The meaning of cost for families of children with congenital heart Disease

Journal of Pediatric Health Care

Volumn 24, Issue 5, 2010, Pages 318-325

  Connor, Jean Anne ^a   Kline, Nancy E ^b   Mott, Sandra ^c   Harris, Sion Kim ^a   Jenkins, Kathy J ^a  

^a BOSTON CHILDREN S HOSPITAL   (United States)

^b Sloan Memorial Kettering Hospital   (United States)

^c BOSTON COLLEGE   (United States)

Author keywords

Congenital heart disease; Cost; Cost of pediatric disease; Risk adjustment for congenital heart surgery

Indexed keywords

ARTICLE; CHILD; CONGENITAL HEART MALFORMATION; COST; ECONOMICS; HUMAN;

CHILD; COSTS AND COST ANALYSIS; HEART DEFECTS, CONGENITAL; HUMANS;

EID: 77956174750     PISSN: 08915245     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.pedhc.2009.09.002     Document Type: Article

References (18)

1. Banthin J.S., Cunningham P., Bernard D.M. Financial burden of health care, 2001-2004. Health Affairs (Millwood) 2008, 27(1):188-195.
2. Bloom B.S., Knorr R.S., Evans A.E. The epidemiology of disease expenses. The costs of caring for children with cancer. JAMA 1985, 253(16):2393-2397.
3. Bodkin C.M., Pigott T.J., Mann J.R. Financial burden of childhood cancer. British Medical Journal (Clinical Research Edition) 1982, 284(6328):1542-1544.
4. Chang R.K., Klitzner T.S. Resources, use, and regionalization of pediatric cardiac services. Current Opinions in Cardiology 2003, 18(2):98-101.
5. Chen A.Y., Newacheck P.W. Insurance coverage and financial burden for families of children with special health care needs. Ambulatory Pediatrics 2006, 6(4):204-209.
6. Claxton G., Gabel J., Gil I., Pickreign J., Whitmore H., Finder B., Hawkins S. Health benefits in 2006: Premium increases moderate, enrollment in consumer-directed health plans remains modest. Health Affairs (Millwood) 2006, 25(6):w476-485.
7. Dockerty J.D., Skegg D.C., Williams S.M. Economic effects of childhood cancer on families. Journal of Paediatric Child Health 2003, 39(4):254-258.
8. Dockerty J.D., Williams S.M., McGee R., Skegg D.C. Impact of childhood cancer on the mental health of parents. Medical Pediatric Oncology 2000, 35(5):475-483.
9. Hockenberry-Eaton M., Minick P. Living with cancer: Children with extraordinary courage. Oncology Nurses Forum 1994, 21(6):1025-1031.
10. Hollingshead A.B. Four factor index of social status 1975, Yale University, New Haven, CT.
11. Jenkins K.J., Gauvreau K. Center-specific differences in mortality: Preliminary analyses using the Risk Adjustment in Congenital Heart Surgery (RACHS-1) method. Journal of Thoracic and Cardiovascular Surgery 2002, 124(1):97-104.
12. Jenkins K.J., Gauvreau K., Newburger J.W., Kyn L.B., Iezzoni L.I., Mayer J.E. Validation of relative value scale for congenital heart operations. Annals of Thoracic Surgery 1998, 66(3):860-869.
13. Jenkins K.J., Gauvreau K., Newburger J.W., Spray T.L., Moller J.H., Iezzoni L.I. Consensus-based method for risk adjustment for surgery for congenital heart disease. Journal of Thoracic and Cardiovascular Surgery 2002, 123(1):110-118.
14. Lansky S.B., Cairns N.U., Clark G.M., Lowman J., Miller L., Trueworthy R. Childhood cancer: Nonmedical costs of the illness. Cancer 1979, 43(1):403-408.
15. Munhall P., Boyd C. Nursing research: A qualitative perspective 2000, Jones and Bartlett, Sudbury, MA. 2nd ed.
16. Norwood S. Research strategies for advanced practice nurses 2000, Prentice-Hall, Upper Saddle River, NJ.
17. Smith P.C., Powell K.R. Can regionalization decrease the number of deaths for children who undergo cardiac surgery? A theoretical analysis. Pediatrics 2002, 110(4):849-850. discussion 849-850.
18. Steele R., Davies B. Impact on parents when a child has a progressive, life-threatening illness. International Journal of Palliative Nursing 2006, 12(12):576-585.