Biobanks and governance: An introduction

Biobanks: Governance in Comparative Perspective

Volumn , Issue , 2008, Pages 3-21

  Gottweis, Herbert ^a   Petersen, Alan ^b,c,d  

^a UNIVERSITY OF VIENNA   (Austria)

^b MONASH UNIVERSITY   (Australia)

^c UNIVERSITY OF PLYMOUTH   (United Kingdom)

^d CITY UNIVERSITY   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

EID: 84861000716     PISSN: None     EISSN: None     Source Type: Book    
DOI: 10.4324/9780203927991     Document Type: Editorial

References (40)

1. Agamben, G. (1998) Homo Sacer: Sovereign Power and Bare Life. Palo Alto, CA: Stanford University Press.
2. Bouchie, A. (2004) 'Coming soon: a global grid for cancer research', Nature Biotechnology, 22: 1071-3.
3. Berg, K. (2001) 'DNA sampling and banking in clincial genetics and genetic research', New Genetics and Society, 20 (1): 59-68.
4. Brown, N. and Webster, A. (2004) New Medical Technologies and Society. Cambridge: Polity Press.
5. Cambon-Thomsen, A. (2004) 'The social and ethical issues of post-genomic human biobanks', Nature Reviews Genetics, 5: 866-73.
6. Crawford, R. (1984) 'A cultural account of "health": control, release, and the social body', in J. McKinlay (ed.), Issues in the Political Economy of Health Care (pp. 60-106. New York and London: Tavistock.
7. Cutter, A., Wilson, S. and Chadwick, R. (2004) 'Balancing powers: examining models of biobank governance', Journal of International Biotechnology Law, 1 (5): 187-92.
8. Dean, M. (1999) Governmentality: Power and Rule in Modern Society. London: Sage.
9. Deleuze, G. and Guattari, F. (1987) A Thousand Plateaus. Minneapolis, MN: University of Minnesota Press.
10. EU Workshop (2003) Biobanks for Health. Optimising the Use of European Biobanks and Health Registries for Research Relevant to Public Health and for Combatting Disease. Report and Recommendations. Oslo.
11. Flyvbjerg, B. (2005) Megaprojects and Risk: An Anatomy of Ambition. Cambridge: Cambridge University Press.
12. Foucault, M. (1979) The History of Sexuality, Vol. 1: An Introduction. London: Allen Lane.
13. Gottweis, H. (1998) Governing Molecules: The Discursive Politics of Genetic Engineering in Europe and in the United States. Cambridge, MA: MIT Press.
14. Hagen, H.-E. and Carlstedt-Duke, J. (2004) 'Building global networks for human diseases: genes and populations', Nature Medicine, 10: 665-7.
15. Haggerty, K. D. and Ericson, R. V. (2000) 'The surveillance assemblage', British Journal of Sociology, 51: 605-22.
16. Hirtzlin, I., Dubreuil, C., Preaubert, N., Duchier, J., Jansen, B. et al. (2003) 'An empirical survey on biobanking of human genetic material and data in six EU countries', European Journal of Human Genetics, 11: 475-88.
17. Irwin, A. and Michael, M. (2003) Science, Social Theory and Public Knowledge. Maidenhead: Open University Press.
18. Knoppers, B. M. and Chadwick, R. (2005) 'Human genetic research: emerging trends in ethics', Nature Review Genetics, 6: 75-9.
19. Kaiser, J. (2002) 'Population databases boom, from Iceland to the US', Science, 298: 1158-61.
20. Luscombe, N. M., Madan Babu, M., Yu, H., Snyder, M., Teichmann, S. A. et al. (2004) 'Genomic analysis of regulatory network dynamics reveals large topological changes', Nature, 431: 308-12.
21. Marshall, T. H. (1950) Citzenship and Social Class: And Other Essays. Cambridge: Cambridge University Press.
22. Pálsson, G. and Har{eth}ardóttir, K. E. (2002) 'For whom the cell tolls: debates about biomedicine', Current Anthropology, 43 (2): 271-301.
23. Patton, P. (1994) 'MetamorphoLogic: bodies and power in A Thousand Plateaus', Journal of the British Society for Phenomenology, 25: 157-69.
24. Pearson, H. (2004) 'Summit calls for clear view of deposits in all biobanks', Nature, 432: 426.
25. Petersen, A. (2005) 'Securing our genetic health: engendering trust in UK Biobank', Sociology of Health & Illness, 27 (2): 271-92.
26. Petersen, A. (2006) 'The genetic conception of health: is it as radical as claimed?', Health: An Interdsiciplinary Journal for the Social Study of Health, Illness and Medicine, 10 (4) (10th Anniversary Issue on 'conceptions of health'): 481-500.
27. Petryna, A. (2002) Biological Citizenship: Science and the Politics of Health after Chernobyl. Princeton, NJ: Princeton University Press.
28. Plummer, K. (2003) Intimate Citizenship: Private Decisions and Public Dialogues. Seattle, WA and London: University of Washington Press.
29. Public Population Project in Genomics (P3G) Consortium. Available at: www.p3gconsortium.org/membinfo.cfm, accessed 21 August 2007.
30. Rabinow, P. (1992) 'Artificiality and enlightenment: from sociobiology to biosociality', in J. Crary and S. Kwinter (eds), Incorporations (pp. 234-52. New York: Urzone.
31. Rabinow, P. (1999) French DNA: Trouble in Purgatory. Chicago, IL: University of Chicago Press.
32. Rosenau, J. N. (2002) 'Governance in a New Global Order', in D. Held and A. McGrew (eds), Governing Globalization: Power, Authority and Global Governance (pp. 70-86. Cambridge: Polity Press.
33. Rose, N. (2001) 'The politics of life itself ', Theory, Culture & Society, 18: 1-30.
34. Rose, N. and Novas, C. (2005) 'Biological citizenship', in A. Ong and S. J. Collier (eds), Global Assemblages: Technology, Politics, and Ethics as Anthropological Problems (pp. 439-63. London: Blackwell.
35. Rothstein, M. A. and Epps, P. G. (2001) 'Ethical and legal implications of pharmacogenomics', Nature Review Genetics, 2: 228-1.
36. Tutton, R. and Corrigan, O. (2004) Genetic Databases: Socio-ethical Issues in the Collection and use of DNA. London and New York: Routledge.
37. Waldby, C. (2000) The Visible Humam Project: Informatic Bodies and Posthuman Medicine. London and New York: Routledge.
38. Waldby, C. (2002) 'Stem cells, tissue cultures and the production of biovalue', Health: An Interdsiciplinary Journal for the Social Study of Health, Illness and Medicine, 6 (3): 305-23.
39. Webster, A., Martin, P., Lewis, G. and Smart, A. (2004) 'Integrating pharmacogenetics into society: in search of a model', Nature Reviews Genetics, 5: 663-9.
40. Wynne, B. (2006) 'Public engagement as a means of restoring public trust in science: hitting the notes, but missing the music?', Community Genetics, 9: 211-20.