Health literacy skills of kidney transplant recipients

Progress in Transplantation

Volumn 19, Issue 1, 2009, Pages 25-34

  Gordon, Elisa J ^a   Wolf, Michael ^a  

^a NORTHWESTERN UNIVERSITY   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ADOLESCENT; ADULT; AGED; ARTICLE; ATTITUDE TO HEALTH; CROSS-SECTIONAL STUDY; FEMALE; HUMAN; KIDNEY TRANSPLANTATION; MALE; MIDDLE AGED; MULTIVARIATE ANALYSIS; PATIENT EDUCATION; STATISTICAL MODEL; UNITED STATES;

ADOLESCENT; ADULT; AGED; CROSS-SECTIONAL STUDIES; FEMALE; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HUMANS; KIDNEY TRANSPLANTATION; LINEAR MODELS; MALE; MIDDLE AGED; MULTIVARIATE ANALYSIS; PATIENT EDUCATION AS TOPIC; UNITED STATES;

EID: 64749088666     PISSN: 15269248     EISSN: None     Source Type: Journal    
DOI: 10.7182/prtr.19.1.qnj8621040488u52     Document Type: Article

References (69)

1. United Networks for Organ Sharing. Patients transplanted in the U.S. between October 1, 1987-December 31, 2006, by organ received and most recent status. http://www.optn.org/latestData/rptData.asp. Accessed October 28, 2008.
2. United Network for Organ Sharing. Number of kidney transplants performed 1997-2007. http://www.optn.org/latestData/rptData.asp. Accessed October 28, 2008.
3. Rodrigue JR, Reed AI, Nelson DR, Jamieson I, Kaplan B, Howard RJ. The financial burden of transplantation: a singlecenter survey of liver and kidney transplant recipients. Transplantation. 2007;84:295-300. (Pubitemid 47258315)
4. Gordon EJ, Prohaska TR, Sehgal AR. The financial impact of immunosuppressant expenses on new kidney transplant recipients. Clin Transplant. In press.
5. Roukens AH, van Dissel JT, de Fijter JW, Visser LG. Health preparations and travel-related morbidity of kidney transplant recipients traveling to developing countries. Clin Transplant. 2007;21:567-570. (Pubitemid 47161837)
6. Firooz A, Amin-Nejad R, Bouzari N, Nafar M, Firoozan A, Mahdavi-Mazdeh M. Sun protection in Iranian kidney transplant recipients: knowledge, attitude and practice. J Eur Acad Dermatol Venereol. 2007;21:754-757. (Pubitemid 46939045)
7. Siegal BR, Greenstein SM. Postrenal transplant compliance from the perspective of African-Americans, Hispanic-Americans, and Anglo-Americans. Adv Ren Replace Ther. 1997;4:46-54. (Pubitemid 27030456)
8. Gordon EJ. Patients' decisions for treatment of end-stage renal disease and their implications for access to transplantation. Soc Sci Med. 2001;53:971-987. (Pubitemid 32737539)
9. Gordon EJ. "They don't have to suffer for me": why dialysis patients refuse offers of living donor kidneys. Med Anthropol Q. 2001;15:245-267. (Pubitemid 33712390)
10. Gordon EJ, Sehgal AR. Patient-nephrologist discussions about kidney transplantation as a treatment option. Adv Ren Replace Ther. 2000;7:177-183.
11. Waterman AD, Stanley SL, Covelli T, Hazel E, Hong BA, Brennan DC. Living donation decision making: recipients' concerns and educational needs. Prog Transplant. 2006;16:17-23.
12. Waterman AD, Barrett AC, Stanley SL. Optimal transplant education for recipients to increase pursuit of living donation. Prog Transplant. 2008;18:55-62. (Pubitemid 351416282)
13. Landreneau KJ, Ward-Smith P. Perceptions of adult patients on hemodialysis concerning choice among renal replacement therapies. Nephrol Nurs J. 2007;34:513-519.
14. Fox RC, Swazey JP, Cameron EM. Social and ethical problems in the treatment of end-stage renal disease patients. In: Narins RG, ed. Controversies in Nephrology and Hypertension. New York, NY: Churchill Livingstone; 1984:45-70.
15. Nielson-Bohlman L, Panzer AM, Kindig DA, eds. Health Literacy: A Prescription to End Confusion. Washington, DC: The National Academies Press; 2004.
16. Rudd RE, Kirsch I, Yamamoto K. Literacy and Health in America. Princeton, NJ: Educational Testing Service; 2004.
17. Kutner M, Greenberg E, Baer JA. First Look at the Literacy of America's Adults in the 21st Century (NCES 2006-470). Washington, DC: National Center for Education Statistics; 2005.
18. Davis TC, Wolf MS. Health literacy: implications for family medicine. Family Med. 2004;36:595-598. (Pubitemid 39209566)
19. Davis TC, Michielutte R, Askov EN, Williams MV, Weiss BD. Practical assessment of adult literacy in health care. Health Educ Behav. 1998;25:613-624. (Pubitemid 128454001)
20. Castro CM, Wilson C, Wang F, Schillinger D. Babel babble: physicians' use of unclarified medical jargon with patients. Am J Health Behav. 2007;31:S85-S95.
21. Ad Hoc Committee on Health Literacy, American Medical Association Council on Scientific Affairs. Health literacy: report of the Council on Scientific Affairs. JAMA. 1999;281:552-557.
22. Williams MV, Baker DW, Parker RM, Nurss JR. Relationship of functional health literacy to patients' knowledge of their chronic disease: a study of patients with hypertension and diabetes. Arch Internal Med. 1998;158:166-172. (Pubitemid 28049510)
23. Gazmararian JA, Williams MV, Peel J, Baker DW. Health literacy and knowledge of chronic disease. Patient Educ Couns. 2003;51:267-275. (Pubitemid 37441301)
24. Wolf MS, Davis TC, Cross JT, Marin E, Green KM, Bennett CL. Health literacy and patient knowledge in a Southern US HIV clinic. Int J STD AIDS. 2004;15:747-752. (Pubitemid 39540702)
25. Kalichman SC, Ramachandran B, Catz S. Adherence to combination antiretroviral therapies in HIV patients of low health literacy. J Gen Internal Med. 1999;14:267-273. (Pubitemid 29226671)
26. Wolf MS, Davis TC, Shrank W, et al. To err is human: patient misinterpretations of prescription drug label instructions. Patient Educ Couns. 2007;67:293-300. (Pubitemid 46990725)
27. Williams MV, Baker DW, Honig EG, Lee TM, Nowlan A. Inadequate literacy is a barrier to asthma knowledge and selfcare. Chest. 1998;114:1008-1015. (Pubitemid 28495894)
28. Schillinger D, Grumbach K, Piette J, et al. Association of health literacy with diabetes outcomes. JAMA. 2002;288:475-482. (Pubitemid 34787479)
29. Weiss BD, Hart G, McGee DL, D'Estelle S. Health status of illiterate adults: relation between literacy and health status among persons with low literacy skills. J Am Board Family Pract. 1992;5:257-264.
30. Baker DW, Parker RM, Williams MV, Clark WS, Nurss J. The relationship of patient reading ability to self-reported health and use of health services. Am J Pub Health. 1997; 87:1027-1030. (Pubitemid 27295085)
31. Wolf MS, Gazmararian JA, Baker DW. Health literacy and functional health status among older adults. Arch Internal Med. 2005;165:1946-1952. (Pubitemid 41362616)
32. Sudore RL, Yaffe K, Satterfield S, et al. Limited literacy and mortality in the elderly: the health, aging, and body composition study. J Gen Internal Med. 2006;21:806-812. (Pubitemid 44024924)
33. Baker DW, Wolf MS, Feinglass J, Gazmararian JA, Thompson JA, Huang J. Health literacy and mortality among elderly persons. Arch Internal Med. 2007;167:1503-1509. (Pubitemid 47124180)
34. Baker DW, Gazmararian JA, Williams MV, et al. Functional health literacy and the risk of hospital admission among Medicare managed care enrollees. Am J Pub Health. 2002; 92:1278-1283. (Pubitemid 34815791)
35. Howard DH, Gazmararian J, Parker RM. The impact of low health literacy on the medical costs of Medicare managed care enrollees. Am J Med. 2005;118:371-377. (Pubitemid 40460995)
36. Elo IT, Preston SH. Educational differentials in mortality: United States, 1979-85. Soc Sci Med. 1996;42:47-57.
37. Yen IH, Moss N. Unbundling education: a critical discussion of what education confers and how it lowers risk for disease and death. Ann N Y Acad Sci. 1999;896:350-351. (Pubitemid 30040271)
38. Wolf MS, Davis TC, Arozullah A, Penn R, Arnold C, Bennett CL. Relationship between literacy and HIV treatment knowledge among individuals enrolled in HAART regimens. AIDS Care. 2005;17:863-873. (Pubitemid 41284700)
39. Laramee AS, Morris N, Littenberg B. Relationship of literacy and heart failure in adults with diabetes. BMC Health Serv Res. 2007;7:98.
40. Persell SD, Osborn CY, Richard R, Skripkauskas S, Wolf MS. Limited health literacy is a barrier to medication reconciliation in ambulatory care. J Gen Internal Med. 2007;22:1523-1526. (Pubitemid 47568685)
41. Chisholm MA, Fair J, Spivey CA. Health literacy and transplant patients and practitioners. Public Health. 2007;121:800-803. (Pubitemid 47287383)
42. Baker DW, Williams MV, Parker RM, Gazmararian JA, Nurss J. Development of a brief test to measure functional health literacy. Patient Educ Couns. 1999;38(1):33-42. (Pubitemid 29413035)
43. Manly JJ, Schupf N, Tang MX, Stern Y. Cognitive decline and literacy among ethnically diverse elders. J Geriatr Psychiatry Neurol. 2005;18:213-217. (Pubitemid 41736386)
44. Davis TC, Long SW, Jackson RH, et al. Rapid estimate of adult literacy in medicine: a shortened screening instrument. Family Med. 1993;25:391-395. (Pubitemid 23183311)
45. Nath CR, Sylvester ST, Yasek V, Gunel E. Development and validation of a literacy assessment tool for persons with diabetes. Diabetes Educ. 2001;27:857-864. (Pubitemid 33616390)
46. Erby LH, Roter D, Larson S, Cho J. The rapid estimate of adult literacy in genetics (REAL-G): a means to assess literacy deficits in the context of genetics. Am J Med Gen. 2008:146:174-181.
47. National Kidney Foundation's Kidney Disease Outcomes Quality Initiative. Calculators for Health Care Professionals. MDRD GFR Calculator. http://www.kidney.org/professionals/KDOQI/gfr-calculator.cfm. Accessed March 8, 2008.
48. Davis TC, Wolf MS, Bass PF, et al. Literacy and misunderstanding of prescription drug labels. Ann Internal Med. 2006; 145:887-894. (Pubitemid 351639964)
49. Dewalt DA, Berkman ND, Sheridan S, Lohr KN, Pignone MP. Literacy and health outcomes: a systematic review of the literature. J Gen Internal Med. 2004;19:1228-1239. (Pubitemid 40041388)
50. Huberman AM, Miles MB. Data management and analysis methods. In: Denzin NK, Lincoln YS, eds. Handbook of Qualitative Research. Thousand Oaks, CA: Sage Publications; 1994:413-427.
51. Luborsky M. The identification and analysis of themes and patterns. In: Gubrium JF, Sankar A, eds. Qualitative Methods in Aging Research. Thousand Oaks, CA: Sage Publications; 1994:189-210.
52. The Joint Commission. Accreditation Manual for Hospitals. Oakbrook Terrace, IL: The Joint Commission; 1994.
53. Weiss BD, Coyne C. Communicating with patients who cannot read. N Engl J Med. 1997;337:272-274. (Pubitemid 27310446)
54. Volandes A, Paasche-Orlow MK. Health literacy, health inequity and a just health care system. Am J Bioethic. 2007;7:5-10. (Pubitemid 350129654)
55. Praska JL, Kripalani S, Seright AL, Jacobson TA. Identifying and assisting low-literacy patients with medication use: a survey of community pharmacies. Ann Pharmacother. 2005;39: 1441-1445. (Pubitemid 41197123)
56. Schillinger D, Piette J, Grumbach K, et al. Closing the loop. Physician communication with diabetic patients who have low health literacy. Arch Internal Med. 2003;163:83-90. (Pubitemid 36091605)
57. Plimpton S, Root J. Materials and strategies that work in low literacy health communication. Public Health Rep. 1994;109:86-92. (Pubitemid 24060236)
58. Doak CC, Doak LG, Root JH. Teaching patients with low literacy skills. Philadelphia, PA: JB Lippincott; 1998.
59. Davis TC, Williams MV, Marin E, Parker RM, Glass J. Health literacy and cancer communication. Cancer J Clinicians. 2002; 52:134-149. (Pubitemid 34546106)
60. Houts P, Bachrach R, Witmer J, Tringali C, Bocher J, Localio R. Using pictographs to enhance recall of spoken medical instructions. Patient Educ Couns. 1998;35:83-88. (Pubitemid 28412665)
61. National Work Group on Literacy and Health. Communicating with patients who have limited literacy skills. J Family Pract. 1998;46:168-176.
62. Mayeaux EJ, Murphy PW, Arnold C, Davis TC, Jackson RH, Sentell T. Improving education for patients with low literacy skills. Am Family Phys. 1996;53:205-211. (Pubitemid 26021344)
63. Roter DL, Erby LH, Larson S, Ellington L. Assessing oral literacy demand in genetic counseling dialogue: preliminary test of a conceptual framework. Soc Sci Med. 2007;65:1442-1457. (Pubitemid 47314425)
64. Lee S-YD, Arozullah AM, Cho YI. Health literacy, social support, and health: a research agenda. Soc Sci Med. 2004;58: 1309-1321. (Pubitemid 38169334)
65. Kimmel PL, Peterson RA, Weihs KL, et al. Multiple measurements of depression predict mortality in a longitudinal study of chronic hemodialysis patients. Kidney Int. 2000;57: 2093-2098. (Pubitemid 30252302)
66. Baker DW, Wolf MS, Feinglass J, Gazmararian JA, Thompson JA, Huang J. Health literacy and mortality among elderly persons. Arch Internal Med. 2007;167:1503-1509. (Pubitemid 47124180)
67. Bennett CL, Ferreira MR, Davis TC, et al. Relation between literacy, race, and stage of presentation among low-income patients with prostate cancer. J Clin Oncol. 1998;16:3101-3104. (Pubitemid 28417432)
68. Seligman HK, Wallace AS, DeWalt DA, et al. Facilitating behavior change with low-literacy patient education materials. Am J Health Behav. 2007;31:S69-S78.
69. Mayuzumi K. Rethinking literacy and women's health: a Bangladesh study. Health Care Women Int. 2004;25:504-526. (Pubitemid 38813768)