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Volumn 43, Issue 4, 2015, Pages 690-702

International Guidelines for Privacy in Genomic Biobanking (or the Unexpected Virtue of Pluralism)

Author keywords

[No Author keywords available]

Indexed keywords

CONSENSUS DEVELOPMENT; DATA BASE; GENETICS; HUMAN; HUMAN RIGHTS; NOMENCLATURE; PRACTICE GUIDELINE; PRIVACY; RESEARCH ETHICS; ACCESS TO INFORMATION; BIOBANK; GENETIC DATABASE; GENETIC PRIVACY; INFORMED CONSENT; INTERNATIONAL COOPERATION; LEGISLATION AND JURISPRUDENCE; STANDARDS;

EID: 84953306201     PISSN: 10731105     EISSN: 1748720X     Source Type: Journal    
DOI: 10.1111/jlme.12312     Document Type: Article
Times cited : (27)

References (69)
  • 1
    • 84953291733 scopus 로고    scopus 로고
    • Medical Research: Future Directions in the Genome Era
    • Y. Joly and B. M. Knoppers, eds., Routledge: New York
    • D. Chalmers, "Medical Research: Future Directions in the Genome Era, " in Y. Joly and B. M. Knoppers, eds., Routledge Handbook of Medical Law and Ethics (Routledge: New York, 2015): at 303-318.
    • (2015) Routledge Handbook of Medical Law and Ethics , pp. 303-318
    • Chalmers, D.1
  • 2
    • 77957191709 scopus 로고    scopus 로고
    • Legal Challenges and Strategies in the Regulation of Research Biobanking
    • For scope of biobanking J. H. Solbakk, S. Holm, and B. Hofmann, eds., London: Springer US, at 281[hereinafter cited as Rynning].
    • For scope of biobanking, see E. Rynning, "Legal Challenges and Strategies in the Regulation of Research Biobanking, " in J. H. Solbakk, S. Holm, and B. Hofmann, eds., The Ethics of Research Biobanking (London: Springer US, 2009): at 281[hereinafter cited as Rynning].
    • (2009) The Ethics of Research Biobanking
    • Rynning, E.1
  • 3
    • 84953280318 scopus 로고    scopus 로고
    • Hereinafter cited as BBMRI]; Public Population Project in Genomics and Society, "Biobank Lexicon (last visited March 6 2015
    • Biobanks and the Public - Governing Biomedical Research Resources in Europe, A Report from the BBMRI Project (2013): at 16 [hereinafter cited as BBMRI]; Public Population Project in Genomics and Society, "Biobank Lexicon, " available at (last visited March 6, 2015).
    • (2013)
  • 5
    • 84890481703 scopus 로고    scopus 로고
    • From ICH to IBH in Biobanking? A Legal Perspective on Harmonization, Standardization and Unification
    • A.-M. Tassé, "From ICH to IBH in Biobanking? A Legal Perspective on Harmonization, Standardization and Unification, " Studies in Ethics, Law, and Technology 7, no. 1 (2013): 1-15.
    • (2013) Studies in Ethics, Law, and Technology , vol.7 , Issue.1 , pp. 1-15
    • Tassé, A.-M.1
  • 6
    • 84885182623 scopus 로고    scopus 로고
    • International Comparisons of Health System Performance among OECD Countries: Opportunities and Data Privacy Protection Challenges
    • J. Oderkirk, E. Ronchi, and N. Klazinga, "International Comparisons of Health System Performance among OECD Countries: Opportunities and Data Privacy Protection Challenges, " Health Policy 112, nos. 1-2 (2013): 9-18, at 12-15.
    • (2013) Health Policy , vol.112 , Issue.1-2 , pp. 9-18
    • Oderkirk, J.1    Ronchi, E.2    Klazinga, N.3
  • 7
    • 84875996953 scopus 로고    scopus 로고
    • Cross-Border Flow of Health Information: Is 'Privacy by Design' Enough? Privacy Performance Assessment in EURIBOD
    • C. T. Di Iorio et al., "Cross-Border Flow of Health Information: Is 'Privacy by Design' Enough? Privacy Performance Assessment in EURIBOD, " European Journal of Public Health 23, no. 2 (2013): 247-253, at 247.
    • (2013) European Journal of Public Health , vol.23 , Issue.2 , pp. 247-253
    • Di Iorio, C.T.1
  • 8
    • 84904129278 scopus 로고    scopus 로고
    • Oxford: Oxford University Press, at 63 [hereinafter cited as Kuner].
    • C. Kuner, Transborder Data Flows and Data Privacy Law (Oxford: Oxford University Press, 2013): at 63 [hereinafter cited as Kuner].
    • (2013) Transborder Data Flows and Data Privacy Law
    • Kuner, C.1
  • 10
    • 84953329511 scopus 로고    scopus 로고
    • (last visited October 15, 2015).
    • HumGen, available at (last visited October 15, 2015).
  • 11
    • 0003578535 scopus 로고
    • Universal Declaration of Human Rights
    • (last visited October 15, 2015) [hereinafter cited as Universal Declaration of Human Rights].
    • UN General Assembly, Universal Declaration of Human Rights (1948), at Article 12, available at (last visited October 15, 2015) [hereinafter cited as Universal Declaration of Human Rights].
    • (1948)
  • 12
    • 84953289867 scopus 로고
    • Article 17 (last visited October 15, 2015).
    • UN General Assembly, International Covenant on Civil and Political Rights (1966), at Article 17, available at (last visited October 15, 2015).
    • (1966)
  • 13
    • 84953262946 scopus 로고
    • last visited October 15, 2015
    • UN General Assembly, Convention on the Rights of the Child (1989), at Article 16(1), available at (last visited October 15, 2015).
    • (1989) , vol.16 , Issue.1
  • 14
    • 0003187764 scopus 로고
    • Directive 95/46/EC of the European Parliament
    • Council of 24 October 1995 on the Protection of Individuals with Regard to the Processing of Personal Data and on the Free Movement of Such Data
    • European Parliament, Directive 95/46/EC of the European Parliament and of the Council of 24 October 1995 on the Protection of Individuals with Regard to the Processing of Personal Data and on the Free Movement of Such Data (1995), available at http://eur-lex.europa.eu/LexUriServ/LexUriServ.do?uri=CELEX:31995L0046:en:HTML
    • (1995)
  • 15
    • 84992563175 scopus 로고    scopus 로고
    • Need for Legitimate Regulatory Regime in Bioethics: A Global and European Perspective
    • J. Reichel, "Need for Legitimate Regulatory Regime in Bioethics: A Global and European Perspective, " Missouri Law Review 78, no. 2 (2013): 465-487, at 483.
    • (2013) Missouri Law Review , vol.78 , Issue.2 , pp. 465-487
    • Reichel, J.1
  • 16
    • 84953331468 scopus 로고    scopus 로고
    • (last visited October 15, 2015) [hereinafter cited as UDHGHR].
    • UNESCO, Universal Declaration on the Human Genome and Human Rights (1997), available at (last visited October 15, 2015) [hereinafter cited as UDHGHR].
    • (1997)
  • 17
    • 84953225266 scopus 로고    scopus 로고
    • (last visited October 15, 2015) [hereinafter cited as IDHGD].
    • UNESCO, International Declaration on Human Genetic Data (2003), available at (last visited October 15, 2015) [hereinafter cited as IDHGD].
    • (2003)
  • 18
    • 84953259738 scopus 로고    scopus 로고
    • (last visited October 15, 2015) [hereinafter cited as UDBHR].
    • UNESCO, Universal Declaration on Bioethics and Human Rights (2005), available at (last visited October 15, 2015) [hereinafter cited as UDBHR].
    • (2005)
  • 19
    • 48749118298 scopus 로고    scopus 로고
    • International Ethical Guidelines for Epidemiological Studies
    • [hereinafter cited as CIOMS Epi Guidelines]
    • Council for International Organizations of Medical Sciences, International Ethical Guidelines for Epidemiological Studies (2009) [hereinafter cited as CIOMS Epi Guidelines]; see also, CIOMS and WHO, International Ethical Guidelines for Biomedical Research Involving Human Subjects (2002), available at (last visited October 15, 2015).
    • (2009)
  • 20
    • 84872612902 scopus 로고    scopus 로고
    • International Ethical Guidelines for Biomedical Research Involving Human Subjects (2002)
    • (last visited October 15, 2015)
    • CIOMS and WHO, International Ethical Guidelines for Biomedical Research Involving Human Subjects (2002), available at <> (last visited October 15, 2015).http://www.cioms.ch/publications/layout_guide2002.pdf
  • 21
    • 0038405113 scopus 로고    scopus 로고
    • OECD Guidelines Governing the Protection of Privacy and Transborder Flows of Personal Data
    • (last visited October 15, 2015).
    • OECD, OECD Guidelines Governing the Protection of Privacy and Transborder Flows of Personal Data (1980), available at (last visited October 15, 2015).
    • (1980)
  • 22
    • 0038405113 scopus 로고    scopus 로고
    • OECD Guidelines on the Protection of Privacy and Transborder Flows of Personal Data
    • (last visited October 15, 2015) [hereinafter cited as Data Protection Guidelines]
    • OECD, OECD Guidelines on the Protection of Privacy and Transborder Flows of Personal Data (2013), available at (last visited October 15, 2015) [hereinafter cited as Data Protection Guidelines].
    • (2013)
  • 23
    • 44449091926 scopus 로고    scopus 로고
    • OECD Principles and Guidelines for Access to Research Data from Public Funding
    • last visited October 15, 2015 [hereinafter cited as Data from Public Funding Guidelines].
    • OECD, OECD Principles and Guidelines for Access to Research Data from Public Funding (2007), available at (last visited October 15, 2015) [hereinafter cited as Data from Public Funding Guidelines].
    • (2007)
  • 24
    • 77954865224 scopus 로고    scopus 로고
    • OECD Recommendation on Human Biobanks and Genetic Research Databases
    • [Biobanking Guidelines].
    • OECD, OECD Recommendation on Human Biobanks and Genetic Research Databases (2009) [Biobanking Guidelines].
    • (2009)
  • 25
    • 84953308367 scopus 로고    scopus 로고
    • The Madrid Resolution, Joint Proposal for a Draft of International Standards on the Protection of Privacy with Regard to the Processing of Personal Data
    • (last visited October 15, 2015) [hereinafter cited as Madrid Resolution].
    • International Standards on the Protection of Personal Data and Privacy: The Madrid Resolution, Joint Proposal for a Draft of International Standards on the Protection of Privacy with Regard to the Processing of Personal Data, available at (last visited October 15, 2015) [hereinafter cited as Madrid Resolution].
  • 26
    • 0007482279 scopus 로고    scopus 로고
    • Declaration of Helsinki - Ethical Principles for Medical Research Involving Human Subjects
    • (last visited October 15, 2015) [hereinafter cited as Declaration of Helsinki].
    • World Medical Association, Declaration of Helsinki - Ethical Principles for Medical Research Involving Human Subjects (2008), available at (last visited October 15, 2015) [hereinafter cited as Declaration of Helsinki].
    • (2008)
  • 27
    • 84924662330 scopus 로고    scopus 로고
    • Cambridge: Cambridge University Press, at 54-55 [hereinafter cited as Lowrance].
    • W. W. Lowrance, Privacy, Confidentiality, and Health Research (Cambridge: Cambridge University Press, 2012): at 54-55 [hereinafter cited as Lowrance].
    • (2012) Privacy, Confidentiality, and Health Research
    • Lowrance, W.W.1
  • 29
    • 0037672601 scopus 로고    scopus 로고
    • Declaration on Ethical Considerations regarding Health Databases
    • Article 4 (last visited October 15, 2015).
    • World Medical Association, Declaration on Ethical Considerations regarding Health Databases (2002), at Article 4, available at (last visited October 15, 2015).
    • (2002)
  • 30
    • 0004837296 scopus 로고    scopus 로고
    • Statement on DNA Sampling: Control and Access
    • (last visited October 15, 2015) [hereinafter cited as 2002 HUGO Statement].
    • HUGO Ethics Committee, Statement on DNA Sampling: Control and Access (1998), available at http://www.hugo-international.org/img/dna_1998.pdf (last visited October 15, 2015) [hereinafter cited as 1998 HUGO Statement]
    • (1998)
  • 31
    • 2142828389 scopus 로고    scopus 로고
    • Statement on Human Genomic Databases
    • HUGO Ethics Committee, Statement on Human Genomic Databases (2002), available at
    • (2002)
  • 32
    • 84953283653 scopus 로고    scopus 로고
    • Global Alliance for Genomics and Health, Constitution for Global Alliance for Genomics and Health (), available at <> (last visited March 6, 2015).
    • Global Alliance for Genomics and Health, Constitution for Global Alliance for Genomics and Health (2014), available at (last visited March 6, 2015).
    • (2014)
  • 33
    • 84953261459 scopus 로고    scopus 로고
    • GA4GH, Framework for Responsible Sharing of Genomic and Health-Related Data (), available at <> (last visited October 15, 2015) [hereinafter cited as Framework].
    • GA4GH, Framework for Responsible Sharing of Genomic and Health-Related Data (2014), available at (last visited October 15, 2015) [hereinafter cited as Framework].
    • (2014)
  • 34
    • 84953339348 scopus 로고    scopus 로고
    • P3G-IPAC website
    • (last visited October 15, 2015).
    • P3G-IPAC website, available at (last visited October 15, 2015).
  • 35
    • 84953250965 scopus 로고    scopus 로고
    • Best Practices for Repositories: Collection, Storage, Retrieval and Distribution of Biological Materials for Research (2012)
    • (last visited October 15, 2015) [hereinafter cited as ISBER Best Practices]
    • International Society for Biological and Environmental Repositories (ISBER), Best Practices for Repositories: Collection, Storage, Retrieval and Distribution of Biological Materials for Research (2012), available at (last visited October 15, 2015) [hereinafter cited as ISBER Best Practices]
    • (2012)
  • 36
    • 84963915856 scopus 로고    scopus 로고
    • Common Minimum Technical Standards and Protocols for Biological Resource Centres Dedicated to Cancer Research
    • World Health Organization and International Agency for Research on Cancer, Common Minimum Technical Standards and Protocols for Biological Resource Centres Dedicated to Cancer Research, Working Group Reports (2007): at vol. 2
    • (2007) Working Group Reports , vol.2
  • 38
    • 84921923317 scopus 로고    scopus 로고
    • Control Use of Data to Protect Privacy
    • S. Landau, "Control Use of Data to Protect Privacy, " Science 347, no. 6221 (2015): 504-506, at 504.
    • (2015) Science , vol.347 , Issue.6221 , pp. 504-506
    • Landau, S.1
  • 39
    • 84879841885 scopus 로고    scopus 로고
    • International Guidelines on Biobank Research Leave Researchers in Ambiguity: Why Is This So?
    • J. S. Forsberg, M. G. Hansson, and K. Evers, "International Guidelines on Biobank Research Leave Researchers in Ambiguity: Why Is This So?" European Journal of Epidemiology 28, no. 6 (2013): 449-451, at 449 [hereinafter cited as Forsberg].
    • (2013) European Journal of Epidemiology , vol.28 , Issue.6 , pp. 449-451
    • Forsberg, J.S.1    Hansson, M.G.2    Evers, K.3
  • 40
    • 84911868419 scopus 로고    scopus 로고
    • Data Protection as a Fundamental Right Next to Privacy? 'Reconstructing' a Not so New Right
    • M. Tzanou, "Data Protection as a Fundamental Right Next to Privacy? 'Reconstructing' a Not so New Right, " International Data Privacy Law 3, no. 2 (2013): 88-99, at 89.
    • (2013) International Data Privacy Law , vol.3 , Issue.2 , pp. 88-99
    • Tzanou, M.1
  • 41
    • 77951480975 scopus 로고    scopus 로고
    • Policy by Procrastination: Secondary Use of Electronic Health Records for Health Research Purposes
    • P. Kosseim and M. Brady, "Policy by Procrastination: Secondary Use of Electronic Health Records for Health Research Purposes, " McGill Journal of Law and Health 2, no. 1 (2008): 5-45, at 17 [hereinafter cited as Kosseim].
    • (2008) McGill Journal of Law and Health , vol.2 , Issue.1 , pp. 5-45
    • Kosseim, P.1    Brady, M.2
  • 42
    • 84866057075 scopus 로고    scopus 로고
    • Biobanks, Consent and Claims of Consensus
    • Z. Master, E. Nelson, B. Murdoch, and T. Caulfield, "Biobanks, Consent and Claims of Consensus, " Nature Methods 9, no. 9 (2012): 885-888, at 885.
    • (2012) Nature Methods , vol.9 , Issue.9 , pp. 885-888
    • Master, Z.1    Nelson, E.2    Murdoch, B.3    Caulfield, T.4
  • 43
    • 84882449721 scopus 로고    scopus 로고
    • Broad Consent Versus Dynamic Consent in Biobank Research: Is Passive Participation an Ethical Problem?
    • K. S. Steinsbekk, B. Kåre Myskja, and B. Solberg, "Broad Consent Versus Dynamic Consent in Biobank Research: Is Passive Participation an Ethical Problem?" European Journal of Human Genetics 21, no. 9 (2013): 897-902, at 897.
    • (2013) European Journal of Human Genetics , vol.21 , Issue.9 , pp. 897-902
    • Steinsbekk, K.S.1    Kåre Myskja, B.2    Solberg, B.3
  • 45
    • 60149102137 scopus 로고    scopus 로고
    • Broadening Consent - and Diluting Ethics?
    • B. Hofmann, "Broadening Consent - and Diluting Ethics?" Journal of Medical Ethics 35, no. 2 (2009): 125-129, at 128.
    • (2009) Journal of Medical Ethics , vol.35 , Issue.2 , pp. 125-129
    • Hofmann, B.1
  • 46
    • 38449089111 scopus 로고    scopus 로고
    • The Uneasy Ethical and Legal Underpinnings of Large-Scale Genomic Biobanks
    • H. T. Greely, "The Uneasy Ethical and Legal Underpinnings of Large-Scale Genomic Biobanks, " Annual Review of Genomics and Human Genetics 8 (2007): 343-364, at 358.
    • (2007) Annual Review of Genomics and Human Genetics , vol.8 , pp. 343-364
    • Greely, H.T.1
  • 47
    • 84953231662 scopus 로고    scopus 로고
    • T. Caulfield and B. M. Knoppers, Consent, Privacy & Research Biobanks, Policy Directions Brief Number 1, 2009-2010 Series on Genetic Information, Genome Canada (January 26, 2010): 1-10, at 4-5, available at (last visited October 15, 2015); A. Nomper, Open Consent: A New Form of Informed Consent for Population Genetic Databases (Tartu: Tartu ülikooli kirjastus, 2005).
    • (2010) , pp. 1-10
    • Caulfield, T.1    Knoppers, B.M.2
  • 48
    • 56349091505 scopus 로고    scopus 로고
    • Open Consent: A New Form of Informed Consent for Population Genetic Databases
    • (Tartu: Tartu ülikooli kirjastus, 2005)
    • A. Nomper, Open Consent: A New Form of Informed Consent for Population Genetic Databases (Tartu: Tartu ülikooli kirjastus, 2005).http://www.genomecanada.ca/medias/pdf/en/GPS-Policy-Directions-Brief.pdf
    • Nomper, A.1
  • 50
    • 77951472041 scopus 로고    scopus 로고
    • Framing Genomics, Public Health Research and Policy: Points to Consider
    • B. M. Knoppers et al., "Framing Genomics, Public Health Research and Policy: Points to Consider, " Public Health Genomics 13, no. 4 (2010): 224-234, at 231.
    • (2010) Public Health Genomics , vol.13 , Issue.4 , pp. 224-234
    • Knoppers, B.M.1
  • 51
    • 84953313997 scopus 로고    scopus 로고
    • Report of the International Bioethics Committee of UNESCO (IBC) on Consent
    • [hereinafter cited as UNESCO IBC].
    • UNESCO, Report of the International Bioethics Committee of UNESCO (IBC) on Consent, 2008, at para 54 [hereinafter cited as UNESCO IBC].
    • (2008) , vol.54
  • 52
    • 84975701654 scopus 로고    scopus 로고
    • The Evolution of Withdrawal: Negotiating Research Relationships in Biobanking
    • K. Melham et al., "The Evolution of Withdrawal: Negotiating Research Relationships in Biobanking, " Life Sciences, Society and Policy 10, no. 16 (2014): 1-13; see ISBER Best Practices, supra note 41, at L2.200.
    • (2014) Life Sciences, Society and Policy , vol.10 , Issue.16 , pp. 1-13
    • Melham, K.1
  • 53
    • 85098066309 scopus 로고    scopus 로고
    • The Tension between Data Sharing and the Protection of Privacy in Genomics Research
    • Mascalzoni, ed., Ethics, Law and Governance of Biobanking (New York)
    • J. Kaye, "The Tension between Data Sharing and the Protection of Privacy in Genomics Research, " in Mascalzoni, ed., Ethics, Law and Governance of Biobanking (New York: 2015): 101-120, at 105.
    • (2015) , pp. 101-120
    • Kaye, J.1
  • 54
    • 84863995291 scopus 로고    scopus 로고
    • How Anonymous Is 'Anonymous'? Some Suggestions towards a Coherent Universal Coding System for Genetic Samples
    • H. Schmidt and S. Callier, "How Anonymous Is 'Anonymous'? Some Suggestions towards a Coherent Universal Coding System for Genetic Samples, " Journal of Medical Ethics 38, no. 5 (2012): 304-309, at 304.
    • (2012) Journal of Medical Ethics , vol.38 , Issue.5 , pp. 304-309
    • Schmidt, H.1    Callier, S.2
  • 55
    • 10644282182 scopus 로고    scopus 로고
    • Human Genetic Research: Emerging Trends in Ethics
    • B. M. Knoppers and R. Chadwick, "Human Genetic Research: Emerging Trends in Ethics, " Nature Reviews Genetics 6, no. 1 (2005): 75-79, at 925.
    • (2005) Nature Reviews Genetics , vol.6 , Issue.1 , pp. 75-79
    • Knoppers, B.M.1    Chadwick, R.2
  • 56
    • 84953226825 scopus 로고    scopus 로고
    • ICH Harmonised Tripartite Guideline: Definitions for Genomic Biomarkers, Pharmacogenomics, Phamacogenetics
    • (last visited October 15, 2015).
    • International Conference on Harmonisation, ICH Harmonised Tripartite Guideline: Definitions for Genomic Biomarkers, Pharmacogenomics, Phamacogenetics, Genomic Data and Sample Coding Categories E15 (2007), at 3-4, available at (last visited October 15, 2015).
    • (2007) Genomic Data and Sample Coding Categories E15 , pp. 3-4
  • 57
    • 84926652145 scopus 로고    scopus 로고
    • An Implementation Framework for the Feedback of Individual Research Results and Incidental Findings in Research
    • A. Thorogood et al., "An Implementation Framework for the Feedback of Individual Research Results and Incidental Findings in Research, " BMC Medical Ethics 15, no. 88 (2014): 1-13, at 9.
    • (2014) BMC Medical Ethics , vol.15 , Issue.88 , pp. 1-13
    • Thorogood, A.1
  • 58
    • 84872459720 scopus 로고    scopus 로고
    • Identifying Personal Genomes by Surname Inference
    • M. Gymrek et al., "Identifying Personal Genomes by Surname Inference, " Science 339, no. 6112 (2013): 321-324.
    • (2013) Science , vol.339 , Issue.6112 , pp. 321-324
    • Gymrek, M.1
  • 59
    • 84953224233 scopus 로고    scopus 로고
    • GA4GH Framework, supra note 30 GA4GH
    • last visited March 6
    • GA4GH Framework, supra note 30, at; GA4GH, "Consent, " available at (last visited March 6, 2015).
    • (2015)
  • 60
    • 33645006859 scopus 로고    scopus 로고
    • International Covenant on Economic, Social and Cultural Rights, 1966(last visited October 15, 2015).
    • See Universal Declaration of Human Rights, supra note 14, at Article 27; UN General Assembly, International Covenant on Economic, Social and Cultural Rights, 1966, available at (last visited October 15, 2015).
    • UN General Assembly
  • 61
    • 84953334431 scopus 로고    scopus 로고
    • Sharing Research Data to Improve Public Health: Full Joint Statement by Funders of Health Research
    • (last visited October 15, 2015)
    • Wellcome Trust, "Sharing Research Data to Improve Public Health: Full Joint Statement by Funders of Health Research, " available at (last visited October 15, 2015). A list of agency signatories can also be found on the website.
    • A list of agency signatories can also be found on the website
  • 62
    • 84966398762 scopus 로고    scopus 로고
    • Privacy and Security Policy
    • (last visited March 6, 2015).
    • Global Alliance for Genomics & Health, "Privacy and Security Policy, " available at (last visited March 6, 2015).
  • 63
    • 79751519568 scopus 로고    scopus 로고
    • Privacy on the Books and on the Ground
    • K. A. Bamberger and D. K. Mulligan, "Privacy on the Books and on the Ground, " Stanford Law Review 63, no. 2 (2011): 247-316, at 275-276.
    • (2011) Stanford Law Review , vol.63 , Issue.2 , pp. 247-316
    • Bamberger, K.A.1    Mulligan, D.K.2
  • 64
    • 84953306889 scopus 로고    scopus 로고
    • Accountability Policy
    • (last visited March 6, 2015).
    • GA4GH, "Accountability Policy, " available at (last visited March 6, 2015).
  • 65
    • 84921910394 scopus 로고    scopus 로고
    • The End of Privacy: From Big Data to Ubiquitous Internet Connections, Technology Empowers Researchers and the Public - but Makes Traditional Notions of Privacy Obsolete
    • M. Enderink and G. Chin, "The End of Privacy: From Big Data to Ubiquitous Internet Connections, Technology Empowers Researchers and the Public - but Makes Traditional Notions of Privacy Obsolete, " Science 347, no. 6221 (2015): 490-491, at 490.
    • (2015) Science , vol.347 , Issue.6221 , pp. 490-491
    • Enderink, M.1    Chin, G.2
  • 66
    • 84973326781 scopus 로고    scopus 로고
    • The Collection, Linking and Use of Data in Biomedical Research and Health Care
    • (last visited October 15, 2015).
    • Nuffield Council on Bioethics, The Collection, Linking and Use of Data in Biomedical Research and Health Care (2015), at xi, available at (last visited October 15, 2015).
    • (2015)
  • 67
    • 84944170120 scopus 로고    scopus 로고
    • Genomic Cloud Computing: Legal and Ethical Points to Consider
    • E. S. Dove et al., "Genomic Cloud Computing: Legal and Ethical Points to Consider, " European Journal of Human Genetics (2014).
    • (2014) European Journal of Human Genetics
    • Dove, E.S.1
  • 68
    • 33645885027 scopus 로고    scopus 로고
    • The Pluralism of Global Administrative Law
    • N. Krisch, "The Pluralism of Global Administrative Law, " European Journal of International Law 17, no. 1 (2006): 247-278, at 269-270, 278.
    • (2006) European Journal of International Law , vol.17 , Issue.1 , pp. 247-278
    • Krisch, N.1
  • 69
    • 84921914489 scopus 로고    scopus 로고
    • Trust Me, I'm a Medical Researcher
    • J. Couzin-Frankel, "Trust Me, I'm a Medical Researcher, " Science 347, no. 6221 (2015): 501-503, at 502-503.
    • (2015) Science , vol.347 , Issue.6221 , pp. 501-503
    • Couzin-Frankel, J.1


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.