Limited health literacy in advanced kidney disease

Kidney International

Volumn 90, Issue 3, 2016, Pages 685-695

  Taylor, Dominic M ^a,b   Bradley, John A ^c   Bradley, Clare ^d   Draper, Heather ^e   Johnson, Rachel ^f   Metcalfe, Wendy ^g   Oniscu, Gabriel ^h   Robb, Matthew ^f   Tomson, Charles ⁱ   Watson, Chris ^c   Ravanan, Rommel ^b   Roderick, Paul ^a  

^a UNIVERSITY OF SOUTHAMPTON   (United Kingdom)

^b NORTH BRISTOL NHS TRUST   (United Kingdom)

^c UNIVERSITY OF CAMBRIDGE   (United Kingdom)

^d UNIVERSITY OF LONDON   (United Kingdom)

^e UNIVERSITY OF BIRMINGHAM   (United Kingdom)

^f NHS BLOOD AND TRANSPLANT   (United Kingdom)

^g Scottish Renal Registry   (United Kingdom)

^h ROYAL INFIRMARY OF EDINBURGH   (United Kingdom)

ⁱ FREEMAN HOSPITAL   (United Kingdom)

Author keywords

dialysis; health care disparities; health literacy; kidney transplantation; social class

Indexed keywords

ADULT; AGED; ARTICLE; COHORT ANALYSIS; COMORBIDITY; CONTROLLED STUDY; CROSS-SECTIONAL STUDY; DECISION MAKING; FEMALE; HEALTH LITERACY; HEMODIALYSIS; HUMAN; KIDNEY DISEASE; KIDNEY TRANSPLANTATION; MAJOR CLINICAL STUDY; MALE; ORGAN DONOR; PREVALENCE; PRIORITY JOURNAL; PROSPECTIVE STUDY; QUESTIONNAIRE; SOCIAL STATUS; UNITED KINGDOM; HOSPITAL ADMISSION; KIDNEY FAILURE, CHRONIC; MIDDLE AGED; OUTCOME ASSESSMENT; PATIENT EDUCATION; SOCIOECONOMICS; STATISTICS AND NUMERICAL DATA;

ADULT; AGED; COMORBIDITY; FEMALE; HEALTH LITERACY; HUMANS; KIDNEY FAILURE, CHRONIC; KIDNEY TRANSPLANTATION; MALE; MIDDLE AGED; OUTCOME ASSESSMENT (HEALTH CARE); PATIENT EDUCATION AS TOPIC; RENAL DIALYSIS; SOCIOECONOMIC FACTORS; SURVEYS AND QUESTIONNAIRES; UNITED KINGDOM; WAITING LISTS;

EID: 84994219814     PISSN: 00852538     EISSN: 15231755     Source Type: Journal    
DOI: 10.1016/j.kint.2016.05.033     Document Type: Article

References (39)

1. 1 Sorensen, K., Van den Broucke, S., Fullam, J., et al., for the HLS-EU Consortium Health Literacy Project European. Health literacy and public health: a systematic review and integration of definitions and models. BMC Public Health, 12, 2012, 80.
2. 2 Baker, D.W., The meaning and the measure of health literacy. J Gen Intern Med 21 (2006), 878–883.
3. 3 Berkman, N.D., Sheridan, S.L., Donahue, K.E., et al. Low health literacy and health outcomes: an updated systematic review. Ann Intern Med 155 (2011), 97–107.
4. 4 Sorensen, K., Pelikan, J.M., Rothlin, F., et al., for the HLS-EU Consortium. Health literacy in Europe: comparative results of the European health literacy survey (HLS-EU). Eur J Public Health 25 (2015), 1053–1058.
5. 5 Smith, S.G., Curtis, L.M., Wardle, J., et al. Skill set or mind set? Associations between health literacy, patient activation and health. PLoS One, 8, 2013, e74373.
6. 6 Gwynn, K.B., Winter, M.R., Cabral, H.J., et al. Racial disparities in patient activation: evaluating the mediating role of health literacy with path analyses. Patient Educ Couns 99 (2016), 1033–1037.
7. 7 Paasche-Orlow, M.K., Wolf, M.S., The causal pathways linking health literacy to health outcomes. Am J Health Behav 31:suppl 1 (2007), S19–26.
8. 8 Laitner, S., Tomson, C., Elias, R., et al. Shared decision-making in renal care: a call to action. Br J Renal Med, 17, 2012, 8.
9. 9 National Health Service. Expert patients programme. Available at: http://www.nhs.uk/NHSEngland/AboutNHSservices/doctors/Pages/expert-patients-programme.aspx. Accessed March 2016.
10. 10 Shafir, A., Rosenthal, J., Shared decision making: Advancing patient-centered care through state and federal implementation. Natl Acad State Health Pol, 2012.
11. 11 Barton, J.L., Trupin, L., Tonner, C., et al. English language proficiency, health literacy, and trust in physician are associated with shared decision making in rheumatoid arthritis. J Rheumatol 41 (2014), 1290–1297.
12. 12 Mackey, L.M., Doody, C., Werner, E.L., Fullen, B., Self-management skills in chronic disease management: what role does health literacy have?. Med Decis Making 36 (2016), 741–759.
13. 13 Tuot, D.S., Diamantidis, C.J., Corbett, C.F., et al. The last mile: translational research to improve CKD outcomes. Clin J Am Soc Nephrol 9 (2014), 1802–1805.
14. 14 Campbell, Z., Stevenson, J., McCaffery, K., et al. Interventions for improving health literacy in people with chronic kidney disease. Cochrane Database Syst Rev, 2016.
15. 15 Moon, G., Aitken, G., Roderick, P., et al. Towards an understanding of the relationship of functional literacy and numeracy to geographical health inequalities. Soc Sci Med 143 (2015), 185–193.
16. 16 Bostock, S., Steptoe, A., Association between low functional health literacy and mortality in older adults: longitudinal cohort study. BMJ, 344, 2012, e1602.
17. 17 Fraser, S.D., Roderick, P.J., Casey, M., et al. Prevalence and associations of limited health literacy in chronic kidney disease: a systematic review. Nephrol Dial Transplant 28 (2013), 129–137.
18. 18 Cavanaugh, K.L., Wingard, R.L., Hakim, R.M., et al. Low health literacy associates with increased mortality in ESRD. J Am Soc Nephrol 21 (2010), 1979–1985.
19. 19 Cavanaugh, K.L., Wang, M., Wallston, K., et al. International variation of characteristics of health literacy and its association with mortality in dialysis. J Am Soc Nephrol, 26, 2015, 316A.
20. 20 Grubbs, V., Gregorich, S.E., Perez-Stable, E.J., Hsu, C.Y., Health literacy and access to kidney transplantation. Clin J Am Soc Nephrol 4 (2009), 195–200.
21. 21 Dageforde, L.A., Petersen, A.W., Feurer, I.D., et al. Health literacy of living kidney donors and kidney transplant recipients. Transplantation 98 (2014), 88–93.
22. 22 Morris, N.S., MacLean, C.D., Chew, L.D., Littenberg, B., The Single Item Literacy Screener: evaluation of a brief instrument to identify limited reading ability. BMC Fam Pract, 7, 2006, 21.
23. 23 Brice, J.H., Foster, M.B., Principe, S., et al. Single-item or two-item literacy screener to predict the S-TOFHLA among adult hemodialysis patients. Patient Educ Couns 94 (2014), 71–75.
24. 24 Green, J.A., Mor, M.K., Shields, A.M., et al. Associations of health literacy with dialysis adherence and health resource utilization in patients receiving maintenance hemodialysis. Am J Kidney Dis 62 (2013), 73–80.
25. 25 Gordon, E.J., Wolf, M.S., Health literacy skills of kidney transplant recipients. Prog Transplant 19 (2009), 25–34.
26. 26 Adeseun, G.A., Bonney, C.C., Rosas, S.E., Health literacy associated with blood pressure but not other cardiovascular disease risk factors among dialysis patients. Am J Hypertens 25 (2012), 348–353.
27. 27 Weng, F.L., Chandwani, S., Kurtyka, K.M., et al. Prevalence and correlates of medication non-adherence among kidney transplant recipients more than 6 months post-transplant: a cross-sectional study. BMC Nephrol, 14, 2013, 261.
28. 28 May, C.R., Eton, D.T., Boehmer, K., et al. Rethinking the patient: using Burden of Treatment Theory to understand the changing dynamics of illness. BMC Health Serv Res, 14, 2014, 281.
29. 29 Shippee, N.D., Shah, N.D., May, C.R., et al. Cumulative complexity: a functional, patient-centered model of patient complexity can improve research and practice. J Clin Epidemiol 65 (2012), 1041–1051.
30. 30 Udayaraj, U., Ben-Shlomo, Y., Roderick, P., et al. Social deprivation, ethnicity, and access to the deceased donor kidney transplant waiting list in England and Wales. Transplantation 90 (2010), 279–285.
31. 31 Barnett, K., Mercer, S.W., Norbury, M., et al. Epidemiology of multimorbidity and implications for health care, research, and medical education: a cross-sectional study. Lancet 380 (2012), 37–43.
32. 32 Oniscu, G., Ravanan, R., Wu, D., et al., for the ATTOM Investigators. Access to Transplantation and Transplant Outcome Measures (ATTOM): study protocol of a UK wide, in-depth, prospective cohort analysis. BMJ Open, 6, 2016, e010377.
33. 33 Rowlands, G., Protheroe, J., Winkley, J., et al. A mismatch between population health literacy and the complexity of health information: an observational study. Br J Gen Pract 65 (2015), e379–386.
34. 34 Lopez-Vargas, P.A., Tong, A., Phoon, R.K., et al. Knowledge deficit of patients with stage 1–4 CKD: a focus group study. Nephrology (Carlton) 19 (2014), 234–243.
35. 35 Paasche-Orlow, M.K., Schillinger, D., Greene, S.M., Wagner, E.H., How health care systems can begin to address the challenge of limited literacy. J Gen Intern Med 21 (2006), 884–887.
36. 36 Cavanaugh, K.L., Osborn, C.Y., Tentori, F., et al. Performance of a brief survey to assess health literacy in patients receiving hemodialysis. Clin Kidney J 8 (2015), 462–468.
37. 37 Udayaraj, U., Pruthi, R., Casula, A., Roderick, P., UK Renal Registry 16th annual report: chapter 6 demographics and outcomes of patients from different ethnic groups on renal replacement therapy in the UK. Nephron Clin Pract 125 (2013), 111–125.
38. 38 Hemmelgarn, B., Manns, B., Quan, H., Ghali, W.A., Adapting the Charlson Comorbidity Index for use in patients with ESRD. Am J Kidney Dis 42 (2003), 125–132.
39. 39 Charlson, M.E., Pompei, P., Ales, K.L., et al. A new method of classifying prognostic comorbidity in longitudinal studies: development and validation. J Chronic Dis 40 (1987), 373–383.