Limitations in health care access and utilization among long-term survivors of adolescent and young adult cancer

Cancer

Volumn 118, Issue 23, 2012, Pages 5964-5972

  Kirchhoff, Anne C ^a,b   Lyles, Courtney R ^c   Fluchel, Mark ^a,b   Wright, Jennifer ^a,b   Leisenring, Wendy ^d,e  

^a UNIVERSITY OF UTAH   (United States)

^b UNIVERSITY OF UTAH SCHOOL OF MEDICINE   (United States)

^c UNIVERSITY OF CALIFORNIA   (United States)

^d Fred Hutchinson Cancer Research Center   (United States)

^e UNIVERSITY OF WASHINGTON   (United States)

Author keywords

cost of medical care; health care access; health insurance; survivors of adolescent and young adult cancer

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; BEHAVIORAL RISK FACTOR SURVEILLANCE SYSTEM; CANCER SURVIVOR; CONTROLLED STUDY; DOCTOR PATIENT RELATION; FEMALE; HEALTH CARE ACCESS; HEALTH CARE AVAILABILITY; HEALTH CARE COST; HEALTH CARE DISPARITY; HEALTH CARE UTILIZATION; HEALTH INSURANCE; HEALTH STATUS; HUMAN; MAJOR CLINICAL STUDY; MALE; ONSET AGE; PATIENT ATTITUDE; PRIORITY JOURNAL; RISK ASSESSMENT; SELF REPORT;

ADOLESCENT; ADULT; DELIVERY OF HEALTH CARE; FEMALE; HEALTH SERVICES ACCESSIBILITY; HEALTH STATUS; HUMANS; INSURANCE, HEALTH; MALE; NEOPLASMS; SURVIVORS; YOUNG ADULT;

EID: 84869496484     PISSN: 0008543X     EISSN: 10970142     Source Type: Journal    
DOI: 10.1002/cncr.27537     Document Type: Article

References (28)

1. National Cancer Institute. A Snapshot of Adolescent and Young Adult Cancers. http://nci.nih.gov/aboutnci/servingpeople/snapshots/AYA.pdf. Updated October 2011.
2. Canadian Cancer Society Steering Committee. Canadian Cancer Statistics 2009, Special Topic: Cancer in Adolescents and Young Adults. Toronto, Canada: Canadian Cancer Society; 2009.
3. Bleyer A, Budd T, Montello M,. Adolescents and young adults with cancer: the scope of the problem and criticality of clinical trials. Cancer. 2006; 107 (7 suppl): 1645-1655. (Pubitemid 44537071)
4. Bleyer A, O'Leary M, Barr R, Ries LAG, editors. Cancer Epidemiology in Older Adolescents and Young Adults 15 to 29 Years of Age, Including SEER Incidence and Survival: 1975-2000. NIH Publication No. 06-5767. Bethesda, MD: National Cancer Institute; 2006.
5. Tonorezos ES, Oeffinger KC,. Research challenges in adolescent and young adult cancer survivor research. Cancer. 2011; 117 (10 suppl): 2295-2300.
6. Sabatino SA, Coates RJ, Uhler RJ, Alley LG, Pollack LA,. Health insurance coverage and cost barriers to needed medical care among U.S. adult cancer survivors age <65 years. Cancer. 2006; 106: 2466-2475. (Pubitemid 43787672)
7. Weaver KE, Rowland JH, Bellizzi KM, Aziz NM,. Forgoing medical care because of cost: assessing disparities in healthcare access among cancer survivors living in the United States. Cancer. 2010; 116: 3493-3504.
8. Park ER, Li FP, Liu Y, et al. Health insurance coverage in survivors of childhood cancer: the Childhood Cancer Survivor Study. J Clin Oncol. 2005; 23: 9187-9197.
9. Casillas J, Castellino SM, Hudson MM, et al. Impact of insurance type on survivor-focused and general preventive health care utilization in adult survivors of childhood cancer: the Childhood Cancer Survivor Study (CCSS). Cancer. 2011; 117: 1966-1975.
10. Nathan PC, Greenberg ML, Ness KK, et al. Medical care in long-term survivors of childhood cancer: a report from the childhood cancer survivor study. J Clin Oncol. 2008; 26: 4401-4409.
11. Nicholson JL, Collins SR, Mahato B, Gould E, Schoen C, Rustgi SD,. Rite of Passage? Why Young Adults Become Uninsured and How New Policies Can Help, 2009 Update. New York, NY: The Commonwealth Fund; 2009.
12. Stanton MW,. Employer-Sponsored Health Insurance: Trends in Cost and Access. AHRQ Publication No. 04-0085. Rockville, MD: Agency for Healthcare Research and Quality; 2004.
13. Short PF, Vargo MM,. Responding to employment concerns of cancer survivors. J Clin Oncol. 2006; 24: 5138-5141. (Pubitemid 46623200)
14. Zebrack BJ, Mills J, Weitzman TS,. Health and supportive care needs of young adult cancer patients and survivors. J Cancer Surviv. 2007; 1: 137-145.
15. Kapp JM, Jackson-Thompson J, Petroski GF, Schootman M,. Reliability of health-related quality-of-life indicators in cancer survivors from a population-based sample, 2005, BRFSS. Public Health. 2009; 123: 321-325.
16. Moriarty DG, Zack MM, Kobau R,. The Centers for Disease Control and Prevention's Healthy Days Measures-population tracking of perceived physical and mental health over time. Health Qual Life Outcomes. 2003; 1: 37.
17. Centers for Disease Control and Prevention. Measuring Healthy Days: Population Assessment of Health-Related Quality of Life. CDC: Atlanta, GA; 2000.
18. Hosmer DW, Lemeshow L,. Applied Logistic Regression. 2nd ed. New York, NY: John Wiley & Sons; 2000.
19. Heeringa SG, West BT, Berglund PA,. Applied Survey Data Analysis. Boca Raton, FL: Chapman & Hall/CRC; 2010.
20. Brown ML, Yabroff KR,. Economic impact of cancer in the United States. In:, Schottenfeld D, Fraumeni JF Jr, editors. Cancer Epidemiology and Prevention. 3rd edition. New York, NY: Oxford Univ Press; 2006: 202-214.
21. Park MJ, Paul Mulye T, Adams SH, Brindis CD, Irwin CE Jr,. The health status of young adults in the United States. J Adolesc Health. 2006; 39: 305-317. (Pubitemid 44224137)
22. Moy B, Polite BN, Halpern MT, et al. American Society of Clinical Oncology policy statement: opportunities in the Patient Protection and Affordable Care Act to reduce cancer care disparities. J Clin Oncol. 2011; 29: 3816-3824.
23. Wolfson J, Ruccione K, Reaman GH,. Health care reform 2010: expected favorable impact on childhood cancer patients and survivors. Cancer J. 2010; 16: 554-562.
24. Gruber J, Perry I,. Realizing Health Reform's Potential: Will the Affordable Care Act Make Health Insurance Affordable? New York, NY: The Commonwealth Fund; 2011.
25. Nathan PC, Hayes-Lattin B, Sisler JJ, Hudson MM,. Critical issues in transition and survivorship for adolescents and young adults with cancers. Cancer. 2011; 117 (10 suppl): 2335-2341.
26. Centers for Disease Control and Prevention. Behavioral Risk Factor Surveillance System 2009 Summary Data Quality Report. CDC: Atlanta, GA; 2011.
27. Schneider KL, Clark MA, Rakowski W, Lapane KL,. Evaluating the impact of non-response bias in the Behavioral Risk Factor Surveillance System (BRFSS). J Epidemiol Community Health. 2012; 66: 290-295.
28. National Cancer Institute. Closing the Gap: Research and Care Imperatives for Adolescents and Young Adults with Cancer. Report of the Adolescent and Young Adult Oncology Progress Review Group. Bethesda, MD: National Cancer Institute; 2006.