Preferences for support services among adolescents and young adults with cancer or a blood disorder: A discrete choice experiment

Health Policy

Volumn 107, Issue 2-3, 2012, Pages 304-311

  Goodall, Stephen ^a   King, Madeleine ^b   Ewing, Jane ^a   Smith, Narelle ^a   Kenny, Patricia ^a  

^a UNIVERSITY OF TECHNOLOGY SYDNEY   (Australia)

^b UNIVERSITY OF SYDNEY   (Australia)

Author keywords

Adolescents; Blood disorder; Cancer; Discrete choice experiment (DCE); Support services

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; BLOOD DISEASE; COCULTURE; CULTURAL FACTOR; EMOTION; FAMILY; FEMALE; FINANCIAL MANAGEMENT; HEALTH CARE PERSONNEL; HEALTH SERVICE; HEALTH SURVEY; HUMAN; MAJOR CLINICAL STUDY; MALE; NEOPLASM; PEER COUNSELING; RELIGION; SCHOOL; SPIRITUAL CARE; SUPPORT GROUP; WORK;

ADOLESCENT; ADULT; AUSTRALIA; CAREGIVERS; FEMALE; HEMATOLOGIC DISEASES; HUMANS; MALE; MIDDLE AGED; NEOPLASMS; PATIENT PREFERENCE; QUESTIONNAIRES; SOCIAL SUPPORT; YOUNG ADULT;

EID: 84865973530     PISSN: 01688510     EISSN: 18726054     Source Type: Journal    
DOI: 10.1016/j.healthpol.2012.07.004     Document Type: Article

References (37)

1. Adolescent and Young Adult Oncology Progress Review Group, Closing the Gap: Research and Care Imperatives for Adolescents and Young Adults with Cancer 2006, U.S. Department of Health and Human Services, National Institutes of Health, National Cancer Institute, and the LIVESTRONG Young Adult Alliance.
2. Hawkins M.M. Long-term survivors of childhood cancers: what knowledge have we gained?. Nature Clinical Practice Oncology 2004, 1(1):26-31.
3. National Breast Cancer Centre National Cancer Control Initiative Clinical Practice Guidelines for the Psychosocial Care of Adults with Cancer 2003, National Breast Cancer Centre, Sydney.
4. Devine E.C., Westlake S.K. The effects of psychoeducational care provided to adults with cancer: meta-analysis of 116 studies. Oncology Nursing Forum 1995, 22(9):1369-1381.
5. Meyer T.J., Mark M.M. Effects of psychosocial interventions with adult cancer patients: a meta-analysis of randomized experiments. Health Psychology 1995, 14(2):101-108.
6. National Institute for Clinical Excellence Guidance on Cancer Services: Improving Supportive and Palliative Care for Adults with Cancer. The Manual 2004, National Health Service, London.
7. Rankin N.M., Barron J.A., Lane L.G., Mason C.A., Sinclair S., Bishop J.F. Psychosocial oncology services in New South Wales. Australian Health Review 2011, 35(2):156-163.
8. McGrath P. Identifying support issues of parents of children with leukemia. Cancer Practice 2001, 9(4):198-205.
9. Woodgate R. Part II: a critical review of qualitative research related to children's experiences with cancer. Journal of Pediatric Oncology Nursing 2000, 17(4):207-228.
10. Politis C., Di Palma A., Fisfis M., Giasanti A., Richardson S.C., Vullo C., et al. Social integration of the older thalassaemic patient. Archives of Disease in Childhood 1990, 65(9):984-986.
11. Tsiantis J. Family reactions and relationships in thalassemia. Annals of the New York Academy of Sciences 1990, 612:451-461.
12. Satterwhite B.B. Impact of chronic illness on child and family: an overview based on five surveys with implications for management. International Journal of Rehabilitation Research 1978, 1(1):7-17.
13. Cadman D., Boyle M., Szatmari P., Offord D.R. Chronic illness, disability, and mental and social well-being: findings of the Ontario Child Health Study. Pediatrics 1987, 79(5):805-813.
14. Zani B.D., Vullo A.C. Psychological aspects of chronic illness in adolescents with thalassemia major. Journal of Adolescence 1995, 18:5.
15. Broadhead W.E., Kaplan B.H., James S.A., Wagner E.H., Schoenbach V.J., Grimson R., et al. The epidemiologic evidence for a relationship between social support and health. American Journal of Epidemiology 1983, 117(5):521-537.
16. Ell K. Social networks, social support and coping with serious illness: the family connection. Social Science & Medicine 1996, 42(2):173-183.
17. Katz E.R., Varni J.W. Social support and social cognitive problem-solving in children with newly diagnosed cancer. Cancer 1993, 71(10 Suppl.):3314-3319.
18. Neville K. The relationships among uncertainty, social support, and psychological distress in adolescents recently diagnosed with cancer. Journal of Pediatric Oncology Nursing 1998, 15(1):37-46.
19. Nurmi J.E. How do adolescents see their future? A review of the development and future orientation and planning. Development Review 1991, 11(5):1-59.
20. Nichols M.L. Social support and coping in young adolescents with cancer. Pediatric Nursing 1995, 21(3):235-240.
21. Kyngas H., Mikkonen R., Nousiainen E.M., Rytilahti M., Seppanen P., Vaattovaara R., et al. Coping with the onset of cancer: coping strategies and resources of young people with cancer. European Journal of Cancer Care 2001, 10(1):6-11.
22. Bush S., Mandel F.S., Giardina P.J. Future orientation and life expectations of adolescents and young adults with thalassemia major. Annals of the New York Academy of Sciences 1998, 850:361-369.
23. Mitchell W., Clarke S., Sloper P., Mitchell W., Clarke S., Sloper P. Care and support needs of children and young people with cancer and their parents. Psycho-Oncology 2006, 15(9):805-816.
24. Sloper P. Predictors of distress in parents of children with cancer: a prospective study. Journal of Pediatric Psychology 2000, 25(2):79-91.
25. Soothill K., Morris S.M., Harman J.C., Francis B., Thomas C., McIllmurray M.B. Informal carers of cancer patients: what are their unmet psychosocial needs?. Health & Social Care in the Community 2001, 9(6):464-475.
26. Corden A., Sloper P., Sainsbury R. Financial effects for families after the death of a disabled or chronically ill child: a neglected dimension of bereavement. Child: Care, Health & Development 2002, 28(3):199-204.
27. Yantzi N., Rosenberg M.W., Burke S.O., Harrison M.B. The impacts of distance to hospital on families with a child with a chronic condition. Social Science & Medicine 2001, 52(12):1777-1791.
28. Lancaster K. A new approach to consumer theory. Journal of Political Economy 1966, 74(2):132.
29. Lancsar E., Savage E. Deriving welfare measures from discrete choice experiments: inconsistency between current methods and random utility and welfare theory. Health Economics 2004, 13(9):901-907.
30. Mark T.L., Swait J. Using stated preference and revealed preference modeling to evaluate prescribing decisions. Health Economics 2004, 13(6):563-573.
31. Ewing J.E., King M.T., Smith N.F. Validation of modified forms of the PedsQL generic core scales and cancer module scales for adolescents and young adults (AYA) with cancer or a blood disorder. Quality of Life Research 2009, 18(2):231-244.
32. McFadden D. Conditional logit analysis of qualitative choice behaviour. Frontiers in Econometrics 1974, 105-142. Academic Press, NY. P. Zarembka (Ed.).
33. McFadden D., Train K. Mixed MNL models for discrete response. Journal of Applied Econometrics 2000, 15:447-470.
34. Enskar K., Carlsson M., Golsater M., Hamrin E. Symptom distress and life situation in adolescents with cancer. Cancer Nursing 1997, 20(1):23-33.
35. Bessel A.G. Children surviving cancer: psychosocial adjustment, quality of life, and school experiences. Exceptional Children (2001 The Council for Exceptional Children) 2001, 67(3):345-359.
36. Taylor E.J. Nurses caring for the spirit: patients with cancer and family caregiver expectations. Oncology Nursing Forum 2003, 30(4):585-590.
37. Underhill C., Bartel R., Goldstein D., Snodgrass H., Begbie S., Yates P., et al. Mapping oncology services in regional and rural Australia. Australian Journal of Rural Health 2009, 17(6):321-329.