Knowledge deficit of patients with stage 1-4 CKD: A focus group study

Nephrology

Volumn 19, Issue 4, 2014, Pages 234-243

  Lopez Vargas, Pamela A ^a,b   Tong, Allison ^a,b   Phoon, Richard K S ^c   Chadban, Steven J ^d   Shen, Yvonne ^e   Craig, Jonathan C ^a,b  

^a UNIVERSITY OF SYDNEY   (Australia)

^b SYDNEY CHILDREN'S HOSPITAL   (Australia)

^c WESTMEAD HOSPITAL   (Australia)

^d ROYAL PRINCE ALFRED HOSPITAL   (Australia)

^e ROYAL NORTH SHORE HOSPITAL   (Australia)

Author keywords

chronic kidney disease; information; needs

Indexed keywords

ACCESS TO INFORMATION; ADULT; AGED; AMBIGUITY; ANXIETY; ARTICLE; ATTENTION; AUSTRALIA; AUTOIMMUNE DISEASE; AWARENESS; BLOOD PRESSURE REGULATION; CANCER RADIOTHERAPY; CHRONIC KIDNEY DISEASE; CLINICAL ARTICLE; COMORBIDITY; COMPREHENSION; CONSERVATIVE TREATMENT; COPING BEHAVIOR; DECISION MAKING; DIABETES MELLITUS; DIET THERAPY; DISEASE COURSE; DRUG SAFETY; EDUCATIONAL STATUS; EMPLOYMENT; FEAR; FEMALE; GENETIC DISORDER; GROUP DYNAMICS; HEALTH CARE MANAGEMENT; HOPELESSNESS; HUMAN; HYPERTENSION; KIDNEY POLYCYSTIC DISEASE; KIDNEY TRANSPLANTATION; LUPUS ERYTHEMATOSUS; MALE; MALIGNANT NEOPLASTIC DISEASE; MIDDLE AGED; MILD RENAL IMPAIRMENT; MODERATE RENAL IMPAIRMENT; MOTIVATION; NUTRITION; OPTIMISM; PATHOLOGY; PATIENT COMPLIANCE; PATIENT EDUCATION; PHYSICAL ACTIVITY; PRIMARY PREVENTION; PRIORITY JOURNAL; PROGNOSIS; RENAL REPLACEMENT THERAPY; SECONDARY PREVENTION; SELF CARE; SEVERE RENAL IMPAIRMENT; STAGE 1 KIDNEY DISEASE; SUPPORT GROUP; SURVIVAL; YOUNG ADULT; ADAPTIVE BEHAVIOR; ATTITUDE TO HEALTH; CLINICAL TRIAL; COMPLICATION; COST OF ILLNESS; DOCTOR PATIENT RELATION; HEALTH LITERACY; HEALTH PERSONNEL ATTITUDE; INFORMATION PROCESSING; INTERPERSONAL COMMUNICATION; KIDNEY FAILURE, CHRONIC; MULTICENTER STUDY; PSYCHOLOGY; RENAL INSUFFICIENCY, CHRONIC; RISK FACTOR; RISK REDUCTION; SEVERITY OF ILLNESS INDEX;

ADAPTATION, PSYCHOLOGICAL; ADULT; AGED; ATTITUDE OF HEALTH PERSONNEL; COMMUNICATION; COST OF ILLNESS; DISEASE PROGRESSION; FEMALE; FOCUS GROUPS; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HEALTH LITERACY; HUMANS; KIDNEY FAILURE, CHRONIC; MALE; MIDDLE AGED; MOTIVATION; NEW SOUTH WALES; PATIENT COMPLIANCE; PATIENT EDUCATION AS TOPIC; PHYSICIAN-PATIENT RELATIONS; RENAL INSUFFICIENCY, CHRONIC; RISK FACTORS; RISK REDUCTION BEHAVIOR; SELF CARE; SEVERITY OF ILLNESS INDEX; YOUNG ADULT;

EID: 84897014126     PISSN: 13205358     EISSN: 14401797     Source Type: Journal    
DOI: 10.1111/nep.12206     Document Type: Article

References (34)

1. Chadban SJ, Briganti EM, Kerr PG, etal. Prevalence of kidney damage in Australian adults: The AusDiab Kidney Study. J. Am. Soc. Nephrol. 2003; 14 (Suppl 2): S131-138.
2. White SL, Polkinghorne KR, Cass A, Shaw J, Atkins RC, Chadban SJ,. Limited knowledge of kidney disease in a survey of AusDiab study participants. Med. J. Aust. 2008; 188: 204-208.
3. Bodenheimer T, Lorig K, Holman H, Grumbach K,. Patient self-management of chronic disease in primary care. JAMA 2002; 288: 2469-2475.
4. Anderson LA, Zimmerman MA,. Patient and physician perceptions of their relationship and patient satisfaction: A study of chronic disease management. Patient Educ. Couns. 1993; 20: 27-36.
5. Go AS, Chertow GM, Fan D, McCulloch CE, Hsu C-Y,. Chronic kidney disease and the risks of death, cardiovascular events, and hospitalization. N. Engl. J. Med. 2004; 351: 1296-1305.
6. Jørgensen L, Heuch I, Jenssen T, Jacobsen BK,. Association of albuminuria and cancer incidence. J. Am. Soc. Nephrol. 2008; 19: 992-998.
7. Matsushita K, van der Velde M, Astor BC, etal. Association of estimated glomerular filtration rate and albuminuria with all-cause and cardiovascular mortality in general population cohorts: A collaborative meta-analysis. Lancet 2010; 375: 2073.
8. Shlipak MG, Fried LF, Cushman M, etal. Cardiovascular mortality risk in chronic kidney disease. JAMA 2005; 293: 1737-1745.
9. Johnson DW, Atai E, Chan M, etal. KHA-CARI guideline: Early chronic kidney disease: Detection, prevention and management. Nephrology 2013; 18: 340-350.
10. Kidney Disease: Improving Global Outcomes (KDIGO) CKD Work Group. KDIGO 2012 Clinical Practice Guideline for the Evaluation and Management of Chronic Kidney Disease. Kidney Int. 2013; 3: S1-S150.
11. Finkelstein FO, Story K, Firanek C, etal. Perceived knowledge among patients cared for by nephrologists about chronic kidney disease and end-stage renal disease therapies. Kidney Int. 2008; 74: 1178-1184.
12. Devins GM, Mendelssohn DC, Barre PE, Binik YM,. Predialysis psychoeducational intervention and coping styles influence time to dialysis in chronic kidney disease. Am. J. Kidney Dis. 2003; 42: 693-703.
13. Tong A, Sainsbury P, Chadban S, etal. Patients' experiences and perspectives of living with CKD. Am. J. Kidney Dis. 2009; 53: 689-700.
14. Fisher EB, Thorpe CT, DeVellis BM, DeVellis RF,. Healthy coping, negative emotions, and diabetes management: A systematic review and appraisal. Diabetes Educ. 2007; 33: 1080-1103.
15. Chen SH, Tsai YF, Sun CY, Wu IW, Lee CC, Wu MS,. The impact of self-management support on the progression of chronic kidney disease-A prospective randomized controlled trial. Nephrol. Dial. Transplant. 2011; 26: 3560-3566.
16. Devins GM, Mendelssohn DC, Barré PE, Taub K, Binik YM,. Predialysis psychoeducational intervention extends survival in CKD: A 20-year follow-up. Am. J. Kidney Dis. 2005; 46: 1088-1098.
17. Tong A, Sainsbury P, Craig J,. Consolidated criteria for reporting qualitative research (COREQ): A 32-item checklist for interviews and focus groups. Int. J. Qual. Health Care 2007; 19: 349-357.
18. Ormandy P,. Information topics important to chronic kidney disease patients: A systematic review. J. Renal Care 2008; 34: 19-27.
19. National Collaborating Centre for Chronic Conditions. Chronic Kidney Disease: National Clinical Guideline for Early Identification and Management in Adults in Primary and Secondary Care. London: Royal College of Physicians, 2008.
20. Strauss A, Corbin J,. Basics of Qualitative Research, 2nd edn. Thousand Oaks, CA: Sage Publications, 1998.
21. Jennette C, Vupputuri S, Hogan S, Shoham D, Falk R, Harward D,. Community perspectives on kidney disease and health promotion from at-risk populations in rural North Carolina, USA. Rural Remote Health 2010; 10: 1388.
22. Tong A, Lopez-Vargas P, Howell M, etal. Consumer involvement in topic and outcome selection in the development of clinical practice guidelines. Health Expect. 2012; 15: 410-423.
23. Costantini L, Beanlands H, McCay E, Cattran D, Hladunewich M, Francis D,. The self-management experience of people with mild to moderate chronic kidney disease. Nephrol. Nurs. J. 2008; 35: 147.
24. Lewis AL, Stabler KA, Welch JL,. Perceived informational needs, problems, or concerns among patients with stage 4 chronic kidney disease. Nephrol. Nurs. J. 2010; 37: 143.
25. Hack TF, Degner LF, Parker PA,. The communication goals and needs of cancer patients: A review. Psychooncology 2005; 14: 831-845.
26. Wikblad KF,. Patient perspectives of diabetes care and education. J. Adv. Nurs. 1991; 16: 837-844.
27. Kimmel PL,. Depression in patients with chronic renal disease: What we know and what we need to know. J. Psychosom. Res. 2002; 53: 951-956.
28. Perez Dominguez TS, Rodriguez Perez A, Buset Rios N, etal. Psychonephrology: Psychological aspects in autosomal dominant polycystic kidney disease. Nefrologia 2011; 31: 716-722.
29. Kidney Health Australia. For patients. 2008. [Cited 29 June 2013.] Available from URL: http://www.kidney.org.au/ForPatients/HealthFactSheets/ HealthPublications/tabid/618/Default.aspx
30. National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) and the National Institutes of Health (NIH). National Kidney Disease Education Program (NKDEP). USA: US Department of Health & Human Services (HHS), 2008. [Cited 29 July 2013.] Available from URL: http://www.nkdep.nih.gov/learn.shtml
31. Johnson D, Mathew T, Ludlow M, etal. Chronic Kidney Disease (CKD) Management in General Practice, 2nd edn. Melbourne: Kidney Health Australia, 2012.
32. Mason J, Khunti K, Stone M, Farooqi A, Carr S,. Educational interventions in kidney disease care: A systematic review of randomised trials. Am. J. Kidney Dis. 2008; 51: 933-951.
33. Binik YM, Devins GM, Barre PE, etal. Live and learn: Patient education delays the need to initiate renal replacement therapy in end-stage renal disease. J. Nerv. Ment. Dis. 1993; 181: 371-376.
34. Manns BJ, Taub K, Vanderstraeten C, etal. The impact of education on chronic kidney disease patients' plans to initiate dialysis with self-care dialysis: A randomized trial. Kidney Int. 2005; 68: 1777-1783.