Quality of life in families of children with congenital heart disease

Quality of Life Research

Volumn 14, Issue 8, 2005, Pages 1915-1924

  Goldbeck, Lutz ^a,b   Melches, Juliane ^a  

^a University Clinic of Child and Adolescent Psychiatry/Psychotherapy Ulm   (Germany)

^b UNIVERSITY HOSPITAL ULM   (Germany)

Author keywords

Congenital heart disease; Family aspects; Multi informant assessment; Quality of life

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; CAREGIVER; CHILD PARENT RELATION; COMPUTER; CONGENITAL HEART DISEASE; CORRELATION ANALYSIS; FAMILY; FEMALE; HUMAN; MALE; PRIORITY JOURNAL; QUALITY OF LIFE; REGRESSION ANALYSIS; SCHOOL CHILD; SOCIAL PSYCHOLOGY; WELLBEING;

ADOLESCENT; ADULT; CHILD; FAMILY; FEMALE; GERMANY; HEART DEFECTS, CONGENITAL; HUMANS; MALE; QUALITY OF LIFE; QUESTIONNAIRES;

EID: 24644514517     PISSN: 09629343     EISSN: None     Source Type: Journal    
DOI: 10.1007/s11136-005-4327-0     Document Type: Article

References (36)

1. SL Gortmaker DB Walker M Weitzman AM. Sobol 1990 Chronic conditions, socioeconomic risks, and behavioral problems in children and adolescents Pediatrics 85 267 276
2. F Resch U Salzer-Muhar R Mutschlechner M. Wimmer 1996 Kognitive und psychosoziale Risikofaktoren der Selbstentwicklung bei Kindern mit angeborenen Herzfehlern G. Lehmkuhl Chronisch kranke Kinder und ihre Familien Quintessenz München 240 249
3. S Lawoko JJF. Soares 2002 Distress and hopelessness among parents of children with congenital heart disease, parents of children with other diseases, and parents of healthy children J Psychosom Res 52 193 208
4. C Eiser R. Morse 2001 Can parents rate their childs health-related quality of life? Results of a systematic review. Qual Life Res 10 347 357
5. D Drotar 1998 Measuring Health Related Quality of Life in Children and Adolescents Lawrence Earlbaum Associates Mahwah NJ
6. M Bullinger S Schmidt C. Peterson 2002 Assessing quality of life of children with chronic health conditions and disabilities: a European approach Int J Rehabil Res 25 197 206
7. AL Quittner MA Davis AC. Modi 2003 Health-related quality of life in pediatric populations M. Roberts Handbook of Pediatric Psychology 3 New York Guildford 696 709
8. NCM Theunissen TGC Vogels HM Koopman 1998 The proxy problem: child report versus parent report in health-related quality of life research Qual Life Res 7 387 397
9. JM Landgraf E Maunsell K Nixon Speechley 1998 Canadian-French, German and UK versions of the Child Health Questionnaire. Methodology and preliminary item scaling results Qual Life Res 7 433 445
10. Varni JW. The Peds QL 4.0 Measurement Model for the Pediatric Quality of Life Inventory TM Version 40. www.pedsql.org 2004
11. K Uzark K Jones TM Burwinkle JW. Varni 2003 The pediatric quality of life inventory in children with heart disease Prog Pediatr Cardio 18 141 148
12. C Eiser R. Morse 2001 The measurement of quality of life in children: past and future perspectives Devel Behav Pediatr 22 248 56
13. SJ Jachuk H Bierley S Jachuk PM. Willcox 1982 The effects of hypotensive drugs on the quality of life J R Col Gen Pract 17 197 201
14. D Connolly M Rutkowski M Auslender M. Artman 2002 Measuring health-related quality of life in children with heart disease Appl Nurs Res 15 74 80
15. LM Sturms CK van der Sluis JW Groothoff HJ ten Duis WH. Eisma 2003 Young traffic victims' long-term health-related quality of life: child self-reports and parental reports Arch of Phys Med and Rehabil 84 431 436
16. TM Achenbach SH McConaughy CT. Howell 1987 Child/adolescent behavioral and emotional problems: implications of cross-informant correlations for situational specifity Psychol Bull 101 213 232
17. GHW Verrips AGC Vogels AL den Ouden N Paneth SP. Verloove-Vanhorick 2000 Measuring health-related quality of life in adolescents: agreement between raters and between methods of administration Child Care Health Dev 26 457 469
18. RD Annett BG Bender TR Du Hamel J. Lapidus 2003 Factors influencing parent reports on quality of life for children with asthma J Asthma 40 577 587
19. MR Price DL Bratton MD. Klinnert 2002 Caregiver negative affect is a primary determinant of caregiver report of pediatric asthma quality of life Ann Allergy Asthma Immunol 89 572 577
20. G Vila R Hayder C Bertrand 2003 Psychopathology and quality of life for adolescents with asthma and their parents Psychosomatics 44 319 328
21. S. Cohen 1999 Families coping with childhood chronic illness: a research review Fam Syst Health 17 149 164
22. RJ Thompson KE. Gustafson 1996 Adaptation to Chronic Childhood Illness American Psychological Association Washington, DC
23. JL Wallander JW Varni L Babani T Banis KT. Wilcox 1989 Family resources as resistance factors for psychological maladjustment in chronically ill and handicapped children J Pediatr Psychol 14 157 173
24. S Lawoko JJF. Soares 2003 Quality of life among parents of children with congenital heart disease, parents of children with other diseases and parents of healthy children Qual Life Res 12 655 666
25. CC Davis RT Brown R Bakeman R. Campbell 1998 Psychological adaption and adjustment of mothers of children with congenital heart disease: stress, coping, and family functioning J Pediatr Psychol 28 219 228
26. J. Kirschenbaum Cohn 1996 An empirical study of parents'reaction to the diagnosis of congenital heart disease in infants Soc Work Health Care 23 67 79
27. K Uzark K. Jones 2003 Parenting stress and children with heart disease J Pediat Health Care 17 163 168
28. L Goldbeck R. Braun 2003 LQ-KID - Ein computergestütztes Verfahren zur Erfassung der Lebensqualität chronisch kranker Kinder und Jugendlicher Prävent Rehabil 15 117 126
29. L Goldbeck M. Storck 2003 ULQIE - Ulmer Lebensqualitäts-Inventar für Eltern chronisch kranker Kinder J Schumacher A Klaiberg E Brähler Diagnostische Verfahren zu Lebensqualität und Wohlbefinden Göttingen Hogrefe 313 315
30. Ware JE, Snow KK, Kosinski M, Gandek B. (1993) SF-36 Health Survey Manual. Boston, JE. Ware
31. RM Baron DA. Kenny 1986 The moderator - mediator variable distinction in social psychological research: Conceptual, strategic, and statistical considerations J Personal Soc Psychol 51 1173 1182
32. GN. Holmbeck 1997 Toward terminological, conceptual, and statistical clarity in the study of mediators and moderators: examples from the child-clinical and pediatric psychology literatures J Consult Clin Psychol 65 4 599 610
33. L Aiken SG. West 1991 Multiple Regression: Testing and Interpreting Interactions Sage Newbury Park, CA
34. GN. Holmbeck 2002 Post-hoc probing of significant moderational and mediational effects in studies of pediatric populations J Pediatr Psychol 27 87 96
35. M. Bullinger 2000 Lebensqualität - Aktueller Stand und neuere Entwicklungen der internationalen Lebensqualitätsforschung U Ravens-Sieberer A Cieza Lebensqualität und Gesundheitsökonomie in der Medizin. Konzepte - Methoden - Anwendung Landsberg Ecomed 13 24
36. MA McCubbin HI. McCubbin 1991 Family stress theory and assessment. the resiliency model of family stress, adjustment, and adaptation HI McCubbin AI Thompson Family Assessment Inventories for Research and Practice Madison, Wisconsin, University of Wisconsin Madison 3 32