The "Cruel Radiance of What Is": Helping Couples Live With Chronic Illness

Family Process

Volumn 52, Issue 1, 2013, Pages 83-101

  Weingarten, Kaethe ^a  

^a The Witnessing Project   (United States)

Author keywords

Chronic physical illness; Couples; Other loss; Relationship; Self loss

Indexed keywords

ADAPTIVE BEHAVIOR; CHRONIC DISEASE; EMOTION; FAMILY SIZE; FEAR; GENDER IDENTITY; HUMAN; MARITAL THERAPY; MARRIAGE; PSYCHOLOGY; SELF CONCEPT; TERMINAL CARE;

ADAPTATION, PSYCHOLOGICAL; CHRONIC DISEASE; COUPLES THERAPY; EMOTIONS; FAMILY CHARACTERISTICS; FEAR; GENDER IDENTITY; HUMANS; MARRIAGE; SELF CONCEPT; TERMINAL CARE;

EID: 84874962964     PISSN: 00147370     EISSN: 15455300     Source Type: Journal    
DOI: 10.1111/famp.12017     Document Type: Article

References (85)

1. Acitelli, L.K., & Badr, H.J. (2005). My illness or our illness? Attending to the relationship when one partner is ill. In T.A. Revenson, K. Kayser, & G. Bodenmann (Eds.), Couples coping with stress: Emerging perspectives on dyadic coping (pp. 121-136). Washington, DC: American Psychological Association.
2. Ackerman, D. (2011). One hundred names for love: A stroke, a marriage, and the language of love. New York: W.W. Norton.
3. Agee, J., & Walker, E. (1941). Let us now praise famous men. Boston: Houghton Mifflin.
4. Aldrich, S., & Eccleston, C. (2000). Making sense of everyday pain. Social Science and Medicine, 50(11), 1631-1641.
5. Anderson, H. (2012). Collaborative relationships and dialogic conversations: Ideas for a relationally responsive practice. Family Process, 51(1), 8-24.
6. Antonovsky, A. (1979). Health, stress and coping. San Francisco: Jossey-Bass.
7. Atwood, J., & Gallo, C. (Eds.). (2010). Family therapy and chronic illness. New Brunswick, NJ: AldineTransaction.
8. Badr, H., & Acitelli, L.K. (2005). Dyadic adjustment in chronic illness: Does relationship talk matter? Journal of Family Psychology, 19(3), 465-469. doi: 10.1037/0893-3200.19.3.465.
9. Badr, H., Carmack, C.L., Kashy, D.A., Cristofanilli, M., & Revenson, T.A. (2010). Dyadic coping in metastatic breast cancer. Health Psychology, 29(2), 169-180.
10. Badr, H., & Carmack Taylor, C.L. (2008). Effects of relational maintenance on psychological distress and dyadic adjustment among couples coping with lung cancer. Health Psychology, 27(5), 616-627.
11. Boss, P., & Couden, B. (2002). Ambiguous loss from chronic physical illness: Clinical interventions with individuals, couples and families. Journal of Clinical Psychology, 58(11), 1351-1360. doi: 10.1002/jclp.10083.
12. Broyard, A. (1993). Intoxicated by my illness: And other writings on life and death. New York: Fawcett Columbine.
13. Bury, M. (1982). Chronic illness as biographical disruption. Sociology of Health & Illness, 4(2), 167-182.
14. Charmaz, K. (1983). Loss of self: A fundamental form of suffering in the chronically ill. Sociology of Health & Illness, 5(2), 168-195.
15. Coffey, E.P. (2004). The symptom is stillness: Living with and dying from ALS. In J. Berzoff & P.R. Silverman (Eds.), Living with dying: A handbook for end of life healthcare practitioners (pp. 43-56). New York: Columbia University Press.
16. Cole, R.E., & Reiss, D. (1993). How do families cope with chronic illness? Hillsdale, NJ: Lawrence Erlbaum Associates, Inc.
17. Coyne, J.C., Rohrbaugh, M.J., Shoham, V., Sonnega, J.S., & Nicklas, J.M. (2001). Prognostic importance of marital quality for survival of congestive heart failure. American Journal of Cardiology, 88, 526-529.
18. Coyne, J.C., & Smith, D.A. (1991). Couples coping with a myocardial infarction: A contextual perspective on wives' distress. Journal of Personality and Social Psychology, 61(3), 404-412.
19. Cutrona, C.E. (1996). Social support as a determinant of marital quality. In G. R. Pierce, B. R. Sarason, & I. G. Sarason (Eds.), Handbook of social support and the family (pp. 173-194). New York, NY: Plenum Press.
20. Cutrona, C.E., Russell, D.W., & Gardner, K.A. (2005). The Relationship Enhancement Model of Social Support. In T.A. Revenson, K. Kayser, & G. Bodenmann (Eds.), Couples coping with stress: Emerging perspectives on dyadic coping (pp. 73-95). Washington, DC: American Psychological Association.
21. Dale, B., & Altschuler, J. (1999). 'In sickness and in health': The development of alternative discourses in work with families with parental illness. Journal of Family Therapy, 21(3), 267-283.
22. Eccleston, C., & Crombez, C. (1999). Pain demands attention: A cognitive-active model of the interruptive function of pain. Psychological Bulletin, 125(3), 356-366.
23. Edmondson, D., Richardson, S., Falzone, L., Davidson, K.W., Mills, M.A., & Neria, Y. (2012). Posttraumatic stress disorder prevalence and risk of recurrence in acute coronary syndrome patients: A meta-analytic review. PLoS ONE, 7(6), e38915. Retrieved June 1, 2012, from www.plosone.org.
24. Eriksson, M., & Svedlund, M. (2006). The "intruder:" Spouses' narratives about life with a chronically ill partner. Journal of Clinical Nursing, 15, 324-333.
25. Fekete, E.M., Stephens, M., Mickelson, K.D., & Druley, J. (2007). couples' support provision during illness: The role of perceived emotional responsiveness. Families, Systems, & Health, 25(2), 204-217.
26. Fiese, B.H., & Wamboldt, F.S. (2003). Coherent accounts of coping with a chronic illness: Convergences and divergences in family measurement using a narrative analysis. Family Process, 42(4), 439-451.
27. Figley, C.R. (1995). Compassion fatigue: Coping with secondary traumatic stress disorder in those who treat the traumatized. Philadelphia, PA: Brunner/Mazel, Inc.
28. deFigueiredo, J.M. (2007). Demoralization and psychotherapy: A tribute to Jerome D. Frank, MD, PhD (1909-2005). Psychotherapy and Psychosomatics, 76(3), 129-133.
29. Frank, A.W. (1998). Just listening: Narrative and deep illness. Family, Systems and Health, 16(3), 197-212.
30. Gramsci, A. (1971). The prison notebooks: Selections. New York: International.
31. Griffith, J.L. (2010). Religion that heals, religion that harms: A guide for clinical practice. New York, NY: Guilford Press.
32. Griffith, J.L., & Elliott, M. (1994). The body speaks: Therapeutic dialogues for mind-body problems. New York, NY: Basic Books.
33. Griffith, J.L., & Gaby, L. (2005). Brief psychotherapy at the bedside: Countering demoralization from medical illness. Psychosomatics, 46, 109-116.
34. Groth, T., Fehm-Wolfsdorf, G., & Hahlweg, K. (2000). Basic research on the psychobiology of intimate relationships. In K.B. Schmaling & T. Sher (Eds.), The psychology of couples and illness: Theory, research, & practice (pp. 13-42). Washington, DC: American Psychological Association.
35. Gurung, R.R. (2010). Health psychology: A cultural approach (2nd ed.). Belmont, CA: Wadsworth/Cengage Learning.
36. Hagedoorn, M., Sanderman, R., Bolks, H.N., Tuinstra, J., & Coyne, J.C. (2008). Distress in couples coping with cancer: A meta-analysis and critical review of role and gender effects. Psychological Bulletin, 134(1), 1-30.
37. Hoblitzelle, O.A. (2008). The majesty of your loving: A couple's journey through Alzheimers. Cambridge, MA: Green Mountain Books.
38. Hoffman, L. (2007). The art of "withness": A new bright edge. In H. Anderson & D. Gehart (Eds.), Collaborative therapy: Relationships and conversations that make a difference (pp. 63-79). New York, NY: Taylor & Francis Group.
39. Holt-Lunstad, J., Smith, T.B., & Layton, J.B. (2010). Social relationships and mortality risk: A meta-analytic review. PLoS Medicine, 7(7), e1000316. doi: 10.1371/journal.pmed.1000316.
40. Kahn, D.L., & Steeves, R.H. (1986). The experience of suffering: Conceptual clarification and theoretical definition. Journal of Advanced Nursing, 11, 623-631.
41. Kowal, J., Johnson, S.M., & Lee, A. (2003). Chronic illness in couples: A case for emotionally focused therapy. Journal of Marital and Family Therapy, 29(3), 299-310.
42. Landau, J., & Hissett, J. (2008). Mild traumatic brain injury: Impact on identity and ambiguous loss in the family. Families, Systems, & Health, 26(1), 69-85.
43. Laurenceau, J., Barrett, L., & Pietromonaco, P. (1998). Intimacy as an interpersonal process: The importance of self-disclosure, partner disclosure and perceived partner responsiveness in interpersonal exchanges. Journal of Personality and Social Psychology, 74, 1238-1251.
44. Lindbergh, A.M. (1973). Hour of gold, hour of lead. New York: Harcourt, Brace, Jovanovich.
45. Manne, S., Ostroff, J., Rini, C., Fox, K., Goldstein, L., & Grana, G. (2004). The interpersonal process model of intimacy: The role of self-disclosure, partner disclosure, and partner responsiveness in interactions between breast cancer patients and their partners. Journal of Family Psychology, 18, 589-599.
46. Martire, L.M., Schulz, R., Helgeson, V.S., Small, B.J., & Saghafi, E.M. (2010). Review and meta-analysis of couple-oriented interventions for chronic illness. Annals of Behavioral Medicine, 40(3), 325-342.
47. McAdams, D.P. (2006). The problem of narrative coherence. Journal of Constructivist Psychology, 19(2), 109-125.
48. McDaniel, S. H., Hepworth, J., & Doherty, W. (1992). Medical family therapy: A biopsychosocial approach to families with health problems. New York, NY: Basic Books.
49. McDaniel, S.H., Hepworth, J., & Doherty, W. (1997). The shared experience of illness: Stories of patients, families, and their therapists. New York, NY: Basic Books.
50. McLean, L.M., & Jones, J.M. (2007). A review of distress and its management in couples facing end-of-life cancer. Psycho-Oncology, 16(7), 603-616.
51. Mohr, D.C., Moran, P.J., Kohn, C., Hart, S., Armstrong, K., Dias, R. et al. (2003). Couples therapy at end of life. Psycho-Oncology, 12(6), 620-627.
52. Neimeyer, R.A. (2004). Fostering posttraumatic growth: A narrative contribution. Psychological Inquiry, 15, 53-59.
53. Neimeyer, R.A., Herrero, O., & Botella, L. (2006). Chaos to coherence: Psychotherapeutic integration of traumatic loss. Journal of Constructivist Psychology, 19(2), 127-145.
54. Osborn, M., & Smith, J.A. (2006). Living with a body separate from the self. The experience of the body in chronic benign low back pain: An interpretative phenomenological analysis. Scandinavian Journal of Caring Sciences, 20(2), 216-222.
55. Penn, P. (2001). Chronic illness: Trauma, language, and writing: Breaking the silence. Family Process, 40(1), 33-52.
56. Pennebaker, J.W. (1995). Emotion, disclosure, & health. Washington, DC: American Psychological Association.
57. Reeve, J., Lloyd-Williams, M., Payne, S., & Dowrick, C. (2010). Revisiting biographical disruption: Exploring individual embodied illness experience in people with terminal cancer. Health: An Interdisciplinary Journal for The Social Study Of Health, Illness And Medicine, 14(2), 178-195.
58. Reis, H., & Shaver, P. (1988). Intimacy as an interpersonal process. In S. Duck (Ed.), Handbook of personal relationships (pp. 367-389). Chichester, England: Wiley.
59. Revenson, T.A., Abraído-Lanza, A.F., Majerovitz, S., & Jordan, C. (2005). Couples coping with chronic illness: What's gender got to do with it? In T.A. Revenson, K. Kayser, & G. Bodenmann (Eds.), Couples coping with stress: Emerging perspectives on dyadic coping (pp. 137-156). Washington, DC: American Psychological Association.
60. Rinpoche, S. (1994). The Tibetan book of living and dying. San Francisco: HarperCollins.
61. Rolland, J.S. (1987). Chronic illness and the life cycle: A conceptual framework. Family Process, 26(2), 203-221.
62. Rolland, J.S. (1994). In sickness and in health: The impact of illness on couples' relationships. Journal of Marital and Family Therapy, 20(4), 327-347.
63. Roos, S. (2002). Chronic sorrow: A living loss. New York, NY: Brunner-Routledge.
64. Roos, S., & Neimeyer, R.A. (2007). Reauthoring the self: Chronic sorrow and posttraumatic stress following the onset of CID. In E. Martz & H. Livneh (Eds.), Coping with chronic illness and disability: Theoretical, empirical, and clinical aspects (pp. 89-106). New York, NY: Springer Science.
65. Ruddy, N., & McDaniel, S. H. (2008). Couple therapy and medical issues: Working with couples facing illness. In A.S. Gurman & A.S. Gurman (Eds.), Clinical handbook of couple therapy (4th ed., pp. 618-637). New York, NY: Guilford Press.
66. Schmaling, K.B., & Sher, T.G. (2000). The psychology of couples and illness: Theory, research, and practice (1st ed.). Washington, DC: American Psychological Association.
67. Shields, C.G., Finley, M.A., Chawla, N., & Meadors, P. (2012). Couple and family interventions in health problems. Journal of Marital and Family Therapy, 38(1), 265-280.
68. Shotter, J. (2012). Withness thinking. International Journal of Collaborative Practices, 3(1), 1-13.
69. Skerrett, K. (2003). Couple dialogues with illness: Expanding the 'we'. Families, Systems, & Health, 21(1), 69-80.
70. Smyth, J.M., Hockemeyer, J.R., Heron, K.E., Wonderlich, S.A., & Pennebaker, J.W. (2008). Prevalence, type, disclosure, and severity of adverse life events in college students. Journal of American College Health, 57(1), 69-76.
71. Swan, A.H., & Scott, C. (2009). Complicated grief: Implications for the treatment of post-traumatic stress disorder in couples. Sexual and Relationship Therapy, 24(1), 16-29.
72. Vasquez, S. (2011). Pathways to dialogue: The work of collaborative therapists with couples. International Journal of Collaborative Practices, 2(1), 48-66.
73. Walker, K.L., & Dickson, F. C. (2004). An exploration of illness-related narratives in marriage: The identification of illness-identity scripts. Journal of Social and Personal Relationships, 21(4), 527-544.
74. Weingarten, K. (1991). The discourses of intimacy: Adding a social constructionist and feminist view. Family Process, 30(3), 285-305.
75. Weingarten, K. (2003). Common shock - Witnessing violence every day: How we are harmed, how we can heal. New York: Dutton.
76. Weingarten, K. (2010). Reasonable hope: Construct, clinical applications, and supports. Family Process, 49(1), 5-25.
77. Weingarten, K. (2012). Sorrow: A therapist's reflections on the inevitable and the unknowable. Family Process, 51(4), 440-455. In Press.
78. Weingarten, K., & Worthen, M.E. (1997). A narrative approach to understanding the illness experiences of a mother and daughter. Families, Systems and Health, 15(1), 41-54.
79. Wilson, J.P., & Lindy, J.D. (1994). Countertransference in the treatment of PTSD. New York: Guilford Press.
80. Wright, L.M. (2005). Spirituality, suffering, and illness: Ideas for healing. Philadelphia, PA: F.A. David and Company.
81. Wright, L.M., & Bell, J.M. (2009). Beliefs and illness: A model for healing. Calgary, Canada: 4th Floor Press.
82. Wright, L.M., Watson, W.L., & Bell, J.M. (1996). Beliefs: The heart of healing in families and illness. New York: BasicBooks.
83. Wu, S.Y., & Green, A. (2000). Projection of chronic illness prevalence and cost inflation. Santa Monica, CA: RAND Health; Centers for Disease Control and Prevention, National Center for Injury Prevention and Control. Retrieved June 6, 2012, from http://www.cdc.gov/chronicdisease/overview/index.htm.
84. Yang, H.C., & Schuler, T.A. (2009). Marital quality and survivorship: Slowed recovery for breast cancer patients in distressed relationships. Cancer, 115(1), 217-228.
85. Young, D.W., & Rosenthal, D. (1999). couples' experience of illness: The daily lives of patients and spouses. Families, Systems, & Health, 17(3), 265-285.