-
1
-
-
84874200852
-
Interventions for providers to promote a patient-centred approach in clinical consultations
-
Dwamena F, Holmes-Rovner M, Gaulden CM et al. Interventions for providers to promote a patient-centred approach in clinical consultations. Cochrane Database System Review, 2012; 12: CD003267.
-
(2012)
Cochrane Database System Review
, vol.12
-
-
Dwamena, F.1
Holmes-Rovner, M.2
Gaulden, C.M.3
-
2
-
-
0031023489
-
Shared decision-making in the medical encounter: what does it mean? (or it takes at least two to tango)
-
Charles C, Gafni A, Whelan T. Shared decision-making in the medical encounter: what does it mean? (or it takes at least two to tango). Social Science & Medicine, 1997; 44: 681-692.
-
(1997)
Social Science & Medicine
, vol.44
, pp. 681-692
-
-
Charles, C.1
Gafni, A.2
Whelan, T.3
-
3
-
-
84857401735
-
Turning signals into meaning-'shared decision making' meets communication theory
-
Kasper J, Légaré F, Scheibler F, Geiger F. Turning signals into meaning-'shared decision making' meets communication theory. Health Expectations, 2012; 15: 3-11.
-
(2012)
Health Expectations
, vol.15
, pp. 3-11
-
-
Kasper, J.1
Légaré, F.2
Scheibler, F.3
Geiger, F.4
-
4
-
-
33344461833
-
An integrative model of shared decision making in medical encounters
-
Makoul G, Clayman ML. An integrative model of shared decision making in medical encounters. Patient Educucation and Counseling, 2006; 60: 301-312.
-
(2006)
Patient Educucation and Counseling
, vol.60
, pp. 301-312
-
-
Makoul, G.1
Clayman, M.L.2
-
5
-
-
77953644380
-
Interventions for improving the adoption of shared decision making by healthcare professionals
-
Légaré F, Ratté S, Stacey D et al. Interventions for improving the adoption of shared decision making by healthcare professionals. Cochrane Database System Review, 2010; 5: CD006732.
-
(2010)
Cochrane Database System Review
, vol.5
, pp. CD006732
-
-
Légaré, F.1
Ratté, S.2
Stacey, D.3
-
6
-
-
0033018476
-
Decision-making in the physician-patient encounter: revisiting the shared treatment decision-making model
-
Charles C, Gafni A, Whelan T. Decision-making in the physician-patient encounter: revisiting the shared treatment decision-making model. Social Science & Medicine, 1999; 49: 651-661.
-
(1999)
Social Science & Medicine
, vol.49
, pp. 651-661
-
-
Charles, C.1
Gafni, A.2
Whelan, T.3
-
7
-
-
34547568688
-
Do people want to be autonomous patients? Preferred roles in treatment decision-making in several patient populations
-
Deber RB, Kraetschmer N, Urowitz S, Sharpe N. Do people want to be autonomous patients? Preferred roles in treatment decision-making in several patient populations. Health Expectations, 2007; 10: 248-258.
-
(2007)
Health Expectations
, vol.10
, pp. 248-258
-
-
Deber, R.B.1
Kraetschmer, N.2
Urowitz, S.3
Sharpe, N.4
-
8
-
-
0025765473
-
Caring for seriously ill and dying patients: the philosophy and ethics
-
Latimer E. Caring for seriously ill and dying patients: the philosophy and ethics. Canadian Medical Association Journal, 1991; 144: 859-864.
-
(1991)
Canadian Medical Association Journal
, vol.144
, pp. 859-864
-
-
Latimer, E.1
-
9
-
-
79952486262
-
Amyotrophic lateral sclerosis
-
Kiernan MC, Vucic S, Cheah BC et al. Amyotrophic lateral sclerosis. Lancet, 2011; 377: 942-955.
-
(2011)
Lancet
, vol.377
, pp. 942-955
-
-
Kiernan, M.C.1
Vucic, S.2
Cheah, B.C.3
-
10
-
-
62549120838
-
Clinical phenotypes and natural progression for motor neuron disease: analysis from an Australian database
-
Talman P, Forbes A, Mathers S. Clinical phenotypes and natural progression for motor neuron disease: analysis from an Australian database. Amyotrophic Lateral Sclerosis, 2009; 10: 79-84.
-
(2009)
Amyotrophic Lateral Sclerosis
, vol.10
, pp. 79-84
-
-
Talman, P.1
Forbes, A.2
Mathers, S.3
-
11
-
-
77649322309
-
Dysarthria in amyotrophic lateral sclerosis: a review
-
Tomik B, Guiloff RJ. Dysarthria in amyotrophic lateral sclerosis: a review. Amyotrophic Lateral Sclerosis, 2010; 11: 4-15.
-
(2010)
Amyotrophic Lateral Sclerosis
, vol.11
, pp. 4-15
-
-
Tomik, B.1
Guiloff, R.J.2
-
12
-
-
84876253929
-
Cortical atrophy in ALS is critically associated with neuropsychiatric and cognitive changes
-
Mioshi E, Lillo P, Yew B et al. Cortical atrophy in ALS is critically associated with neuropsychiatric and cognitive changes. Neurology, 2013; 80: 1117-1123.
-
(2013)
Neurology
, vol.80
, pp. 1117-1123
-
-
Mioshi, E.1
Lillo, P.2
Yew, B.3
-
13
-
-
84876319986
-
Controversies and priorities in amyotrophic lateral sclerosis
-
Turner MR, Hardiman O, Benatar M et al. Controversies and priorities in amyotrophic lateral sclerosis. Lancet Neurology, 2013; 12: 310-322.
-
(2013)
Lancet Neurology
, vol.12
, pp. 310-322
-
-
Turner, M.R.1
Hardiman, O.2
Benatar, M.3
-
14
-
-
79251624206
-
How common are behavioural changes in amyotrophic lateral sclerosis?
-
Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioural changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Sclerosis, 2011; 12: 45-51.
-
(2011)
Amyotrophic Lateral Sclerosis
, vol.12
, pp. 45-51
-
-
Lillo, P.1
Mioshi, E.2
Zoing, M.C.3
Kiernan, M.C.4
Hodges, J.R.5
-
15
-
-
84870477847
-
Caregiver burden in amyotrophic lateral sclerosis is more dependent on patients' behavioral changes than physical disability: a comparative study
-
Lillo P, Mioshi E, Hodges JR. Caregiver burden in amyotrophic lateral sclerosis is more dependent on patients' behavioral changes than physical disability: a comparative study. BMC Neurology, 2012; 12: 156.
-
(2012)
BMC Neurology
, vol.12
, pp. 156
-
-
Lillo, P.1
Mioshi, E.2
Hodges, J.R.3
-
20
-
-
84857044928
-
EFNS guidelines on the clinical management of amyotrophic lateral sclerosis (MALS):revised report of an EFNS task force
-
Andersen PM, Abrahams S, Borasio GD et al. EFNS guidelines on the clinical management of amyotrophic lateral sclerosis (MALS):revised report of an EFNS task force. European Journal of Neurology, 2012; 19: 360-375.
-
(2012)
European Journal of Neurology
, vol.19
, pp. 360-375
-
-
Andersen, P.M.1
Abrahams, S.2
Borasio, G.D.3
-
21
-
-
0032720024
-
Prospective study of palliative care in ALS: choice, timing, outcomes
-
Albert SM, Murphy PL, Del Bene ML, Rowland LP. Prospective study of palliative care in ALS: choice, timing, outcomes. Journal of the Neurological Sciences, 1999; 169: 108-113.
-
(1999)
Journal of the Neurological Sciences
, vol.169
, pp. 108-113
-
-
Albert, S.M.1
Murphy, P.L.2
Del Bene, M.L.3
Rowland, L.P.4
-
22
-
-
38049081768
-
Amyotrophic Lateral Sclerosis: ethical issues from diagnosis to end of life
-
McCluskey L. Amyotrophic Lateral Sclerosis: ethical issues from diagnosis to end of life. NeuroRehabilitation, 2007; 22: 463-472.
-
(2007)
NeuroRehabilitation
, vol.22
, pp. 463-472
-
-
McCluskey, L.1
-
24
-
-
33645790821
-
Establishment of an Australian motor neurone disease registry
-
Kiernan MC, Talman P, Henderson RD, Harris R. Establishment of an Australian motor neurone disease registry. Medical Journal of Australia, 2006; 184: 367-368.
-
(2006)
Medical Journal of Australia
, vol.184
, pp. 367-368
-
-
Kiernan, M.C.1
Talman, P.2
Henderson, R.D.3
Harris, R.4
-
25
-
-
84875428913
-
Is language impairment more common than executive dysfunction in amyotrophic lateral sclerosis?
-
Taylor LJ, Brown RG, Tsermentseli S et al. Is language impairment more common than executive dysfunction in amyotrophic lateral sclerosis? Journal of Neurology, Neurosurgery and Psychiatry, 2013; 84: 494-498.
-
(2013)
Journal of Neurology, Neurosurgery and Psychiatry
, vol.84
, pp. 494-498
-
-
Taylor, L.J.1
Brown, R.G.2
Tsermentseli, S.3
-
26
-
-
84155172791
-
The syndrome of cognitive impairment in amyotrophic lateral sclerosis: a population-based study
-
Phukan J, Elamin M, Bede P et al. The syndrome of cognitive impairment in amyotrophic lateral sclerosis: a population-based study. Journal of Neurology, Neurosurgery and Psychiatry, 2012; 83: 102-108.
-
(2012)
Journal of Neurology, Neurosurgery and Psychiatry
, vol.83
, pp. 102-108
-
-
Phukan, J.1
Elamin, M.2
Bede, P.3
-
27
-
-
80054003655
-
Decision-making for gastrostomy and ventilatory support for people with motor neurone disease: variations across UK hospices
-
Oliver D, Campbell C, Sykes N, Tallon C, Edwards A. Decision-making for gastrostomy and ventilatory support for people with motor neurone disease: variations across UK hospices. Journal of Palliative Care, 2011; 27: 198-201.
-
(2011)
Journal of Palliative Care
, vol.27
, pp. 198-201
-
-
Oliver, D.1
Campbell, C.2
Sykes, N.3
Tallon, C.4
Edwards, A.5
-
28
-
-
70350149848
-
Practice parameter update: the care of the patient with amyotrophic lateral sclerosis: drug, nutritional, and respiratory therapies (an evidence-based review): report of the Quality Standards Subcommittee of the American Academy of Neurology
-
Miller RG, Jackson CE, Kasarskis EJ et al. Practice parameter update: the care of the patient with amyotrophic lateral sclerosis: drug, nutritional, and respiratory therapies (an evidence-based review): report of the Quality Standards Subcommittee of the American Academy of Neurology. Neurology, 2009; 73: 1218-1226.
-
(2009)
Neurology
, vol.73
, pp. 1218-1226
-
-
Miller, R.G.1
Jackson, C.E.2
Kasarskis, E.J.3
-
29
-
-
60349089596
-
Living with amyotrophic lateral sclerosis/motor neurone disease (ALS/MND): decision-making about 'ongoing change and adaptation'
-
King SJ, Duke MM, O'Connor BA. Living with amyotrophic lateral sclerosis/motor neurone disease (ALS/MND): decision-making about 'ongoing change and adaptation'. Journal of Clinical Nursing, 2009; 18: 745-754.
-
(2009)
Journal of Clinical Nursing
, vol.18
, pp. 745-754
-
-
King, S.J.1
Duke, M.M.2
O'Connor, B.A.3
-
30
-
-
34447572979
-
Effectiveness of strategies for informing, educating, and involving patients
-
Coulter A, Ellins J. Effectiveness of strategies for informing, educating, and involving patients. BMJ, 2007; 335: 24-27.
-
(2007)
BMJ
, vol.335
, pp. 24-27
-
-
Coulter, A.1
Ellins, J.2
-
32
-
-
57349160349
-
Patient-centered care and adherence: definitions and applications to improve outcomes
-
Robinson JH, Callister LC, Berry JA, Dearing KA. Patient-centered care and adherence: definitions and applications to improve outcomes. Journal of the American Academy of Nurse Practitioners, 2008; 20: 600-607.
-
(2008)
Journal of the American Academy of Nurse Practitioners
, vol.20
, pp. 600-607
-
-
Robinson, J.H.1
Callister, L.C.2
Berry, J.A.3
Dearing, K.A.4
-
33
-
-
84874809830
-
Engaging in patient decision-making in multidisciplinary care for amyotrophic lateral sclerosis: the views of health professionals
-
Hogden A, Greenfield D, Nugus P, Kiernan MC. Engaging in patient decision-making in multidisciplinary care for amyotrophic lateral sclerosis: the views of health professionals. Patient Preference and Adherence, 2012; 6: 691-701.
-
(2012)
Patient Preference and Adherence
, vol.6
, pp. 691-701
-
-
Hogden, A.1
Greenfield, D.2
Nugus, P.3
Kiernan, M.C.4
-
34
-
-
84874797594
-
What influences patient decision-making in amyotrophic lateral sclerosis multidisciplinary care? A study of patient perspectives
-
Hogden A, Greenfield D, Nugus P, Kiernan MC. What influences patient decision-making in amyotrophic lateral sclerosis multidisciplinary care? A study of patient perspectives. Patient Preference and Adherence, 2012; 6: 829-838.
-
(2012)
Patient Preference and Adherence
, vol.6
, pp. 829-838
-
-
Hogden, A.1
Greenfield, D.2
Nugus, P.3
Kiernan, M.C.4
-
35
-
-
84874804745
-
An investigation of carer engagement in decision-making for amyotrophic lateral sclerosis multidisciplinary care: carer roles, and barriers and facilitators to their participation
-
Hogden A, Greenfield D, Nugus P, Kiernan MC. An investigation of carer engagement in decision-making for amyotrophic lateral sclerosis multidisciplinary care: carer roles, and barriers and facilitators to their participation. Patient Preference and Adherence, 2013; 7: 171-181.
-
(2013)
Patient Preference and Adherence
, vol.7
, pp. 171-181
-
-
Hogden, A.1
Greenfield, D.2
Nugus, P.3
Kiernan, M.C.4
-
36
-
-
27344447234
-
When patients lack capacity: the roles that patients with terminal diagnoses would choose for their physicians and loved ones in making medical decisions
-
Nolan MT, Hughes M, Narendra DP et al. When patients lack capacity: the roles that patients with terminal diagnoses would choose for their physicians and loved ones in making medical decisions. Journal of Pain and Symptom Management, 2005; 30: 342-353.
-
(2005)
Journal of Pain and Symptom Management
, vol.30
, pp. 342-353
-
-
Nolan, M.T.1
Hughes, M.2
Narendra, D.P.3
-
37
-
-
79952960742
-
The dynamics of socio-connective trust within support networks accessed by informal caregivers
-
Ray RA, Street AF. The dynamics of socio-connective trust within support networks accessed by informal caregivers. Health, 2011; 15: 137-152.
-
(2011)
Health
, vol.15
, pp. 137-152
-
-
Ray, R.A.1
Street, A.F.2
-
39
-
-
0032692481
-
The ALSFRS-R: a revised ALS functional rating scale that incorporates assessments of respiratory function
-
Cedarbaum JM, Stambler N, Malta E et al. The ALSFRS-R: a revised ALS functional rating scale that incorporates assessments of respiratory function. Journal of the Neurological Sciences, 1999; 169: 13-21.
-
(1999)
Journal of the Neurological Sciences
, vol.169
, pp. 13-21
-
-
Cedarbaum, J.M.1
Stambler, N.2
Malta, E.3
-
40
-
-
0015305935
-
The nominal group as a research instrument for exploratory health studies
-
Van de Ven AH, Delbecq AL. The nominal group as a research instrument for exploratory health studies. American Journal of Public Health, 1972; 62: 337-342.
-
(1972)
American Journal of Public Health
, vol.62
, pp. 337-342
-
-
Van de Ven, A.H.1
Delbecq, A.L.2
-
41
-
-
34447275959
-
Proof of love and other themes: a qualitative exploration of the experience of caring for people with motor neurone disease
-
Herz H, McKinnon P, Butow P. Proof of love and other themes: a qualitative exploration of the experience of caring for people with motor neurone disease. Progress in Palliative Care, 2006; 14: 209-214.
-
(2006)
Progress in Palliative Care
, vol.14
, pp. 209-214
-
-
Herz, H.1
McKinnon, P.2
Butow, P.3
-
43
-
-
84942300070
-
-
End of life choices in Halacha, Available at:, accessed 16 September, 2013.
-
Eisenberg D. End of life choices in Halacha, 1999. Available at: www.jlaw.com, accessed 16 September, 2013.
-
(1999)
-
-
Eisenberg, D.1
-
44
-
-
79953777428
-
Factors that shape the development of interprofessional improvement initiatives in health organisations
-
Greenfield D, Nugus P, Travaglia J, Braithwaite J. Factors that shape the development of interprofessional improvement initiatives in health organisations. BMJ Quality and Safety, 2011; 20: 332-337.
-
(2011)
BMJ Quality and Safety
, vol.20
, pp. 332-337
-
-
Greenfield, D.1
Nugus, P.2
Travaglia, J.3
Braithwaite, J.4
-
45
-
-
77955971701
-
Treatment decision-making in cancer care: the role of the carer
-
Hubbard G, Illingworth N, Rowa-Dewar N, Forbat L, Kearney N. Treatment decision-making in cancer care: the role of the carer. Journal of Clinical Nursing, 2010; 19: 2023-2031.
-
(2010)
Journal of Clinical Nursing
, vol.19
, pp. 2023-2031
-
-
Hubbard, G.1
Illingworth, N.2
Rowa-Dewar, N.3
Forbat, L.4
Kearney, N.5
-
46
-
-
0033991646
-
Bridging the gap. The separate worlds of evidence-based medicine and patient-centered medicine
-
Bensing J. Bridging the gap. The separate worlds of evidence-based medicine and patient-centered medicine. Patient Education and Counseling, 2000; 39: 17-25.
-
(2000)
Patient Education and Counseling
, vol.39
, pp. 17-25
-
-
Bensing, J.1
-
47
-
-
55949095116
-
Evidence based medicine and shared decision making: the challenge of getting both evidence and preferences into health care
-
Barratt A. Evidence based medicine and shared decision making: the challenge of getting both evidence and preferences into health care. Patient Education and Counseling, 2008; 73: 407-412.
-
(2008)
Patient Education and Counseling
, vol.73
, pp. 407-412
-
-
Barratt, A.1
-
48
-
-
70350138259
-
Practice parameter update: the care of the patient with amyotrophic lateral sclerosis: multidisciplinary care, symptom management, and cognitive/behavioral impairment (an evidence-based review): report of the Quality Standards Subcommittee of the American Academy of Neurology
-
Miller RG, Jackson CE, Kasarskis EJ et al. Practice parameter update: the care of the patient with amyotrophic lateral sclerosis: multidisciplinary care, symptom management, and cognitive/behavioral impairment (an evidence-based review): report of the Quality Standards Subcommittee of the American Academy of Neurology. Neurology, 2009; 73: 1227-1233.
-
(2009)
Neurology
, vol.73
, pp. 1227-1233
-
-
Miller, R.G.1
Jackson, C.E.2
Kasarskis, E.J.3
-
49
-
-
23944472852
-
When and how to initiate discussion about prognosis and end-of-life issues with terminally ill patients
-
Clayton JM, Butow PN, Tattersall MH. When and how to initiate discussion about prognosis and end-of-life issues with terminally ill patients. Journal of Pain and Symptom Management, 2005; 30: 132-144.
-
(2005)
Journal of Pain and Symptom Management
, vol.30
, pp. 132-144
-
-
Clayton, J.M.1
Butow, P.N.2
Tattersall, M.H.3
-
50
-
-
33750443508
-
User, carer and professional experiences of care in motor neurone disease
-
Brown JB. User, carer and professional experiences of care in motor neurone disease. Primary Health Care Research Development, 2003; 4: 207-217.
-
(2003)
Primary Health Care Research Development
, vol.4
, pp. 207-217
-
-
Brown, J.B.1
-
51
-
-
84855389061
-
Patients' perceptions of services and preferences for care in amyotrophic lateral sclerosis: a review
-
Foley G, Timonen V, Hardiman O. Patients' perceptions of services and preferences for care in amyotrophic lateral sclerosis: a review. Amyotrophic Lateral Sclerosis, 2012; 13: 11-24.
-
(2012)
Amyotrophic Lateral Sclerosis
, vol.13
, pp. 11-24
-
-
Foley, G.1
Timonen, V.2
Hardiman, O.3
-
52
-
-
77950175096
-
Multidisciplinary care for adults with amyotrophic lateral sclerosis or motor neuron disease
-
Ng L, Khan F, Mathers S. Multidisciplinary care for adults with amyotrophic lateral sclerosis or motor neuron disease. Cochrane Database System Review, 2009; 4: CD007425.
-
(2009)
Cochrane Database System Review
, vol.4
, pp. CD007425
-
-
Ng, L.1
Khan, F.2
Mathers, S.3
|