-
1
-
-
0035203811
-
Outcome of staged reconstructive surgery for hypoplastic left heart syndrome following antenatal diagnosis
-
Andrews R.,Tulloh R.,Sharland G.,Simpson J.,Rollings S.,Baker E.,Anderson D.Outcome of staged reconstructive surgery for hypoplastic left heart syndrome following antenatal diagnosis.Archives of Disease in Childhood. 2001;85:474-477.
-
(2001)
Archives of Disease in Childhood
, vol.85
, pp. 474-477
-
-
Andrews, R.1
Tulloh, R.2
Sharland, G.3
Simpson, J.4
Rollings, S.5
Baker, E.6
Anderson, D.7
-
2
-
-
54049093680
-
Two-year survival and mental and psychomotor outcomes after the Norwood procedure: An analysis of the modified Blalock-Taussig shunt and right ventricle-to-pulmonary artery shunt surgical eras
-
Atallah J.,Dinu I.A.,Joffe A.R.,Robertson C.M.,Sauve R.S.,Dyck J.D.Two-year survival and mental and psychomotor outcomes after the Norwood procedure: An analysis of the modified Blalock-Taussig shunt and right ventricle-to-pulmonary artery shunt surgical eras.Circulation. 2008;118:1410-1418.
-
(2008)
Circulation
, vol.118
, pp. 1410-1418
-
-
Atallah, J.1
Dinu, I.A.2
Joffe, A.R.3
Robertson, C.M.4
Sauve, R.S.5
Dyck, J.D.6
-
3
-
-
68649091541
-
Hypoplastic left heart syndrome
-
Barron D.J.,Kilby M.D.,Davies B.,Wright J.G.,Jones T.J.,Brawn W.J.Hypoplastic left heart syndrome.Lancet. 2009;374:551-564.
-
(2009)
Lancet
, vol.374
, pp. 551-564
-
-
Barron, D.J.1
Kilby, M.D.2
Davies, B.3
Wright, J.G.4
Jones, T.J.5
Brawn, W.J.6
-
5
-
-
55549083502
-
Developing and evaluating complex interventions: The new Medical Research Council guidance
-
Craig P.,Dieppe P.,Macintyre S.,Mitchie S.,Nazareth I.,Petticrew M.Developing and evaluating complex interventions: The new Medical Research Council guidance.British Medical Journal. 2008;337:979-983.
-
(2008)
British Medical Journal
, vol.337
, pp. 979-983
-
-
Craig, P.1
Dieppe, P.2
Macintyre, S.3
Mitchie, S.4
Nazareth, I.5
Petticrew, M.6
-
6
-
-
0025380903
-
Management behaviors: Day-to-day adjustments to childhood chronic conditions
-
Deatrick J.A.,Knafl K.A.Management behaviors: Day-to-day adjustments to childhood chronic conditions.Journal of Pediatric Nursing. 1990;5 (1): 15-22.
-
(1990)
Journal of Pediatric Nursing
, vol.5
, Issue.1
, pp. 15-22
-
-
Deatrick, J.A.1
Knafl, K.A.2
-
7
-
-
32044458832
-
Family Management Style Framework: A new tool with potential to assess families who have children with brain tumors
-
Deatrick J.A.,Thibodeaux A.G.,Mooney K.,Schmus C.,Pollack R.,Davey B.H.Family Management Style Framework: A new tool with potential to assess families who have children with brain tumors.Journal of Pediatric Oncology Nursing. 2006;23 (1): 19-27.
-
(2006)
Journal of Pediatric Oncology Nursing
, vol.23
, Issue.1
, pp. 19-27
-
-
Deatrick, J.A.1
Thibodeaux, A.G.2
Mooney, K.3
Schmus, C.4
Pollack, R.5
Davey, B.H.6
-
8
-
-
0011356450
-
-
Anderson R.H.Baker E.J.MacCartney F.J.Rigby M.L.Shinebourne E.A.Tynan M.J., ed., Toronto, Ontario, Canada: Churchill Livingston
-
Dhillon R.,Redington A.N.Pediatric cardiology. Anderson R.H.Baker E.J.MacCartney F.J.Rigby M.L.Shinebourne E.A.Tynan M.J., ed. Toronto, Ontario, Canada: Churchill Livingston; 2002:1191-1211.
-
(2002)
Pediatric Cardiology
, pp. 1191-1211
-
-
Dhillon, R.1
Redington, A.N.2
-
10
-
-
0025381899
-
Family management style in juvenile diabetes: A case illustration
-
Gallo A.Family management style in juvenile diabetes: A case illustration.Journal of Pediatric Nursing. 1990;5 (1): 23-32.
-
(1990)
Journal of Pediatric Nursing
, vol.5
, Issue.1
, pp. 23-32
-
-
Gallo, A.1
-
11
-
-
37249093055
-
Parents' concerns about issues related to their children's genetic conditions
-
Gallo A.M.,Hadley E.K.,Angst D.B.,Knafl K.A.,Smith C.A.Parents' concerns about issues related to their children's genetic conditions.Journal for Specialists in Pediatric Nursing. 2008;13 (1): 4-14.
-
(2008)
Journal for Specialists in Pediatric Nursing
, vol.13
, Issue.1
, pp. 4-14
-
-
Gallo, A.M.1
Hadley, E.K.2
Angst, D.B.3
Knafl, K.A.4
Smith, C.A.5
-
12
-
-
33749260289
-
A framework for the study of self- and family management of chronic conditions
-
Grey M.,Knafl K.,McCorkle R.A framework for the study of self- and family management of chronic conditions.Nursing Outlook. 2006;54:278-286.
-
(2006)
Nursing Outlook
, vol.54
, pp. 278-286
-
-
Grey, M.1
Knafl, K.2
McCorkle, R.3
-
13
-
-
27844518793
-
Three approaches to qualitative content analysis
-
Hsieh H.,Shannon S.E.Three approaches to qualitative content analysis.Qualitative Health Research. 2005;15:1277-1288.
-
(2005)
Qualitative Health Research
, vol.15
, pp. 1277-1288
-
-
Hsieh, H.1
Shannon, S.E.2
-
14
-
-
42949149610
-
Management of 239 patients with hypoplastic left heart syndrome and related malformations from 1993 to 2007
-
Jacobs J.P.,O'Brien S.M.,Chai P.J.,Morell V.O.,Lindberg H.L.,Quintessenza J.A.Management of 239 patients with hypoplastic left heart syndrome and related malformations from 1993 to 2007.Annals of Thoracic Surgery. 2008;85:1691-1696.
-
(2008)
Annals of Thoracic Surgery
, vol.85
, pp. 1691-1696
-
-
Jacobs, J.P.1
O'Brien, S.M.2
Chai, P.J.3
Morell, V.O.4
Lindberg, H.L.5
Quintessenza, J.A.6
-
17
-
-
0025378403
-
Family management style: Concept analysis and development
-
Knafl K.A.,Deatrick J.A.Family management style: Concept analysis and development.Journal of Pediatric Nursing. 1990;5 (1): 4-14.
-
(1990)
Journal of Pediatric Nursing
, vol.5
, Issue.1
, pp. 4-14
-
-
Knafl, K.A.1
Deatrick, J.A.2
-
18
-
-
2442619670
-
Further refinement of the Family Management Style Framework
-
Knafl K.A.,Deatrick J.A.Further refinement of the Family Management Style Framework.Journal of Family Nursing. 2003;9:232-256.
-
(2003)
Journal of Family Nursing
, vol.9
, pp. 232-256
-
-
Knafl, K.A.1
Deatrick, J.A.2
-
19
-
-
58249145074
-
The interplay of concepts, data, and methods in the development of the Family Management Style Framework
-
Knafl K.,Deatrick J.A.,Gallo A.M.The interplay of concepts, data, and methods in the development of the Family Management Style Framework.Journal of Family Nursing. 2008;14:412-428.
-
(2008)
Journal of Family Nursing
, vol.14
, pp. 412-428
-
-
Knafl, K.1
Deatrick, J.A.2
Gallo, A.M.3
-
20
-
-
79960350480
-
Assessment of the psychometric properties of the Family Management Measure
-
Knafl K.,Deatrick J.A.,Gallo A.,Dixon J.,Grey M.,Knafl G.,O'Malley J.Assessment of the psychometric properties of the Family Management Measure.Journal of Pediatric Psychology. 2011;36:494-505.
-
(2011)
Journal of Pediatric Psychology
, vol.36
, pp. 494-505
-
-
Knafl, K.1
Deatrick, J.A.2
Gallo, A.3
Dixon, J.4
Grey, M.5
Knafl, G.6
O'Malley, J.7
-
22
-
-
84857229820
-
-
Paper presented at the 2010 Midwest Nursing Society Meetings; Kansas City, MO;
-
Knafl K.,Knafl G.,Deatrick J.,Gallo A.,Dixon J.,Grey M. Paper presented at the 2010 Midwest Nursing Society Meetings; Kansas City, MO;.
-
-
-
Knafl, K.1
Knafl, G.2
Deatrick, J.3
Gallo, A.4
Dixon, J.5
Grey, M.6
-
23
-
-
34548157731
-
Parents' perceptions of functioning in families having a child with a genetic condition
-
Knafl K.A.,Knafl G.J.,Gallo A.M.,Angst D.Parents' perceptions of functioning in families having a child with a genetic condition.Journal of Genetic Counseling. 2007;16:481-492.
-
(2007)
Journal of Genetic Counseling
, vol.16
, pp. 481-492
-
-
Knafl, K.A.1
Knafl, G.J.2
Gallo, A.M.3
Angst, D.4
-
24
-
-
79959744334
-
Parenting children with hypoplastic left heart syndrome: Finding a balance
-
Lee A.,Rempel G.R.Parenting children with hypoplastic left heart syndrome: Finding a balance.Journal for Specialists in Pediatric Nursing. 2011;16:179-189.
-
(2011)
Journal for Specialists in Pediatric Nursing
, vol.16
, pp. 179-189
-
-
Lee, A.1
Rempel, G.R.2
-
25
-
-
47049118101
-
Parental stress and quality of life in children with neuromuscular disease
-
Mah J.K.,Thannhauser J.E.,Kolski H.,Dewey D.Parental stress and quality of life in children with neuromuscular disease.Pediatric Neurology. 2008;39 (2): 102-107.
-
(2008)
Pediatric Neurology
, vol.39
, Issue.2
, pp. 102-107
-
-
Mah, J.K.1
Thannhauser, J.E.2
Kolski, H.3
Dewey, D.4
-
27
-
-
0039105966
-
Toward a praxis theory of suffering
-
Morse J.M.Toward a praxis theory of suffering.Advances in Nursing Science. 2001;24 (1): 47-59.
-
(2001)
Advances in Nursing Science
, vol.24
, Issue.1
, pp. 47-59
-
-
Morse, J.M.1
-
28
-
-
21844435494
-
Quality of life following surgery for congenital cardiac malformations in neonates and infants
-
Mussatto K.,Tweddell J.Quality of life following surgery for congenital cardiac malformations in neonates and infants.Cardiology in the Young, 15. 2005;:174-178.
-
(2005)
Cardiology in the Young, 15
, pp. 174-178
-
-
Mussatto, K.1
Tweddell, J.2
-
29
-
-
32044467114
-
Consensus statements: The Family Management Style Framework and its use with families of children with cancer
-
Nelson A.E.,Deatrick J.A.,Knafl K.A.,Alderfer M.A.,Ogle S.K.Consensus statements: The Family Management Style Framework and its use with families of children with cancer.Journal of Pediatric Oncology Nursing. 2006;23 (1): 36-37.
-
(2006)
Journal of Pediatric Oncology Nursing
, vol.23
, Issue.1
, pp. 36-37
-
-
Nelson, A.E.1
Deatrick, J.A.2
Knafl, K.A.3
Alderfer, M.A.4
Ogle, S.K.5
-
30
-
-
0026873498
-
A case illustration of Family Management Style in childhood end stage renal disease
-
Obrecht J.A.,Gallo A.M.,Knafl K.A.A case illustration of Family Management Style in childhood end stage renal disease.ANNA Journal. 1992;19:255-259.
-
(1992)
ANNA Journal
, vol.19
, pp. 255-259
-
-
Obrecht, J.A.1
Gallo, A.M.2
Knafl, K.A.3
-
31
-
-
0035260601
-
Living in a house of cards: Family experiences with long-term childhood technology dependence
-
O'Brien M.Living in a house of cards: Family experiences with long-term childhood technology dependence.Journal of Pediatric Nursing. 2001;16 (1): 13-22.
-
(2001)
Journal of Pediatric Nursing
, vol.16
, Issue.1
, pp. 13-22
-
-
O'Brien, M.1
-
32
-
-
32044439312
-
Clinical application of Family Management Styles to families of children with cancer
-
Ogle S.K.Clinical application of Family Management Styles to families of children with cancer.Journal of Pediatric Oncology Nursing. 2006;23 (1): 28-31.
-
(2006)
Journal of Pediatric Oncology Nursing
, vol.23
, Issue.1
, pp. 28-31
-
-
Ogle, S.K.1
-
33
-
-
84857203926
-
-
Melbourne, Australia: Author
-
NVivo 8. Melbourne, Australia: Author; 2008:.
-
(2008)
NVivo 8
-
-
-
34
-
-
44049085719
-
Antenatal perspective of hypoplastic left heart syndrome: 5 years on
-
Rasiah S.V.,Ewer A.K.,Miller P.,Wright J.G.,Barron D.J.,Brawn W.J.,Kilby M.D.Antenatal perspective of hypoplastic left heart syndrome: 5 years on.Archives of Disease in Childhood Fetal & Neonatal Edition. 2008;93:F192-F197.
-
(2008)
Archives of Disease in Childhood Fetal & Neonatal Edition
, vol.93
-
-
Rasiah, S.V.1
Ewer, A.K.2
Miller, P.3
Wright, J.G.4
Barron, D.J.5
Brawn, W.J.6
Kilby, M.D.7
-
35
-
-
0036985268
-
Parenting and childhood chronicity: Making visible the invisible work
-
Ray L.D.Parenting and childhood chronicity: Making visible the invisible work.Journal of Pediatric Nursing. 2002;17:424-438.
-
(2002)
Journal of Pediatric Nursing
, vol.17
, pp. 424-438
-
-
Ray, L.D.1
-
36
-
-
1042302112
-
Technological advances in pediatrics: Challenges for parents and nurses
-
Rempel G.Technological advances in pediatrics: Challenges for parents and nurses.Journal of Pediatric Nursing. 2004;19 (1): 13-24.
-
(2004)
Journal of Pediatric Nursing
, vol.19
, Issue.1
, pp. 13-24
-
-
Rempel, G.1
-
37
-
-
34250781124
-
Safeguarding precarious survival: Parenting children who have life-threatening heart disease
-
Rempel G.,Harrison M.J.Safeguarding precarious survival: Parenting children who have life-threatening heart disease.Qualitative Health Research. 2007;17:824-837.
-
(2007)
Qualitative Health Research
, vol.17
, pp. 824-837
-
-
Rempel, G.1
Harrison, M.J.2
-
38
-
-
66149156244
-
Is "Treat your child normally" helpful advice for parents of survivors of treatment of hypoplastic left heart syndrome?
-
Rempel G.,Harrison M.J.,Williamson D.L.Is "Treat your child normally" helpful advice for parents of survivors of treatment of hypoplastic left heart syndrome?.Cardiology in the Young. 2009;19 (2): 135-144.
-
(2009)
Cardiology in the Young
, vol.19
, Issue.2
, pp. 135-144
-
-
Rempel, G.1
Harrison, M.J.2
Williamson, D.L.3
-
40
-
-
84857197297
-
-
(2nd ed.). Thousand Oaks, CA: SAGE.Richards L.Morse J.M., ed.;, Thousand Oaks, CA: SAGE
-
Readme first for a user's guide to qualitative methods. 2007). Readme first for a user's guide to qualitative methods (2nd ed.). Thousand Oaks, CA: SAGE.Richards L.Morse J.M., ed. Thousand Oaks, CA: SAGE; 2007:.
-
(2007)
Readme First for a User's Guide to Qualitative Methods
-
-
-
41
-
-
9344259698
-
Outcome of right ventricle-to-pulmonary artery shunt in first-stage palliation of hypoplastic left heart syndrome: A multi-institutional study
-
Sano S.,Ishino K.,Kado H.,Shiokawa Y.,Sakamoto K.,Yokota M.,Kawada M.Outcome of right ventricle-to-pulmonary artery shunt in first-stage palliation of hypoplastic left heart syndrome: A multi-institutional study.Annals of Thoracic Surgery. 2004;78:1951-1957.
-
(2004)
Annals of Thoracic Surgery
, vol.78
, pp. 1951-1957
-
-
Sano, S.1
Ishino, K.2
Kado, H.3
Shiokawa, Y.4
Sakamoto, K.5
Yokota, M.6
Kawada, M.7
-
42
-
-
0034584331
-
Trajectory of certain death at an unknown time: Children with neurodegenerative life-threatening illnesses
-
Steele R.G.Trajectory of certain death at an unknown time: Children with neurodegenerative life-threatening illnesses.Canadian Journal of Nursing Research. 2000;32 (3): 49-67.
-
(2000)
Canadian Journal of Nursing Research
, vol.32
, Issue.3
, pp. 49-67
-
-
Steele, R.G.1
-
45
-
-
0032106254
-
Ethical and representational issues in qualitative secondary analysis
-
Thorne S.Ethical and representational issues in qualitative secondary analysis.Qualitative Health Research. 1998;8:547-555.
-
(1998)
Qualitative Health Research
, vol.8
, pp. 547-555
-
-
Thorne, S.1
-
46
-
-
43549098267
-
Family management styles related to withdrawal of life-sustaining therapy from adults who are acutely ill or injured
-
Wiegand D.L.,Deatrick J.A.,Knafl K.Family management styles related to withdrawal of life-sustaining therapy from adults who are acutely ill or injured.Journal of Family Nursing. 2008;14 (1): 16-32.
-
(2008)
Journal of Family Nursing
, vol.14
, Issue.1
, pp. 16-32
-
-
Wiegand, D.L.1
Deatrick, J.A.2
Knafl, K.3
|