-
1
-
-
84947034285
-
Data and Statistics for Congenital Heart Disease
-
on 15.03.15.
-
Centers for Disease Control and Prevention. Data and Statistics for Congenital Heart Disease. Retrieved from: ; on 15.03.15. http://www.cdc.gov/ncbddd/heartdefects/data.html.
-
-
-
-
2
-
-
84947034078
-
Understand Your Risk for Congenital Heart Defects
-
on 15.03.15.
-
American Heart Association. Understand Your Risk for Congenital Heart Defects. Retrieved from: ; on 15.03.15. http://www.heart.org/HEARTORG/Conditions/CongenitalHeartDefects/UnderstandYourRiskforCongenitalHeartDefects/Understand-Your-Risk-for-Congenital-Heart-Defects_UCM_001219_Article.jsp.
-
-
-
-
3
-
-
79959698751
-
Center variation in hospital costs for patients undergoing congenital heart surgery
-
Pasquali S.K., Sun J.L., d'Almada P., et al. Center variation in hospital costs for patients undergoing congenital heart surgery. Circ Cardiovasc Qual Outcomes 2011, 4(3):306-312. 10.1161/CIRCOUTCOMES.110.958959.
-
(2011)
Circ Cardiovasc Qual Outcomes
, vol.4
, Issue.3
, pp. 306-312
-
-
Pasquali, S.K.1
Sun, J.L.2
d'Almada, P.3
-
4
-
-
33846630909
-
Hospital stays, hospital charges, and in-hospital deaths among infants with selected birth defects-united states, 2003
-
Robbins J.M., Bird T.M., Tilford J.M., et al. Hospital stays, hospital charges, and in-hospital deaths among infants with selected birth defects-united states, 2003. MMWR Morb Mortal Wkly Rep 2007, 56:25-29.
-
(2007)
MMWR Morb Mortal Wkly Rep
, vol.56
, pp. 25-29
-
-
Robbins, J.M.1
Bird, T.M.2
Tilford, J.M.3
-
5
-
-
79959694511
-
Nationwide trends in inpatient pediatric cardiac surgery and interventional catheterization procedures from 1997-2006: on-line estimates from the US healthcare cost and utilization project
-
Gray D.T., Pourmoghadam K., Weis J., et al. Nationwide trends in inpatient pediatric cardiac surgery and interventional catheterization procedures from 1997-2006: on-line estimates from the US healthcare cost and utilization project. Circ Cardiovasc Qual Outcomes 2009, 2(e23).
-
(2009)
Circ Cardiovasc Qual Outcomes
, vol.2
, Issue.e23
-
-
Gray, D.T.1
Pourmoghadam, K.2
Weis, J.3
-
6
-
-
0037183572
-
Report of the task force on research in pediatric cardiovascular disease
-
Lenfant C. Report of the task force on research in pediatric cardiovascular disease. Circulation 2002, 106(9):1037-1042.
-
(2002)
Circulation
, vol.106
, Issue.9
, pp. 1037-1042
-
-
Lenfant, C.1
-
7
-
-
69149107165
-
Preferred reporting items for systematic reviews and meta-analyses: the PRISMA statement
-
Moher D. Preferred reporting items for systematic reviews and meta-analyses: the PRISMA statement. Ann Intern Med 2009, 151(4):264.
-
(2009)
Ann Intern Med
, vol.151
, Issue.4
, pp. 264
-
-
Moher, D.1
-
10
-
-
84947021412
-
-
version 7.5.2, for Windows, Scientific Software Development, Berlin
-
ATLAS.ti, version 7.5.2, for Windows 2014, Scientific Software Development, Berlin.
-
(2014)
-
-
-
11
-
-
35648958695
-
Psychological distress in parents of children with severe congenital heart disease: the impact of prenatal versus postnatal diagnosis
-
Brosig C.L., Whitstone B.N., Frommelt M.A., Frisbee S.J., Leuthner S.R. Psychological distress in parents of children with severe congenital heart disease: the impact of prenatal versus postnatal diagnosis. J Perinatol 2007, 27(11):687-692. 10.1038/sj.jp.7211807.
-
(2007)
J Perinatol
, vol.27
, Issue.11
, pp. 687-692
-
-
Brosig, C.L.1
Whitstone, B.N.2
Frommelt, M.A.3
Frisbee, S.J.4
Leuthner, S.R.5
-
12
-
-
84947029793
-
Walking a Tightrope: Living with Your Child's Congenital Heart Disease
-
University of Miami
-
Brown P.A. Walking a Tightrope: Living with Your Child's Congenital Heart Disease 2003, University of Miami.
-
(2003)
-
-
Brown, P.A.1
-
13
-
-
70350742933
-
Predictors of psychological functioning in mothers and fathers of infants born with severe congenital heart disease
-
Doherty N. Predictors of psychological functioning in mothers and fathers of infants born with severe congenital heart disease. J Reprod Infant Psychol 2009, 27(4):390.
-
(2009)
J Reprod Infant Psychol
, vol.27
, Issue.4
, pp. 390
-
-
Doherty, N.1
-
14
-
-
33644874381
-
The experience of a broken heart
-
ix
-
Fernandes J.R. The experience of a broken heart. Crit Care Nurs Clin North Am 2005, 17(4):319-327. ix. 10.1016/j.ccell.2005.08.001.
-
(2005)
Crit Care Nurs Clin North Am
, vol.17
, Issue.4
, pp. 319-327
-
-
Fernandes, J.R.1
-
15
-
-
84856345035
-
Caregiver anxiety upon discharge for neonates with congenital heart disease
-
Fischer A.L., Butz C., Nicholson L., Blankenship A., Dyke P., Cua C.L. Caregiver anxiety upon discharge for neonates with congenital heart disease. Congenit Heart Dis 2012, 7(1):41-45. 10.1111/j.1747-0803.2011.00600.x.
-
(2012)
Congenit Heart Dis
, vol.7
, Issue.1
, pp. 41-45
-
-
Fischer, A.L.1
Butz, C.2
Nicholson, L.3
Blankenship, A.4
Dyke, P.5
Cua, C.L.6
-
16
-
-
77957582002
-
Parent stress levels during children's hospital recovery after congenital heart surgery
-
Franck L.S., McQuillan A., Wray J., Grocott M.P., Goldman A. Parent stress levels during children's hospital recovery after congenital heart surgery. Pediatr Cardiol 2010, 31(7):961-968. 10.1007/s00246-010-9726-5.
-
(2010)
Pediatr Cardiol
, vol.31
, Issue.7
, pp. 961-968
-
-
Franck, L.S.1
McQuillan, A.2
Wray, J.3
Grocott, M.P.4
Goldman, A.5
-
17
-
-
84903636976
-
Psychosocial risk in families of infants undergoing surgery for a serious congenital heart disease
-
Hearps S.J., McCarthy M.C., Muscara F., et al. Psychosocial risk in families of infants undergoing surgery for a serious congenital heart disease. Cardiol Young 2014, 24(4):632-639. 10.1017/S1047951113000760.
-
(2014)
Cardiol Young
, vol.24
, Issue.4
, pp. 632-639
-
-
Hearps, S.J.1
McCarthy, M.C.2
Muscara, F.3
-
18
-
-
40449094174
-
Surgery-related posttraumatic stress disorder in parents of children undergoing cardiopulmonary bypass surgery: a prospective cohort study
-
Helfricht S., Latal B., Fischer J.E., Tomaske M., Landolt M.A. Surgery-related posttraumatic stress disorder in parents of children undergoing cardiopulmonary bypass surgery: a prospective cohort study. Pediatr Crit Care Med 2008, 9(2):217-223. 10.1097/PCC.0b013e318166eec3.
-
(2008)
Pediatr Crit Care Med
, vol.9
, Issue.2
, pp. 217-223
-
-
Helfricht, S.1
Latal, B.2
Fischer, J.E.3
Tomaske, M.4
Landolt, M.A.5
-
19
-
-
17844383377
-
Parental decision-making in congenital heart disease
-
Hoehn K.S., Wernovsky G., Rychik J., et al. Parental decision-making in congenital heart disease. Cardiol Young 2004, 14(3):309-314. 10.1017/S1047951104003099.
-
(2004)
Cardiol Young
, vol.14
, Issue.3
, pp. 309-314
-
-
Hoehn, K.S.1
Wernovsky, G.2
Rychik, J.3
-
20
-
-
70350497723
-
Parent versus child-reported functional health status after the Fontan procedure
-
Lambert L.M., Minich L.L., Newburger J.W., et al. Parent versus child-reported functional health status after the Fontan procedure. Pediatrics 2009, 124(5):e942-e949. 10.1542/peds.2008-1697.
-
(2009)
Pediatrics
, vol.124
, Issue.5
, pp. e942-e949
-
-
Lambert, L.M.1
Minich, L.L.2
Newburger, J.W.3
-
21
-
-
33748314554
-
Psychosocial morbidity among parents of children with congenital heart disease: a prospective longitudinal study
-
Lawoko S., Soares J.J.F. Psychosocial morbidity among parents of children with congenital heart disease: a prospective longitudinal study. Heart Lung 2006, 35(5):301-314.
-
(2006)
Heart Lung
, vol.35
, Issue.5
, pp. 301-314
-
-
Lawoko, S.1
Soares, J.J.F.2
-
22
-
-
0036246379
-
Distress and hopelessness among parents of children with congenital heart disease, parents of children with other diseases, and parents of healthy children
-
Lawoko S., Soares J.J.F. Distress and hopelessness among parents of children with congenital heart disease, parents of children with other diseases, and parents of healthy children. J Psychosom Res 2002, 52(4):193-208.
-
(2002)
J Psychosom Res
, vol.52
, Issue.4
, pp. 193-208
-
-
Lawoko, S.1
Soares, J.J.F.2
-
23
-
-
49249124358
-
Children subjected to cardiac surgery for congenital heart disease. Part 2-parental emotional experiences
-
Menahem S., Poulakis Z., Prior M. Children subjected to cardiac surgery for congenital heart disease. Part 2-parental emotional experiences. Interact Cardiovasc Thorac Surg 2008, 7(4):605-608. 10.1510/icvts.2007.171066.
-
(2008)
Interact Cardiovasc Thorac Surg
, vol.7
, Issue.4
, pp. 605-608
-
-
Menahem, S.1
Poulakis, Z.2
Prior, M.3
-
24
-
-
0037939622
-
Parental stress in relation to the severity of congenital heart disease in the offspring
-
Mörelius E., Lundh U., Nelson N. Parental stress in relation to the severity of congenital heart disease in the offspring. Pediatr Nurs 2002, 28(1):28.
-
(2002)
Pediatr Nurs
, vol.28
, Issue.1
, pp. 28
-
-
Mörelius, E.1
Lundh, U.2
Nelson, N.3
-
25
-
-
79952283895
-
Long-term symptoms of depression and anxiety in mothers of infants with congenital heart defects
-
Solberg Ø. Long-term symptoms of depression and anxiety in mothers of infants with congenital heart defects. J Pediatr Psychol 2011, 36(2):179-187.
-
(2011)
J Pediatr Psychol
, vol.36
, Issue.2
, pp. 179-187
-
-
Solberg, Ø.1
-
26
-
-
40749157966
-
A historical comparison of long-term behavioral and emotional outcomes in children and adolescents after invasive treatment for congenital heart disease
-
Spijkerboer A.W., Utens E.M., Bogers A.J., Helbing W.A., Verhulst F.C. A historical comparison of long-term behavioral and emotional outcomes in children and adolescents after invasive treatment for congenital heart disease. J Pediatr Surg 2008, 43(3):534-539. 10.1016/j.jpedsurg.2007.10.037.
-
(2008)
J Pediatr Surg
, vol.43
, Issue.3
, pp. 534-539
-
-
Spijkerboer, A.W.1
Utens, E.M.2
Bogers, A.J.3
Helbing, W.A.4
Verhulst, F.C.5
-
27
-
-
34548594117
-
Psychiatric morbidity in adolescents operated in childhood for congenital cyanotic heart disease
-
Toren P., Horesh N. Psychiatric morbidity in adolescents operated in childhood for congenital cyanotic heart disease. J Paediatr Child Health 2007, 43(10):662-666. 10.1111/j.1440-1754.2007.01183.x.
-
(2007)
J Paediatr Child Health
, vol.43
, Issue.10
, pp. 662-666
-
-
Toren, P.1
Horesh, N.2
-
28
-
-
0034181677
-
Psychological distress and styles of coping in parents of children awaiting elective cardiac surgery
-
Utens E.M., Versluis-Den Bieman H.J., Verhulst F.C., Witsenburg M., Bogers A.J., Hess J. Psychological distress and styles of coping in parents of children awaiting elective cardiac surgery. Cardiol Young 2000, 10(3):239-244.
-
(2000)
Cardiol Young
, vol.10
, Issue.3
, pp. 239-244
-
-
Utens, E.M.1
Versluis-Den Bieman, H.J.2
Verhulst, F.C.3
Witsenburg, M.4
Bogers, A.J.5
Hess, J.6
-
29
-
-
0037945597
-
Does age at the time of elective cardiac surgery or catheter intervention in children influence the longitudinal development of psychological distress and styles of coping of parents
-
Utens E.M., Versluis-Den Bieman H.J., Witsenburg M., Bogers A.J.J.C., Hess J., Verhulst F.C. Does age at the time of elective cardiac surgery or catheter intervention in children influence the longitudinal development of psychological distress and styles of coping of parents. Cardiol Young 2002, 12(6):524-530.
-
(2002)
Cardiol Young
, vol.12
, Issue.6
, pp. 524-530
-
-
Utens, E.M.1
Versluis-Den Bieman, H.J.2
Witsenburg, M.3
Bogers, A.J.J.C.4
Hess, J.5
Verhulst, F.C.6
-
30
-
-
0037491751
-
Parenting stress and children with heart disease
-
Uzark K., Jones K. Parenting stress and children with heart disease. J Pediatr Health Care 2003, 17(4):163-168. 10.1067/mph.2003.22.
-
(2003)
J Pediatr Health Care
, vol.17
, Issue.4
, pp. 163-168
-
-
Uzark, K.1
Jones, K.2
-
31
-
-
0036772464
-
Influence of parental stress and social support on the behavioral adjustment of children with transposition of the great arteries
-
Visconti K.J., Saudino K.J., Rappaport L.A., Newburger J.W., Bellinger D.C. Influence of parental stress and social support on the behavioral adjustment of children with transposition of the great arteries. J Dev Behav Pediatr 2002, 23(5):314-321.
-
(2002)
J Dev Behav Pediatr
, vol.23
, Issue.5
, pp. 314-321
-
-
Visconti, K.J.1
Saudino, K.J.2
Rappaport, L.A.3
Newburger, J.W.4
Bellinger, D.C.5
-
32
-
-
76349087141
-
A multicentric study of disease-related stress, and perceived vulnerability, in parents of children with congenital cardiac disease
-
Vrijmoet-Wiersma C.M., Ottenkamp J., van Roozendaal M., Grootenhuis M.A., Koopman H.M. A multicentric study of disease-related stress, and perceived vulnerability, in parents of children with congenital cardiac disease. Cardiol Young 2009, 19(6):608-614. 10.1017/S1047951109991831.
-
(2009)
Cardiol Young
, vol.19
, Issue.6
, pp. 608-614
-
-
Vrijmoet-Wiersma, C.M.1
Ottenkamp, J.2
van Roozendaal, M.3
Grootenhuis, M.A.4
Koopman, H.M.5
-
33
-
-
5144221393
-
Depression in pediatric patients before and 1 year after heart or heart-lung transplantation
-
Wray J., Radley-Smith R. Depression in pediatric patients before and 1 year after heart or heart-lung transplantation. J Heart Lung Transplant 2004, 23(9):1103-1110. 10.1016/j.healun.2003.08.018.
-
(2004)
J Heart Lung Transplant
, vol.23
, Issue.9
, pp. 1103-1110
-
-
Wray, J.1
Radley-Smith, R.2
-
34
-
-
66849136739
-
Distress levels in Turkish parents of children with congenital heart disease
-
Yildiz A. Distress levels in Turkish parents of children with congenital heart disease. Aust J Adv Nurs 2009, 26(3):39.
-
(2009)
Aust J Adv Nurs
, vol.26
, Issue.3
, pp. 39
-
-
Yildiz, A.1
-
35
-
-
84902539632
-
The impact of an infant's severe congenital heart disease on the family: a prospective cohort study
-
Werner H., Latal B., Valsangiacomo Buechel E., Beck I., Landolt M.A. The impact of an infant's severe congenital heart disease on the family: a prospective cohort study. Congenit Heart Dis 2014, 9(3):203-210. 10.1111/chd.12123.
-
(2014)
Congenit Heart Dis
, vol.9
, Issue.3
, pp. 203-210
-
-
Werner, H.1
Latal, B.2
Valsangiacomo Buechel, E.3
Beck, I.4
Landolt, M.A.5
-
37
-
-
0003413782
-
-
Pediatric Psychology Press, Charlottesville, VA
-
Abidin R.R. Parenting Stress Index 1986, Pediatric Psychology Press, Charlottesville, VA.
-
(1986)
Parenting Stress Index
-
-
Abidin, R.R.1
-
42
-
-
0038151402
-
-
National Computer Systems, Inc., Minneapolis, MN
-
Derogatis L.R. SCL-90-R. Administration, Scoring, and Procedures Manual-third Edition 1994, National Computer Systems, Inc., Minneapolis, MN.
-
(1994)
SCL-90-R. Administration, Scoring, and Procedures Manual-third Edition
-
-
Derogatis, L.R.1
-
44
-
-
15944376873
-
Psychometric properties of the parental stressor scale: Infant hospitalization
-
doi: S1536090303001383
-
Miles M.S., Brunssen S.H. Psychometric properties of the parental stressor scale: Infant hospitalization. Adv Neonatal Care 2003, 3(4):189-196. doi: S1536090303001383.
-
(2003)
Adv Neonatal Care
, vol.3
, Issue.4
, pp. 189-196
-
-
Miles, M.S.1
Brunssen, S.H.2
-
45
-
-
57249084640
-
Quality of life among parents of children with heart disease
-
Arafa M.A., Zaher S.R., El-Dowaty A.A., Moneeb D.E. Quality of life among parents of children with heart disease. Health Qual Life Outcomes 2008, 6:91. 10.1186/1477-7525-6-91.
-
(2008)
Health Qual Life Outcomes
, vol.6
, pp. 91
-
-
Arafa, M.A.1
Zaher, S.R.2
El-Dowaty, A.A.3
Moneeb, D.E.4
-
46
-
-
84891625535
-
Mothers' lived experiences of support when living with young children with congenital heart defects
-
Bruce E., Lilja C., Sundin K. Mothers' lived experiences of support when living with young children with congenital heart defects. J Spec Pediatr Nurs 2013, 10.1111/jspn.12049.
-
(2013)
J Spec Pediatr Nurs
-
-
Bruce, E.1
Lilja, C.2
Sundin, K.3
-
47
-
-
77956174750
-
The meaning of cost for families of children with congenital heart disease
-
Connor J.A., Kline N.E., Mott S., Harris S.K., Jenkins K.J. The meaning of cost for families of children with congenital heart disease. J Pediatr Health Care 2010, 24(5):318-325. 10.1016/j.pedhc.2009.09.002.
-
(2010)
J Pediatr Health Care
, vol.24
, Issue.5
, pp. 318-325
-
-
Connor, J.A.1
Kline, N.E.2
Mott, S.3
Harris, S.K.4
Jenkins, K.J.5
-
48
-
-
84974571060
-
Community anticoagulation therapy: family perspectives
-
Duggan J., Pearce R., Guilbert S. Community anticoagulation therapy: family perspectives. Paediatr Nurs 2001, 13(7):26-29.
-
(2001)
Paediatr Nurs
, vol.13
, Issue.7
, pp. 26-29
-
-
Duggan, J.1
Pearce, R.2
Guilbert, S.3
-
49
-
-
77953590565
-
Direct non-medical and indirect costs for families with children with congenital cardiac defects in Germany: a survey from a university centre
-
Gerber A.U., Torre A.H., Buscher G., et al. Direct non-medical and indirect costs for families with children with congenital cardiac defects in Germany: a survey from a university centre. Cardiol Young 2010, 20(2):178-185. 10.1017/S1047951109991995.
-
(2010)
Cardiol Young
, vol.20
, Issue.2
, pp. 178-185
-
-
Gerber, A.U.1
Torre, A.H.2
Buscher, G.3
-
50
-
-
24644514517
-
Quality of life in families of children with congenital heart disease
-
Goldbeck L., Melches J. Quality of life in families of children with congenital heart disease. Qual Life Res 2005, 14(8):1915-1924. 10.1007/s11136-005-4327-0.
-
(2005)
Qual Life Res
, vol.14
, Issue.8
, pp. 1915-1924
-
-
Goldbeck, L.1
Melches, J.2
-
51
-
-
32044439122
-
The impact of the severity of disease and social disadvantage on quality of life in families with congenital cardiac disease
-
Goldbeck L., Melches J. The impact of the severity of disease and social disadvantage on quality of life in families with congenital cardiac disease. Cardiol Young 2006, 16(1):67-75.
-
(2006)
Cardiol Young
, vol.16
, Issue.1
, pp. 67-75
-
-
Goldbeck, L.1
Melches, J.2
-
52
-
-
78650028805
-
Predictors of parental quality of life after child open heart surgery: a 6-month prospective study
-
Landolt M.A., Buechel E.V., Latal B. Predictors of parental quality of life after child open heart surgery: a 6-month prospective study. J Pediatr 2011, 158(1):37-43. 10.1016/j.jpeds.2010.06.037.
-
(2011)
J Pediatr
, vol.158
, Issue.1
, pp. 37-43
-
-
Landolt, M.A.1
Buechel, E.V.2
Latal, B.3
-
53
-
-
0041829239
-
Quality of life among parents of children with congenital heart disease, parents of children with other diseases and parents of healthy children
-
Lawoko S., Soares J.J.F. Quality of life among parents of children with congenital heart disease, parents of children with other diseases and parents of healthy children. Qual Life Res 2003, 12(6):655.
-
(2003)
Qual Life Res
, vol.12
, Issue.6
, pp. 655
-
-
Lawoko, S.1
Soares, J.J.F.2
-
54
-
-
0942277064
-
Social support among parents of children with congenital heart disease, parents of children with other diseases and parents of healthy children
-
Lawoko S., Soares J. Social support among parents of children with congenital heart disease, parents of children with other diseases and parents of healthy children. Scand J Occup Ther 2003, 10(4):177-187.
-
(2003)
Scand J Occup Ther
, vol.10
, Issue.4
, pp. 177-187
-
-
Lawoko, S.1
Soares, J.2
-
55
-
-
79960694166
-
Socioeconomic status and impact of treatment on families of children with congenital heart disease
-
doi: 07.2011/JCPSP.398402
-
Mughal A.R., Sadiq M., Hyder S.N., et al. Socioeconomic status and impact of treatment on families of children with congenital heart disease. J Coll Physicians Surg Pak 2011, 21(7):398-402. doi: 07.2011/JCPSP.398402.
-
(2011)
J Coll Physicians Surg Pak
, vol.21
, Issue.7
, pp. 398-402
-
-
Mughal, A.R.1
Sadiq, M.2
Hyder, S.N.3
-
56
-
-
84862295646
-
Regionalization in neonatal congenital heart surgery: the impact of distance on outcome after discharge
-
Pinto N.M., Lasa J., Dominguez T.E., Wernovsky G., Tabbutt S., Cohen M.S. Regionalization in neonatal congenital heart surgery: the impact of distance on outcome after discharge. Pediatr Cardiol 2012, 33(2):229-238. 10.1007/s00246-011-0116-4.
-
(2012)
Pediatr Cardiol
, vol.33
, Issue.2
, pp. 229-238
-
-
Pinto, N.M.1
Lasa, J.2
Dominguez, T.E.3
Wernovsky, G.4
Tabbutt, S.5
Cohen, M.S.6
-
57
-
-
78650122918
-
Grandparents and siblings of children with congenital heart disease
-
Ravindran V.P., Rempel G.R. Grandparents and siblings of children with congenital heart disease. J Adv Nurs 2011, 67(1):169-175. 10.1111/j.1365-2648.2010.05482.x.
-
(2011)
J Adv Nurs
, vol.67
, Issue.1
, pp. 169-175
-
-
Ravindran, V.P.1
Rempel, G.R.2
-
58
-
-
79955447921
-
The cost of out-patient management of chronic heart failure in children with congenital heart disease
-
Sadoh W.E., Nwaneri D.U., Owobu A.C. The cost of out-patient management of chronic heart failure in children with congenital heart disease. Niger J Clin Pract 2011, 14(1):65-69. 10.4103/1119-3077.79255.
-
(2011)
Niger J Clin Pract
, vol.14
, Issue.1
, pp. 65-69
-
-
Sadoh, W.E.1
Nwaneri, D.U.2
Owobu, A.C.3
-
59
-
-
79959527314
-
Pediatric cardiac surgery under the parents sight: a qualitative study
-
Salgado C.L., Lamy Z.C., Nina R.V., de Melo L.A., Lamy Filho F., Nina V.J. Pediatric cardiac surgery under the parents sight: a qualitative study. Rev Bras Cir Cardiovasc 2011, 26(1):36-42.
-
(2011)
Rev Bras Cir Cardiovasc
, vol.26
, Issue.1
, pp. 36-42
-
-
Salgado, C.L.1
Lamy, Z.C.2
Nina, R.V.3
de Melo, L.A.4
Lamy Filho, F.5
Nina, V.J.6
-
60
-
-
84873992849
-
Thai families' caring practices for infants with congenital heart disease prior to cardiac surgery
-
Srichantaranit A., Chontawan R., Yenbut J., Ray L., Laohaprasittiporn D., Wanitkun S. Thai families' caring practices for infants with congenital heart disease prior to cardiac surgery. Pac Rim Int J Nurs Res 2010, 14(1):61-78.
-
(2010)
Pac Rim Int J Nurs Res
, vol.14
, Issue.1
, pp. 61-78
-
-
Srichantaranit, A.1
Chontawan, R.2
Yenbut, J.3
Ray, L.4
Laohaprasittiporn, D.5
Wanitkun, S.6
-
61
-
-
0036636419
-
Family stress, perceived social support and coping following the diagnosis of a child's congenital heart disease
-
Tak Y.R., McCubbin M. Family stress, perceived social support and coping following the diagnosis of a child's congenital heart disease. J Adv Nurs 2002, 39(2):190-198. 10.1046/j.1365-2648.2002.02259.x.
-
(2002)
J Adv Nurs
, vol.39
, Issue.2
, pp. 190-198
-
-
Tak, Y.R.1
McCubbin, M.2
-
62
-
-
24944448809
-
Living with congenital or acquired cardiac disease in childhood: maternal perceptions of the impact on the child and family
-
Wray J., Maynard L. Living with congenital or acquired cardiac disease in childhood: maternal perceptions of the impact on the child and family. Cardiol Young 2005, 15(2):133-140.
-
(2005)
Cardiol Young
, vol.15
, Issue.2
, pp. 133-140
-
-
Wray, J.1
Maynard, L.2
-
63
-
-
33746640959
-
The needs of families of children with heart disease
-
Wray J., Maynard L. The needs of families of children with heart disease. J Dev Behav Pediatr 2006, 27(1):11-17.
-
(2006)
J Dev Behav Pediatr
, vol.27
, Issue.1
, pp. 11-17
-
-
Wray, J.1
Maynard, L.2
-
64
-
-
33947718407
-
Impact on parents when a child has a progressive, life-threatening illness
-
Steele R., Davies B. Impact on parents when a child has a progressive, life-threatening illness. Int J Palliat Nurs 2006, 12(12):576-585. 10.12968/ijpn.2006.12.12.22544.
-
(2006)
Int J Palliat Nurs
, vol.12
, Issue.12
, pp. 576-585
-
-
Steele, R.1
Davies, B.2
-
65
-
-
38049103304
-
Mothers' attachment style, their mental health, and their children's emotional vulnerabilities: a 7-year study of children with congenital heart disease
-
Berant E., Mikulincer M., Shaver P.R. Mothers' attachment style, their mental health, and their children's emotional vulnerabilities: a 7-year study of children with congenital heart disease. J Pers 2008, 76(1):31-65. 10.1111/j.1467-6494.2007.00479.x.
-
(2008)
J Pers
, vol.76
, Issue.1
, pp. 31-65
-
-
Berant, E.1
Mikulincer, M.2
Shaver, P.R.3
-
66
-
-
34250834457
-
Psychosocial outcomes for preschool children and families after surgery for complex congenital heart disease
-
Brosig C.L., Mussatto K.A., Kuhn E.M., Tweddell J.S. Psychosocial outcomes for preschool children and families after surgery for complex congenital heart disease. Pediatr Cardiol 2007, 28(4):255-262. 10.1007/s00246-006-0013-4.
-
(2007)
Pediatr Cardiol
, vol.28
, Issue.4
, pp. 255-262
-
-
Brosig, C.L.1
Mussatto, K.A.2
Kuhn, E.M.3
Tweddell, J.S.4
-
67
-
-
0036595511
-
Maternal factors related to parenting young children with congenital heart disease
-
Carey L.K., Nicholson B.C., Fox R.A. Maternal factors related to parenting young children with congenital heart disease. J Pediatr Nurs 2002, 17(3):174-183.
-
(2002)
J Pediatr Nurs
, vol.17
, Issue.3
, pp. 174-183
-
-
Carey, L.K.1
Nicholson, B.C.2
Fox, R.A.3
-
68
-
-
84857804717
-
Transition to home after neonatal surgery for congenital heart disease
-
Hartman D.M., Medoff-Cooper B. Transition to home after neonatal surgery for congenital heart disease. MCN Am J Matern Child Nurs 2012, 37(2):95-100. 10.1097/NMC.0b013e318241dac1.
-
(2012)
MCN Am J Matern Child Nurs
, vol.37
, Issue.2
, pp. 95-100
-
-
Hartman, D.M.1
Medoff-Cooper, B.2
-
69
-
-
84902358705
-
Early mother-infant relationships after cardiac surgery in infancy
-
Jordan B., Franich-Ray C., Albert N., et al. Early mother-infant relationships after cardiac surgery in infancy. Arch Dis Child 2014, 99(7):641-645. 10.1136/archdischild-2012-303488.
-
(2014)
Arch Dis Child
, vol.99
, Issue.7
, pp. 641-645
-
-
Jordan, B.1
Franich-Ray, C.2
Albert, N.3
-
70
-
-
36348970560
-
Maternal experiences making a decision about heart surgery for their young children with congenital heart disease
-
Lan S., Mu P., Hsieh K. Maternal experiences making a decision about heart surgery for their young children with congenital heart disease. J Clin Nurs 2007, 16(12):2323-2330.
-
(2007)
J Clin Nurs
, vol.16
, Issue.12
, pp. 2323-2330
-
-
Lan, S.1
Mu, P.2
Hsieh, K.3
-
71
-
-
84908509366
-
Exploring causal pathways of child behavior and maternal mental health in families with a child with congenital heart disease: a longitudinal study
-
Landolt M.A. Exploring causal pathways of child behavior and maternal mental health in families with a child with congenital heart disease: a longitudinal study. Psychol Med 2014, 44(16):3421.
-
(2014)
Psychol Med
, vol.44
, Issue.16
, pp. 3421
-
-
Landolt, M.A.1
-
72
-
-
79959744334
-
Parenting children with hypoplastic left heart syndrome: finding a balance
-
Lee A., Rempel G.R. Parenting children with hypoplastic left heart syndrome: finding a balance. J Spec Pediatr Nurs 2011, 16(3):179-189. 10.1111/j.1744-6155.2011.00289.x.
-
(2011)
J Spec Pediatr Nurs
, vol.16
, Issue.3
, pp. 179-189
-
-
Lee, A.1
Rempel, G.R.2
-
73
-
-
33747634678
-
Health and well-being of children with congenital cardiac malformations, and their families, following open-heart surgery
-
Majnemer A., Limperopoulos C., Shevell M., Rohlicek C., Rosenblatt B., Tchervenkov C. Health and well-being of children with congenital cardiac malformations, and their families, following open-heart surgery. Cardiol Young 2006, 16(2):157-164.
-
(2006)
Cardiol Young
, vol.16
, Issue.2
, pp. 157-164
-
-
Majnemer, A.1
Limperopoulos, C.2
Shevell, M.3
Rohlicek, C.4
Rosenblatt, B.5
Tchervenkov, C.6
-
74
-
-
78349255502
-
Mothers' view on late postoperative pain management by the nursing team in children after cardiac surgery
-
Nascimento L.C., Strabelli B.S., de Almeida F.C., Rossato L.M., Leite A.M., de Lima R.A. Mothers' view on late postoperative pain management by the nursing team in children after cardiac surgery. Rev Lat Am Enfermagem 2010, 18(4):709-715.
-
(2010)
Rev Lat Am Enfermagem
, vol.18
, Issue.4
, pp. 709-715
-
-
Nascimento, L.C.1
Strabelli, B.S.2
de Almeida, F.C.3
Rossato, L.M.4
Leite, A.M.5
de Lima, R.A.6
-
75
-
-
78649412167
-
Internal working models of parenting: motivations of parents of infants with a congenital heart defect
-
Pridham K., Harrison T., Krolikowski M., Bathum M.E., Ayres L., Winters J. Internal working models of parenting: motivations of parents of infants with a congenital heart defect. ANS Adv Nurs Sci 2010, 33(4):E1-E16. 10.1097/ANS.0b013e3181fc016e.
-
(2010)
ANS Adv Nurs Sci
, vol.33
, Issue.4
, pp. E1-E16
-
-
Pridham, K.1
Harrison, T.2
Krolikowski, M.3
Bathum, M.E.4
Ayres, L.5
Winters, J.6
-
76
-
-
34250781124
-
Safeguarding precarious survival: parenting children who have life-threatening heart disease
-
Rempel G.R., Harrison M.J. Safeguarding precarious survival: parenting children who have life-threatening heart disease. Qual Health Res 2007, 17(6):824-837. 10.1177/1049732307303164.
-
(2007)
Qual Health Res
, vol.17
, Issue.6
, pp. 824-837
-
-
Rempel, G.R.1
Harrison, M.J.2
-
77
-
-
66149156244
-
Is "treat your child normally" helpful advice for parents of survivors of treatment of hypoplastic left heart syndrome?
-
Rempel G.R., Harrison M.J., Williamson D.L. Is "treat your child normally" helpful advice for parents of survivors of treatment of hypoplastic left heart syndrome?. Cardiol Young 2009, 19(2):135-144. 10.1017/S1047951109003485.
-
(2009)
Cardiol Young
, vol.19
, Issue.2
, pp. 135-144
-
-
Rempel, G.R.1
Harrison, M.J.2
Williamson, D.L.3
-
78
-
-
84857223077
-
The process of family management when a baby is diagnosed with a lethal congenital condition
-
Rempel G.R., Blythe C., Rogers L.G., Ravindran V. The process of family management when a baby is diagnosed with a lethal congenital condition. J Fam Nurs 2012, 18(1):35-64. 10.1177/1074840711427143.
-
(2012)
J Fam Nurs
, vol.18
, Issue.1
, pp. 35-64
-
-
Rempel, G.R.1
Blythe, C.2
Rogers, L.G.3
Ravindran, V.4
-
79
-
-
84873994018
-
Parenting under pressure: a grounded theory of parenting young children with life-threatening congenital heart disease
-
Rempel G.,R., Ravindran V., Rogers L.,G., Magill-Evans J. Parenting under pressure: a grounded theory of parenting young children with life-threatening congenital heart disease. J Adv Nurs 2013, 69(3):619-630. http://dx.doi.org/10.1111/j.1365-2648.2012.06044.x.
-
(2013)
J Adv Nurs
, vol.69
, Issue.3
, pp. 619-630
-
-
Rempel, G.R.1
Ravindran, V.2
Rogers, L.G.3
Magill-Evans, J.4
-
81
-
-
80051567349
-
Infant well-being following neonatal cardiac surgery
-
Spence K., Swinsburg D., Griggs J., Johnston L. Infant well-being following neonatal cardiac surgery. J Clin Nurs 2011, 20(17):2623-2632. 10.1111/j.1365-2702.2011.03716.x.
-
(2011)
J Clin Nurs
, vol.20
, Issue.17
, pp. 2623-2632
-
-
Spence, K.1
Swinsburg, D.2
Griggs, J.3
Johnston, L.4
-
82
-
-
77951718575
-
Infant temperament and parental stress in 3-month-old infants after surgery for complex congenital heart disease
-
Torowicz D., Irving S.Y., Hanlon A.L., Sumpter D.F., Medoff-Cooper B. Infant temperament and parental stress in 3-month-old infants after surgery for complex congenital heart disease. J Dev Behav Pediatr 2010, 31(3):202-208. 10.1097/DBP.0b013e3181d3deaa.
-
(2010)
J Dev Behav Pediatr
, vol.31
, Issue.3
, pp. 202-208
-
-
Torowicz, D.1
Irving, S.Y.2
Hanlon, A.L.3
Sumpter, D.F.4
Medoff-Cooper, B.5
-
83
-
-
84947024064
-
Facts about hypoplastic left heart syndrome
-
on 15.03.15.
-
Centers for Disease Control and Prevention. Facts about hypoplastic left heart syndrome. Retrieved from: ; on 15.03.15. http://www.cdc.gov/ncbddd/heartdefects/HLHS.html.
-
-
-
-
84
-
-
0034091179
-
The experience journal: a computer-based intervention for families facing congenital heart disease
-
DeMaso D.R., Gonzalez-Heydrich J. The experience journal: a computer-based intervention for families facing congenital heart disease. J Am Acad Child Adolesc Psychiatry 2000, 39(6):727.
-
(2000)
J Am Acad Child Adolesc Psychiatry
, vol.39
, Issue.6
, pp. 727
-
-
DeMaso, D.R.1
Gonzalez-Heydrich, J.2
-
85
-
-
0037363115
-
A study of the effectiveness of a pain management education booklet for parents of children having cardiac surgery
-
Huth M.M., Broome M.E., Mussatto K.A., Morgan S.W. A study of the effectiveness of a pain management education booklet for parents of children having cardiac surgery. Pain Manag Nurs 2003, 4(1):31-39. 10.1053/jpmn.2003.7.
-
(2003)
Pain Manag Nurs
, vol.4
, Issue.1
, pp. 31-39
-
-
Huth, M.M.1
Broome, M.E.2
Mussatto, K.A.3
Morgan, S.W.4
-
86
-
-
73949115689
-
A controlled trial of early interventions to promote maternal adjustment and development in infants born with severe congenital heart disease
-
McCusker C.G., Doherty N.N., Molloy B., et al. A controlled trial of early interventions to promote maternal adjustment and development in infants born with severe congenital heart disease. Child Care Health Dev 2010, 36(1):110-117. 10.1111/j.1365-2214.2009.01026.x.
-
(2010)
Child Care Health Dev
, vol.36
, Issue.1
, pp. 110-117
-
-
McCusker, C.G.1
Doherty, N.N.2
Molloy, B.3
-
87
-
-
84868016223
-
A randomized controlled trial of interventions to promote adjustment in children with congenital heart disease entering school and their families
-
McCusker C.G., Doherty N.N., Molloy B., et al. A randomized controlled trial of interventions to promote adjustment in children with congenital heart disease entering school and their families. J Pediatr Psychol 2012, 37(10):1089-1103.
-
(2012)
J Pediatr Psychol
, vol.37
, Issue.10
, pp. 1089-1103
-
-
McCusker, C.G.1
Doherty, N.N.2
Molloy, B.3
-
88
-
-
52649090720
-
Home videoconferencing for patients with severe congential heart disease following discharge
-
Morgan G.J., Craig B., Grant B., Sands A., Doherty N., Casey F. Home videoconferencing for patients with severe congential heart disease following discharge. Congenit Heart Dis 2008, 3(5):317-324. 10.1111/j.1747-0803.2008.00205.x.
-
(2008)
Congenit Heart Dis
, vol.3
, Issue.5
, pp. 317-324
-
-
Morgan, G.J.1
Craig, B.2
Grant, B.3
Sands, A.4
Doherty, N.5
Casey, F.6
-
89
-
-
0026445827
-
Stress, coping and family functioning in the psychological adjustment of mothers of children and adolescents with cystic fibrosis
-
Thompson R.J., Gustafson K.E., Hamlett K.W., Spock A. Stress, coping and family functioning in the psychological adjustment of mothers of children and adolescents with cystic fibrosis. J Pediatr Psychol 1992, 17:573-585.
-
(1992)
J Pediatr Psychol
, vol.17
, pp. 573-585
-
-
Thompson, R.J.1
Gustafson, K.E.2
Hamlett, K.W.3
Spock, A.4
-
90
-
-
0031619548
-
Interactive storytelling environments: coping with cardiac illness at Boston's Children's Hospital
-
Association for Computing Machinery, New York
-
Bers M.U., Ackermann E., Cassell J., et al. Interactive storytelling environments: coping with cardiac illness at Boston's Children's Hospital. Proceedings of CHI'98: Human Factors in Computing Systems 1998, 603-610. Association for Computing Machinery, New York.
-
(1998)
Proceedings of CHI'98: Human Factors in Computing Systems
, pp. 603-610
-
-
Bers, M.U.1
Ackermann, E.2
Cassell, J.3
-
91
-
-
70449440434
-
Experience journals: using computers to share personal stories about illness and medical intervention
-
Gonzalez-Heydrich J., Bromley D., Strohecker C., et al. Experience journals: using computers to share personal stories about illness and medical intervention. Medinfo 1998, 9(pt 2):1325-1329.
-
(1998)
Medinfo
, vol.9
, pp. 1325-1329
-
-
Gonzalez-Heydrich, J.1
Bromley, D.2
Strohecker, C.3
-
93
-
-
84947036561
-
Quality, Cost, and Value
-
on 15.03.15.
-
Institute for Healthcare Improvement. Quality, Cost, and Value. Retrieved from: ; on 15.03.15. http://www.ihi.org/Topics/QualityCostValue/Pages/default.aspx.
-
-
-
-
94
-
-
84947038705
-
Why PCORI was created
-
on 15.03.15.
-
Patient-centered Outcomes Research Institute. Why PCORI was created. Retrieved from: ; on 15.03.15. http://www.pcori.org/about-us.
-
-
-
-
95
-
-
79951843624
-
Relationship between patient satisfaction with inpatient care and hospital readmission within 30 days
-
Boulding W., Glickman S.,W., Manary M.,P., Schulman K.,A., Staelin R. Relationship between patient satisfaction with inpatient care and hospital readmission within 30 days. Am J Manag Care 2011, 17(1):41-48.
-
(2011)
Am J Manag Care
, vol.17
, Issue.1
, pp. 41-48
-
-
Boulding, W.1
Glickman, S.W.2
Manary, M.P.3
Schulman, K.A.4
Staelin, R.5
-
96
-
-
84897109967
-
The patient experience
-
1
-
Weber D.O. The patient experience. Trustee 2013, 66(10):8-12. 1.
-
(2013)
Trustee
, vol.66
, Issue.10
, pp. 8-12
-
-
Weber, D.O.1
-
97
-
-
84947024412
-
Evaluating and researching quality of caring
-
Springer Publishing Company, LLC, New York, NY
-
Duffy J. Evaluating and researching quality of caring. Quality Caring in Nursing: Applying Theory to Clinical Practice, Education, and Leadership 2009, Springer Publishing Company, LLC, New York, NY.
-
(2009)
Quality Caring in Nursing: Applying Theory to Clinical Practice, Education, and Leadership
-
-
Duffy, J.1
|