Transitional care and adherence of adolescents and young adults after kidney transplantation in Germany and Austria

Medicine (United States)

Volumn 94, Issue 48, 2015, Pages

  Kreuzer, Martin ^a,b   Prüfe, Jenny ^a   Oldhafer, Martina ^b   Bethe, Dirk ^c   Dierks, Marie Luise ^a   Müther, Silvia ^b,d   Thumfart, Julia ^e   Hoppe, Bernd ^f   Büscher, Anja ^g   Rascher, Wolfgang ^h   Hansen, Matthias ⁱ   Pohl, Martin ^j   Kemper, Markus J ^k   Drube, Jens ^a   Rieger, Susanne ^c   John, Ulrike ^l   Taylan, Christina ^m   Dittrich, Katalin ⁿ   Hollenbach, Sabine ^o   Klaus, Günter ^p   Fehrenbach, Henry ^q   Kranz, Birgitta ^r   Montoya, Carmen ^s   Lange Sperandio, Bärbel ^t   Ruckenbrodt, Bettina ^u   Billing, Heiko ^v   Staude, Hagen ^w   Heindl Rusai, Krisztina ^x   Brunkhorst, Reinhard ^y   Pape, Lars ^a,b   more..

^a HANNOVER MEDICAL SCHOOL   (Germany)

^b German Society of Transition Medicine   (Germany)

^c UNIVERSITY HOSPITAL HEIDELBERG   (Germany)

^d German Red Cross Hospital   (Germany)

^e CHARITÉ UNIVERSITÄTSMEDIZIN BERLIN   (Germany)

^f UNIVERSITY HOSPITAL BONN   (Germany)

^g UNIVERSITY HOSPITAL ESSEN   (Germany)

^h UNIVERSITY HOSPITAL ERLANGEN   (Germany)

ⁱ Department of Psychosomatic Medicine   (Germany)

^j UNIVERSITY OF FREIBURG   (Germany)

^k UNIVERSITY MEDICAL CENTER HAMBURG EPPENDORF   (Germany)

^l Children's Hospital of University   (Germany)

^m UNIVERSITY HOSPITAL OF COLOGNE   (Germany)

ⁿ Children's University Hospital   (United States)

^o Klinikum St Georg   (Germany)

^p UNIVERSITY HOSPITAL MARBURG   (Germany)

^q Social Pediatric Center   (Germany)

^r UNIVERSITY HOSPITAL MÜNSTER   (Germany)

^s Klinikum Schwabing   (Germany)

^t LUDWIG MAXIMILIANS UNIVERSITY   (Germany)

^u KLINIKUM STUTTGART   (Germany)

^v UNIVERSITY HOSPITAL TÜBINGEN   (Germany)

^w ROSTOCK UNIVERSITY MEDICAL CENTER   (Germany)

^x Ebene 10   (Austria)

^y Region Hannover   (Germany)

more..

Author keywords

[No Author keywords available]

Indexed keywords

CREATININE; CYCLOSPORIN A; EVEROLIMUS; MYCOPHENOLIC ACID; RAPAMYCIN; TACROLIMUS; IMMUNOSUPPRESSIVE AGENT;

ADOLESCENT; ADULT; ARTICLE; AUSTRIA; BIOPSY; CHRONIC GRAFT NEPHROPATHY; CREATININE BLOOD LEVEL; DRUG BLOOD LEVEL; END STAGE RENAL DISEASE; GERMANY; HUMAN; IMMUNOSUPPRESSIVE TREATMENT; KIDNEY TRANSPLANTATION; LOW DRUG DOSE; MAJOR CLINICAL STUDY; PATIENT COMPLIANCE; PRIORITY JOURNAL; QUESTIONNAIRE; RENAL GRAFT DYSFUNCTION; RETROSPECTIVE STUDY; TRANSITIONAL CARE; CLINICAL TRIAL; FEMALE; GRAFT REJECTION; MALE; MEDICATION COMPLIANCE; MULTICENTER STUDY; ORGANIZATION AND MANAGEMENT; STATISTICS AND NUMERICAL DATA; TRANSITION TO ADULT CARE; YOUNG ADULT;

ADOLESCENT; ADULT; AUSTRIA; FEMALE; GERMANY; GRAFT REJECTION; HUMANS; IMMUNOSUPPRESSIVE AGENTS; KIDNEY TRANSPLANTATION; MALE; MEDICATION ADHERENCE; RETROSPECTIVE STUDIES; TRANSITION TO ADULT CARE; YOUNG ADULT;

EID: 84952334345     PISSN: 00257974     EISSN: 15365964     Source Type: Journal    
DOI: 10.1097/MD.0000000000002196     Document Type: Article

References (31)

1. Frei U, Schober-Halstenberg HJ. Nierenersatztherapie in Deutschland. Bericht über Dialysebehandlung und Nierentransplantation in Deutschland 2007 QuaSiNiere (Renal replacement therapy in Germany. Report on dialysis and kidney transplantation in Germany 2007 from the QuaSi-Niere registry.) Berlin, Germany: QuaSi-Niere gGmbH; 2008. ISBN 3-9809996-3-7.
2. Foster BJ. Heightened graft failure risk during emerging adulthood and transition to adult care. Pediatr Nephrol. 2015; 30: 567-576.
3. Foster BJ, Dahhou M, Zhang X, et al. Association between age and graft failure rates in young kidney transplant recipients. Transplantation. 2011; 92: 1237-1243.
4. Watson AR. Non-compliance and transfer from paediatric to adult transplant unit. Pediatr Nephrol. 2000; 14: 469-472.
5. Prestidge C, Romann A, Djurdjev O, et al. Utility and cost of a renal transplant transition clinic. Pediatr Nephrol. 2012; 27: 295-302.
6. Pai AL, Ingerski LM, Perazzo L, et al. Preparing for transition? The allocation of oral medication regimen tasks in adolescents with renal transplants. Pediatr Transplant. 2011; 15: 9-16.
7. Hsiau M, Fernandez HE, Gjertson D, et al. Monitoring nonadherence and acute rejection with variation in blood immunosuppressant levels in pediatric renal transplantation. Transplantation. 2011; 92: 918-922.
8. Akchurin OM, Melamed ML, Hashim BL, et al. Medication adherence in the transition of adolescent kidney transplant recipients to the adult care. Pediatr Transplant. 2014; 18: 538-548.
9. McDonagh JE. Growing up and moving on: transition from pediatric to adult care. Pediatr Transplant. 2005; 9: 364-372.
10. AAP (American Academy of Pediatrics), AAFP (American Academy of Family Physicians) and ASIM (American College of Physicians- American Society of Internal Medicine. A consensus statement on health care transitions from young adults with special health care needs. Pediatrics. 2002; 110: 1304-1306.
11. Por J, Golberg B, Lennox V, et al. Transition of care: health care professionals' view. J Nurs Manag. 2004; 12: 354-361.
12. Scal P. Transition for youth with chronic conditions: primary care physicians'approaches. Pediatrics. 2002; 110: 1315-1321.
13. John U, Offner G, Breuch K, et al. Concept to improve adherence in adolescents following renal transplantation: vision or reality? Urologe. 2009; 48: 1468-1472.
14. Freier C, Oldhafer M, Offner G, et al. Impact of computer-based patient education on illness-specific knowledge and renal function in adolescents after renal transplantation. Pediatr Transplant. 2010; 14: 596-602.
15. Kreuzer M, Prüfe J, Bethe D, et al. The TRANSNephro-study examining a new transition model for post-kidney transplant adolescents and an analysis of the present health care: study protocol for a randomized controlled trial. Trials. 2014; 15: 505.
16. Hara S. Banff 2013 update: pearls and pitfalls in transplant renal pathology. Nephrology (Carlton). 2015; 20(Suppl 2): 2-8.
17. Pollock-Barziv SM, Finkelstein Y, Manlhiot C, et al. Variability in tacrolimus blood levels increases the risk of late rejection and graft loss after solid organ transplantation in older children. Pediatr Transplant. 2010; 14: 968-975.
18. Sapir-Pichhadze R, Wang Y, Famure O, et al. Time-dependent variability in tacrolimus trough blood levels is a risk factor for late kidney transplant failure. Kidney Int. 2014; 85: 1404-1411.
19. Stuber ML, Shemesh E, Seacord D, et al. Evaluating non-adherence to immunosuppressant medications in pediatric liver transplant recipients. Pediatr Transplant. 2008; 12: 284-288.
20. Samuel SM, Nettel-Aguirre A, Hemmelgarn BR, et al. Graft failure and adaptation period to adult healthcare centers in pediatric renal transplant patients. Transplantation. 2011; 91: 1380-1385.
21. Van den Heuvel ME, Van der Lee JH, Cornelissen EA, et al. Transition to the adult nephrologist does not induce acute renal transplant rejection. Nephrol Dial Transplant. 2010; 25: 1662-1667.
22. Harden PN, Walsh G, Bandler N, et al. Bridging the gap: an integrated paediatric to adult clinical service for young adults with kidney failure. BMJ. 2012; 344: e3718.
23. McManus M, White P, Barbour A, et al. Pediatric to adult transition: a quality improvement model for primary care. J Adolesc Health. 2015; 56: 73-78.
24. Reid GJ, Irvine MJ, McCrindle BW, et al. Prevalence and correlates of successful transfer from pediatric to adult health care among a cohort of young adults with complex ongenital heart defects. Pediatrics. 2004; 113e: e197-e205.
25. Zack J, Jacobs CP, Keenan PM, et al. Perspectives of patients with cystic fibrosis on preventive counselling and transition to adult care. Pediatr Pulmonol. 2003; 36: 376-383.
26. Pabst S, Bertram A, Zimmermann T, et al. Physician reported adherence to immunosuppressants in renal transplant patients: prevalence, agreement, and correlates. J Psychosom Res. 2015; 79: 364-371.
27. Pape L, Lämmermühle J, Oldhafer M, et al. Different models of transition to adult care after pediatric kidney transplantation: a comparative study. Pediatr Transplant. 2013; 17: 518-524.
28. Dobbels F, Ruppar T, De Geest S, et al. Adherence to the immunosuppressive regimen in pediatric kidney transplant recipients: A systematic review. Pediatr Transplant. 2010; 14: 603-613.
29. Dew MA, Dabbs AD, Myaskovsky L, et al. Meta-analysis of medical regimen adherence outcomes in pediatric solid organ transplantation. Transplantation. 2009; 88: 736-746.
30. Pinsky BW, Takemoto SK, Lentine KL, et al. Transplant outcomes and economic costs associated with patient noncompliance to immunosuppression. Am J Transplant. 2009; 9: 2597-2606.
31. Shemesh E, Shneider BL, Savitzky JK, et al. Medication adherence in pediatric and adolescent liver transplant recipients. Pediatrics. 2004; 113: 825-832.