-
1
-
-
84863105977
-
Patient organisations as the (un)usual suspects: the biobanking activities of the Association Francaise contre les Myopathies and its Genethon DNA and cell bank
-
Routledge: Abingdon
-
Mayrhofer M. Patient organisations as the (un)usual suspects: the biobanking activities of the Association Francaise contre les Myopathies and its Genethon DNA and cell bank. In: Biobanks: Governance in Comparative Perspective. Routledge: Abingdon; 2008. p. 71-87.
-
(2008)
Biobanks: Governance in Comparative Perspective
, pp. 71-87
-
-
Mayrhofer, M.1
-
2
-
-
84892646430
-
"It's my blood": ethical complexities in the use, storage and export of biological samples: perspectives from South African research participants
-
Moodley K, Sibanda N, February K, Rossouw T. "It's my blood": ethical complexities in the use, storage and export of biological samples: perspectives from South African research participants. BMC Med Ethics. 2014;15:4.
-
(2014)
BMC Med Ethics
, vol.15
, pp. 4
-
-
Moodley, K.1
Sibanda, N.2
February, K.3
Rossouw, T.4
-
3
-
-
40049095337
-
A proposal for a model of informed consent for the collection, storage and use of biological materials for research purposes
-
Porteri C, Borry P. A proposal for a model of informed consent for the collection, storage and use of biological materials for research purposes. Patient Educ Couns J. 2008;71:136-42.
-
(2008)
Patient Educ Couns J
, vol.71
, pp. 136-142
-
-
Porteri, C.1
Borry, P.2
-
4
-
-
71949131197
-
"Broad" consent, exceptions to consent and the question of using biological samples for research purposes different from the initial collection purpose
-
Petrini C. "Broad" consent, exceptions to consent and the question of using biological samples for research purposes different from the initial collection purpose. Soc Sci Med. 2010;70:217-20.
-
(2010)
Soc Sci Med
, vol.70
, pp. 217-220
-
-
Petrini, C.1
-
5
-
-
84911915858
-
'Mirroring' the ethics of Biobanking: What analysis of consent documents can tell us?
-
Jurate S, Zivile V, Eugenijus G. 'Mirroring' the ethics of Biobanking: What analysis of consent documents can tell us? Sci Eng Ethics. 2014;20:1079-93.
-
(2014)
Sci Eng Ethics
, vol.20
, pp. 1079-1093
-
-
Jurate, S.1
Zivile, V.2
Eugenijus, G.3
-
6
-
-
9644300904
-
Ethical issues in the collection, storage and research use of human biological materials
-
Meslin EM, Quaid KA. Ethical issues in the collection, storage and research use of human biological materials. J Lab Clin Med. 2004;144:229-34.
-
(2004)
J Lab Clin Med
, vol.144
, pp. 229-234
-
-
Meslin, E.M.1
Quaid, K.A.2
-
7
-
-
84861693094
-
Biobank governance: heterogeneous modes of ordering and democratization
-
Gottweis H, Lauss G. Biobank governance: heterogeneous modes of ordering and democratization. J Community Genet. 2012;3:61-72.
-
(2012)
J Community Genet
, vol.3
, pp. 61-72
-
-
Gottweis, H.1
Lauss, G.2
-
8
-
-
84890458260
-
Challenges of Biobanking in South Africa to facilitate indigenous research in an environment burdened with human immunodeficiency virus, tuberculosis and emerging noncommunicable diseases
-
Abayomi A, Christoffels A, Grewal R, Karam LA, Rossouw C, Staunton C, et al. Challenges of Biobanking in South Africa to facilitate indigenous research in an environment burdened with human immunodeficiency virus, tuberculosis and emerging noncommunicable diseases. Biopreservation Biobanking. 2013;11:347-54.
-
(2013)
Biopreservation Biobanking
, vol.11
, pp. 347-354
-
-
Abayomi, A.1
Christoffels, A.2
Grewal, R.3
Karam, L.A.4
Rossouw, C.5
Staunton, C.6
-
9
-
-
84883641154
-
Challenges in biobank governance in Sub-Saharan Africa
-
Staunton C, Moodley K. Challenges in biobank governance in Sub-Saharan Africa. BMC Med Ethics. 2013;14:35.
-
(2013)
BMC Med Ethics
, vol.14
, pp. 35
-
-
Staunton, C.1
Moodley, K.2
-
10
-
-
84863719447
-
Formative Research on Perceptions of Biobanking: what community members think
-
Luque JS, Quinn GP, Montel-Ishino FA, Arevalo M, Bynum SA, Noel-Thomas S, et al. Formative Research on Perceptions of Biobanking: what community members think. J Cancer Educ. 2012;27:91-9.
-
(2012)
J Cancer Educ
, vol.27
, pp. 91-99
-
-
Luque, J.S.1
Quinn, G.P.2
Montel-Ishino, F.A.3
Arevalo, M.4
Bynum, S.A.5
Noel-Thomas, S.6
-
11
-
-
84939422073
-
"The keeping is the problem": A qualitative study of IRB-member perspectives in Botswana on the collection, use and storage of human biological samples for research
-
Barchi F, Matshlagela K, Jones N, Kebaabetswe PM, Merz JM. "The keeping is the problem": A qualitative study of IRB-member perspectives in Botswana on the collection, use and storage of human biological samples for research. BMC Med Ethics. 2015;16:54.
-
(2015)
BMC Med Ethics
, vol.16
, pp. 54
-
-
Barchi, F.1
Matshlagela, K.2
Jones, N.3
Kebaabetswe, P.M.4
Merz, J.M.5
-
12
-
-
84965143725
-
Biobanking from the patient perspective
-
Mitchell D, Geissler J, Parry-Jones A, Keulen H, Schmitt DC, Vavassori R, et al. Biobanking from the patient perspective. Res Involvement Engagement. 2015;1:4.
-
(2015)
Res Involvement Engagement
, vol.1
, pp. 4
-
-
Mitchell, D.1
Geissler, J.2
Parry-Jones, A.3
Keulen, H.4
Schmitt, D.C.5
Vavassori, R.6
-
13
-
-
84905707028
-
Newspaper coverage of biobanks
-
Ogbogu U, Toews M, Ollenberger A, Borry P, Nobile H, Bergman M, et al. Newspaper coverage of biobanks. Peer J. 2014;2:e500.
-
(2014)
Peer J
, vol.2
, pp. e500
-
-
Ogbogu, U.1
Toews, M.2
Ollenberger, A.3
Borry, P.4
Nobile, H.5
Bergman, M.6
-
14
-
-
80053418647
-
Assessing the Need for a Standardized Cancer Human Biobank (caHUB): findings from a National Survey With Cancer Researchers
-
Massett HA, Atkinson NL, Weber D, Myles R, Ryan C, Grady M. Assessing the Need for a Standardized Cancer Human Biobank (caHUB): findings from a National Survey With Cancer Researchers. J Natl Cancer Inst. 2011;42:8-15.
-
(2011)
J Natl Cancer Inst
, vol.42
, pp. 8-15
-
-
Massett, H.A.1
Atkinson, N.L.2
Weber, D.3
Myles, R.4
Ryan, C.5
Grady, M.6
-
15
-
-
79955030148
-
Research use of leftover newborn bloodspots: Attitudes of Canadian geneticists regarding storage and informed consent requirements
-
Richer J, Ghebremichael MS, Chudley AE, Robinson WM, Wilfond BS, Solomon MZ. Research use of leftover newborn bloodspots: Attitudes of Canadian geneticists regarding storage and informed consent requirements. Genet Med. 2011;13:305-13.
-
(2011)
Genet Med
, vol.13
, pp. 305-313
-
-
Richer, J.1
Ghebremichael, M.S.2
Chudley, A.E.3
Robinson, W.M.4
Wilfond, B.S.5
Solomon, M.Z.6
-
16
-
-
84862877183
-
Consent and Research Governance in Biobanks: evidence from focus groups with medical researchers
-
Whitley EA, Kanellopoulou N, Kaye J. Consent and Research Governance in Biobanks: evidence from focus groups with medical researchers. Public Health Genomics. 2012;15:232-42.
-
(2012)
Public Health Genomics
, vol.15
, pp. 232-242
-
-
Whitley, E.A.1
Kanellopoulou, N.2
Kaye, J.3
-
17
-
-
84856923860
-
A pilot qualitative survey of practices, rules and researcher opinions in ten European countries
-
Salvaterra E, Giorda R, Bassi MT, Borgatti R, Knudsen LE, Martinuzzi A, et al. A pilot qualitative survey of practices, rules and researcher opinions in ten European countries. Biopreservation Biobanking. 2012;10:29-36.
-
(2012)
Biopreservation Biobanking
, vol.10
, pp. 29-36
-
-
Salvaterra, E.1
Giorda, R.2
Bassi, M.T.3
Borgatti, R.4
Knudsen, L.E.5
Martinuzzi, A.6
-
18
-
-
84857189818
-
Researchers' opinions towards the communication of results of biobank research: a survey study
-
Meulenkamp TM, Gevers SJK, Bovenberg JA, Smets EMA. Researchers' opinions towards the communication of results of biobank research: a survey study. Eur J Hum Genet. 2012;20:258-62.
-
(2012)
Eur J Hum Genet
, vol.20
, pp. 258-262
-
-
Meulenkamp, T.M.1
Gevers, S.J.K.2
Bovenberg, J.A.3
Smets, E.M.A.4
-
19
-
-
84928059946
-
Scientist's perspectives on consent in the context of biobanking research
-
Master Z, Campo-Engelstein L, Caulfield T. Scientist's perspectives on consent in the context of biobanking research. Eur J Hum Genet. 2015;23:569-74.
-
(2015)
Eur J Hum Genet
, vol.23
, pp. 569-574
-
-
Master, Z.1
Campo-Engelstein, L.2
Caulfield, T.3
-
20
-
-
84960871637
-
Experiences and attitudes about research with Biospecimens
-
Rivera SM, Goldenberg A, Rosenthal B, Aungst H, Maschke KJ, Rothwell E, et al. Experiences and attitudes about research with Biospecimens. J Empir Res Hum Res Ethics. 2015;10:449-56.
-
(2015)
J Empir Res Hum Res Ethics
, vol.10
, pp. 449-456
-
-
Rivera, S.M.1
Goldenberg, A.2
Rosenthal, B.3
Aungst, H.4
Maschke, K.J.5
Rothwell, E.6
-
21
-
-
34347388420
-
Qualitative data analysis for health services research: developing taxonomy, themes and theory
-
Bradley EH, Curry LA, Devers KJ. Qualitative data analysis for health services research: developing taxonomy, themes and theory. Health Serv Res. 2007;42:1758-72.
-
(2007)
Health Serv Res
, vol.42
, pp. 1758-1772
-
-
Bradley, E.H.1
Curry, L.A.2
Devers, K.J.3
-
23
-
-
84883545892
-
Awareness and acceptable practices: IRB and researcher reflections on the Havasupai Lawsuit
-
Garrison NA, Cho MK. Awareness and acceptable practices: IRB and researcher reflections on the Havasupai Lawsuit. AJOB Prim Res. 2013;4:55-63.
-
(2013)
AJOB Prim Res
, vol.4
, pp. 55-63
-
-
Garrison, N.A.1
Cho, M.K.2
-
24
-
-
22244471963
-
Trust and informed consent: insights from community members on the Kenyan coast
-
Molyneux CS, Peshu N, Marsh K. Trust and informed consent: insights from community members on the Kenyan coast. Soc Sci Med. 2006;61:1463-73.
-
(2006)
Soc Sci Med
, vol.61
, pp. 1463-1473
-
-
Molyneux, C.S.1
Peshu, N.2
Marsh, K.3
-
25
-
-
47649097921
-
'He is now like a brother, I can even give him some blood'- Relational ethics and material exchanges in a malaria vaccine 'trial community' in The Gambia
-
Geissler PW, Kelly A, Imoukhuede B, Pool R. 'He is now like a brother, I can even give him some blood'- Relational ethics and material exchanges in a malaria vaccine 'trial community' in The Gambia. Soc Sci Med. 2008;67:686-707.
-
(2008)
Soc Sci Med
, vol.67
, pp. 686-707
-
-
Geissler, P.W.1
Kelly, A.2
Imoukhuede, B.3
Pool, R.4
-
26
-
-
84866410532
-
"It's for a good cause, isn't it?" - exploring views of South African TB research participants on sample storage and re-use
-
van Schalkwyk G, de Vries J, Moodley K. "It's for a good cause, isn't it?" - exploring views of South African TB research participants on sample storage and re-use. BMC Med Ethics. 2012;13:19.
-
(2012)
BMC Med Ethics
, vol.13
, pp. 19
-
-
Van Schalkwyk, G.1
De Vries, J.2
Moodley, K.3
-
27
-
-
78951492618
-
Access and use of human tissues from the developing world: Ethical challenges and a way forward using a tissue trust
-
Emerson CI, Singer PA, Upshur REG. Access and use of human tissues from the developing world: Ethical challenges and a way forward using a tissue trust. BMC Med Ethics. 2011;12:2.
-
(2011)
BMC Med Ethics
, vol.12
, pp. 2
-
-
Emerson, C.I.1
Singer, P.A.2
Upshur, R.E.G.3
-
28
-
-
79952707984
-
Ethical issues in human genomics research in developing countries
-
De Vries J, Bull SJ, Doumbo O, Ibrahim M, Mercereau-Puijalon O, Kwiatkowski D, et al. Ethical issues in human genomics research in developing countries. BMC Med Ethics. 2011;12:5.
-
(2011)
BMC Med Ethics
, vol.12
, pp. 5
-
-
De Vries, J.1
Bull, S.J.2
Doumbo, O.3
Ibrahim, M.4
Mercereau-Puijalon, O.5
Kwiatkowski, D.6
-
29
-
-
84872826516
-
Characterizing biobank organizations in the U.S.: results from a national survey
-
Henderson G, Cadigan RJ, Edwards TP, Conlon I, Nelson AG, Evans JP, et al. Characterizing biobank organizations in the U.S.: results from a national survey. Genome Med. 2013;5:3.
-
(2013)
Genome Med
, vol.5
, pp. 3
-
-
Henderson, G.1
Cadigan, R.J.2
Edwards, T.P.3
Conlon, I.4
Nelson, A.G.5
Evans, J.P.6
-
31
-
-
84856921142
-
Community engagement in biobanking. Experiences from the eMERGE Network
-
Lenike AA, Wu JT, Waudby C, Pulley J, Somkein CP, Trinidad SB. Community engagement in biobanking. Experiences from the eMERGE Network. Genomics Soc Policy. 2010;6:35-52.
-
(2010)
Genomics Soc Policy
, vol.6
, pp. 35-52
-
-
Lenike, A.A.1
Wu, J.T.2
Waudby, C.3
Pulley, J.4
Somkein, C.P.5
Trinidad, S.B.6
|