Reaching and engaging hard-to-reach populations with a high proportion of nonassociative members

Qualitative Health Research

Volumn 17, Issue 9, 2007, Pages 1292-1303

  Thompson, Sue ^a   Phillips, David ^b  

^a NEWCASTLE UNIVERSITY   (United Kingdom)

^b UNIVERSITY OF SHEFFIELD   (United Kingdom)

Author keywords

Hydrocephalus; Low frequency populations; Parkinson's disease; Restricted growth; Skeletal dysplasia; Small stature; Spina bifida

Indexed keywords

BONE DYSPLASIA; DEMOGRAPHY; HYDROCEPHALUS; PARKINSON DISEASE; POLICY; POPULATION RESEARCH; PRIORITY JOURNAL; REVIEW; SHORT STATURE; SOCIAL ISOLATION; SPINA BIFIDA; UNITED KINGDOM;

COMMUNITY-INSTITUTIONAL RELATIONS; GEOGRAPHY; HEALTHCARE DISPARITIES; HUMANS; INFORMATION SERVICES; NEEDS ASSESSMENT; NERVOUS SYSTEM DISEASES; QUESTIONNAIRES; SAMPLING STUDIES; SOCIAL ISOLATION; VOLUNTARY HEALTH AGENCIES; VULNERABLE POPULATIONS;

EID: 35548983034     PISSN: 10497323     EISSN: 15527557     Source Type: Journal    
DOI: 10.1177/1049732307307748     Document Type: Review

References (27)

1. Andresen, E., Diehr, P., & Luke, D. (2004). Public health surveillance of low frequency populations. Annual Review of Public Health, 25, 25-52.
2. Barlow, J., Kirkpatrick, S., Stewart-Brown, S., & Davis, H. (2005). Hard to reach or out of reach? Reasons why women refuse to take part in early interventions. Children and Society, 19(3), 199-210.
3. Benoit, C., Jansson, M., Millar, A., &Phillips, R. (2005). Community-academic research on hard-to-reach populations: Benefits and challenges. Qualitative Health Research, 15, 263-282.
4. Biernacki, P., & Waldorf, D. (1981). Snowball sampling: Problems and techniques of chain referral sampling. Sociological Methods Research, 10, 141-163.
5. Emslie, M., Andrew, J., Entwistle, V., & Walker, K. (2005). Who are your public? A survey comparing the views of a population-based sample with those of a community-based public forum in Scotland. Health and Social Care in the Community, 13(2), 164-169.
6. Faugier, J., & Sargeant, M. (1997). Sampling hard to reach populations. Journal of Advanced Nursing, 26(4), 790-797.
7. Fisher, M., Marsh, P., & Phillips, D. (1986). In and out of care: The experiences of children, parents and social workers. London: Batsford.
8. Hayes, D. (2005). Gaining access to data sources in statutory social work agencies: The long and winding road. British Journal of Social Work, 35(7), 1193-1202.
9. Heckathorn, D. (2002). Respondent-driven sampling ii: Deriving valid population estimates from chain-referral samples of hidden populations. Social Problems, 49(1), 11- 34.
10. Lee, R. (1993). Doing research on sensitive topics. London: Sage.
11. Lennox, N., Taylor, M., Rey-Conde, T., Bain, C., Purdie, D., & Boyle, F. (2005). Beating the barriers: Recruitment of people with intellectual disability to participate in research. Journal of Intellectual Disability Research, 49(4), 296-305.
12. Magnani, R., Sabin, K., Saidel, T., & Heckathorn, D. (2005). Review of sampling hard-to-reach and hidden populations for HIV surveillance. AIDS, 19, S67-S72.
13. Martin, J., & Dean, L. (1993). Developing a community sample of gay men for an epidemiological study of aids. In C. Renzetti & R. Lee (Eds.), Researching sensitive topics (pp. 82-100). Newbury Park, CA: Sage.
14. Modood, T., & Berthoud, R. (1997). Ethnic minorities in Britain: Diversity and disadvantage. London: Policy Studies Institute.
15. Moyer, M., Coristone, M., Jamault, M., Roberge, G., & O'Hagan, M. (1999). Identifying older people in need using action research. Journal of Clinical Nursing, 8(1), 103-111.
16. Neufeld, A., Harrison, M., Hughes, K., Spitzer, D., & Stewart, M. (2001). Participation of immigrant women family caregivers in qualitative research. Western Journal of Nursing Research, 23(6), 575-591.
17. Phillips, D., & Marsh, P. (1984). Doing social work research. Research, Policy and Planning, 2(2), 21-27.
18. Ross, F., Donovan, S., Brearley, S., Victor, C., Cottee, M., Crowther, P., et al. (2005). Involving older people in research: Methodological issues. Health and Social Care in the Community, 13(3), 268-275.
19. Salganik, M., & Heckathorn, D. (2004). Sampling and estimation in hidden populations using respondent-driven sampling. Sociological Methodology, 34(34), 193-239.
20. Shaw, I., Bloor, M., Cormack, R., & Williamson, H. (1996). Estimating the prevalence of hard-to-reach populations: The illustration of mark-recapture methods in the study of homelessness. Social Policy and Administration, 30(1), 69-85.
21. Sudman, S., & Kalton, G. (1985). New developments in the sampling of special populations. American Review of Sociology, 12, 401-429.
22. Sudman, S., Sirken, M., v Cowan, C. (1988). Sampling rare and elusive populations. Science, 240 (240), 991-996.
23. Teitler, J., Reichman, N., & Sprachman, S. (2003). Costs and benefits of improving response rates for a hard to reach population. Public Opinion Quarterly, 67(1), 126-138.
24. Thompson, S. (2002). A constant fight: The need for accessible and co-ordinated services for children and adults with hydrocephalus and/or spina bifida. Peterborough, Canada: Association for Spina Bifida and Hydrocephalus.
25. Thompson, S. (2004). Just invisible. Unpublished research report, Parkinson's Disease Society, London.
26. Thompson, S., Shakespeare, T., & Wright, M. (2007). A small matter of equality: Living with restricted growth. Yeovil, UK: Restricted Growth Association.
27. Zokaei, S., & Phillips, D. (2000). Altruism and intergenerational relations among Muslims in Britain. Current Sociology, 48, 45-58.