메뉴 건너뛰기




Volumn 3, Issue , 2013, Pages

Unmet support service needs and health-related quality of life among adolescents and young adults with cancer: The AYA HOPE study

(35)  Smith, Ashley Wilder a   Parsons, Helen M b   Kent, Erin E a   Bellizzi, Keith c   Zebrack, Brad J d   Keel, Gretchen e   Lynch, Charles F f   Rubenstein, Mara B g   Keegan, Theresa H M h   Cress, Rosemary i   Agha, Gretchen i   Cruz, Mark i   Schwartz, Stephen M j   Shellenberger, Martha j   Janes, Tiffany j   Kato, Ikuko k   Bankowski, Ann k   Stock, Marjorie k   Wu, Xiao Cheng l   Chen, Vivien l   more..


Author keywords

Adolescent; Cancer; Health related quality of life; Support service needs; Young adult oncology

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; EMOTION; FATIGUE; FEMALE; FINANCIAL MANAGEMENT; HEALTH SERVICE; HUMAN; MAJOR CLINICAL STUDY; MALE; MENTAL HEALTH; NEOPLASM; PHYSICAL PERFORMANCE; PSYCHOSOCIAL CARE; QUALITY OF LIFE; SHORT FORM 12; SOCIAL STATUS; SPIRITUAL CARE; SUPPORT GROUP; UNMET SUPPORT SERVICE; YOUNG ADULT;

EID: 84889607953     PISSN: None     EISSN: 2234943X     Source Type: Journal    
DOI: 10.3389/fonc.2013.00075     Document Type: Article
Times cited : (163)

References (46)
  • 1
    • 0345414720 scopus 로고    scopus 로고
    • The management of cancer in the older adolescent
    • Albritton, K., and Bleyer, W. A. (2003). The management of cancer in the older adolescent. Eur. J. Cancer 39, 2584-2599.
    • (2003) Eur. J. Cancer , vol.39 , pp. 2584-2599
    • Albritton, K.1    Bleyer, W.A.2
  • 2
    • 84860607410 scopus 로고    scopus 로고
    • Cancer survivorship and cancer rehabilitation: revitalizing the link
    • Alfano, C. M., Ganz, P. A., Rowland, J. H., and Hahn, E. E. (2012). Cancer survivorship and cancer rehabilitation: revitalizing the link. J. Clin. Oncol. 30, 904-906.
    • (2012) J. Clin. Oncol. , vol.30 , pp. 904-906
    • Alfano, C.M.1    Ganz, P.A.2    Rowland, J.H.3    Hahn, E.E.4
  • 3
    • 78649909626 scopus 로고    scopus 로고
    • Barriers to pain management among adolescents with cancer
    • Ameringer, S. (2010). Barriers to pain management among adolescents with cancer. Pain Manag. Nurs. 11, 224-233.
    • (2010) Pain Manag. Nurs. , vol.11 , pp. 224-233
    • Ameringer, S.1
  • 4
    • 34047208682 scopus 로고    scopus 로고
    • Population-based survivorship research using cancer registries: a study of non-Hodgkin's lymphoma survivors
    • Arora, N. K., Hamilton, A. S., Potosky, A. L., Rowland, J. H., Aziz, N. M., Bellizzi, K. M., et al. (2007). Population-based survivorship research using cancer registries: a study of non-Hodgkin's lymphoma survivors. J. Cancer Surviv. 1, 49-63.
    • (2007) J. Cancer Surviv. , vol.1 , pp. 49-63
    • Arora, N.K.1    Hamilton, A.S.2    Potosky, A.L.3    Rowland, J.H.4    Aziz, N.M.5    Bellizzi, K.M.6
  • 6
    • 79955490981 scopus 로고    scopus 로고
    • Providing developmentally appropriate psychosocial care to adolescent and young adult cancer survivors
    • D'Agostino, N. M., Penney, A., and Zebrack, B. (2011). Providing developmentally appropriate psychosocial care to adolescent and young adult cancer survivors. Cancer 117, 2329-2334.
    • (2011) Cancer , vol.117 , pp. 2329-2334
    • D'Agostino, N.M.1    Penney, A.2    Zebrack, B.3
  • 7
    • 83555172569 scopus 로고    scopus 로고
    • The relationship between unmet needs and distress amongst young people with cancer
    • Dyson, G. J., Thompson, K., Palmer, S., Thomas, D. M., and Schofield, P. (2012). The relationship between unmet needs and distress amongst young people with cancer. Support. Care Cancer 20, 75-85.
    • (2012) Support. Care Cancer , vol.20 , pp. 75-85
    • Dyson, G.J.1    Thompson, K.2    Palmer, S.3    Thomas, D.M.4    Schofield, P.5
  • 8
    • 59849115566 scopus 로고    scopus 로고
    • Validation of modified forms of the PedsQL generic core scales and cancer module scales for adolescents and young adults (AYA) with cancer or a blood disorder
    • Ewing, J. E., King, M. T., and Smith, N. F. (2009). Validation of modified forms of the PedsQL generic core scales and cancer module scales for adolescents and young adults (AYA) with cancer or a blood disorder. Qual. Life Res. 18, 231-244.
    • (2009) Qual. Life Res. , vol.18 , pp. 231-244
    • Ewing, J.E.1    King, M.T.2    Smith, N.F.3
  • 9
    • 33645472684 scopus 로고    scopus 로고
    • Adolescents and young adults with cancer: an orphaned population
    • Fernandez, C. V., and Barr, R. D. (2006). Adolescents and young adults with cancer: an orphaned population. Paediatr. Child Health 11, 103-106.
    • (2006) Paediatr. Child Health , vol.11 , pp. 103-106
    • Fernandez, C.V.1    Barr, R.D.2
  • 10
    • 79951900938 scopus 로고    scopus 로고
    • Starting an adolescent and young adult program: some success stories and some obstacles to overcome
    • Ferrari, A., Thomas, D., Franklin, A. R., Hayes-Lattin, B. M., Mascarin, M., Van Der Graaf, W., et al. (2010). Starting an adolescent and young adult program: some success stories and some obstacles to overcome. J. Clin. Oncol. 28, 4850-4857.
    • (2010) J. Clin. Oncol. , vol.28 , pp. 4850-4857
    • Ferrari, A.1    Thomas, D.2    Franklin, A.R.3    Hayes-Lattin, B.M.4    Mascarin, M.5    Van Der Graaf, W.6
  • 11
    • 0033993798 scopus 로고    scopus 로고
    • Perceived needs of women diagnosed with breast cancer: rural versus urban location
    • Girgis, A., Boyes, A., Sanson-Fisher, R. W., and Burrows, S. (2000). Perceived needs of women diagnosed with breast cancer: rural versus urban location. Aust. N. Z. J. Public Health 24, 166-173.
    • (2000) Aust. N. Z. J. Public Health , vol.24 , pp. 166-173
    • Girgis, A.1    Boyes, A.2    Sanson-Fisher, R.W.3    Burrows, S.4
  • 12
    • 79955427443 scopus 로고    scopus 로고
    • Cancer-related chronic pain: examining quality of life in diverse cancer survivors
    • Green, C. R., Hart-Johnson, T., and Loeffler, D. R. (2011). Cancer-related chronic pain: examining quality of life in diverse cancer survivors. Cancer 117, 1994-2003.
    • (2011) Cancer , vol.117 , pp. 1994-2003
    • Green, C.R.1    Hart-Johnson, T.2    Loeffler, D.R.3
  • 13
    • 84863981324 scopus 로고    scopus 로고
    • Young adult cancer survivors' psychosocial well-being: a cross-sectional study assessing quality of life, unmet needs, and health behaviors
    • Hall, A. E., Boyes, A. W., Bowman, J., Walsh, R. A., James, E. L., and Girgis, A. (2012). Young adult cancer survivors' psychosocial well-being: a cross-sectional study assessing quality of life, unmet needs, and health behaviors. Support. Care Cancer 20, 1333-1341.
    • (2012) Support. Care Cancer , vol.20 , pp. 1333-1341
    • Hall, A.E.1    Boyes, A.W.2    Bowman, J.3    Walsh, R.A.4    James, E.L.5    Girgis, A.6
  • 14
    • 80052026839 scopus 로고    scopus 로고
    • Recruitment and follow-up of adolescent and young adult cancer survivors: the AYA HOPE Study
    • Harlan, L. C., Lynch, C. F., Keegan, T. H., Hamilton, A. S., Wu, X. C., Kato, I., et al. (2011). Recruitment and follow-up of adolescent and young adult cancer survivors: the AYA HOPE Study. J. Cancer Surviv. 5, 305-314.
    • (2011) J. Cancer Surviv. , vol.5 , pp. 305-314
    • Harlan, L.C.1    Lynch, C.F.2    Keegan, T.H.3    Hamilton, A.S.4    Wu, X.C.5    Kato, I.6
  • 15
    • 0036894029 scopus 로고    scopus 로고
    • Mental health service use among adult cancer survivors: analyses of the National Health Interview Survey
    • Hewitt, M., and Rowland, J. H. (2002). Mental health service use among adult cancer survivors: analyses of the National Health Interview Survey. J. Clin. Oncol. 20, 4581-4590.
    • (2002) J. Clin. Oncol. , vol.20 , pp. 4581-4590
    • Hewitt, M.1    Rowland, J.H.2
  • 16
    • 84868470277 scopus 로고    scopus 로고
    • Participation in cancer rehabilitation and unmet needs: a population-based cohort study
    • Holm, L. V., Hansen, D. G., Johansen, C., Vedsted, P., Larsen, P. V., Kragstrup, J., et al. (2012). Participation in cancer rehabilitation and unmet needs: a population-based cohort study. Support. Care Cancer 20, 2913-2924.
    • (2012) Support. Care Cancer , vol.20 , pp. 2913-2924
    • Holm, L.V.1    Hansen, D.G.2    Johansen, C.3    Vedsted, P.4    Larsen, P.V.5    Kragstrup, J.6
  • 19
    • 84873409786 scopus 로고    scopus 로고
    • Are the psychological needs of adolescent survivors of pediatric cancer adequately identified and treated?
    • Kahalley, L. S., Wilson, S. J., Tyc, V. L., Conklin, H. M., Hudson, M. M., Wu, S., et al. (2012). Are the psychological needs of adolescent survivors of pediatric cancer adequately identified and treated? Psychooncology. 22, 447-458.
    • (2012) Psychooncology. , vol.22 , pp. 447-458
    • Kahalley, L.S.1    Wilson, S.J.2    Tyc, V.L.3    Conklin, H.M.4    Hudson, M.M.5    Wu, S.6
  • 20
    • 84865988842 scopus 로고    scopus 로고
    • Unmet adolescent and young adult cancer survivors information and service needs: a population-based cancer registry study
    • Keegan, T. H., Lichtensztajn, D. Y., Kato, I., Kent, E. E., Wu, X. C., West, M. M., et al. (2012). Unmet adolescent and young adult cancer survivors information and service needs: a population-based cancer registry study. J. Cancer Surviv. 6, 239-250.
    • (2012) J. Cancer Surviv. , vol.6 , pp. 239-250
    • Keegan, T.H.1    Lichtensztajn, D.Y.2    Kato, I.3    Kent, E.E.4    Wu, X.C.5    West, M.M.6
  • 21
    • 84893137360 scopus 로고    scopus 로고
    • Talking about cancer and meeting peer survivors: social information needs of adolescents and young adults diagnosed with cancer
    • (in press). doi:10.1089/jayao.2012.0029.
    • Kent, E. E., Smith, A. W., Keegan, T. H. M., Lynch, C. F., Wu, X. C., Hamilton, A. S., et al. (in press). Talking about cancer and meeting peer survivors: social information needs of adolescents and young adults diagnosed with cancer. J. Adolesc. Young Adult Oncol. doi:10.1089/jayao.2012.0029
    • J. Adolesc. Young Adult Oncol.
    • Kent, E.E.1    Smith, A.W.2    Keegan, T.H.M.3    Lynch, C.F.4    Wu, X.C.5    Hamilton, A.S.6
  • 23
    • 78049258258 scopus 로고    scopus 로고
    • Use of complementary and alternative medical interventions for the management of procedure-related pain, anxiety, and distress in pediatric oncology: an integrative review
    • Landier, W., and Tse, A. M. (2010). Use of complementary and alternative medical interventions for the management of procedure-related pain, anxiety, and distress in pediatric oncology: an integrative review. J. Pediatr. Nurs. 25, 566-579.
    • (2010) J. Pediatr. Nurs. , vol.25 , pp. 566-579
    • Landier, W.1    Tse, A.M.2
  • 24
    • 85165077864 scopus 로고    scopus 로고
    • Mental health issues in adolescents and young adults
    • Masri, G., Cuffe, S., and Edwards, L. (2008). Mental health issues in adolescents and young adults. Northeast Fla. Med. 59, 24-25.
    • (2008) Northeast Fla. Med. , vol.59 , pp. 24-25
    • Masri, G.1    Cuffe, S.2    Edwards, L.3
  • 25
    • 79951725230 scopus 로고    scopus 로고
    • Physical therapy and chiropractic use among childhood cancer survivors with chronic disease: impact on health-related quality of life
    • Montgomery, M., Huang, S., Cox, C. L., Leisenring, W. M., Oeffinger, K. C., Hudson, M. M., et al. (2011). Physical therapy and chiropractic use among childhood cancer survivors with chronic disease: impact on health-related quality of life. J. Cancer Surviv. 5, 73-81.
    • (2011) J. Cancer Surviv. , vol.5 , pp. 73-81
    • Montgomery, M.1    Huang, S.2    Cox, C.L.3    Leisenring, W.M.4    Oeffinger, K.C.5    Hudson, M.M.6
  • 26
    • 0038370227 scopus 로고    scopus 로고
    • Education, employment, insurance, and marital status among 694 survivors of pediatric lower extremity bone tumors: a report from the childhood cancer survivor study
    • Nagarajan, R., Neglia, J. P., Clohisy, D. R., Yasui, Y., Greenberg, M., Hudson, M., et al. (2003). Education, employment, insurance, and marital status among 694 survivors of pediatric lower extremity bone tumors: a report from the childhood cancer survivor study. Cancer 97, 2554-2564.
    • (2003) Cancer , vol.97 , pp. 2554-2564
    • Nagarajan, R.1    Neglia, J.P.2    Clohisy, D.R.3    Yasui, Y.4    Greenberg, M.5    Hudson, M.6
  • 27
    • 84869496319 scopus 로고    scopus 로고
    • A Snapshot of Adolescent and Young Adult Cancers
    • National Cancer Institute. [accessed December 17, 2012].
    • National Cancer Institute. (2011). A Snapshot of Adolescent and Young Adult Cancers. Available at: http://www.cancer.gov/PublishedContent/Files/aboutnci/servingpeople/snapshots/2011_AYA_snapshot.508.pdf [accessed December 17, 2012].
    • (2011)
  • 28
    • 84864000359 scopus 로고    scopus 로고
    • Impact of cancer on work and education among adolescent and young adult cancer survivors
    • Parsons, H. M., Harlan, L. C., Lynch, C. F., Hamilton, A. S., Wu, X. C., Kato, I., et al. (2012). Impact of cancer on work and education among adolescent and young adult cancer survivors. J. Clin. Oncol. 30, 2393-2400.
    • (2012) J. Clin. Oncol. , vol.30 , pp. 2393-2400
    • Parsons, H.M.1    Harlan, L.C.2    Lynch, C.F.3    Hamilton, A.S.4    Wu, X.C.5    Kato, I.6
  • 31
    • 33750036689 scopus 로고    scopus 로고
    • Health profiles of younger and older breast cancer survivors
    • Stava, C. J., Lopez, A., and Vassilopoulou-Sellin, R. (2006). Health profiles of younger and older breast cancer survivors. Cancer 107, 1752-1759.
    • (2006) Cancer , vol.107 , pp. 1752-1759
    • Stava, C.J.1    Lopez, A.2    Vassilopoulou-Sellin, R.3
  • 33
    • 33748455488 scopus 로고    scopus 로고
    • The continuing shortage of child and adolescent psychiatrists
    • Thomas, C. R., and Holzer, C. E. III (2006). The continuing shortage of child and adolescent psychiatrists. J. Am. Acad. Child Adolesc. Psychiatry 45, 1023-1031.
    • (2006) J. Am. Acad. Child Adolesc. Psychiatry , vol.45 , pp. 1023-1031
    • Thomas, C.R.1    Holzer III, C.E.2
  • 35
    • 66949144406 scopus 로고    scopus 로고
    • Enhancing the capacity of oncology nurses to provide supportive care for parents with advanced cancer: evaluation of an educational intervention
    • Turner, J., Clavarino, A., Butow, P., Yates, P., Hargraves, M., Connors, V., et al. (2009). Enhancing the capacity of oncology nurses to provide supportive care for parents with advanced cancer: evaluation of an educational intervention. Eur. J. Cancer 45, 1798-1806.
    • (2009) Eur. J. Cancer , vol.45 , pp. 1798-1806
    • Turner, J.1    Clavarino, A.2    Butow, P.3    Yates, P.4    Hargraves, M.5    Connors, V.6
  • 36
    • 42949124490 scopus 로고    scopus 로고
    • Self-reported prevalence, etiology, and characteristics of pain in oncology outpatients
    • Valeberg, B. T., Rustoen, T., Bjordal, K., Hanestad, B. R., Paul, S., and Miaskowski, C. (2008). Self-reported prevalence, etiology, and characteristics of pain in oncology outpatients. Eur. J. Pain 12, 582-590.
    • (2008) Eur. J. Pain , vol.12 , pp. 582-590
    • Valeberg, B.T.1    Rustoen, T.2    Bjordal, K.3    Hanestad, B.R.4    Paul, S.5    Miaskowski, C.6
  • 38
    • 37749030481 scopus 로고    scopus 로고
    • The PedsQL Multidimensional Fatigue Scale in young adults: feasibility, reliability and validity in a University student population
    • Varni, J. W., and Limbers, C. A. (2008). The PedsQL Multidimensional Fatigue Scale in young adults: feasibility, reliability and validity in a University student population. Qual. Life Res. 17, 105-114.
    • (2008) Qual. Life Res. , vol.17 , pp. 105-114
    • Varni, J.W.1    Limbers, C.A.2
  • 39
    • 65349131798 scopus 로고    scopus 로고
    • The PedsQL 4.0 Generic Core Scales Young Adult Version: feasibility, reliability and validity in a university student population
    • Varni, J. W., and Limbers, C. A. (2009). The PedsQL 4.0 Generic Core Scales Young Adult Version: feasibility, reliability and validity in a university student population. J. Health Psychol. 14, 611-622.
    • (2009) J. Health Psychol. , vol.14 , pp. 611-622
    • Varni, J.W.1    Limbers, C.A.2
  • 40
    • 77953280650 scopus 로고    scopus 로고
    • Spirituality and well-being in cancer patients: a review
    • Visser, A., Garssen, B., and Vingerhoets, A. (2010). Spirituality and well-being in cancer patients: a review. Psychooncology 19, 565-572.
    • (2010) Psychooncology , vol.19 , pp. 565-572
    • Visser, A.1    Garssen, B.2    Vingerhoets, A.3
  • 43
    • 55549088225 scopus 로고    scopus 로고
    • Information and service needs for young adult cancer patients
    • Zebrack, B. (2008). Information and service needs for young adult cancer patients. Support. Care Cancer 16, 1353-1360.
    • (2008) Support. Care Cancer , vol.16 , pp. 1353-1360
    • Zebrack, B.1
  • 44
    • 70349758217 scopus 로고    scopus 로고
    • Psychosocial outcomes and service use among young adults with cancer
    • Zebrack, B., Hamilton, R., and Smith, A. W. (2009). Psychosocial outcomes and service use among young adults with cancer. Semin. Oncol. 36, 468-477.
    • (2009) Semin. Oncol. , vol.36 , pp. 468-477
    • Zebrack, B.1    Hamilton, R.2    Smith, A.W.3
  • 45
    • 84861541493 scopus 로고    scopus 로고
    • Psychosocial care of adolescent and young adult patients with cancer and survivors
    • Zebrack, B., and Isaacson, S. (2012). Psychosocial care of adolescent and young adult patients with cancer and survivors. J. Clin. Oncol. 30, 1221-1226.
    • (2012) J. Clin. Oncol. , vol.30 , pp. 1221-1226
    • Zebrack, B.1    Isaacson, S.2
  • 46
    • 84872772969 scopus 로고    scopus 로고
    • Psychosocial service use and unmet need among recently diagnosed adolescent and young adult cancer patients
    • Zebrack, B. J., Block, R., Hayes-Lattin, B., Embry, L., Aguilar, C., Meeske, K. A., et al. (2013). Psychosocial service use and unmet need among recently diagnosed adolescent and young adult cancer patients. Cancer 119, 201-214.
    • (2013) Cancer , vol.119 , pp. 201-214
    • Zebrack, B.J.1    Block, R.2    Hayes-Lattin, B.3    Embry, L.4    Aguilar, C.5    Meeske, K.A.6


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.