-
3
-
-
79960258099
-
The plan for growth
-
Crown Copyright
-
HM Treasury and Department for Business Innovation and Skills. The plan for growth. Crown Copyright. 2011.
-
(2011)
-
-
-
5
-
-
84929460835
-
Information governance as a force for good? Lessons to be learnt from care.data
-
Taylor M. Information governance as a force for good? Lessons to be learnt from care.data. Script Ed 2014;11(1):1-8.
-
(2014)
Script Ed
, vol.11
, Issue.1
, pp. 1-8
-
-
Taylor, M.1
-
6
-
-
84899916389
-
Trust in the time of markets: protecting patient information
-
Pollock AM, Roderick P. Trust in the time of markets: protecting patient information. Lancet 2014;383(9928):1523-4.
-
(2014)
Lancet
, vol.383
, Issue.9928
, pp. 1523-1524
-
-
Pollock, A.M.1
Roderick, P.2
-
7
-
-
57949094494
-
Regulation and the social licence for medical research
-
Dixon-Woods M, Ashcroft RE. Regulation and the social licence for medical research. Med Health Care Philos 2008;11:381-91.
-
(2008)
Med Health Care Philos
, vol.11
, pp. 381-391
-
-
Dixon-Woods, M.1
Ashcroft, R.E.2
-
10
-
-
79957803224
-
Health research, data protection, and the public interest in notification
-
Taylor MJ. Health research, data protection, and the public interest in notification. Med Law Rev 2011;19(2):267-303.
-
(2011)
Med Law Rev
, vol.19
, Issue.2
, pp. 267-303
-
-
Taylor, M.J.1
-
11
-
-
84855446160
-
-
2nd edn, (accessed 24 Oct 2014)
-
Department of Health. Research governance framework for health and social care. 2nd edn. https://www.gov.uk/government/uploads/system/uploads/attachment_data/ file/139565/dh_4122427.pdf (accessed 24 Oct 2014).
-
Research governance framework for health and social care
-
-
-
13
-
-
31344434709
-
Using personal health information in medical research
-
Walley T. Using personal health information in medical research. BMJ 2006;332 (7534):130-1.
-
(2006)
BMJ
, vol.332
, Issue.7534
, pp. 130-131
-
-
Walley, T.1
-
14
-
-
84929461544
-
Reforming the regulation of health research in England and Wales: new challenges: new pitfalls
-
McHale J. Reforming the regulation of health research in England and Wales: new challenges: new pitfalls. J Med Law Ethics 2013;1(1):23-42.
-
(2013)
J Med Law Ethics
, vol.1
, Issue.1
, pp. 23-42
-
-
McHale, J.1
-
15
-
-
17444372789
-
Scientific research is a moral duty
-
Harris J. Scientific research is a moral duty. J Med Ethics 2005;31(4):242-8.
-
(2005)
J Med Ethics
, vol.31
, Issue.4
, pp. 242-248
-
-
Harris, J.1
-
18
-
-
4544333941
-
Social license and environmental protection: why businesses go beyond compliance
-
Gunningham N, Robert A, Thornton D. Social license and environmental protection: why businesses go beyond compliance. Law Soc Inq 2004;29(2):307-41.
-
(2004)
Law Soc Inq
, vol.29
, Issue.2
, pp. 307-341
-
-
Gunningham, N.1
Robert, A.2
Thornton, D.3
-
19
-
-
82255163040
-
Public affairs and mining in Australia-a rescued license to operate
-
Allen G. Public affairs and mining in Australia-a rescued license to operate. J Public Aff 2011;11(4):382-6.
-
(2011)
J Public Aff
, vol.11
, Issue.4
, pp. 382-386
-
-
Allen, G.1
-
20
-
-
84905366355
-
Doing the social in social license
-
Rooney D, Leach J, Ashworth P. Doing the social in social license. Soc Epistemol 2014;28(3-4):209-18.
-
(2014)
Soc Epistemol
, vol.28
, Issue.3-4
, pp. 209-218
-
-
Rooney, D.1
Leach, J.2
Ashworth, P.3
-
22
-
-
84868545367
-
Do informed consent documents for cancer trials do what they should? A study of manifest and latent functions
-
Armstrong N, Dixon-Woods M, Thomas A, et al. Do informed consent documents for cancer trials do what they should? A study of manifest and latent functions. Sociol Health Illn 2012;34(8):1230-45.
-
(2012)
Sociol Health Illn
, vol.34
, Issue.8
, pp. 1230-1245
-
-
Armstrong, N.1
Dixon-Woods, M.2
Thomas, A.3
-
23
-
-
36048933619
-
Beyond "misunderstanding": written information and decisions about taking part in a genetic epidemiology study
-
Dixon-Woods M, Ashcroft RE, Jackson CJ, et al. Beyond "misunderstanding": written information and decisions about taking part in a genetic epidemiology study. Soc Sci Med 2007;65(11):2212-22.
-
(2007)
Soc Sci Med
, vol.65
, Issue.11
, pp. 2212-2222
-
-
Dixon-Woods, M.1
Ashcroft, R.E.2
Jackson, C.J.3
-
24
-
-
67649249902
-
Why do people cooperate with medical research? Findings from three studies
-
Dixon-Woods M, Tarrant C. Why do people cooperate with medical research? Findings from three studies. Soc Sci Med 2009;68(12):2215-22.
-
(2009)
Soc Sci Med
, vol.68
, Issue.12
, pp. 2215-2222
-
-
Dixon-Woods, M.1
Tarrant, C.2
-
25
-
-
85045165492
-
Human tissue and 'the public': the case of childhood cancer tumour banking
-
Dixon-Woods M, Wilson D, Jackson C, et al. Human tissue and 'the public': the case of childhood cancer tumour banking. BioSocieties 2008;3(1):57-80.
-
(2008)
BioSocieties
, vol.3
, Issue.1
, pp. 57-80
-
-
Dixon-Woods, M.1
Wilson, D.2
Jackson, C.3
-
26
-
-
84878391994
-
"Let's get the best quality research we can": public awareness and acceptance of consent to use existing data in health research: a systematic review and qualitative study
-
Hill EM, Turner EL, Martin RM, et al. "Let's get the best quality research we can": public awareness and acceptance of consent to use existing data in health research: a systematic review and qualitative study. BMC Med Res Methodol 2013;13(1):1-10.
-
(2013)
BMC Med Res Methodol
, vol.13
, Issue.1
, pp. 1-10
-
-
Hill, E.M.1
Turner, E.L.2
Martin, R.M.3
-
27
-
-
33645952360
-
Participating in a trial in a critical situation: a qualitative study in pregnancy
-
Kenyon S, Dixon-Woods M, Jackson CJ, et al. Participating in a trial in a critical situation: a qualitative study in pregnancy. Qual Saf Health Care 2006;15 (2):98-101.
-
(2006)
Qual Saf Health Care
, vol.15
, Issue.2
, pp. 98-101
-
-
Kenyon, S.1
Dixon-Woods, M.2
Jackson, C.J.3
-
28
-
-
79960232273
-
Providing the results of research to participants: a mixed-method study of the benefits and challenges of a consultative approach
-
Dixon-Woods M, Tarrant C, Jackson CJ, et al. Providing the results of research to participants: a mixed-method study of the benefits and challenges of a consultative approach. Clin Trials 2011;8(3):330-41.
-
(2011)
Clin Trials
, vol.8
, Issue.3
, pp. 330-341
-
-
Dixon-Woods, M.1
Tarrant, C.2
Jackson, C.J.3
-
29
-
-
84891499515
-
UK push to open up patients' data
-
Callaway E. UK push to open up patients' data. Nature 2013;502:283.
-
(2013)
Nature
, vol.502
, pp. 283
-
-
Callaway, E.1
-
30
-
-
84901632635
-
Better information means better care
-
NHS England. Better information means better care, 2014.
-
(2014)
-
-
England, N.H.S.1
-
33
-
-
84905394123
-
A social licence for science: capturing the public or co-constructing research?
-
Raman S, Mohr A. A social licence for science: capturing the public or co-constructing research? Soc Epistemol 2014;28(3-4):258-76.
-
(2014)
Soc Epistemol
, vol.28
, Issue.3-4
, pp. 258-276
-
-
Raman, S.1
Mohr, A.2
-
34
-
-
84894106441
-
National electronic health records and the digital disruption of moral orders
-
Garrety K, McLoughlin I, Wilson R, et al. National electronic health records and the digital disruption of moral orders. Soc Sci Med 2013;101(0):70-7.
-
(2013)
Soc Sci Med
, vol.101
, Issue.0
, pp. 70-77
-
-
Garrety, K.1
McLoughlin, I.2
Wilson, R.3
-
37
-
-
26944437385
-
Sharing patient data: competing demands of privacy, trust and research in primary care
-
Stone MA, Redsell SA, Ling JT, et al. Sharing patient data: competing demands of privacy, trust and research in primary care. Br J Gen Pract 2005;55(519):783-9.
-
(2005)
Br J Gen Pract
, vol.55
, Issue.519
, pp. 783-789
-
-
Stone, M.A.1
Redsell, S.A.2
Ling, J.T.3
-
38
-
-
78751706184
-
Views on health information sharing and privacy from primary care practices using electronic medical records
-
Perera G, Holbrook A, Thabane L, et al. Views on health information sharing and privacy from primary care practices using electronic medical records. Int J Med Inf 2011;80(2):94-101.
-
(2011)
Int J Med Inf
, vol.80
, Issue.2
, pp. 94-101
-
-
Perera, G.1
Holbrook, A.2
Thabane, L.3
-
39
-
-
84929472420
-
-
medConfidential, (accessed 7 Nov 2013)
-
medConfidential. What's the story? 2013. http://medconfidential.org/ whats-the-story/ (accessed 7 Nov 2013).
-
(2013)
What's the story?
-
-
-
41
-
-
79952056163
-
Using NHS patient data for research without consent
-
Brown I, Brown L, Korff D. Using NHS patient data for research without consent. Law Innov Technol 2010;2(2):219-58.
-
(2010)
Law Innov Technol
, vol.2
, Issue.2
, pp. 219-258
-
-
Brown, I.1
Brown, L.2
Korff, D.3
-
43
-
-
77957594024
-
Broken promises of privacy: responding to the surprising failure of anonymization
-
Ohm P. Broken promises of privacy: responding to the surprising failure of anonymization. UCLA Law Rev 2010;57:1701.
-
(2010)
UCLA Law Rev
, vol.57
, pp. 1701
-
-
Ohm, P.1
-
44
-
-
84874605244
-
Report of the mid Staffordshire NHS Foundation Trust public inquiry
-
London: Stationery Office
-
Francis R. Report of the mid Staffordshire NHS Foundation Trust public inquiry. London: Stationery Office, 2013. http://cdn.midstaffspublicinquiry.com/sites/default/ files/report/Executive%20summary.pdf
-
(2013)
-
-
Francis, R.1
-
45
-
-
84926091579
-
Opting out of care.data is not the answer
-
Macfarlane A, Pollock A. Opting out of care.data is not the answer. 2014. http:// www.statslife.org.uk/opinion/1210-opting-out-of-care-data-is-not-the-answer
-
(2014)
-
-
Macfarlane, A.1
Pollock, A.2
-
46
-
-
33845426499
-
Tackling community concerns about commercialisation and genetic research: a modest interdisciplinary proposal
-
Haddow G, Laurie G, Cunningham-Burley S, et al. Tackling community concerns about commercialisation and genetic research: a modest interdisciplinary proposal. Soc Sci Med 2007;64:272-82.
-
(2007)
Soc Sci Med
, vol.64
, pp. 272-282
-
-
Haddow, G.1
Laurie, G.2
Cunningham-Burley, S.3
-
49
-
-
84872292655
-
All trials must be registered and the results published
-
Chalmers I, Glasziou P, Godlee F. All trials must be registered and the results published. BMJ 2013;346:f105.
-
(2013)
BMJ
, vol.346
, pp. f105
-
-
Chalmers, I.1
Glasziou, P.2
Godlee, F.3
-
50
-
-
84896698437
-
Care.data: why are Scotland and Wales doing it differently?
-
McCartney M. Care.data: why are Scotland and Wales doing it differently? BMJ 2014;348:g1702.
-
(2014)
BMJ
, vol.348
, pp. g1702
-
-
McCartney, M.1
-
51
-
-
84900838941
-
Delivering proportionate governance in the era of eHealth: making linkage and privacy work together
-
Sethi N, Laurie GT. Delivering proportionate governance in the era of eHealth: making linkage and privacy work together. Med Law Int 2013;13 (2-3):168-204.
-
(2013)
Med Law Int
, vol.13
, Issue.2-3
, pp. 168-204
-
-
Sethi, N.1
Laurie, G.T.2
|