메뉴 건너뛰기




Volumn 18, Issue 5, 2015, Pages 1769-1782

Development of a model to guide decision making in amyotrophic lateral sclerosis multidisciplinary care

Author keywords

Caregivers; Motor neurone disease; Patient centred care; Stakeholder perspectives

Indexed keywords

ADULT; AGED; AMYOTROPHIC LATERAL SCLEROSIS; CAREGIVER; DECISION MAKING; DISEASE COURSE; FEMALE; HEALTH CARE PERSONNEL; HUMAN; INTERVIEW; MALE; MIDDLE AGED; PATIENT CARE; PROCEDURES; PSYCHOLOGY; QUALITY OF LIFE;

EID: 84942295327     PISSN: 13696513     EISSN: 13697625     Source Type: Journal    
DOI: 10.1111/hex.12169     Document Type: Article
Times cited : (32)

References (52)
  • 1
    • 84874200852 scopus 로고    scopus 로고
    • Interventions for providers to promote a patient-centred approach in clinical consultations
    • Dwamena F, Holmes-Rovner M, Gaulden CM et al. Interventions for providers to promote a patient-centred approach in clinical consultations. Cochrane Database System Review, 2012; 12: CD003267.
    • (2012) Cochrane Database System Review , vol.12
    • Dwamena, F.1    Holmes-Rovner, M.2    Gaulden, C.M.3
  • 2
    • 0031023489 scopus 로고    scopus 로고
    • Shared decision-making in the medical encounter: what does it mean? (or it takes at least two to tango)
    • Charles C, Gafni A, Whelan T. Shared decision-making in the medical encounter: what does it mean? (or it takes at least two to tango). Social Science & Medicine, 1997; 44: 681-692.
    • (1997) Social Science & Medicine , vol.44 , pp. 681-692
    • Charles, C.1    Gafni, A.2    Whelan, T.3
  • 3
    • 84857401735 scopus 로고    scopus 로고
    • Turning signals into meaning-'shared decision making' meets communication theory
    • Kasper J, Légaré F, Scheibler F, Geiger F. Turning signals into meaning-'shared decision making' meets communication theory. Health Expectations, 2012; 15: 3-11.
    • (2012) Health Expectations , vol.15 , pp. 3-11
    • Kasper, J.1    Légaré, F.2    Scheibler, F.3    Geiger, F.4
  • 4
    • 33344461833 scopus 로고    scopus 로고
    • An integrative model of shared decision making in medical encounters
    • Makoul G, Clayman ML. An integrative model of shared decision making in medical encounters. Patient Educucation and Counseling, 2006; 60: 301-312.
    • (2006) Patient Educucation and Counseling , vol.60 , pp. 301-312
    • Makoul, G.1    Clayman, M.L.2
  • 5
    • 77953644380 scopus 로고    scopus 로고
    • Interventions for improving the adoption of shared decision making by healthcare professionals
    • Légaré F, Ratté S, Stacey D et al. Interventions for improving the adoption of shared decision making by healthcare professionals. Cochrane Database System Review, 2010; 5: CD006732.
    • (2010) Cochrane Database System Review , vol.5 , pp. CD006732
    • Légaré, F.1    Ratté, S.2    Stacey, D.3
  • 6
    • 0033018476 scopus 로고    scopus 로고
    • Decision-making in the physician-patient encounter: revisiting the shared treatment decision-making model
    • Charles C, Gafni A, Whelan T. Decision-making in the physician-patient encounter: revisiting the shared treatment decision-making model. Social Science & Medicine, 1999; 49: 651-661.
    • (1999) Social Science & Medicine , vol.49 , pp. 651-661
    • Charles, C.1    Gafni, A.2    Whelan, T.3
  • 7
    • 34547568688 scopus 로고    scopus 로고
    • Do people want to be autonomous patients? Preferred roles in treatment decision-making in several patient populations
    • Deber RB, Kraetschmer N, Urowitz S, Sharpe N. Do people want to be autonomous patients? Preferred roles in treatment decision-making in several patient populations. Health Expectations, 2007; 10: 248-258.
    • (2007) Health Expectations , vol.10 , pp. 248-258
    • Deber, R.B.1    Kraetschmer, N.2    Urowitz, S.3    Sharpe, N.4
  • 8
    • 0025765473 scopus 로고
    • Caring for seriously ill and dying patients: the philosophy and ethics
    • Latimer E. Caring for seriously ill and dying patients: the philosophy and ethics. Canadian Medical Association Journal, 1991; 144: 859-864.
    • (1991) Canadian Medical Association Journal , vol.144 , pp. 859-864
    • Latimer, E.1
  • 9
    • 79952486262 scopus 로고    scopus 로고
    • Amyotrophic lateral sclerosis
    • Kiernan MC, Vucic S, Cheah BC et al. Amyotrophic lateral sclerosis. Lancet, 2011; 377: 942-955.
    • (2011) Lancet , vol.377 , pp. 942-955
    • Kiernan, M.C.1    Vucic, S.2    Cheah, B.C.3
  • 10
    • 62549120838 scopus 로고    scopus 로고
    • Clinical phenotypes and natural progression for motor neuron disease: analysis from an Australian database
    • Talman P, Forbes A, Mathers S. Clinical phenotypes and natural progression for motor neuron disease: analysis from an Australian database. Amyotrophic Lateral Sclerosis, 2009; 10: 79-84.
    • (2009) Amyotrophic Lateral Sclerosis , vol.10 , pp. 79-84
    • Talman, P.1    Forbes, A.2    Mathers, S.3
  • 11
    • 77649322309 scopus 로고    scopus 로고
    • Dysarthria in amyotrophic lateral sclerosis: a review
    • Tomik B, Guiloff RJ. Dysarthria in amyotrophic lateral sclerosis: a review. Amyotrophic Lateral Sclerosis, 2010; 11: 4-15.
    • (2010) Amyotrophic Lateral Sclerosis , vol.11 , pp. 4-15
    • Tomik, B.1    Guiloff, R.J.2
  • 12
    • 84876253929 scopus 로고    scopus 로고
    • Cortical atrophy in ALS is critically associated with neuropsychiatric and cognitive changes
    • Mioshi E, Lillo P, Yew B et al. Cortical atrophy in ALS is critically associated with neuropsychiatric and cognitive changes. Neurology, 2013; 80: 1117-1123.
    • (2013) Neurology , vol.80 , pp. 1117-1123
    • Mioshi, E.1    Lillo, P.2    Yew, B.3
  • 13
    • 84876319986 scopus 로고    scopus 로고
    • Controversies and priorities in amyotrophic lateral sclerosis
    • Turner MR, Hardiman O, Benatar M et al. Controversies and priorities in amyotrophic lateral sclerosis. Lancet Neurology, 2013; 12: 310-322.
    • (2013) Lancet Neurology , vol.12 , pp. 310-322
    • Turner, M.R.1    Hardiman, O.2    Benatar, M.3
  • 15
    • 84870477847 scopus 로고    scopus 로고
    • Caregiver burden in amyotrophic lateral sclerosis is more dependent on patients' behavioral changes than physical disability: a comparative study
    • Lillo P, Mioshi E, Hodges JR. Caregiver burden in amyotrophic lateral sclerosis is more dependent on patients' behavioral changes than physical disability: a comparative study. BMC Neurology, 2012; 12: 156.
    • (2012) BMC Neurology , vol.12 , pp. 156
    • Lillo, P.1    Mioshi, E.2    Hodges, J.R.3
  • 20
    • 84857044928 scopus 로고    scopus 로고
    • EFNS guidelines on the clinical management of amyotrophic lateral sclerosis (MALS):revised report of an EFNS task force
    • Andersen PM, Abrahams S, Borasio GD et al. EFNS guidelines on the clinical management of amyotrophic lateral sclerosis (MALS):revised report of an EFNS task force. European Journal of Neurology, 2012; 19: 360-375.
    • (2012) European Journal of Neurology , vol.19 , pp. 360-375
    • Andersen, P.M.1    Abrahams, S.2    Borasio, G.D.3
  • 22
    • 38049081768 scopus 로고    scopus 로고
    • Amyotrophic Lateral Sclerosis: ethical issues from diagnosis to end of life
    • McCluskey L. Amyotrophic Lateral Sclerosis: ethical issues from diagnosis to end of life. NeuroRehabilitation, 2007; 22: 463-472.
    • (2007) NeuroRehabilitation , vol.22 , pp. 463-472
    • McCluskey, L.1
  • 26
    • 84155172791 scopus 로고    scopus 로고
    • The syndrome of cognitive impairment in amyotrophic lateral sclerosis: a population-based study
    • Phukan J, Elamin M, Bede P et al. The syndrome of cognitive impairment in amyotrophic lateral sclerosis: a population-based study. Journal of Neurology, Neurosurgery and Psychiatry, 2012; 83: 102-108.
    • (2012) Journal of Neurology, Neurosurgery and Psychiatry , vol.83 , pp. 102-108
    • Phukan, J.1    Elamin, M.2    Bede, P.3
  • 27
    • 80054003655 scopus 로고    scopus 로고
    • Decision-making for gastrostomy and ventilatory support for people with motor neurone disease: variations across UK hospices
    • Oliver D, Campbell C, Sykes N, Tallon C, Edwards A. Decision-making for gastrostomy and ventilatory support for people with motor neurone disease: variations across UK hospices. Journal of Palliative Care, 2011; 27: 198-201.
    • (2011) Journal of Palliative Care , vol.27 , pp. 198-201
    • Oliver, D.1    Campbell, C.2    Sykes, N.3    Tallon, C.4    Edwards, A.5
  • 28
    • 70350149848 scopus 로고    scopus 로고
    • Practice parameter update: the care of the patient with amyotrophic lateral sclerosis: drug, nutritional, and respiratory therapies (an evidence-based review): report of the Quality Standards Subcommittee of the American Academy of Neurology
    • Miller RG, Jackson CE, Kasarskis EJ et al. Practice parameter update: the care of the patient with amyotrophic lateral sclerosis: drug, nutritional, and respiratory therapies (an evidence-based review): report of the Quality Standards Subcommittee of the American Academy of Neurology. Neurology, 2009; 73: 1218-1226.
    • (2009) Neurology , vol.73 , pp. 1218-1226
    • Miller, R.G.1    Jackson, C.E.2    Kasarskis, E.J.3
  • 29
    • 60349089596 scopus 로고    scopus 로고
    • Living with amyotrophic lateral sclerosis/motor neurone disease (ALS/MND): decision-making about 'ongoing change and adaptation'
    • King SJ, Duke MM, O'Connor BA. Living with amyotrophic lateral sclerosis/motor neurone disease (ALS/MND): decision-making about 'ongoing change and adaptation'. Journal of Clinical Nursing, 2009; 18: 745-754.
    • (2009) Journal of Clinical Nursing , vol.18 , pp. 745-754
    • King, S.J.1    Duke, M.M.2    O'Connor, B.A.3
  • 30
    • 34447572979 scopus 로고    scopus 로고
    • Effectiveness of strategies for informing, educating, and involving patients
    • Coulter A, Ellins J. Effectiveness of strategies for informing, educating, and involving patients. BMJ, 2007; 335: 24-27.
    • (2007) BMJ , vol.335 , pp. 24-27
    • Coulter, A.1    Ellins, J.2
  • 33
    • 84874809830 scopus 로고    scopus 로고
    • Engaging in patient decision-making in multidisciplinary care for amyotrophic lateral sclerosis: the views of health professionals
    • Hogden A, Greenfield D, Nugus P, Kiernan MC. Engaging in patient decision-making in multidisciplinary care for amyotrophic lateral sclerosis: the views of health professionals. Patient Preference and Adherence, 2012; 6: 691-701.
    • (2012) Patient Preference and Adherence , vol.6 , pp. 691-701
    • Hogden, A.1    Greenfield, D.2    Nugus, P.3    Kiernan, M.C.4
  • 34
    • 84874797594 scopus 로고    scopus 로고
    • What influences patient decision-making in amyotrophic lateral sclerosis multidisciplinary care? A study of patient perspectives
    • Hogden A, Greenfield D, Nugus P, Kiernan MC. What influences patient decision-making in amyotrophic lateral sclerosis multidisciplinary care? A study of patient perspectives. Patient Preference and Adherence, 2012; 6: 829-838.
    • (2012) Patient Preference and Adherence , vol.6 , pp. 829-838
    • Hogden, A.1    Greenfield, D.2    Nugus, P.3    Kiernan, M.C.4
  • 35
    • 84874804745 scopus 로고    scopus 로고
    • An investigation of carer engagement in decision-making for amyotrophic lateral sclerosis multidisciplinary care: carer roles, and barriers and facilitators to their participation
    • Hogden A, Greenfield D, Nugus P, Kiernan MC. An investigation of carer engagement in decision-making for amyotrophic lateral sclerosis multidisciplinary care: carer roles, and barriers and facilitators to their participation. Patient Preference and Adherence, 2013; 7: 171-181.
    • (2013) Patient Preference and Adherence , vol.7 , pp. 171-181
    • Hogden, A.1    Greenfield, D.2    Nugus, P.3    Kiernan, M.C.4
  • 36
    • 27344447234 scopus 로고    scopus 로고
    • When patients lack capacity: the roles that patients with terminal diagnoses would choose for their physicians and loved ones in making medical decisions
    • Nolan MT, Hughes M, Narendra DP et al. When patients lack capacity: the roles that patients with terminal diagnoses would choose for their physicians and loved ones in making medical decisions. Journal of Pain and Symptom Management, 2005; 30: 342-353.
    • (2005) Journal of Pain and Symptom Management , vol.30 , pp. 342-353
    • Nolan, M.T.1    Hughes, M.2    Narendra, D.P.3
  • 37
    • 79952960742 scopus 로고    scopus 로고
    • The dynamics of socio-connective trust within support networks accessed by informal caregivers
    • Ray RA, Street AF. The dynamics of socio-connective trust within support networks accessed by informal caregivers. Health, 2011; 15: 137-152.
    • (2011) Health , vol.15 , pp. 137-152
    • Ray, R.A.1    Street, A.F.2
  • 39
    • 0032692481 scopus 로고    scopus 로고
    • The ALSFRS-R: a revised ALS functional rating scale that incorporates assessments of respiratory function
    • Cedarbaum JM, Stambler N, Malta E et al. The ALSFRS-R: a revised ALS functional rating scale that incorporates assessments of respiratory function. Journal of the Neurological Sciences, 1999; 169: 13-21.
    • (1999) Journal of the Neurological Sciences , vol.169 , pp. 13-21
    • Cedarbaum, J.M.1    Stambler, N.2    Malta, E.3
  • 40
    • 0015305935 scopus 로고
    • The nominal group as a research instrument for exploratory health studies
    • Van de Ven AH, Delbecq AL. The nominal group as a research instrument for exploratory health studies. American Journal of Public Health, 1972; 62: 337-342.
    • (1972) American Journal of Public Health , vol.62 , pp. 337-342
    • Van de Ven, A.H.1    Delbecq, A.L.2
  • 41
    • 34447275959 scopus 로고    scopus 로고
    • Proof of love and other themes: a qualitative exploration of the experience of caring for people with motor neurone disease
    • Herz H, McKinnon P, Butow P. Proof of love and other themes: a qualitative exploration of the experience of caring for people with motor neurone disease. Progress in Palliative Care, 2006; 14: 209-214.
    • (2006) Progress in Palliative Care , vol.14 , pp. 209-214
    • Herz, H.1    McKinnon, P.2    Butow, P.3
  • 43
    • 84942300070 scopus 로고    scopus 로고
    • End of life choices in Halacha, Available at:, accessed 16 September, 2013.
    • Eisenberg D. End of life choices in Halacha, 1999. Available at: www.jlaw.com, accessed 16 September, 2013.
    • (1999)
    • Eisenberg, D.1
  • 44
    • 79953777428 scopus 로고    scopus 로고
    • Factors that shape the development of interprofessional improvement initiatives in health organisations
    • Greenfield D, Nugus P, Travaglia J, Braithwaite J. Factors that shape the development of interprofessional improvement initiatives in health organisations. BMJ Quality and Safety, 2011; 20: 332-337.
    • (2011) BMJ Quality and Safety , vol.20 , pp. 332-337
    • Greenfield, D.1    Nugus, P.2    Travaglia, J.3    Braithwaite, J.4
  • 46
    • 0033991646 scopus 로고    scopus 로고
    • Bridging the gap. The separate worlds of evidence-based medicine and patient-centered medicine
    • Bensing J. Bridging the gap. The separate worlds of evidence-based medicine and patient-centered medicine. Patient Education and Counseling, 2000; 39: 17-25.
    • (2000) Patient Education and Counseling , vol.39 , pp. 17-25
    • Bensing, J.1
  • 47
    • 55949095116 scopus 로고    scopus 로고
    • Evidence based medicine and shared decision making: the challenge of getting both evidence and preferences into health care
    • Barratt A. Evidence based medicine and shared decision making: the challenge of getting both evidence and preferences into health care. Patient Education and Counseling, 2008; 73: 407-412.
    • (2008) Patient Education and Counseling , vol.73 , pp. 407-412
    • Barratt, A.1
  • 48
    • 70350138259 scopus 로고    scopus 로고
    • Practice parameter update: the care of the patient with amyotrophic lateral sclerosis: multidisciplinary care, symptom management, and cognitive/behavioral impairment (an evidence-based review): report of the Quality Standards Subcommittee of the American Academy of Neurology
    • Miller RG, Jackson CE, Kasarskis EJ et al. Practice parameter update: the care of the patient with amyotrophic lateral sclerosis: multidisciplinary care, symptom management, and cognitive/behavioral impairment (an evidence-based review): report of the Quality Standards Subcommittee of the American Academy of Neurology. Neurology, 2009; 73: 1227-1233.
    • (2009) Neurology , vol.73 , pp. 1227-1233
    • Miller, R.G.1    Jackson, C.E.2    Kasarskis, E.J.3
  • 49
    • 23944472852 scopus 로고    scopus 로고
    • When and how to initiate discussion about prognosis and end-of-life issues with terminally ill patients
    • Clayton JM, Butow PN, Tattersall MH. When and how to initiate discussion about prognosis and end-of-life issues with terminally ill patients. Journal of Pain and Symptom Management, 2005; 30: 132-144.
    • (2005) Journal of Pain and Symptom Management , vol.30 , pp. 132-144
    • Clayton, J.M.1    Butow, P.N.2    Tattersall, M.H.3
  • 50
    • 33750443508 scopus 로고    scopus 로고
    • User, carer and professional experiences of care in motor neurone disease
    • Brown JB. User, carer and professional experiences of care in motor neurone disease. Primary Health Care Research Development, 2003; 4: 207-217.
    • (2003) Primary Health Care Research Development , vol.4 , pp. 207-217
    • Brown, J.B.1
  • 51
    • 84855389061 scopus 로고    scopus 로고
    • Patients' perceptions of services and preferences for care in amyotrophic lateral sclerosis: a review
    • Foley G, Timonen V, Hardiman O. Patients' perceptions of services and preferences for care in amyotrophic lateral sclerosis: a review. Amyotrophic Lateral Sclerosis, 2012; 13: 11-24.
    • (2012) Amyotrophic Lateral Sclerosis , vol.13 , pp. 11-24
    • Foley, G.1    Timonen, V.2    Hardiman, O.3
  • 52
    • 77950175096 scopus 로고    scopus 로고
    • Multidisciplinary care for adults with amyotrophic lateral sclerosis or motor neuron disease
    • Ng L, Khan F, Mathers S. Multidisciplinary care for adults with amyotrophic lateral sclerosis or motor neuron disease. Cochrane Database System Review, 2009; 4: CD007425.
    • (2009) Cochrane Database System Review , vol.4 , pp. CD007425
    • Ng, L.1    Khan, F.2    Mathers, S.3


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.