Altruism and participation in longitudinal health research? Insights from the Whitehall II Study

Social Science and Medicine

Volumn 75, Issue 12, 2012, Pages 2345-2352

  Mein, Gill ^a   Seale, Clive ^b   Rice, Helen ^c   Johal, Suneeta ^d   Ashcroft, Richard E ^e   Ellison, George ^f   Tinker, Anthea ^g  

^a ST GEORGE'S UNIVERSITY OF LONDON   (United Kingdom)

^b BRUNEL UNIVERSITY   (United Kingdom)

^c UNIVERSITY COLLEGE LONDON   (United Kingdom)

^d Maritz Research   (United Kingdom)

^e QUEEN MARY UNIVERSITY OF LONDON   (United Kingdom)

^f UNIVERSITY OF JOHANNESBURG   (South Africa)

^g KING'S COLLEGE LONDON   (United Kingdom)

Author keywords

Altruism; Attrition; Longitudinal; Qualitative; Reciprocity; UK; Whitehall II Study

Indexed keywords

ALTRUISM; ELDERLY POPULATION; HEALTH CARE; QUESTIONNAIRE SURVEY; RESEARCH;

ADULT; AGED; ALTRUISM; ARTICLE; FEMALE; HUMAN; INTERVIEW; LONGITUDINAL STUDY; MEDICAL EXAMINATION; MEDICAL RESEARCH; MOTIVATION; NURSE ATTITUDE; PARTICIPATORY RESEARCH; PROFESSIONAL COMPETENCE; QUESTIONNAIRE; RECIPROCITY; RESEARCH PARTICIPATION; SOCIAL BEHAVIOR;

ADULT; AGED; ALTRUISM; FEMALE; HUMANS; LONDON; LONGITUDINAL STUDIES; MALE; MIDDLE AGED; QUALITATIVE RESEARCH; RESEARCH SUBJECTS;

UNITED KINGDOM;

EID: 84869503937     PISSN: 02779536     EISSN: 18735347     Source Type: Journal    
DOI: 10.1016/j.socscimed.2012.09.006     Document Type: Article

References (24)

1. Badcock C.R. The problem of altruism 1986, Blackwell, Oxford.
2. Batson C.D., Shaw L.L. Encouraging words concerning the evidence for altruism. Psychological Inquiry 1991, 2:159-168.
3. Bhamra S., Tinker A., Mein G., Ashcroft R., Askham J. The retention of older people in longitudinal studies: a review of the literature. Quality in Ageing 2008, 9(4).
4. Birmingham K., Doyle A. Ethics and governance in a longitudinal birth cohort. Paediatric and Perinatal Epidemiology 2004, 23(1):39-50.
5. Braunack-Mayer A.J. The ethics of participating in research. Medical Journal of Australia 2002, 177(9):471-472.
6. Chatfield M., Brayne C., Matthews F. A systematic review of attrition between waves in longitudinal studies in the elderly shows a consistent pattern of dropout between differing studies. Journal of Clinical Epidemiology 2005, 58:13-19.
7. Felt U., Bister M., Strassnig M., Wagner U. Refusing the information paradigm: informed consent, medical research and patient participation. Health 2009, 13(1):87-106.
8. Fry C., Dwyer R. For love or money? An exploratory study of why injecting drug users participate in research. Addiction 2001, 96:1319-1325.
9. Green J., Thorogood N. Qualitative methods for health research 2006, Sage Publications, London.
10. Krasner L., Ullmann L.P. Behaviour influence and personality: The social matrix of human action 1973, Holt, Reinhart and Winston, New York.
11. Marmot M., Brunner E. Cohort profile: the Whitehall II Study. International Journal of Epidemiology 2005 Apr, 34(2):251-256. Epub 2004 Dec 2.
12. Marmot M., Davey-Smith G., Stansfield S., Patel C., North F., Head J., et al. Health inequalities among British civil servants: the Whitehall II Study. The Lancet 1991, 337:1387-1393.
13. Mauss M. The gift: Forms and functions of exchange in archaic societies 1954, Cohen and West Ltd, London.
14. McCann S., Campbell M., Entwistle V. Reasons for participating in randomised control trials: conditional altruism and consideration for self. Trials 2010, 11(31). http://wwwtrialsjournals.com/content/11/1/31.
15. Mein G., Higgs P., Ferrie J., Stansfeld S.A. Paradigms of retirement: the importance of health and ageing in the Whitehall II Study. Social Science & Medicine 1998, 47(4):535-545.
16. Morris N., Bàlmer B. Volunteer human subjects' understandings of their participation in a biomedical research experiment. Social Science & Medicine 2006, 62:998-1008.
17. Patel M., Doku V., Tennakoon L. Challenges in recruitment of research participants. Advances in Psychiatric Treatment 2003, 9:229-238.
18. QSR.NUDIST Qualitative solutions and research 1995, Pty. La Trobe University, Victoria, Australia.
19. Ribisl K.M., Walton M.A., Mowbray C.T., Luke D.A., Davidson W.S., Bootsmiller B.J. Minimizing participant attrition in panel studies through the use of effective retention and tracking strategies: review and recommendations. Evaluation and Program Planning 1996, 19(1):1-25.
20. Scott D.A., Valery P.C., Boyle F.M., Bain C.J. Does research into sensitive areas do harm? Experiences of research participation after a child's diagnosis with Ewing's Sarcoma. Medical Journal of Australia 2002, 177(9):507-510.
21. Titmuss R.M. The gift relationship: From human blood to social policy 1970, Allen & Unwin, London.
22. Trivers R. The evolution of reciprocal altruism. Quarterly Review of Biology 1971, 46:35-37.
23. Von Strauss E., Fratiglioni L., Jorm A., Viitanen M., Winblad B. Attitudes and participation of the elderly in population surveys: data from a longitudinal study on aging and dementia in Stockholm. Journal of Clinical Epidemiology 1998, 51(3):181-187.
24. Wade-Benzoni K.A., Tost L.P. The egoisim and altruism of intergenerational behavior. Personality and Social Psychology Review 2009, 13(3):165-193.