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Volumn 13, Issue 1, 2016, Pages

Between Openness and Privacy in Genomics

Author keywords

[No Author keywords available]

Indexed keywords

ALGORITHM; ARTICLE; CLINICAL PRACTICE; GENOMICS; HEALTH CARE; HEALTH CARE QUALITY; PATENT; PERSONAL AUTONOMY; PROFESSIONAL PRACTICE; PUBLIC HEALTH; ETHICS; GENETIC DATABASE; GENETIC PRIVACY; HUMAN; STANDARDS;

EID: 84961328274     PISSN: 15491277     EISSN: 15491676     Source Type: Journal    
DOI: 10.1371/journal.pmed.1001937     Document Type: Article
Times cited : (49)

References (35)
  • 1
    • 84961367390 scopus 로고    scopus 로고
    • Apple has plans for your DNA. The iphone could become a new tool for genetic studies
    • Regalado A, Apple has plans for your DNA. The iphone could become a new tool for genetic studies. MIT Technology Review. 5 May 2015. http://www.technologyreview.com/news/537081/apple-has-plans-for-your-dna/
    • (2015) MIT Technology Review
    • Regalado, A.1
  • 2
    • 84961308796 scopus 로고    scopus 로고
    • Merritt R. DNA Chip Will Plug Into Handsets. EE Times. 6 Sept. 2014. http://www.eetimes.com/document.asp?doc_id=1322662
  • 3
    • 84961365074 scopus 로고    scopus 로고
    • President B. Obama. State of the Union 2015. https://www.whitehouse.gov/sotu
  • 4
    • 84923762812 scopus 로고    scopus 로고
    • A new initiative on precision medicine
    • Collins FS, Varmus H, A new initiative on precision medicine. N Engl J 2015; 372:793–5.
    • (2015) N Engl J , vol.372 , pp. 793-795
    • Collins, F.S.1    Varmus, H.2
  • 5
    • 84939450802 scopus 로고    scopus 로고
    • Precision medicine: Beyond the inflection point
    • Hawgood S, Hook-Barnard IG, O'Brien TC, Yamamoto KR, Precision medicine: Beyond the inflection point. Sci Transl Med. 2015 Aug 12;7(300):300ps17. doi: 10.1126/scitranslmed.aaa9970 26268311
    • (2015) Sci Transl Med , vol.7 , Issue.300 , pp. 300ps17
    • Hawgood, S.1    Hook-Barnard, I.G.2    O'Brien, T.C.3    Yamamoto, K.R.4
  • 9
    • 84961292877 scopus 로고    scopus 로고
    • NIH Genomic Data Sharing Policy. August 27, 2014. http://grants.nih.gov/grants/guide/notice-files/NOT-OD-14-124.html
  • 10
    • 84961363422 scopus 로고    scopus 로고
    • Global Alliance for Genomics and Health. http://genomicsandhealth.org/about-global-alliance
  • 11
    • 84872459720 scopus 로고    scopus 로고
    • Identifying personal genomes by surname inference
    • Gymrek M, McGuire AL, Golan D, Halperin E, Elrich Y, Identifying personal genomes by surname inference. Science 2013; 339:321–4. doi: 10.1126/science.1229566 23329047
    • (2013) Science , vol.339 , pp. 321-324
    • Gymrek, M.1    McGuire, A.L.2    Golan, D.3    Halperin, E.4    Elrich, Y.5
  • 12
    • 84901005679 scopus 로고    scopus 로고
    • Routes for breaching and protecting genetic privacy
    • Erlich Y, Narayanan A, Routes for breaching and protecting genetic privacy. Nat Rev Genet. 2014; 15:409–21. doi: 10.1038/nrg3723 24805122
    • (2014) Nat Rev Genet , vol.15 , pp. 409-421
    • Erlich, Y.1    Narayanan, A.2
  • 13
    • 84910601644 scopus 로고    scopus 로고
    • Nov. 2014
    • Humbert M, Ayday E, Hubaux JP, Telenti A. Reconciling Utility with Privacy in Genomics. ACM Workshop on Privacy in the Electronic Society. Scottsdale, AZ, USA Nov. 2014
    • Humbert, M.1    Ayday, E.2    Hubaux, J.P.3    Telenti, A.4
  • 14
    • 84855281324 scopus 로고    scopus 로고
    • Genomics and Privacy: Implications of the New Reality of Closed Data for the Field
    • Greenbaum D, Sboner A, Mu XJ, Gerstein M, Genomics and Privacy: Implications of the New Reality of Closed Data for the Field. PLoS Comput Biol 2011; 7(12): e1002278. doi: 10.1371/journal.pcbi.1002278 22144881
    • (2011) PLoS Comput Biol , vol.7 , Issue.12 , pp. e1002278
    • Greenbaum, D.1    Sboner, A.2    Mu, X.J.3    Gerstein, M.4
  • 15
    • 84904684261 scopus 로고    scopus 로고
    • Research participants' attitudes towards the confidentiality of genomic sequence information
    • Jamal L, Sapp JC, Lewis K, Yanes T, Facio FM, et al. Research participants' attitudes towards the confidentiality of genomic sequence information. Eur J Hum Genet.2014; 22:964–8. doi: 10.1038/ejhg.2013.276 24281371
    • (2014) Eur J Hum Genet , vol.22 , pp. 964-968
    • Jamal, L.1    Sapp, J.C.2    Lewis, K.3    Yanes, T.4    Facio, F.M.5
  • 16
    • 84857038889 scopus 로고    scopus 로고
    • Balancing the risks and benefits of genomic data sharing: genome research participants' perspectives
    • Oliver JM, Slashinski MJ, Wang T, Kelly PA, Hilsenbeck SG, et al. Balancing the risks and benefits of genomic data sharing: genome research participants' perspectives. Public Health Genomics 2012; 15:106–14. doi: 10.1159/000334718 22213783
    • (2012) Public Health Genomics , vol.15 , pp. 106-114
    • Oliver, J.M.1    Slashinski, M.J.2    Wang, T.3    Kelly, P.A.4    Hilsenbeck, S.G.5
  • 19
    • 84933056124 scopus 로고    scopus 로고
    • Getting human rights right in global health policy
    • Tasioulas J, Vayena E, Getting human rights right in global health policy. Lancet. 2015; 385:e42–4. doi: 10.1016/S0140-6736(14)61418-5 25308288
    • (2015) Lancet , vol.385 , pp. 42-44
    • Tasioulas, J.1    Vayena, E.2
  • 20
    • 84925957965 scopus 로고    scopus 로고
    • The social license for research: why care.data ran into trouble
    • Carter P, Laurie GT, Dixon-Woods M, The social license for research: why care.data ran into trouble. J Med Ethics. 2015 May;41(5):404–9. doi: 10.1136/medethics-2014-102374 25617016
    • (2015) J Med Ethics , vol.41 , Issue.5 , pp. 404-409
    • Carter, P.1    Laurie, G.T.2    Dixon-Woods, M.3
  • 21
    • 84874751248 scopus 로고    scopus 로고
    • Caught in the web: informed consent for online health research
    • Vayena E, Mastroianni A, Kahn J, Caught in the web: informed consent for online health research. Sci Transl Med. 2013; 5:173fs6. doi: 10.1126/scitranslmed.3004798 23427242
    • (2013) Sci Transl Med , vol.5 , pp. 173fs6
    • Vayena, E.1    Mastroianni, A.2    Kahn, J.3
  • 22
    • 84921382128 scopus 로고    scopus 로고
    • Dynamic consent: a patient interface for twenty-first century research networks
    • Kaye J, Whitley EA, Lund D, Morrison M, Teare H, et al. Dynamic consent: a patient interface for twenty-first century research networks. Eur J Hum Genet. 2015 Feb;23(2):141–6. doi: 10.1038/ejhg.2014.71 24801761
    • (2015) Eur J Hum Genet , vol.23 , Issue.2 , pp. 141-146
    • Kaye, J.1    Whitley, E.A.2    Lund, D.3    Morrison, M.4    Teare, H.5
  • 23
    • 84927738759 scopus 로고    scopus 로고
    • The emerging need for family-centric initiatives for obtaining consent in personal genome research
    • Minari J, Teare H, Mitchell C, Kaye J, Kato K, The emerging need for family-centric initiatives for obtaining consent in personal genome research. Genome Med. 2014; 6:118. doi: 10.1186/s13073-014-0118-y 25593596
    • (2014) Genome Med , vol.6 , pp. 118
    • Minari, J.1    Teare, H.2    Mitchell, C.3    Kaye, J.4    Kato, K.5
  • 25
    • 84923486508 scopus 로고
    • Privacy and the Limits of Law
    • Gavison RE, Privacy and the Limits of Law. The Yale Law Journal 1980; 89:421–471.
    • (1980) The Yale Law Journal , vol.89 , pp. 421-471
    • Gavison, R.E.1
  • 26
    • 84961290283 scopus 로고    scopus 로고
    • The right not to know
    • Laurie G, The right not to know. J Law Med Ethics 2014; 42(1):53–63.
    • (2014) J Law Med Ethics , vol.42 , Issue.1 , pp. 53-63
    • Laurie, G.1
  • 27
    • 84961382652 scopus 로고    scopus 로고
    • United States v. Jones 565 U.S. ___ (2012). https://supreme.justia.com/cases/federal/us/565/10-1259/
  • 28
    • 84912569761 scopus 로고    scopus 로고
    • Redefining genomic privacy: trust and empowerment
    • Erlich Y, Williams JB, Glazer D, Yocum K, Farahany N, Redefining genomic privacy: trust and empowerment. PLoS Biol. 2014; 12:e1001983 doi: 10.1371/journal.pbio.1001983 25369215
    • (2014) PLoS Biol , vol.12 , pp. e1001983
    • Erlich, Y.1    Williams, J.B.2    Glazer, D.3    Yocum, K.4    Farahany, N.5
  • 29
    • 0141679157 scopus 로고    scopus 로고
    • The charitable trust as a model for genomic biobanks
    • Winickoff DE, Winickoff RN, The charitable trust as a model for genomic biobanks. N Engl J Med 2003; 349:1180–4. 13679534
    • (2003) N Engl J Med , vol.349 , pp. 1180-1184
    • Winickoff, D.E.1    Winickoff, R.N.2
  • 31
    • 84865653047 scopus 로고    scopus 로고
    • Involving citizens in the ethics of biobank research: Informing institutional policy through structured public deliberation
    • O'Doherty KC, Hawkins AK, Burgess MM, Involving citizens in the ethics of biobank research: Informing institutional policy through structured public deliberation. Soc Sci Med. 2012; 75:1604–11. doi: 10.1016/j.socscimed.2012.06.026 22867865
    • (2012) Soc Sci Med , vol.75 , pp. 1604-1611
    • O'Doherty, K.C.1    Hawkins, A.K.2    Burgess, M.M.3
  • 32
    • 84861354533 scopus 로고    scopus 로고
    • Power to the people: a wiki-governance model for biobanks
    • Dove ES, Joly Y, Knoppers BM, Power to the people: a wiki-governance model for biobanks. Genome Biol. 2012; 13:158. doi: 10.1186/gb-2012-13-5-158 22647613
    • (2012) Genome Biol , vol.13 , pp. 158
    • Dove, E.S.1    Joly, Y.2    Knoppers, B.M.3
  • 33
    • 80053306411 scopus 로고    scopus 로고
    • Reflexive governance in biobanking: on the value of policy led approaches and the need to recognise the limits of law
    • Laurie G, Reflexive governance in biobanking: on the value of policy led approaches and the need to recognise the limits of law. Hum Genet.2011; 130:347–56. doi: 10.1007/s00439-011-1066-x 21766192
    • (2011) Hum Genet , vol.130 , pp. 347-356
    • Laurie, G.1
  • 34
    • 84897951222 scopus 로고    scopus 로고
    • Health data cooperatives—citizen empowerment
    • Hafen E, Kossmann D, Brand A, Health data cooperatives—citizen empowerment. Methods Inf Med. 2014;53:82–6. doi: 10.3414/ME13-02-0051 24514946
    • (2014) Methods Inf Med , vol.53 , pp. 82-86
    • Hafen, E.1    Kossmann, D.2    Brand, A.3
  • 35
    • 84902799705 scopus 로고    scopus 로고
    • Finding the missing link for big biomedical data
    • Weber GM, Mandl KD, Kohane IS, Finding the missing link for big biomedical data. JAMA 2014; 311:2479–80. 24854141
    • (2014) JAMA , vol.311 , pp. 2479-2480
    • Weber, G.M.1    Mandl, K.D.2    Kohane, I.S.3


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.