Recruitment to intellectual disability research: A qualitative study

Journal of Intellectual Disability Research

Volumn 57, Issue 7, 2013, Pages 647-656

  Nicholson, L ^a   Colyer, M ^b   Cooper, S A ^c  

^a NHS GREATER GLASGOW AND CLYDE   (United Kingdom)

^b Kirklands Hospital   (United Kingdom)

^c UNIVERSITY OF GLASGOW   (United Kingdom)

Author keywords

Intellectual disability research; Intermediaries; Recruitment

Indexed keywords

ANXIETY; ARTICLE; HUMAN; INTELLECTUAL IMPAIRMENT; MEDICAL ASSESSMENT; MENTAL HEALTH RESEARCH; MENTAL HOSPITAL; METHODOLOGY; PSYCHIATRIST; QUALITATIVE RESEARCH; RESEARCH SUBJECT; SEMI STRUCTURED INTERVIEW; SUPPORT GROUP;

ADULT; BIOMEDICAL RESEARCH; CAREGIVERS; FEMALE; HUMANS; INTELLECTUAL DISABILITY; INTERVIEWS AS TOPIC; MALE; MOTIVATION; PATIENT SELECTION; QUALITATIVE RESEARCH; RESEARCHER-SUBJECT RELATIONS;

EID: 84878116623     PISSN: 09642633     EISSN: 13652788     Source Type: Journal    
DOI: 10.1111/j.1365-2788.2012.01573.x     Document Type: Article

References (15)

1. d'Abrera J. C., Holland A. J., Landt J., Stocks-Gee G. & Zaman S. H. (2011) A neuroimaging proof of principle study of Down's syndrome and dementia: ethical and methodological challenges in intrusive research. DOI: 10.1111/j.1365-2788.2011.01495.x
2. Becker H., Roberts G., Morrison J. & Silver J. (2004) Recruiting people with disabilities as research participants: challenges and strategies to address them. Mental Retardation 42, 471-5.
3. Cleaver S. H., Ouellette-Kuntz H. & Sakar A. (2010) Participation in intellectual disability research: a review of 20 years of studies. Journal of Intellectual Disabilities Research 54, 187-93.
4. Evenhuis H., van Splunder J., Vink M., Weerdenburg C., van Zanten B. & Stilma J. (2004) Obstacles in large-scale epidemiological assessment of sensory impairments in a Dutch population with intellectual disabilities. Journal of Intellectual Disability Research 48, 708-18.
5. Iacono T. (2003) Issues of informed consent in conducting medical research involving people with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities 16, 41-51.
6. Iacono T. (2006) Ethical challenges and complexities of including people with intellectual disability as participants in research. Journal of Intellectual and Developmental Disability 31, 173-9.
7. Landt J., D'Abrera C., Holland A. J., Aigbirhio F. I., Fryer T. D., Canales R. etal. (2011) Using positron emission tomography and Carbon 11-labeled Pittsburgh Compound B to image brain fibrillar {beta}-amyloid in adults with Down syndrome: safety, acceptability, and feasibility. Archives of Neurology 68, 890-6.
8. Lennox N., Taylor M., Rey-Conde T., Bain C., Purdie D. M. & Boyle F. (2005) Beating the barriers: recruitment of people with intellectual disability to participate in research. Journal of Intellectual Disability Research 49, 296-305.
9. Nicholson L. & Cooper S.-A. (2011) Access to healthcare services by people with intellectual disabilities: a rural urban comparison. Journal of Intellectual Disabilities 15, 115-30.
10. Oliver P. C., Piachaud J., Done J., Regan A., Cooray S. & Tyrer P. (2002) Difficulties in conducting a randomized controlled trial of health service interventions in intellectual disability: implications for evidence-based practice. Journal of Intellectual Disability Research 46, 340-5.
11. Oliver-Africano P., Dickens S., Ahmed Z., Bouras N., Cooray S., Deb S. etal. (2010) Overcoming the barriers experienced in conducting a medication trial in adults with aggressive challenging behaviour. Journal of Intellectual Disability Research 54, 17-25.
12. Ritchie J. & Spencer L. (1994) Qualitative data analysis for applied policy research. In: Analyzing Qualitative Data (eds A. Bryman & R. G. Burgess), pp. 172-94. Routledge, London.
13. Siegel P. E. & Ellis N. R. (1985) Note on the recruitment of subjects for mental retardation research. American Journal of Mental Deficiency 89, 431-3.
14. Swaine J., Parish S. L., Luken K. & Atkins L. (2011) Recruitment and consent of women with intellectual disabilities in a randomised control trial of a health promotion intervention. Journal of Intellectual Disability Research 55, 474-83.
15. Tuffrey-Wijne I., Bernal J. & Hollins S. (2011) Doing research on people with learning disabilities, cancer and dying: ethics, possibilities and pitfalls. British Journal of Learning Disabilities 36, 185-90.