-
1
-
-
4644344061
-
Ethical issues in tissue banking for research: A brief review of existing organizational policies
-
Bauer K, Taub S, Parsi K (2004) Ethical issues in tissue banking for research: a brief review of existing organizational policies. Theor Med Bioeth 25(2):113-142.
-
(2004)
Theor Med Bioeth
, vol.25
, Issue.2
, pp. 113-142
-
-
Bauer, K.1
Taub, S.2
Parsi, K.3
-
2
-
-
79851509146
-
Biobanking: The foundation of personalized medicine
-
Hewitt RE (2011) Biobanking: the foundation of personalized medicine. Curr Opin Oncol 23(1):112-119.
-
(2011)
Curr Opin Oncol
, vol.23
, Issue.1
, pp. 112-119
-
-
Hewitt, R.E.1
-
3
-
-
7244229695
-
The emergence of epidemiology in the genomics age
-
Khoury MJ, Millikan R, Little J, Gwinn M (2004) The emergence of epidemiology in the genomics age. Int J Epidemiol 33(5):936- 944.
-
(2004)
Int J Epidemiol
, vol.33
, Issue.5
, pp. 936-944
-
-
Khoury, M.J.1
Millikan, R.2
Little, J.3
Gwinn, M.4
-
5
-
-
85050414146
-
I'm not really read up on genetics: Biobanks and the social context of informed consent
-
Barr M (2006) I'm not really read up on genetics: biobanks and the social context of informed consent. BioSocieties 1(02):251- 262.
-
(2006)
BioSocieties
, vol.1
, Issue.2
, pp. 251-262
-
-
Barr, M.1
-
6
-
-
0042629790
-
Why surgical patients do not donate tissue for commercial research: Review of records
-
Jack AL, Womack C (2003) Why surgical patients do not donate tissue for commercial research: review of records. BMJ 327 (7409):262.
-
(2003)
BMJ
, vol.327
, Issue.7409
, pp. 262
-
-
Jack, A.L.1
Womack, C.2
-
7
-
-
84863724959
-
Cancer biobanking: The American perspective
-
Compton C (2007) Cancer biobanking: the American perspective. Eur J Cancer Suppl 5(8):5-6.
-
(2007)
Eur J Cancer Suppl
, vol.5
, Issue.8
, pp. 5-6
-
-
Compton, C.1
-
8
-
-
77951473507
-
Structuring public engagement for effective input in policy development on human tissue biobanking
-
O'Doherty K, Hawkins A (2010) Structuring public engagement for effective input in policy development on human tissue biobanking. Public Health Genomics 13(4):197-206.
-
(2010)
Public Health Genomics
, vol.13
, Issue.4
, pp. 197-206
-
-
O'doherty, K.1
Hawkins, A.2
-
9
-
-
50549083476
-
Rhode Islanders' attitudes towards the development of a statewide genetic biobank
-
Goldman RE, Kingdon C, Wasser J et al (2008) Rhode Islanders' attitudes towards the development of a statewide genetic biobank. Per Med 5(4):339-359.
-
(2008)
Per Med
, vol.5
, Issue.4
, pp. 339-359
-
-
Goldman, R.E.1
Kingdon, C.2
Wasser, J.3
-
10
-
-
59649110565
-
Informed consent in Biobank research: A deliberative approach to the debate
-
Secko DM, Preto N, Niemeyer S, Burgess MM (2009) Informed consent in Biobank research: a deliberative approach to the debate. Soc Sci Med 68:781-789.
-
(2009)
Soc Sci Med
, vol.68
, pp. 781-789
-
-
Secko, D.M.1
Preto, N.2
Niemeyer, S.3
Burgess, M.M.4
-
12
-
-
17844395950
-
Accountability in population biobanking: Comparative approaches
-
Deschênes M, Sallée C (2005) Accountability in population biobanking: comparative approaches. J Law Med Ethics 33:41-53.
-
(2005)
J Law Med Ethics
, vol.33
, pp. 41-53
-
-
Deschênes, M.1
Sallée, C.2
-
13
-
-
79952115924
-
Genetic research and biobanks
-
Chalmers D (2011) Genetic research and biobanks. Methods Mol Biol 675:1-37.
-
(2011)
Methods Mol Biol
, vol.675
, pp. 1-37
-
-
Chalmers, D.1
-
14
-
-
0023319217
-
False hopes and best data: Consent to research and the therapeutic misconception
-
Appelbaum PS, Roth LH, Lidz CW, Benson P, Winslade W (1987) False hopes and best data: consent to research and the therapeutic misconception. Hastings Cent Rep 17(2):20-24.
-
(1987)
Hastings Cent Rep
, vol.17
, Issue.2
, pp. 20-24
-
-
Appelbaum, P.S.1
Roth, L.H.2
Lidz, C.W.3
Benson, P.4
Winslade, W.5
-
15
-
-
1442311081
-
Therapeutic misconception and the appreciation of risks in clinical trials
-
Lidz C, Appelbaum P, Grisso T, Renaud M (2004) Therapeutic misconception and the appreciation of risks in clinical trials. Soc Sci Med 58:1689-1697.
-
(2004)
Soc Sci Med
, vol.58
, pp. 1689-1697
-
-
Lidz, C.1
Appelbaum, P.2
Grisso, T.3
Renaud, M.4
-
16
-
-
78650633744
-
Cancer as rubbish: Donation of tumor tissue for research
-
Morrell B, Lipworth W, Axler R, Kerridge I, Little M (2011) Cancer as rubbish: donation of tumor tissue for research. Qual Health Res 21:(X1).
-
(2011)
Qual Health Res
, vol.21
, Issue.X1
-
-
Morrell, B.1
Lipworth, W.2
Axler, R.3
Kerridge, I.4
Little, M.5
-
17
-
-
48349100315
-
Patients' refusal to consent to storage and use of samples in Swedish biobanks: Cross sectional study
-
Johnsson L, Hansson MG, Eriksson S, Helgesson G (2008) Patients' refusal to consent to storage and use of samples in Swedish biobanks: cross sectional study. BMJ 337:a345.
-
(2008)
BMJ
, vol.337
-
-
Johnsson, L.1
Hansson, M.G.2
Eriksson, S.3
Helgesson, G.4
-
18
-
-
79957597889
-
For what am I participating? The need for communication after receiving consent from biobanking project participants: Experience in Japan
-
Watanabe M, Inoue Y, Chang C et al (2011) For what am I participating? The need for communication after receiving consent from biobanking project participants: experience in Japan. J Hum Genet 56(5):358-363.
-
(2011)
J Hum Genet
, vol.56
, Issue.5
, pp. 358-363
-
-
Watanabe, M.1
Inoue, Y.2
Chang, C.3
-
19
-
-
58149087142
-
Why might people donate tissue for cancer research?, Insights from organ/tissue/blood donation and clinical research
-
Axler RE, Irvine R, LipworthW, Morrell B, Kerridge IH (2008)Why might people donate tissue for cancer research? Insights from organ/tissue/blood donation and clinical research. Pathobiology 75(6):323- 329.
-
(2008)
Pathobiology
, vol.75
, Issue.6
, pp. 323-329
-
-
Axler, R.E.1
Irvine, R.2
Lipworth, W.3
Morrell, B.4
Kerridge, I.H.5
-
20
-
-
72249092345
-
Public perspectives on informed consent for biobanking
-
Murphy J, Scott J, Kaufman D, Geller G, LeRoy L, Hudson K (2009) Public perspectives on informed consent for biobanking. Am J Public Health 99(12):2128-2134.
-
(2009)
Am J Public Health
, vol.99
, Issue.12
, pp. 2128-2134
-
-
Murphy, J.1
Scott, J.2
Kaufman, D.3
Geller, G.4
Leroy, L.5
Hudson, K.6
-
21
-
-
33746705736
-
New biorepository guidelines raise concerns
-
Hede K (2006) New biorepository guidelines raise concerns. J Natl Cancer Inst 98(14):952-954.
-
(2006)
J Natl Cancer Inst
, vol.98
, Issue.14
, pp. 952-954
-
-
Hede, K.1
-
22
-
-
11844269810
-
The ethics of research using biobanks: Reason to question the importance attributed to informed consent
-
Hoeyer K, Olofsson B-O, Mjörndal T, Lynöe N (2005) The ethics of research using biobanks: reason to question the importance attributed to informed consent. Arch Intern Med 165:97-100.
-
(2005)
Arch Intern Med
, vol.165
, pp. 97-100
-
-
Hoeyer, K.1
Olofsson, B.-O.2
Mjörndal, T.3
Lynöe, N.4
-
23
-
-
33644930832
-
One-time general consent for research on biological samples
-
Wendler D (2006) One-time general consent for research on biological samples. BMJ 332:544-547.
-
(2006)
BMJ
, vol.332
, pp. 544-547
-
-
Wendler, D.1
-
24
-
-
33846505520
-
Impacting health disparities through community outreach: Utilizing the CLEAN look
-
culture, literacy, education, assessment, networking
-
Meade C, Menard J, Martinez D, Calvo A (2007) Impacting health disparities through community outreach: utilizing the CLEAN look (culture, literacy, education, assessment, networking). Cancer Control 14(1):70-77.
-
(2007)
Cancer Control
, vol.14
, Issue.1
, pp. 70-77
-
-
Meade, C.1
Menard, J.2
Martinez, D.3
Calvo, A.4
-
25
-
-
54749140853
-
On the eve of personalized medicine in oncology
-
Yeatman TJ, Mule J, Dalton WS, Sullivan D (2008) On the eve of personalized medicine in oncology. Cancer Res 68(18):7250- 7252.
-
(2008)
Cancer Res
, vol.68
, Issue.18
, pp. 7250-7252
-
-
Yeatman, T.J.1
Mule, J.2
Dalton, W.S.3
Sullivan, D.4
-
26
-
-
1542533067
-
Focus groups
-
Morgan DL (1996) Focus groups. Annu Rev Sociol 33:129-152.
-
(1996)
Annu Rev Sociol
, vol.33
, pp. 129-152
-
-
Morgan, D.L.1
-
27
-
-
3142667971
-
Cancer care for diverse populations: Relevant communications and research
-
Meade CD (2003) Cancer care for diverse populations: relevant communications and research. Cancer Control 10(5 Suppl):1-2.
-
(2003)
Cancer Control
, vol.10
, Issue.5 SUPPL.
, pp. 1-2
-
-
Meade, C.D.1
-
28
-
-
70349320591
-
Evaluation of educational materials from a social marketing campaign to promote folic acid use among Hispanic women: Insight from Cuban and Puerto Rican ethnic subgroups
-
Quinn GP, Thomas KB, Hauser K, Rodriguez NY, Rodriguez- Snapp N (2008) Evaluation of educational materials from a social marketing campaign to promote folic acid use among Hispanic women: insight from Cuban and Puerto Rican ethnic subgroups. J Immigr Minor Health 11(5):406-414.
-
(2008)
J Immigr Minor Health
, vol.11
, Issue.5
, pp. 406-414
-
-
Quinn, G.P.1
Thomas, K.B.2
Hauser, K.3
Rodriguez, N.Y.4
Rodriguez-, S.N.5
-
29
-
-
0842287359
-
A study of public opinion on the use of tissue samples from living subjects for clinical research
-
Goodson ML, Vernon BG (2004) A study of public opinion on the use of tissue samples from living subjects for clinical research. J Clin Pathol 57(2):135-138.
-
(2004)
J Clin Pathol
, vol.57
, Issue.2
, pp. 135-138
-
-
Goodson, M.L.1
Vernon, B.G.2
-
30
-
-
0037043254
-
The debate over research on stored biological samples: What do sources think?
-
Wendler D, Emanuel E (2002) The debate over research on stored biological samples: what do sources think? Arch Intern Med 162 (13):1457-1462.
-
(2002)
Arch Intern Med
, vol.162
, Issue.13
, pp. 1457-1462
-
-
Wendler, D.1
Emanuel, E.2
-
31
-
-
0037391299
-
Shared decision making: Developing the OPTION scale for measuring patient involvement
-
Elwyn G, Edwards A, Wensing M, Hood K, Atwell C, Grol R (2003) Shared decision making: developing the OPTION scale for measuring patient involvement. Qual Saf Health Care 12(2):93-99.
-
(2003)
Qual Saf Health Care
, vol.12
, Issue.2
, pp. 93-99
-
-
Elwyn, G.1
Edwards, A.2
Wensing, M.3
Hood, K.4
Atwell, C.5
Grol, R.6
-
33
-
-
84867737708
-
-
MAXQDA 10, Marburg, Germany
-
VERBI Software. MAXQDA 10 2010. Marburg, Germany.
-
(2010)
VERBI Software
-
-
-
34
-
-
72049100691
-
Screening for breast cancer: U.S. Preventive Services Task Force recommendation statement
-
U.S. Preventive Services Taskforce, W-236
-
U.S. Preventive Services Taskforce (2009) Screening for breast cancer: U.S. Preventive Services Task Force recommendation statement. Ann Intern Med 151(10):716-726, W-236.
-
(2009)
Ann Intern Med
, vol.151
, Issue.10
, pp. 716-726
-
-
-
36
-
-
78650018899
-
Biobanks: Importance, implications and opportunities for genetic counselors
-
Hawkins AK (2010) Biobanks: importance, implications and opportunities for genetic counselors. J Genet Couns 19(5):423-429.
-
(2010)
J Genet Couns
, vol.19
, Issue.5
, pp. 423-429
-
-
Hawkins, A.K.1
-
37
-
-
77957925728
-
President Obama apologises to Guatemala over 1940s syphilis study
-
Tanne JH (2010) President Obama apologises to Guatemala over 1940s syphilis study. BMJ 341:c5494.
-
(2010)
BMJ
, vol.341
-
-
Tanne, J.H.1
-
38
-
-
77955979231
-
More than Tuskegee: Understanding mistrust about research participation
-
Scharff DP, Mathews KJ, Jackson P, Hoffsuemmer J, Martin E, Edwards D (2010) More than Tuskegee: understanding mistrust about research participation. J Health Care Poor Underserved 21 (3):879-897.
-
(2010)
J Health Care Poor Underserved
, vol.21
, Issue.3
, pp. 879-897
-
-
Scharff, D.P.1
Mathews, K.J.2
Jackson, P.3
Hoffsuemmer, J.4
Martin, E.5
Edwards, D.6
-
39
-
-
77951619927
-
Legal and ethical consequences of international biobanking from a national perspective: The German BMB-EUCoop project
-
Goebel JW, Pickardt T, Bedau M et al (2010) Legal and ethical consequences of international biobanking from a national perspective: the German BMB-EUCoop project. Eur J Hum Genet 18 (5):522-525.
-
(2010)
Eur J Hum Genet
, vol.18
, Issue.5
, pp. 522-525
-
-
Goebel, J.W.1
Pickardt, T.2
Bedau, M.3
-
40
-
-
77950863513
-
Changing defaults in biobank research could save lives too
-
Forsberg JS, Eriksson S, Hansson MG (2010) Changing defaults in biobank research could save lives too. Eur J Epidemiol 25 (2):65-68.
-
(2010)
Eur J Epidemiol
, vol.25
, Issue.2
, pp. 65-68
-
-
Forsberg, J.S.1
Eriksson, S.2
Hansson, M.G.3
-
41
-
-
53349107714
-
Informed consent for biorepositories: Assessing prospective participants' understanding and opinions
-
Beskow LM, Dean E (2008) Informed consent for biorepositories: assessing prospective participants' understanding and opinions. Cancer Epidemiol Biomarkers Prev 17(6):1440-1451.
-
(2008)
Cancer Epidemiol Biomarkers Prev
, vol.17
, Issue.6
, pp. 1440-1451
-
-
Beskow, L.M.1
Dean, E.2
|