The impact of regular hospitalization of children living with thalassaemia on their parents in sri lanka: A phenomenological study

International Journal of Nursing Practice

Volumn 9, Issue 3, 2003, Pages 131-139

  Nahalla, Chitra Kumari ^a   FitzGerald, Mary ^b  

^a UNIVERSITY OF ADELAIDE   (Australia)

^b UNIVERSITY OF NEWCASTLE   (Australia)

Author keywords

Parental care; Regular blood transfusion; Regular childhood admission; Thalassaemia

Indexed keywords

ADAPTIVE BEHAVIOR; ADULT; ARTICLE; ATTITUDE TO HEALTH; BLOOD TRANSFUSION; CHILD; CHILD CARE; CHILD HOSPITALIZATION; COST OF ILLNESS; EDUCATION; FEMALE; HEALTH CARE QUALITY; HUMAN; MALE; MIDDLE AGED; NEEDS ASSESSMENT; NURSING METHODOLOGY RESEARCH; NURSING STAFF; PARENT; POVERTY; PSYCHOLOGICAL ASPECT; QUESTIONNAIRE; SOCIAL SUPPORT; SOCIOECONOMICS; SRI LANKA; THALASSEMIA;

ADAPTATION, PSYCHOLOGICAL; ADULT; ATTITUDE TO HEALTH; BLOOD TRANSFUSION; CHILD; CHILD CARE; CHILD, HOSPITALIZED; COST OF ILLNESS; FEMALE; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HUMANS; MALE; MIDDLE AGED; NEEDS ASSESSMENT; NURSING METHODOLOGY RESEARCH; NURSING STAFF, HOSPITAL; PARENTS; POVERTY; QUALITY OF HEALTH CARE; QUESTIONNAIRES; SOCIAL SUPPORT; SOCIOECONOMIC FACTORS; SRI LANKA; THALASSEMIA;

EID: 0043236250     PISSN: 13227114     EISSN: 1440172X     Source Type: Journal    
DOI: 10.1046/j.1440-172X.2003.00411.x     Document Type: Article

References (19)

1. Vullo R, Modell B, Georganda E. What Is Thalassaemia? Nicosa, Cyprus: The Thalassaemia International Federation, 1995.
2. de Silva DS, Fisher CA, Premawardena A, Lamabadusuriya SP, Peto TEA, Perera G, Old JM et al . Thalassaemia in Sri Lanka: Implications for the future health burden of Asian populations. The Lancet 2000; 9206 : 786-791.
3. van Manen M. Researching Lived Experience: Human Science for an Action Sensitive Pedagogy . New York: State University of New York Press, 1990.
4. Roberts S, Taylor B. Nursing Research Processes: an Australian Perspective . Melbourne: Nelson ITP, 1998.
5. de Silva S. The control of thalassaemia in the Kurunegala district. A dauntless challenge. Ceylon Journal of Child Health 1996; 25 : 17-23.
6. Perera D, Gunasekara D, Wijekoon A, Petrou. M. Thalassaemia control in developing countries: The Sri Lanka perspective. Ceylon Medical Journal 2000; 45 : 12-16.
7. Benner P. Interpretive Phenomenology Embodiment, Caring and Ethics in Health and Illness . Thousand Oaks: Sage Publications, 1994.
8. Streubert H, Carpenter D. Qualitative Research in Nursing Advancing the Humanistic Imperative , 2nd edn. Philadelphia: Lippincott, 1999.
9. Hutchinson S, Wilson H. Research and the therapeutic interview: A post-structuralist perspective. In: Morse J (ed.). Critical Issues in Qualitative Research Methods . Thousand Oaks: Sage Publications, 1994; 300-316.
10. Thompson J. Hermeneutic inquiry. In: Moody L (ed.). Advancing Nursing Science Through Research . Thousand Oaks: Sage Publications, 1990; 223-280.
11. Ratip S, Skuse D, Porter J, Wonke B, Yardumian A. Psychosocial and clinical burden of thalassaemia intermedia and its implication for prenatal diagnosis. Archives of Disease in Childhood 1995; 1: 409-412.
12. Twigg J, Atkin K. Carers Perceived. Buckingham: Open University Press, 1994.
13. Ahmad W, Atkin K. Ethnicity and caring for a disabled child: The case of children with sickle cell or thalassaemia. British Journal of Social Work 1996; 26: 755-775.
14. Ratip S, Modell B. Psychological and sociological aspects of thalassaemia. Seminars in Haemotology 1996; 33: 53- 65.
15. Olivieri N. The beta thalassemia. New England Journal of Medicine 1999; 341: 99-107.
16. Weatherall D, Clegg J. Thalassemia-a global public health problem. Nature Medicine 1996; 2: 847-849.
17. Gould D, Veronica T, Matthew D. The role of the haemoglobinopathy nurse counsellor. An exploratory study. Journal of Advanced Nursing 2000; 31: 157-164.
18. Atkin K, Ahmad W, Anionwu EN. Screening and counselling for sickle cell disorders and thalassaemia: The experience of parents and the health professionals. Social Science and Medicine 1998; 47: 1639-1651.
19. Atkin K, Ahmad WIU. Family care giving and chronic illness: how do parents cope with a child with a sickle cell disorder or thalassaemia. Health and Social Care in the Community 2000; 8: 57-69.