Social well-being among adolescents and young adults with cancer: A systematic review

Cancer

Volumn 122, Issue 7, 2016, Pages 1029-1037

  Warner, Echo L ^a   Kent, Erin E ^b   Trevino, Kelly M ^c   Parsons, Helen M ^d   Zebrack, Bradley J ^e   Kirchhoff, Anne C ^a  

^a UNIVERSITY OF UTAH SCHOOL OF MEDICINE   (United States)

^b NATIONAL CANCER INSTITUTE   (United States)

^c WEILL CORNELL MEDICAL COLLEGE   (United States)

^d UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT SAN ANTONIO   (United States)

^e UNIVERSITY OF MICHIGAN   (United States)

Author keywords

adolescent and young adult; cancer; education; employment; social support

Indexed keywords

ADOLESCENT; ADULT; CANCER DIAGNOSIS; CANCER PATIENT; CANCER SURVIVOR; EDUCATIONAL STATUS; EMPLOYMENT STATUS; FAMILY RELATION; FINANCIAL MANAGEMENT; HUMAN; INTIMACY; MALIGNANT NEOPLASTIC DISEASE; MARRIAGE; META ANALYSIS (TOPIC); PEER GROUP; PRIORITY JOURNAL; QUALITY OF LIFE; REVIEW; SOCIAL ASPECT; SOCIAL CARE; SOCIAL SUPPORT; SOCIAL WORK; SYSTEMATIC REVIEW; URBAN AREA; WELLBEING; YOUNG ADULT; ADAPTIVE BEHAVIOR; CHILD; FEMALE; MALE; NEOPLASM; PSYCHOLOGY; SURVIVOR;

ADAPTATION, PSYCHOLOGICAL; ADOLESCENT; ADULT; CHILD; FEMALE; HUMANS; MALE; NEOPLASMS; QUALITY OF LIFE; SOCIAL SUPPORT; SURVIVORS; YOUNG ADULT;

EID: 84961842015     PISSN: 0008543X     EISSN: 10970142     Source Type: Journal    
DOI: 10.1002/cncr.29866     Document Type: Review

References (53)

1. National Cancer Institute, National Institutes of Health. A snapshot of adolescent and young adult cancers. http://nci.nih.gov/aboutnci/servingpeople/snapshots/AYA.pdf. Accessed July 2, 2015.
2. Adolescent and Young Adult Oncology Progress Review Group. Closing the Gap: Research and Care Imperatives for Adolescents and Young Adults with Cancer. Bethesda, MD: US Department of Health and Human Services, National Institutes of Health, National Cancer Institute, LIVESTRONG Young Adult Alliance; 2006.
3. Smith AW, Seibel NL, Lewis DR, et al., Next steps for adolescent and young adult oncology workshop: an update on progress and recommendations for the future. Cancer. 2016; 122: 988-999.
4. City of Hope. Quality of life model applied to cancer survivors. http://prc.coh.org/pdf/cancer-survivor-QOL.pdf. Accessed March 30, 2015.
5. HealthyPeople.gov. Health-related quality of life and well-being. Healthy People, 2015. http://www.healthypeople.gov/2020/topics-objectives/topic/health-related-quality-of-life-well-being. Accessed May 1, 2015.
6. Arnett JJ,. Conceptions of the transition to adulthood: perspectives from adolescence through midlife. J Adult Dev. 2001; 8: 133-143.
7. Eccles JS, Midgley C, Wigfield A, et al., Development during adolescence. The impact of stage-environment fit on young adolescents' experiences in schools and in families. Am Psychol. 1993; 48: 90-101.
8. Gavaghan MP, Roach JE,. Ego identity development of adolescents with cancer. J Pediatr Psychol. 1987; 12: 203-213.
9. Arnett JJ,. Emerging adulthood. A theory of development from the late teens through the twenties. Am Psychol. 2000; 55: 469-480.
10. Arnett JJ,. Conceptions of the transition to adulthood among emerging adults in American ethnic groups. New Dir Child Adolesc Dev. 2003 (100): 63-75.
11. Arnett JJ, Galambos NL,. Culture and conceptions of adulthood. New Dir Child Adolesc Dev. 2003;(100): 91-98.
12. Educational Psychology Interactive. Social development: why it is important and how to impact it. http://www.edpsycinteractive.org/papers/socdev.pdf. Accessed July 2, 2015.
13. Nass SJ, Beaupin LK, Demark-Wahnefried W, et al., Identifying and addressing the needs of adolescents and young adults with cancer: summary of an Institute of Medicine workshop. Oncologist. 2015; 20: 186-195.
14. Liberati A, Altman DG, Tetzlaff J, et al., The PRISMA statement for reporting systematic reviews and meta-analyses of studies that evaluate health care interventions: explanation and elaboration. BMJ. 2009; 339: b2700.
15. Moher D, Liberati A, Tetzlaff J, Altman DG,; PRISMA Group. Preferred reporting items for systematic reviews and meta-analyses: the PRISMA statement. PLoS Med. 2009; 6: e1000097.
16. Baerg S,. " Sometimes there just aren't any words": using expressive therapy with adolescents living with cancer. Can J Couns. 2003; 37: 65-74.
17. Neal MS, Nagel K, Duckworth J, et al., Effectiveness of sperm banking in adolescents and young adults with cancer: a regional experience. Cancer. 2007; 110: 1125-1129.
18. Stegenga K, Ward-Smith P,. The adolescent perspective on participation in treatment decision making: a pilot study. J Pediatr Oncol Nurs. 2008; 25: 112-117.
19. Beale IL, Kato PM, Marin-Bowling VM, Guthrie N, Cole SW,. Improvement in cancer-related knowledge following use of a psychoeducational video game for adolescents and young adults with cancer. J Adolesc Health. 2007; 41: 263-270.
20. Bellizzi KM, Smith A, Schmidt S, et al,; Adolescent and Young Adult Health Outcomes and Patient Experience (AYA HOPE) Study Collaborative Group. Positive and negative psychosocial impact of being diagnosed with cancer as an adolescent or young adult. Cancer. 2012; 118: 5155-5162.
21. Carpentier MY, Fortenberry JD, Ott MA, Brames MJ, Einhorn LH,. Perceptions of masculinity and self-image in adolescent and young adult testicular cancer survivors: implications for romantic and sexual relationships. Psychooncology. 2011; 20: 738-745.
22. Dieluweit U, Debatin KM, Grabow D, et al., Social outcomes of long-term survivors of adolescent cancer. Psychooncology. 2010; 19: 1277-1284.
23. Geue K, Sender A, Schmidt R, et al., Gender-specific quality of life after cancer in young adulthood: a comparison with the general population. Qual Life Res. 2014; 23: 1377-1386.
24. Goodall S, King M, Ewing J, Smith N, Kenny P,. Preferences for support services among adolescents and young adults with cancer or a blood disorder: a discrete choice experiment. Health Policy. 2012; 107: 304-311.
25. Grinyer A,. The biographical impact of teenage and adolescent cancer. Chronic Illn. 2007; 3: 265-277.
26. Guy GP Jr, Yabroff KR, Ekwueme DU, et al., Estimating the health and economic burden of cancer among those diagnosed as adolescents and young adults. Health Aff (Millwood). 2014; 33: 1024-1031.
27. Keegan TH, Lichtensztajn DY, Kato I, et al., Unmet adolescent and young adult cancer survivors information and service needs: a population-based cancer registry study. J Cancer Surviv. 2012; 6: 239-250.
28. Kent EE, Sender LS, Morris RA, et al., Multilevel socioeconomic effects on quality of life in adolescent and young adult survivors of leukemia and lymphoma. Qual Life Res. 2013; 22: 1339-1351.
29. Kent E, Wilder-Smith A, Keegan TH, et al., Talking about cancer and meeting peer survivors: social information needs of adolescents and young adults diagnosed with cancer. J Adolesc Young Adult Oncol. 2013; 2: 44-52.
30. Kent EE, Parry C, Montoya MJ, Sender LS, Morris RA, Anton-Culver H,. " You're too young for this": adolescent and young adults' perspectives on cancer survivorship. J Psychosoc Oncol. 2012; 30: 260-279.
31. Kirchhoff AC, Lyles CR, Fluchel M, Wright J, Leisenring W,. Limitations in health care access and utilization among long-term survivors of adolescent and young adult cancer. Cancer. 2012; 118: 5964-5972.
32. Kirchhoff AC, Yi J, Wright J, Warner EL, Smith KR,. Marriage and divorce among young adult cancer survivors. J Cancer Surviv. 2012; 6: 441-450.
33. Olsen PR, Harder I,. Keeping their world together-meanings and actions created through network-focused nursing in teenager and young adult cancer care. Cancer Nurs. 2009; 32: 493-502.
34. Parsons HM, Harlan LC, Lynch CF, et al., Impact of cancer on work and education among adolescent and young adult cancer survivors. J Clin Oncol. 2012; 30: 2393-2400.
35. Rabin C, Simpson N, Morrow K, Pinto B,. Intervention format and delivery preferences among young adult cancer survivors. Int J Behav Med. 2013; 20: 304-310.
36. Smith AW, Parsons HM, Kent EE, et al,; AYA HOPE Study Collaborative Group. Unmet support service needs and health-related quality of life among adolescents and young adults with cancer: the AYA HOPE Study. Front Oncol. 2013; 8: 75.
37. Smith AW, Bellizzi KM, Keegan TH, et al., Health-related quality of life of adolescent and young adult patients with cancer in the United States: the Adolescent and Young Adult Health Outcomes and Patient Experience Study. J Clin Oncol. 2013; 31: 2136-2145.
38. Tai E, Buchanan N, Townsend J, Fairley T, Moore A, Richardson LC,. Health status of adolescent and young adult cancer survivors. Cancer. 2012; 118: 4884-4891.
39. Valle CG, Tate DF, Mayer DK, Allicock M, Cai J,. A randomized trial of a Facebook-based physical activity intervention for young adult cancer survivors. J Cancer Surviv. 2013; 7: 355-368.
40. Zebrack BJ, Block R, Hayes-Lattin B, et al., Psychosocial service use and unmet need among recently diagnosed adolescent and young adult cancer patients. Cancer. 2013; 119: 201-214.
41. Zebrack B, Bleyer A, Albritton K, Medearis S, Tang J,. Assessing the health care needs of adolescent and young adult cancer patients and survivors. Cancer. 2006; 107: 2915-2923.
42. Kirchhoff AC, Leisenring W, Krull KR, et al., Unemployment among adult survivors of childhood cancer: a report from the Childhood Cancer Survivor Study. Med Care. 2010; 48: 1015-1025.
43. de Boer AG, Verbeek JH, van Dijk FJ,. Adult survivors of childhood cancer and unemployment: a meta-analysis. Cancer. 2006; 107: 1-11.
44. Bleyer A, Ulrich C, Martin S,. Young adults, cancer, health insurance, socioeconomic status, and the Patient Protection and Affordable Care Act. Cancer. 2012; 118: 6018-6021.
45. Kirchhoff AC, Parsons HM, Kuhlthau KA, et al., Supplemental security income and social security disability insurance coverage among long-term childhood cancer survivors. J Natl Cancer Inst. 2015; 107: djv057.
46. Hall-Lande JA, Eisenberg ME, Christenson SL, Neumark-Sztainer D,. Social isolation, psychological health, and protective factors in adolescence. Adolescence. 2007; 42: 265-286.
47. Kameny RR, Bearison DJ,. Cancer narratives of adolescents and young adults: a quantitative and qualitative analysis. Child Health Care. 2002; 31: 143-173.
48. Love B, Donovan EE,. Online friends, offline loved ones, and full-time media: young adult "mass personal" use of communication resources for informational and emotional support. J Cancer Educ. 2014; 29: 241-246.
49. Thompson CM, Crook B, Love B, Macpherson CF, Johnson R,. Understanding how adolescents and young adults with cancer talk about needs in online and face-to-face support groups [published online ahead of print April 27, 2015 ]. J Health Psychol.
50. Cavallo DN, Chou WY, McQueen A, Ramirez A, Riley WT,. Cancer prevention and control interventions using social media: user-generated approaches. Cancer Epidemiol Biomarkers Prev. 2014; 23: 1953-1956.
51. Treadgold CL, Kuperberg A,. Been there, done that, wrote the blog: the choices and challenges of supporting adolescents and young adults with cancer. J Clin Oncol. 2010; 28: 4842-4849.
52. Love B, Thompson CM, Knapp J,. The need to be Superman: the psychosocial support challenges of young men affected by cancer. Oncol Nurs Forum. 2014; 41: E21-E27.
53. Gorman JR, Bailey S, Pierce JP, Su HI,. How do you feel about fertility and parenthood? The voices of young female cancer survivors. J Cancer Surviv. 2012; 6: 200-209.