메뉴 건너뛰기




Volumn 46, Issue 5, 2016, Pages 1793-1805

Factors Influencing the Research Participation of Adults with Autism Spectrum Disorders

Author keywords

Asperger syndrome; Autism; Incentive; Longitudinal studies; Motivation; Research participation; Research recruitment

Indexed keywords

ADULT; ADULT DISEASE; AGED; ARTICLE; AUTISM; CAREGIVER; CLINICAL RESEARCH; FEMALE; HUMAN; INTELLECTUAL IMPAIRMENT; LONGITUDINAL STUDY; MAJOR CLINICAL STUDY; MALE; PRIORITY JOURNAL; MEDICAL RESEARCH; PATIENT SELECTION; PROCEDURES; PSYCHOLOGY; RESEARCH SUBJECT;

EID: 84955267343     PISSN: 01623257     EISSN: 15733432     Source Type: Journal    
DOI: 10.1007/s10803-016-2708-6     Document Type: Article
Times cited : (51)

References (35)
  • 1
    • 78149354853 scopus 로고    scopus 로고
    • A descriptive social and health profile of a community sample of adults and adolescents with Asperger syndrome
    • Balfe, M., & Tantam, D. (2010). A descriptive social and health profile of a community sample of adults and adolescents with Asperger syndrome. BMC Research Notes,3(300), 1–7.
    • (2010) BMC Research Notes , vol.3 , Issue.300 , pp. 1-7
    • Balfe, M.1    Tantam, D.2
  • 2
    • 35448994921 scopus 로고    scopus 로고
    • Theory of mind and autism: A review
    • Glidden LM, (ed), 23, Academic Press, Cambridge
    • Baron-Cohen, S. (2000). Theory of mind and autism: A review. In L. M. Glidden (Ed.), International review of research in mental retardation (Vol. 23, pp. 169–184). Cambridge: Academic Press.
    • (2000) International review of research in mental retardation , pp. 169-184
    • Baron-Cohen, S.1
  • 5
    • 84880461388 scopus 로고    scopus 로고
    • Participants’ motivations and co-construction of the qualitative research process
    • Bell, K. (2013). Participants’ motivations and co-construction of the qualitative research process. Qualitative Social Work,12(4), 523–539.
    • (2013) Qualitative Social Work , vol.12 , Issue.4 , pp. 523-539
    • Bell, K.1
  • 6
    • 77957375124 scopus 로고    scopus 로고
    • A road map for the recruitment and retention of older adult participants for longitudinal studies
    • Bonk, J. (2010). A road map for the recruitment and retention of older adult participants for longitudinal studies. Journal of the American Geriatrics Society,58(2), 303–307.
    • (2010) Journal of the American Geriatrics Society , vol.58 , Issue.2 , pp. 303-307
    • Bonk, J.1
  • 7
    • 84962647515 scopus 로고    scopus 로고
    • Research in general practice: A survey of incentives and disincentives for research participation
    • PID: 24427184
    • Brodaty, H., Gibson, L. H., Waine, M. L., Shell, A. M., Lilian, R., & Pond, C. D. (2013). Research in general practice: A survey of incentives and disincentives for research participation. Mental Health in Family Medicine,10(3), 163–173.
    • (2013) Mental Health in Family Medicine , vol.10 , Issue.3 , pp. 163-173
    • Brodaty, H.1    Gibson, L.H.2    Waine, M.L.3    Shell, A.M.4    Lilian, R.5    Pond, C.D.6
  • 8
    • 37849020464 scopus 로고    scopus 로고
    • Asperger syndrome and autism: A comparative longitudinal follow-up study more than 5 years after original diagnosis
    • PID: 17340200
    • Cederlund, M., Hagberg, B., Billstedt, E., Gillberg, I. C., & Gillberg, C. (2008). Asperger syndrome and autism: A comparative longitudinal follow-up study more than 5 years after original diagnosis. Journal of Autism and Developmental Disorders,38(1), 72–85.
    • (2008) Journal of Autism and Developmental Disorders , vol.38 , Issue.1 , pp. 72-85
    • Cederlund, M.1    Hagberg, B.2    Billstedt, E.3    Gillberg, I.C.4    Gillberg, C.5
  • 10
    • 77955914567 scopus 로고    scopus 로고
    • On ‘being researched’: Why do people engage with qualitative research?
    • Clark, T. O. M. (2010). On ‘being researched’: Why do people engage with qualitative research? Qualitative Research,10(4), 399–419.
    • (2010) Qualitative Research , vol.10 , Issue.4 , pp. 399-419
    • Clark, T.O.M.1
  • 11
    • 77949288614 scopus 로고    scopus 로고
    • Participation in intellectual disability research: A review of 20 years of studies
    • PID: 20146739
    • Cleaver, S., Ouellette-Kuntz, H., & Sakar, A. (2010). Participation in intellectual disability research: A review of 20 years of studies. Journal of Intellectual Disability Research,54(3), 187–193.
    • (2010) Journal of Intellectual Disability Research , vol.54 , Issue.3 , pp. 187-193
    • Cleaver, S.1    Ouellette-Kuntz, H.2    Sakar, A.3
  • 12
    • 84929265443 scopus 로고    scopus 로고
    • Assessing needs in parents of children with autism spectrum disorder: A crucial preliminary step to target relevant issues for support programs
    • Derguy, C., Michel, G., M’bailara, K., Roux, S., & Bouvard, M. (2015). Assessing needs in parents of children with autism spectrum disorder: A crucial preliminary step to target relevant issues for support programs. Journal of Intellectual and Developmental Disability,40(2), 156–166.
    • (2015) Journal of Intellectual and Developmental Disability , vol.40 , Issue.2 , pp. 156-166
    • Derguy, C.1    Michel, G.2    M’bailara, K.3    Roux, S.4    Bouvard, M.5
  • 13
    • 56049118204 scopus 로고    scopus 로고
    • Research participation and internal normativity: Understanding why people participate
    • PID: 19003708
    • Fry, C. L. (2008). Research participation and internal normativity: Understanding why people participate. The American Journal of Bioethics,8(10), 43–44.
    • (2008) The American Journal of Bioethics , vol.8 , Issue.10 , pp. 43-44
    • Fry, C.L.1
  • 18
    • 84962775681 scopus 로고    scopus 로고
    • Outcomes in autism spectrum disorders. In F. R. Volkmar, R. Paul, A. Klin, & D. Cohen (Eds.), Handbook of autism and pervasive developmental disorders (3rd ed., Vol. 1: Diagnosis, development, neurobiology, and behavior, pp
    • Howlin, P. (2005). Outcomes in autism spectrum disorders. In F. R. Volkmar, R. Paul, A. Klin, & D. Cohen (Eds.), Handbook of autism and pervasive developmental disorders (3rd ed., Vol. 1: Diagnosis, development, neurobiology, and behavior, pp. 201–220).
    • (2005) 201–220)
    • Howlin, P.1
  • 19
  • 23
    • 84906326972 scopus 로고    scopus 로고
    • ‘CHARLIE: PLEASE RESPOND!’ Using a participatory methodology with individuals on the autism spectrum
    • MacLeod, A. G., Lewis, A., & Robertson, C. (2014). ‘CHARLIE: PLEASE RESPOND!’ Using a participatory methodology with individuals on the autism spectrum. International Journal of Research and Method in Education,37(4), 407–420.
    • (2014) International Journal of Research and Method in Education , vol.37 , Issue.4 , pp. 407-420
    • MacLeod, A.G.1    Lewis, A.2    Robertson, C.3
  • 24
    • 78649633357 scopus 로고    scopus 로고
    • ‘I avoid pubs and the student union like the plague’: Students with Asperger Syndrome and their negotiation of university spaces
    • Madriaga, M. (2010). ‘I avoid pubs and the student union like the plague’: Students with Asperger Syndrome and their negotiation of university spaces. Children’s Geographies,8(1), 39–50.
    • (2010) Children’s Geographies , vol.8 , Issue.1 , pp. 39-50
    • Madriaga, M.1
  • 25
    • 84892474708 scopus 로고    scopus 로고
    • Cognitive, language, social and behavioural outcomes in adults with autism spectrum disorders: A systematic review of longitudinal follow-up studies in adulthood
    • PID: 24424351
    • Magiati, I., Tay, X. W., & Howlin, P. (2014). Cognitive, language, social and behavioural outcomes in adults with autism spectrum disorders: A systematic review of longitudinal follow-up studies in adulthood. Clinical Psychology Review,34(1), 73–86.
    • (2014) Clinical Psychology Review , vol.34 , Issue.1 , pp. 73-86
    • Magiati, I.1    Tay, X.W.2    Howlin, P.3
  • 26
    • 39749168230 scopus 로고    scopus 로고
    • Strategies to improve recruitment to research studies (Review). Cochrane Database of Systematic Reviews, Issue 2
    • Mapstone, J., Elbourne, D., & Roberts, I. (2007). Strategies to improve recruitment to research studies (Review). Cochrane Database of Systematic Reviews, Issue 2, Art No MR000013.
    • (2007) Art No MR000013
    • Mapstone, J.1    Elbourne, D.2    Roberts, I.3
  • 28
    • 21644444688 scopus 로고    scopus 로고
    • Who are the people reluctant to participate in research? Personality correlates of four different types of nonresponse as inferred from self- and observer ratings
    • PID: 15958141
    • Marcus, B., & Schütz, A. (2005). Who are the people reluctant to participate in research? Personality correlates of four different types of nonresponse as inferred from self- and observer ratings. Journal of Personality,73(4), 959–984.
    • (2005) Journal of Personality , vol.73 , Issue.4 , pp. 959-984
    • Marcus, B.1    Schütz, A.2
  • 30
    • 84869503937 scopus 로고    scopus 로고
    • Altruism and participation in longitudinal health research? Insights from the Whitehall II Study
    • PID: 23031604
    • Mein, G., Seale, C., Rice, H., Johal, S., Ashcroft, R. E., Ellison, G., & Tinker, A. (2012). Altruism and participation in longitudinal health research? Insights from the Whitehall II Study. Social Science and Medicine,75(12), 2345–2352.
    • (2012) Social Science and Medicine , vol.75 , Issue.12 , pp. 2345-2352
    • Mein, G.1    Seale, C.2    Rice, H.3    Johal, S.4    Ashcroft, R.E.5    Ellison, G.6    Tinker, A.7
  • 31
    • 84878116623 scopus 로고    scopus 로고
    • Recruitment to intellectual disability research: A qualitative study
    • PID: 22672134
    • Nicholson, L., Colyer, M., & Cooper, S. A. (2013). Recruitment to intellectual disability research: A qualitative study. Journal of Intellectual Disability Research,57(7), 647–656.
    • (2013) Journal of Intellectual Disability Research , vol.57 , Issue.7 , pp. 647-656
    • Nicholson, L.1    Colyer, M.2    Cooper, S.A.3
  • 32
    • 84962686936 scopus 로고    scopus 로고
    • Partnering for research in the field of intellectual/developmental disabilities—Lessons for participant recruitment
    • Ouellette-Kuntz, H., Lunsky, Y., Lysaght, R., Martin, L., & Saaltink, R. (2013). Partnering for research in the field of intellectual/developmental disabilities—Lessons for participant recruitment. Journal on Developmental Disabilities,19(2), 25–35.
    • (2013) Journal on Developmental Disabilities , vol.19 , Issue.2 , pp. 25-35
    • Ouellette-Kuntz, H.1    Lunsky, Y.2    Lysaght, R.3    Martin, L.4    Saaltink, R.5
  • 33
  • 34
    • 35548983034 scopus 로고    scopus 로고
    • Reaching and engaging hard-to-reach populations with a high proportion of nonassociative members
    • PID: 17968045
    • Thompson, S., & Phillips, D. (2007). Reaching and engaging hard-to-reach populations with a high proportion of nonassociative members. Qualitative Health Research,17, 1292–1303.
    • (2007) Qualitative Health Research , vol.17 , pp. 1292-1303
    • Thompson, S.1    Phillips, D.2
  • 35
    • 0036209896 scopus 로고    scopus 로고
    • The recruitment of normal healthy volunteers: A review of the literature on the use of financial incentives
    • PID: 11936560
    • Tishler, C. L., & Bartholomae, S. (2002). The recruitment of normal healthy volunteers: A review of the literature on the use of financial incentives. Journal of Clinical Pharmacology,42, 365–375.
    • (2002) Journal of Clinical Pharmacology , vol.42 , pp. 365-375
    • Tishler, C.L.1    Bartholomae, S.2


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.