carer bereavement outcome: Relation to quality of end of life support and achievement of preferred place of death
-
Grande GE, Ewing G. Informal carer bereavement outcome: relation to quality of end of life support and achievement of preferred place of death. Palliat Med. 2009 ; 23: 248-256
-
(2009)
Palliat Med
, vol.23
, pp. 248-256
-
-
Grande, G.E.1
Ewing, G.2
-
29
-
-
49149089115
-
The nature and use of bereavement support services in a hospice setting
-
Roberts A, McGilloway S. The nature and use of bereavement support services in a hospice setting. Palliat Med. 2008 ; 22: 612-625
-
(2008)
Palliat Med
, vol.22
, pp. 612-625
-
-
Roberts, A.1
McGilloway, S.2
-
30
-
-
1842810570
-
Disability, traumatic grief, and the underutilization of health services: A preliminary examination
-
Prigerson HG, Silverman GK, Jacobs SC, Maciejewski PK, Kasl SV, Rosenheck RA. Disability, traumatic grief, and the underutilization of health services: a preliminary examination. Prim Psychiatr. 2001 ; 8: 61-69
-
(2001)
Prim Psychiatr
, vol.8
, pp. 61-69
-
-
Prigerson, H.G.1
Silverman, G.K.2
Jacobs, S.C.3
MacIejewski, P.K.4
Kasl, S.V.5
Rosenheck, R.A.6
-
31
-
-
34748875343
-
Clinical practice guidelines for communicating prognosis and end-of-life issues with adults in the advanced stages of a life-limiting illness and their caregivers
-
Clayton JM, Hancock KM, Butow PN, Tattersall MHN, Currow DC. Clinical practice guidelines for communicating prognosis and end-of-life issues with adults in the advanced stages of a life-limiting illness and their caregivers. Med J Aust. 2007 ; 186: s77 - s108
-
(2007)
Med J Aust
, vol.186
-
-
Clayton, J.M.1
Hancock, K.M.2
Butow, P.N.3
Tattersall, M.H.N.4
Currow, D.C.5
-
33
-
-
0035754729
-
Interviews with patients, family, and caregivers in amytrophic lateral sclerosis: Comparing needs
-
Bolmsjo I, Hermeren G. Interviews with patients, family, and caregivers in amytrophic lateral sclerosis: comparing needs. J Palliat Care. 2001 ; 17: 236-240
-
(2001)
J Palliat Care
, vol.17
, pp. 236-240
-
-
Bolmsjo, I.1
Hermeren, G.2
-
34
-
-
0033588967
-
Breaking bad news: Explaining cancer diagnosis and prognosis
-
Maguire GP. Breaking bad news: explaining cancer diagnosis and prognosis. Med J Aust. 1999 ; 171: 288-289
-
(1999)
Med J Aust
, vol.171
, pp. 288-289
-
-
Maguire, G.P.1
-
35
-
-
0035300620
-
Breaking bad news about cancer: Patients' preferences for communication
-
Parker PA, Baile WF, de Moor C, Lenzi R, Kudelka AP, Cohen L. Breaking bad news about cancer: patients' preferences for communication. J Clin Oncol. 2001 ; 19: 2049-2056
-
(2001)
J Clin Oncol
, vol.19
, pp. 2049-2056
-
-
Parker, P.A.1
Baile, W.F.2
De Moor, C.3
Lenzi, R.4
Kudelka, A.P.5
Cohen, L.6
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