Living as a family in the midst of chronic illness

Scandinavian Journal of Caring Sciences

Volumn 28, Issue 1, 2014, Pages 29-37

  Årestedt, Liselott ^a   Persson, Carina ^a   Benzein, Eva ^a  

^a LINNAEUS UNIVERSITY   (Sweden)

Author keywords

Chronic illness; Family; Family systems nursing; Lived experience; Phenomenological hermeneutics

Indexed keywords

CHRONIC DISEASE; FAMILY; FEMALE; HUMAN; MALE; PSYCHOLOGY;

CHRONIC DISEASE; FAMILY; FEMALE; HUMANS; MALE;

EID: 84892842006     PISSN: 02839318     EISSN: 14716712     Source Type: Journal    
DOI: 10.1111/scs.12023     Document Type: Article

References (35)

1. Telford K, Kralik D, Koch T. Acceptance and denial: implications for people adapting to chronic illness: literature review. J Adv Nurs 2006; 55: 457-64.
2. Cheung J, Hocking P. Caring as worrying: the experience of spousal carers. J Adv Nurs 2004; 47: 475-82.
3. Eriksson M, Svedlund M. "The intruder": spouses" narratives about life with a chronically ill partner. J Clin Nurs 2006; 15: 324-33.
4. Lundman B, Jansson L. The meaning of living with a long-term disease. To revalue and be revalued. J Clin Nurs 2007; 16: 109-15.
5. Kralik D, Brown M, Koch T. Women's experiences of 'being diagnosed' with a long-term illness. J Adv Nurs 2001; 33: 594-602.
6. Lindsey E. Experiences of the chronically ill: a covert caring for the self. J Holist Nurs 1997; 15: 227-42.
7. Burström M, Brännström M, Boman K, Strandberg G. Life experiences of security and insecurity among women with chronic heart failure. J Adv Nurs 2012; 68: 816-25.
8. Eriksson M, Asplund K, Svedlund M. Couples' thoughts about and expectations of their future life after the patient's hospital discharge following acute myocardial infarction. J Clin Nurs 2010; 19: 3485-93.
9. Trief PM, Sandberg J, Greenberg RP, Graff K, Castronova N, Yoon M, Weinstock R. Describing support: a qualitative study of couples living with diabetes. Fam Syst Health 2003; 21: 57-67.
10. Yorgason JB, Roper SO, Wheeler B, Crane K, Byron R, Carpenter L, Sandberg JG, Sheffield R, Higley D. Older couples' management of multiple-chronic illnesses: individual and shared perceptions and coping in Type 2 diabetes and osteoarthritis. Fam Syst Health 2010; 28: 30-47.
11. Dalteg T, Benzein E, Fridlund B, Malm D. Cardiac disease and its consequences on the partner relationship: a systematic review. Eur J Cardiovasc Nurs 2011; 10: 140-9.
12. Cup EH, Kinebanian A, Satink T, Pieterse AJ, Hendricks HT, Oostendorp RA, van der Wilt GJ, van Engelen BG. Living with myotonic dystrophy; what can be learned from couples? A qualitative study. BMC neurol 2011; 11: 86.
13. Starks H, Morris MA, Yorkston KM, Gray RF, Johnson KL. Being in- or out-of-sync: couples' adaptation to change in multiple sclerosis. Disabil Rehabil 2010; 32: 196-206.
14. Eggenberger SK, Meiers SJ, Krumwiede N, Bliesmer M, Earle P. Reintegration within families in the context of chronic illness: a family health promoting process. J Nurs Healthc Chronic Illn 2011; 3: 283-92.
15. Benzein EG, Hagberg M, Saveman B-I. "Being appropriately unusual": a challenge for nurses in health-promoting conversations with families. Nursing Inquiry. 2008; 15: 106-15.
16. Wright LM, Leahey M. Nurses and Families: A Guide to Family Assessment and Intervention. 5th ed. 2009, Philadelphia: F.A. Davis.
17. Wright LM, Bell JM. Beliefs and Illness: A Model for Healing. 2009, 4th Floor Press, Calgary.
18. Whall AL. The family as the unit of care in nursing: a historical review. Public Health Nurs 1986; 3: 240-9.
19. Lindseth A, Norberg A. A phenomenological hermeneutical method for researching lived experience. Scand J Caring Sci 2004; 18: 145-53.
20. Ricour P. Hermenezrutics and the Human Sciences: essays on Language, Action, and Interpretation. 1981, Cambridge Eng.; Cambridge University Press, New York.
21. Curtin M, Lubkin I. What is chronicity? In: Chronic Illness: Impact and Interventions (Lubkin I ed), 1995 Jones and Bartlett, Boston.
22. Eggenberger SK, Nelms TP. Family interviews as a method for family research. J Adv Nurs 2007; 58: 282-92.
23. Tomm K, Liedén L. Systemisk Intervjumetodik (Systemic Interview Methodology). 2009, Stockholm: Mareld.
24. World Medical Association. Declaration of Helsinki-Ethical Priciples for Medical Research Involving Humazrn Subjects, http://www.wma.net/en/30publications/10policies/b3/index.html.pdfAccess date 2012-10-12
25. Newman MA. Health as Expanding Consciousness. 2. ed. 1994, National League for Nursing, NLN Publication/National League for Nursing, New York
26. Picard C, Jones DA. Giving Voice to What we Know: Margaret Newman's Theory of Health as Expanding Consciousness in Nursing Practice, Research, and Education. 2005, Jones and Bartlett Publishers, Sudbury, Mass.
27. Kubo E, Nitta N, Inayoshi M, Saito R, Takemura K, Minegishi H, Kubo E, Kondo M. Pattern recognition as a caring partnership in families with cancer. J Adv Nurs 2000; 32: 603-10.
28. Newman MA. Transforming Presence: The Difference that Nursing Makes. 2008, Philadelphia: F.A. Davis.
29. Paterson BL. The shifting perspectives model of chronic illness. J Nurs Scholarsh 2001; 33: 21-6.
30. Knafl KA, Gilliss CL. Families and chronic illness: a synthesis of current research. J Fam Nurs 2002; 8: 178-98.
31. Astedt-Kurki P, Paavilainen E, Lehti K. Methodological issues in interviewing families in family nursing research. J Adv Nurs 2001; 35: 288-93.
32. Gustafsson G, Strandberg G. Meanings of staying healthy in a context where others developed burnout - phenomenological-hermeneutic interpretation of healthcare personnel's narratives. Scand J Caring Sci 2009; 23: 456-64.
33. Ricour P. Interpretation Theory: Discourse and the Surplus of Meaning. 1976, Texas Christian University Press, Fort Worth.
34. Ahlström BH, Skärsäter I, Danielson E. The meaning of major depression in family life: the viewpoint of the ill parent. J Clin Nurs 2010; 19: 284-93.
35. Ericson-Lidman E, Strandberg G. Meanings of being a supervisor for care providers suffering from burnout: from initial signs to recuperation. J Nurs Manag 2009; 17: 366-75.