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Volumn 6, Issue 12, 2014, Pages

The emerging need for family-centric initiatives for obtaining consent in personal genome research

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; DECISION MAKING; FAMILY CENTERED CARE; GENETICS; GENOME; HUMAN; INFORMATION TECHNOLOGY; INFORMED CONSENT; INTERPERSONAL COMMUNICATION; MEDICAL RESEARCH; PRIORITY JOURNAL;

EID: 84927738759     PISSN: None     EISSN: 1756994X     Source Type: Journal    
DOI: 10.1186/s13073-014-0118-y     Document Type: Article
Times cited : (17)

References (10)
  • 1
    • 77957931328 scopus 로고    scopus 로고
    • Informed consent in genomics and genetic research
    • 20477535
    • McGuire AL, Beskow LM. Informed consent in genomics and genetic research. Annu Rev Genomics Hum Genet 2010, 11:361-381. 10.1146/annurev-genom-082509-141711, 20477535.
    • (2010) Annu Rev Genomics Hum Genet , vol.11 , pp. 361-381
    • McGuire, A.L.1    Beskow, L.M.2
  • 2
    • 84867141964 scopus 로고    scopus 로고
    • No small matter: qualitatively distinct challenges of pediatric genomic studies
    • 21961648
    • Kohane IS. No small matter: qualitatively distinct challenges of pediatric genomic studies. Genome Med 2011, 3:62. 10.1186/gm278, 21961648.
    • (2011) Genome Med , vol.3 , pp. 62
    • Kohane, I.S.1
  • 3
    • 84883209509 scopus 로고    scopus 로고
    • Policy uncertainty, sequencing, and cell lines
    • Caulfield T, McGuire AL. Policy uncertainty, sequencing, and cell lines. G3 (Bethesda) 2013, 3:1205-1207. 10.1534/g3.113.007435.
    • (2013) G3 (Bethesda) , vol.3 , pp. 1205-1207
    • Caulfield, T.1    McGuire, A.L.2
  • 7
    • 84927713536 scopus 로고    scopus 로고
    • Return of genetic research results: the Japanese experience and its implications for the international debate
    • Minari J, Chalmers D, Kato K. Return of genetic research results: the Japanese experience and its implications for the international debate. SCRIPTed (Analysis) 2014, 11:180-192.
    • (2014) SCRIPTed (Analysis) , vol.11 , pp. 180-192
    • Minari, J.1    Chalmers, D.2    Kato, K.3
  • 8
    • 38549085235 scopus 로고    scopus 로고
    • Research ethics and the challenge of whole-genome sequencing
    • 18087293
    • McGuire AL, Caulfield T, Cho MK. Research ethics and the challenge of whole-genome sequencing. Nat Rev Genet 2008, 9:152-156. 10.1038/nrg2302, 18087293.
    • (2008) Nat Rev Genet , vol.9 , pp. 152-156
    • McGuire, A.L.1    Caulfield, T.2    Cho, M.K.3
  • 9
    • 10644282182 scopus 로고    scopus 로고
    • Human genetic research: emerging trends in ethics
    • 15630423
    • Knoppers BM, Chadwick R. Human genetic research: emerging trends in ethics. Nat Rev Genet 2005, 6:75-79. 10.1038/nrg1505, 15630423.
    • (2005) Nat Rev Genet , vol.6 , pp. 75-79
    • Knoppers, B.M.1    Chadwick, R.2
  • 10
    • 0032853412 scopus 로고    scopus 로고
    • Family consent, communication, and advance directives for cancer disclosure: a Japanese case and discussion
    • 10461591
    • Akabayashi A, Fetters MD, Elwyn TS. Family consent, communication, and advance directives for cancer disclosure: a Japanese case and discussion. J Med Ethics 1999, 25:296-301. 10.1136/jme.25.4.296, 10461591.
    • (1999) J Med Ethics , vol.25 , pp. 296-301
    • Akabayashi, A.1    Fetters, M.D.2    Elwyn, T.S.3


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.