A hidden kind of suffering: Female patient's complaints to Patient's Advisory Committee

Scandinavian Journal of Caring Sciences

Volumn 26, Issue 1, 2012, Pages 144-150

  Söderberg, Siv ^a   Olsson, Malin ^a   Skär, Lisa ^a  

^a LULEÅ UNIVERSITY OF TECHNOLOGY   (Sweden)

Author keywords

Dignity; Dissatisfaction with health care; Female patients; Information; Qualitative content analysis; Quality of care

Indexed keywords

ADOLESCENT; ADULT; ADVISORY COMMITTEE; AGED; ARTICLE; FEMALE; HEALTH CARE QUALITY; HUMAN; HUMAN RELATION; MIDDLE AGED; PATIENT SATISFACTION; PERSONHOOD; QUALITATIVE RESEARCH; SWEDEN; VERBAL COMMUNICATION;

ADOLESCENT; ADULT; ADVISORY COMMITTEES; AGED; FEMALE; HUMANS; MIDDLE AGED; NARRATION; PATIENT SATISFACTION; PERSONHOOD; PROFESSIONAL-PATIENT RELATIONS; QUALITATIVE RESEARCH; QUALITY OF HEALTH CARE; SWEDEN;

EID: 84857064807     PISSN: 02839318     EISSN: 14716712     Source Type: Journal    
DOI: 10.1111/j.1471-6712.2011.00936.x     Document Type: Article

References (42)

1. Söderberg S, Lundman B, Norberg A. Struggling for dignity: women's experiences of living with fibromyalgia. Qual Health Res 1999; 9: 575-87.
2. Sundin K, Axelsson K, Jansson L, Norberg A. Suffering from care as expressed in the narratives of former patients in somatic wards. Scand J Caring Sci 2000; 14: 16-22.
3. Eriksson K. The Suffering Human Being. 2006, Nordic Studies Press, Chicago.
4. Eriksson U, Svedlund M. Struggling for confirmation: patients' experiences of dissatisfaction with hospital care. J Clin Nurs 2007; 16: 438-46.
5. Jumisko J, Lexell J, Söderberg S. The experiences of treatment from other people as narrated by people with moderate or severe traumatic brain injury and their close relatives. Disabil Rehabil 2007; 29: 1535-43.
6. Widäng I, Fridlund B, Mårtensson J. Women patients' conceptions of integrity within health care: a phenomenological study. J Adv Nurs 2007; 61: 540-8.
7. Eriksson K. Understanding the world of the patient, the suffering human being: the new clinical paradigm from nursing to caring. Adv Pract Nurs Q 1997; 3: 8-13.
8. Eriksson K, Lindström U. Möten med lidanden i vården. In Möten med lidanden (Encountering Suffering) (Eriksson K, ed.), 1993, Åbo Akademi, Åbo, 139-76.
9. Andersson M. Integritet som begrepp och princip: En studie av ett vårdetiskt ideal i utveckling (Integrity as a Concept and as a Principle in Healthcare Ethics). 1996, Integer, Knivsta.
10. Ellström P-E, Kock H. Kompetensutveckling i offentlig verksam. Forskningsöversikt (Competence Development in Public Work, a Research Overview). 1993, Allmänna Förlaget, Stockholm.
11. Beach MC, Sugarman J, Johnson RL, Arbelaez JJ, Duggan PS, Cooper LA. Do patients treated with dignity report higher satisfaction, adherence, and receipt of preventive care. Ann Fam Med 2005; 3: 331-8.
12. Lazare A. Shame and humiliation in the medical encounter. Arch Intern Med 1987; 147: 1653-8.
13. Jacobson N. Dignity violation in health care. Qual Health Res 2009; 19: 1536-47.
14. Drew N. Exclusion and confirmation: a phenomenology of patients' experiences with caregivers. J Nurs Scholarsh 1986; 18: 39-43.
15. Attre M. Patients' and relatives' experiences and perspectives of god and not so bad quality care. J Adv Nurs 2001; 33: 456-66.
16. Söderberg S. Women's Experiences of Living with Fibromyalgia: Struggling for Dignity [PhD thesis]. 1999, Umeå University, Sweden.
17. Coyle J, Williams B. Seen the wood for the threes. The finding the forgotten concept of patient dissatisfaction in the light of patient satisfaction research. Int J Health Care Qual Assur Inc Leaderssh Health Serv 1999; 12: 1-9.
18. Connolly M. Female embodiment and clinical practise. In Handbook of Phenomenology and Medicine (Toombs SK, ed.), 2001, Kluwer Academic Publishers, Dordrecht, the Netherlands, 177-96.
19. Mishler E. Research Interviewing: Context and Narrative. 1986, Harvard University Press, Cambridge, MA.
20. Sandelowski M. Telling stories. Narrative approaches in qualitative research. J Nurs Scholarsh 1991; 23: 179-83.
21. Woods NF, Catanzaro M. Nursing Research. Theory and Practice. 1988, Mosby Company, St Louis, MO.
22. Morse JM. Qualitative Nursing Research. 1991, Sage Publications, Newbury Park, London and New Delhi.
23. Downe-Wamboldt B. Content analysis: method, applications, and issues. Health Care Women Int 1992; 13: 313-21.
24. Gallagher A. Dignity and respect for dignity. Two key health professional values: implications for nursing practice. Nurs Ethics 2004; 10: 587-99.
25. Svensson T, Karlsson A, Alexanderson K, Nordqvist C. Shame-inducing encounters. Negative emotional aspects of sickness-absentees' interactions with rehabilitation professional. J Occup Rehabil 2003; 13: 183-95.
26. Skuladottir H, Halldorsdottir A. Women in chronic pain: sense of control and encounters with health professionals. Qual Health Res 2008; 18: 891-901.
27. Matiti MR, Trorey GM. Patients' expectations of the maintenance of their dignity. J Clin Nurs 2008; 17: 2709-17.
28. Mussener U, Festin K, Upmark M, Alexandersson K. Positive experiences of encounters with healthcare and social insurance professionals among people on long-term sick leave. J Rehabil Med 2008; 40: 805-11.
29. Wendell S. The Rejected Body. 1996, Routledge, New York.
30. Frank AW. The Wounded Story Teller. Body, Illness and Ethics. 1995, The University of Chicago Press, Chicago and London.
31. Söderberg S, Lundman B, Norberg A. The meaning of fatigue and tiredness as narrated by women with fibromyalgia and healthy women. J Clin Nurs 2002; 11: 247-55.
32. Johannisson K. Att lida och fördraga (To suffer and endure). In Lidandets mening (The Meaning of Suffering) (Kallenberg K, ed.), 1992, Natur & Kultur, Stockholm, 112-23.
33. Toombs SK. The meaning of illness. A phenomenological account of the different perspectives of physician and patient. In Philosophy and Medicine (Engelhardt HT Jr, Spicker SF, eds), 1992, Kluwer Academic Publishers, Dordrecht, the Netherlands, 27-161.
34. Okkenhaug B. Skam i et teologisk og sjelesorgerisk perspektiv. Tidskrift for Sjelesorg 2003; 1: 17-27.
35. Fredriksson L, Eriksson K. The ethics of the caring conversation. Nurs Ethics 2003; 10: 138-48.
36. Marcel G. The Mystery of Being I. Reflection and Mystery. 1950, Harvill Press, London.
37. Cissna KNL, Sieburg E. Patterns of Interactional Confirmation and Disconfirmation. In Rigor and Imagination (Wildermott C, Weakland JH, eds), 1981, Praeger, New York, 253-82.
38. Buber M. Jag och Du (I and Thou). 19571994, Dualis Förlag, Ludvika, Sweden.
39. Crigger N. Always having to say you're sorry: an ethical response to making mistakes in professional practice. Nurs Ethics 2004; 11: 568-76.
40. Arman M, Rehnsfeldt A, Lindholm L, Hamrin E, Eriksson K. Suffering related to health care: a study of breast cancer patients' experiences. Int J Nurs Pract 2004; 10: 248-56.
41. Polit DF, Beck CT. Nursing Research: Principles and Methods, 8th edn. 2008, Lippincott Williams & Wilkins, Philadelphia, PA.
42. Sandelowski M. Focus on qualitative methods: sample size in qualitative research. Res Nurs Health 1995; 18: 479-82.