메뉴 건너뛰기




Volumn 7, Issue , 2013, Pages 171-181

What are the roles of carers in decision-making for amyotrophic lateral sclerosis multidisciplinary care?

Author keywords

Barriers and facilitators; Carer experience; Health care triad; Health literacy; Motor neuron disease; Patient centered care

Indexed keywords

ACCESS TO INFORMATION; ADULT; AGED; AMYOTROPHIC LATERAL SCLEROSIS; ARTICLE; CAREGIVER BURDEN; CAREGIVER SUPPORT; COGNITION; CONTROLLED STUDY; DISEASE ASSOCIATION; DOCTOR PATIENT RELATION; FAMILY COPING; FAMILY DECISION MAKING; FEMALE; FRIEND; HEALTH LITERACY; HEALTH PROMOTION; HUMAN; MALE; MEDICAL INFORMATION; OUTCOME ASSESSMENT; PATIENT ASSESSMENT; PATIENT ATTITUDE; PATIENT DECISION MAKING; PATIENT RIGHT; PHYSICIAN ATTITUDE; QUALITY OF LIFE; SOCIAL SUPPORT; SUPPORT GROUP; VERBAL COMMUNICATION;

EID: 84874804745     PISSN: None     EISSN: 1177889X     Source Type: Journal    
DOI: 10.2147/PPA.S40783     Document Type: Article
Times cited : (48)

References (65)
  • 1
    • 0032133661 scopus 로고    scopus 로고
    • Roles and influence of people who accompany patients on visits to the doctor
    • Brown JB, Brett P, Stewart M, Marshall JN. Roles and influence of people who accompany patients on visits to the doctor. Can Fam Physician. 1998;44:1644-1650.
    • (1998) Can Fam Physician. , vol.44 , pp. 1644-1650
    • Brown, J.B.1    Brett, P.2    Stewart, M.3    Marshall, J.N.4
  • 2
    • 0036323555 scopus 로고    scopus 로고
    • The third person in the room: Frequency, role, and influence of companions during primary care medical encounters
    • Schilling LM, Scatena L, Steiner JF, etal. The third person in the room: frequency, role, and influence of companions during primary care medical encounters. J Fam Pract. 2002;51(8):685-690.
    • (2002) J Fam Pract. , vol.51 , Issue.8 , pp. 685-690
    • Schilling, L.M.1    Scatena, L.2    Steiner, J.F.3
  • 3
  • 4
    • 12344306329 scopus 로고    scopus 로고
    • Autonomy-related behaviors of patient companions and their effect on decision-making activity in geriatric primary care visits
    • Clayman ML, Roter D, Wissow LS, Bandeen-Roche K. Autonomy-related behaviors of patient companions and their effect on decision-making activity in geriatric primary care visits. Soc Sci Med. 2005;60(7):1583-1591.
    • (2005) Soc Sci Med. , vol.60 , Issue.7 , pp. 1583-1591
    • Clayman, M.L.1    Roter, D.2    Wissow, L.S.3    Bandeen-Roche, K.4
  • 5
    • 47549112855 scopus 로고    scopus 로고
    • Hidden in plain sight: Medical visit companions as a resource for vulnerable older adults
    • Wolff JL, Roter DL. Hidden in plain sight: medical visit companions as a resource for vulnerable older adults. Arch Intern Med. 2008;168(13): 1409-1415.
    • (2008) Arch Intern Med. , vol.168 , Issue.13 , pp. 1409-1415
    • Wolff, J.L.1    Roter, D.L.2
  • 6
    • 79954539335 scopus 로고    scopus 로고
    • Shared decision-making in palliative care: A systematic mixed studies review using narrative synthesis
    • Bélanger E, Rodríguez C, Groleau D. Shared decision-making in palliative care: a systematic mixed studies review using narrative synthesis. Palliat Med. 2010;25(3):242-261.
    • (2010) Palliat Med. , vol.25 , Issue.3 , pp. 242-261
    • Bélanger, E.1    Rodríguez, C.2    Groleau, D.3
  • 7
    • 79952486262 scopus 로고    scopus 로고
    • Amyotrophic lateral sclerosis
    • Kiernan MC, Vucic S, Cheah BC, etal. Amyotrophic lateral sclerosis. Lancet. 2011;377(9769):942-955.
    • (2011) Lancet. , vol.377 , Issue.9769 , pp. 942-955
    • Kiernan, M.C.1    Vucic, S.2    Cheah, B.C.3
  • 9
    • 84874797594 scopus 로고    scopus 로고
    • What influences patient decision-making in amyotrophic lateral sclerosis multidisciplinary care? A study of patient perspectives
    • Hogden A, Greenfield D, Nugus P, Kiernan MC. What influences patient decision-making in amyotrophic lateral sclerosis multidisciplinary care? A study of patient perspectives. Patient Prefer Adherence. 2012;6: 829-838.
    • (2012) Patient Prefer Adherence. , vol.6 , pp. 829-838
    • Hogden, A.1    Greenfield, D.2    Nugus, P.3    Kiernan, M.C.4
  • 10
    • 77953731577 scopus 로고    scopus 로고
    • Some difficult decisions in ALS/MND
    • Oliver DJ, Turner MR. Some difficult decisions in ALS/MND. Amyotroph Lat Scler. 2010;11(4):339-343.
    • (2010) Amyotroph Lat Scler. , vol.11 , Issue.4 , pp. 339-343
    • Oliver, D.J.1    Turner, M.R.2
  • 11
    • 50849103335 scopus 로고    scopus 로고
    • A pilot study exploring the factors that influence the decision to have PEG feeding in patients with progressive conditions
    • Vesey S, Leslie P, Exley C. A pilot study exploring the factors that influence the decision to have PEG feeding in patients with progressive conditions. Dysphagia. 2008;23(3):310-316.
    • (2008) Dysphagia. , vol.23 , Issue.3 , pp. 310-316
    • Vesey, S.1    Leslie, P.2    Exley, C.3
  • 12
    • 33645761617 scopus 로고    scopus 로고
    • Management guidelines for motor neurone disease patients on non-invasive ventilation at home
    • Eng D. Management guidelines for motor neurone disease patients on non-invasive ventilation at home. Palliat Med. 2006;20(2):69-79.
    • (2006) Palliat Med. , vol.20 , Issue.2 , pp. 69-79
    • Eng, D.1
  • 13
  • 14
    • 84863085957 scopus 로고    scopus 로고
    • Planning wheelchair service provision in motor neurone disease: Implications for service delivery and commissioning
    • Rolfe J. Planning wheelchair service provision in motor neurone disease: implications for service delivery and commissioning. Br J Occup Ther. 2012;75(5):217-222.
    • (2012) Br J Occup Ther. , vol.75 , Issue.5 , pp. 217-222
    • Rolfe, J.1
  • 15
    • 0035522535 scopus 로고    scopus 로고
    • Service use and needs of people with motor neurone disease and their carers in Scotland
    • van Teijlingen ER, Friend E, Kamal AD. Service use and needs of people with motor neurone disease and their carers in Scotland. Health Soc Care Community. 2001;9(6):397-403.
    • (2001) Health Soc Care Community. , vol.9 , Issue.6 , pp. 397-403
    • van Teijlingen, E.R.1    Friend, E.2    Kamal, A.D.3
  • 16
    • 79952739161 scopus 로고    scopus 로고
    • Palliative care in amyotrophic lateral sclerosis: A review of current international guidelines and initiatives
    • Bede P, Oliver D, Stodart J, etal. Palliative care in amyotrophic lateral sclerosis: a review of current international guidelines and initiatives. J Neurol Neurosurg Psychiatry. 2011;82(4):413-418.
    • (2011) J Neurol Neurosurg Psychiatry. , vol.82 , Issue.4 , pp. 413-418
    • Bede, P.1    Oliver, D.2    Stodart, J.3
  • 17
    • 84855387661 scopus 로고    scopus 로고
    • Formal ventilation patient education for ALS predicts real-life choices
    • McKim DA, King J, Walker K, etal. Formal ventilation patient education for ALS predicts real-life choices. Amyotroph Lat Scler. 2012;13(1):59-65.
    • (2012) Amyotroph Lat Scler. , vol.13 , Issue.1 , pp. 59-65
    • McKim, D.A.1    King, J.2    Walker, K.3
  • 18
    • 0033595270 scopus 로고    scopus 로고
    • A prospective study of preferences and actual treatment choices in ALS
    • Albert SM, Murphy PL, Del Bene ML, Rowland LP. A prospective study of preferences and actual treatment choices in ALS. Neurology. 1999;53(2):278-283.
    • (1999) Neurology. , vol.53 , Issue.2 , pp. 278-283
    • Albert, S.M.1    Murphy, P.L.2    Del Bene, M.L.3    Rowland, L.P.4
  • 19
    • 79955815104 scopus 로고    scopus 로고
    • Multidisciplinary care in motor neurone disease
    • In: Kiernan MC, editor. Sydney: MJA Books
    • Hardiman O. Multidisciplinary care in motor neurone disease. In: Kiernan MC, editor. The Motor Neurone Disease Handbook. Sydney: MJA Books; 2007:164-174.
    • (2007) The Motor Neurone Disease Handbook. , pp. 164-174
    • Hardiman, O.1
  • 20
    • 36849039557 scopus 로고    scopus 로고
    • How would terminally ill patients have others make decisions for them in the event of decisional incapacity? A longitudinal study
    • Sulmasy DP, Hughes MT, Thompson RE, etal. How would terminally ill patients have others make decisions for them in the event of decisional incapacity? A longitudinal study. J Am Geriatr Soc. 2007;55(12): 1981-1988.
    • (2007) J Am Geriatr Soc. , vol.55 , Issue.12 , pp. 1981-1988
    • Sulmasy, D.P.1    Hughes, M.T.2    Thompson, R.E.3
  • 21
    • 48549103264 scopus 로고    scopus 로고
    • Family health care decision making and self-efficacy with patients with ALS at the end of life
    • Nolan MT, Kub J, Hughes MT, etal. Family health care decision making and self-efficacy with patients with ALS at the end of life. Palliat Support Care. 2008;6(3):273-280.
    • (2008) Palliat Support Care. , vol.6 , Issue.3 , pp. 273-280
    • Nolan, M.T.1    Kub, J.2    Hughes, M.T.3
  • 22
    • 39149129634 scopus 로고    scopus 로고
    • Why Oregon patients request assisted death: Family members' views
    • Ganzini L, Goy ER, Dobscha SK. Why Oregon patients request assisted death: family members' views. J Gen Intern Med. 2008;23(2): 154-157.
    • (2008) J Gen Intern Med. , vol.23 , Issue.2 , pp. 154-157
    • Ganzini, L.1    Goy, E.R.2    Dobscha, S.K.3
  • 23
    • 0032522694 scopus 로고    scopus 로고
    • The accuracy of substituted judgments in patients with terminal diagnoses
    • Sulmasy DP, Terry PB, Weisman CS, etal. The accuracy of substituted judgments in patients with terminal diagnoses. Ann Intern Med. 1998;128(8):621-629.
    • (1998) Ann Intern Med. , vol.128 , Issue.8 , pp. 621-629
    • Sulmasy, D.P.1    Terry, P.B.2    Weisman, C.S.3
  • 24
    • 84865574327 scopus 로고    scopus 로고
    • Australian Commission on Safety and Quality in Healthcare. Sydney: Australian Commission on Safety and Quality in Healthcare; Available from: Accessed December 31, 2012
    • Australian Commission on Safety and Quality in Healthcare. Patient-Centred Care: Improving Quality and Safety through Partnerships with Patients and Consumers. Sydney: Australian Commission on Safety and Quality in Healthcare; 2011. Available from: http://www.safetyandquality.gov.au/publications/patient-centred-care-improving-quality-and-safety-through-partnerships-with-patients-and-consumers/. Accessed December 31, 2012.
    • (2011) Patient-Centred Care: Improving Quality and Safety through Partnerships with Patients and Consumers.
  • 25
    • 0033018476 scopus 로고    scopus 로고
    • Decision-making in the physician-patient encounter: Revisiting the shared treatment decision-making model
    • Charles C, Gafni A, Whelan T. Decision-making in the physician-patient encounter: revisiting the shared treatment decision-making model. Soc Sci Med. 1999;49(5):651-661.
    • (1999) Soc Sci Med. , vol.49 , Issue.5 , pp. 651-661
    • Charles, C.1    Gafni, A.2    Whelan, T.3
  • 26
    • 84866929323 scopus 로고    scopus 로고
    • Shared decision making: A model for clinical practice
    • Elwyn G, Frosch D, Thomson R, etal. Shared decision making: a model for clinical practice. J Gen Intern Med. 2012;27(10):1361-1367.
    • (2012) J Gen Intern Med. , vol.27 , Issue.10 , pp. 1361-1367
    • Elwyn, G.1    Frosch, D.2    Thomson, R.3
  • 27
    • 33646671515 scopus 로고    scopus 로고
    • The effect of noninvasive ventilation on ALS patients and their caregivers
    • Mustfa N, Walsh E, Bryant V, etal. The effect of noninvasive ventilation on ALS patients and their caregivers. Neurology. 2006;66(8):1211-1217.
    • (2006) Neurology. , vol.66 , Issue.8 , pp. 1211-1217
    • Mustfa, N.1    Walsh, E.2    Bryant, V.3
  • 28
    • 84859984906 scopus 로고    scopus 로고
    • Motor Neurone Disease family carers' experiences of caring, palliative care and bereavement: An exploratory qualitative study
    • Aoun SM, Connors SL, Priddis L, Breen LJ, Colyer S. Motor Neurone Disease family carers' experiences of caring, palliative care and bereavement: an exploratory qualitative study. Palliat Med. 2012;26(6): 842-850.
    • (2012) Palliat Med. , vol.26 , Issue.6 , pp. 842-850
    • Aoun, S.M.1    Connors, S.L.2    Priddis, L.3    Breen, L.J.4    Colyer, S.5
  • 29
    • 78650140001 scopus 로고    scopus 로고
    • Burden, depression, and anxiety in caregivers of people with amyotrophic lateral sclerosis
    • Pagnini F, Rossi G, Lunetta C, etal. Burden, depression, and anxiety in caregivers of people with amyotrophic lateral sclerosis. Psychol Health Med. 2010;15(6):685-693.
    • (2010) Psychol Health Med. , vol.15 , Issue.6 , pp. 685-693
    • Pagnini, F.1    Rossi, G.2    Lunetta, C.3
  • 30
    • 33748702664 scopus 로고    scopus 로고
    • Caregiver bodywork: Family members' experiences of caring for a person with motor neurone disease
    • Ray RA, Street AF. Caregiver bodywork: family members' experiences of caring for a person with motor neurone disease. J Adv Nurs. 2006;56(1):35-43.
    • (2006) J Adv Nurs. , vol.56 , Issue.1 , pp. 35-43
    • Ray, R.A.1    Street, A.F.2
  • 32
    • 18844394047 scopus 로고    scopus 로고
    • Caregiver burden and patients' perception of being a burden in ALS
    • Chiò A, Gauthier A, Calvo A, Ghiglione P, Mutani R. Caregiver burden and patients' perception of being a burden in ALS. Neurology. 2005;64(10):1780-1782.
    • (2005) Neurology. , vol.64 , Issue.10 , pp. 1780-1782
    • Chiò, A.1    Gauthier, A.2    Calvo, A.3    Ghiglione, P.4    Mutani, R.5
  • 33
    • 83655181814 scopus 로고    scopus 로고
    • The need for support services for family carers of people with motor neurone disease (MND): Views of current and former family caregivers a qualitative study
    • O'Brien MR, Whitehead B, Jack BA, Mitchell JD. The need for support services for family carers of people with motor neurone disease (MND): views of current and former family caregivers a qualitative study. Disabil Rehabil. 2012;34(3):247-256.
    • (2012) Disabil Rehabil. , vol.34 , Issue.3 , pp. 247-256
    • O'Brien, M.R.1    Whitehead, B.2    Jack, B.A.3    Mitchell, J.D.4
  • 34
    • 79952960742 scopus 로고    scopus 로고
    • The dynamics of socio-connective trust within support networks accessed by informal caregivers
    • Ray RA, Street AF. The dynamics of socio-connective trust within support networks accessed by informal caregivers. Health. 2011;15(2):137-152.
    • (2011) Health. , vol.15 , Issue.2 , pp. 137-152
    • Ray, R.A.1    Street, A.F.2
  • 35
    • 33646450312 scopus 로고    scopus 로고
    • Social aspects of caregiving for people living with motor neurone disease: Their relationships to carer well-being
    • Love A, Street A, Harris R, Lowe R. Social aspects of caregiving for people living with motor neurone disease: their relationships to carer well-being. Palliat Support Care. 2005;3(1):33-38.
    • (2005) Palliat Support Care. , vol.3 , Issue.1 , pp. 33-38
    • Love, A.1    Street, A.2    Harris, R.3    Lowe, R.4
  • 37
    • 0015305935 scopus 로고
    • The nominal group as a research instrument for exploratory health studies
    • Van de Ven AH, Delbecq AL. The nominal group as a research instrument for exploratory health studies. Am J Pub Health. 1972;62(3): 337-342.
    • (1972) Am J Pub Health. , vol.62 , Issue.3 , pp. 337-342
    • Van de Ven, A.H.1    Delbecq, A.L.2
  • 38
    • 34447275959 scopus 로고    scopus 로고
    • Proof of love and other themes: A qualitative exploration of the experience of caring for people with motor neurone disease
    • Herz H, McKinnon P, Butow P. Proof of love and other themes: a qualitative exploration of the experience of caring for people with motor neurone disease. Prog Palliat Care. 2006;14(4):209-214.
    • (2006) Prog Palliat Care. , vol.14 , Issue.4 , pp. 209-214
    • Herz, H.1    McKinnon, P.2    Butow, P.3
  • 40
    • 73449138460 scopus 로고    scopus 로고
    • Development and validation of the Family Decision-Making Self-Efficacy Scale
    • Nolan MT, Hughes MT, Kub J, etal. Development and validation of the Family Decision-Making Self-Efficacy Scale. Palliat Support Care. 2009;7(3):315-321.
    • (2009) Palliat Support Care. , vol.7 , Issue.3 , pp. 315-321
    • Nolan, M.T.1    Hughes, M.T.2    Kub, J.3
  • 41
    • 27344447234 scopus 로고    scopus 로고
    • When patients lack capacity: The roles that patients with terminal diagnoses would choose for their physicians and loved ones in making medical decisions
    • Nolan MT, Hughes M, Narendra DP, etal. When patients lack capacity: the roles that patients with terminal diagnoses would choose for their physicians and loved ones in making medical decisions. J Pain Symptom Manage. 2005;30(4):342-353.
    • (2005) J Pain Symptom Manage. , vol.30 , Issue.4 , pp. 342-353
    • Nolan, M.T.1    Hughes, M.2    Narendra, D.P.3
  • 42
    • 79953120379 scopus 로고    scopus 로고
    • Family presence in routine medical visits: A meta-analytical review
    • Wolff JL, Roter DL. Family presence in routine medical visits: a meta-analytical review. Soc Sci Med. 2011;72(6):823-831.
    • (2011) Soc Sci Med. , vol.72 , Issue.6 , pp. 823-831
    • Wolff, J.L.1    Roter, D.L.2
  • 43
    • 0029878447 scopus 로고    scopus 로고
    • The key informant technique
    • Marshall MN. The key informant technique. Fam Pract. 1996;13(1):92-97.
    • (1996) Fam Pract. , vol.13 , Issue.1 , pp. 92-97
    • Marshall, M.N.1
  • 45
    • 33750505977 scopus 로고    scopus 로고
    • Using thematic analysis in psychology
    • Braun V, Clarke C. Using thematic analysis in psychology. Qual Res Psychol. 2006;3:77-101.
    • (2006) Qual Res Psychol. , vol.3 , pp. 77-101
    • Braun, V.1    Clarke, C.2
  • 46
    • 84860341192 scopus 로고    scopus 로고
    • Patient and family caregiver decision making in the context of advanced cancer
    • Edwards SB, Olson K, Koop PM, Northcott HC. Patient and family caregiver decision making in the context of advanced cancer. Cancer Nurs. 2012;35(3):178-186.
    • (2012) Cancer Nurs. , vol.35 , Issue.3 , pp. 178-186
    • Edwards, S.B.1    Olson, K.2    Koop, P.M.3    Northcott, H.C.4
  • 47
    • 0030435186 scopus 로고    scopus 로고
    • Perceptions of the role of cancer patients' companions during medical appointments
    • Beisecker A, Brecheisen M, Ashworth J, Hayes J. Perceptions of the role of cancer patients' companions during medical appointments. J Psychosoc Onc. 1996;14(4):29-45.
    • (1996) J Psychosoc Onc. , vol.14 , Issue.4 , pp. 29-45
    • Beisecker, A.1    Brecheisen, M.2    Ashworth, J.3    Hayes, J.4
  • 48
    • 84865461566 scopus 로고    scopus 로고
    • Is cancer care dependant on informal carers?
    • Olson RE. Is cancer care dependant on informal carers? Aust Health Rev. 2012;36(3):254-257.
    • (2012) Aust Health Rev. , vol.36 , Issue.3 , pp. 254-257
    • Olson, R.E.1
  • 49
    • 79955768404 scopus 로고    scopus 로고
    • Motor neurone disease: Carers' experiences, behaviour and coping methods
    • Gent C, McGarry J, Pinnington L. Motor neurone disease: carers' experiences, behaviour and coping methods. Br J Neurosci Nurs. 2009;5(12):567-573.
    • (2009) Br J Neurosci Nurs. , vol.5 , Issue.12 , pp. 567-573
    • Gent, C.1    McGarry, J.2    Pinnington, L.3
  • 50
    • 84874809830 scopus 로고    scopus 로고
    • Engaging in patient decision-making in multidisciplinary care for amyotrophic lateral sclerosis: The views of health professionals
    • Hogden A, Greenfield D, Nugus P, Kiernan MC. Engaging in patient decision-making in multidisciplinary care for amyotrophic lateral sclerosis: the views of health professionals. Patient Prefer Adherence. 2012;6:691-701.
    • (2012) Patient Prefer Adherence. , vol.6 , pp. 691-701
    • Hogden, A.1    Greenfield, D.2    Nugus, P.3    Kiernan, M.C.4
  • 51
    • 0035754729 scopus 로고    scopus 로고
    • Interviews with patients, family, and caregivers in amyotrophic lateral sclerosis: Comparing needs
    • Bolmsjö I, Hermerén G. Interviews with patients, family, and caregivers in amyotrophic lateral sclerosis: comparing needs. J Palliat Care. 2001;17(4):236-240.
    • (2001) J Palliat Care. , vol.17 , Issue.4 , pp. 236-240
    • Bolmsjö, I.1    Hermerén, G.2
  • 53
    • 37349011221 scopus 로고    scopus 로고
    • ALS patients and caregivers communication preferences and information seeking behaviour
    • Chiò A, Montuschi A, Cammarosano S, etal. ALS patients and caregivers communication preferences and information seeking behaviour. European J Neurol. 2008;15(1):55-60.
    • (2008) European J Neurol. , vol.15 , Issue.1 , pp. 55-60
    • Chiò, A.1    Montuschi, A.2    Cammarosano, S.3
  • 55
    • 84874802987 scopus 로고    scopus 로고
    • The personal experience of partners of individuals with motor neuron disease
    • Epub September 14
    • Oyebode JR, Smith HJ, Morrison K. The personal experience of partners of individuals with motor neuron disease. Amyotroph Lateral Scler. Epub September 14, 2012.
    • (2012) Amyotroph Lateral Scler.
    • Oyebode, J.R.1    Smith, H.J.2    Morrison, K.3
  • 56
    • 68949176951 scopus 로고    scopus 로고
    • Palliative care: A need for a family systems approach
    • Mehta A, Cohen SR, Chan LS. Palliative care: a need for a family systems approach. Palliat Support Care. 2009;7(2):235-243.
    • (2009) Palliat Support Care. , vol.7 , Issue.2 , pp. 235-243
    • Mehta, A.1    Cohen, S.R.2    Chan, L.S.3
  • 57
    • 0038339564 scopus 로고    scopus 로고
    • Burden of care in amyotrophic lateral sclerosis
    • Hecht MJ, Graesel E, Tigges S, etal. Burden of care in amyotrophic lateral sclerosis. Palliat Med. 2003;17(4):327-333.
    • (2003) Palliat Med. , vol.17 , Issue.4 , pp. 327-333
    • Hecht, M.J.1    Graesel, E.2    Tigges, S.3
  • 58
    • 79955782800 scopus 로고    scopus 로고
    • Managing hope, denial or temporal anomie? Informal cancer carers' accounts of spouses' cancer diagnoses
    • Olson RE. Managing hope, denial or temporal anomie? Informal cancer carers' accounts of spouses' cancer diagnoses. Soc Sci Med. 2011;73(6): 904-911.
    • (2011) Soc Sci Med. , vol.73 , Issue.6 , pp. 904-911
    • Olson, R.E.1
  • 59
    • 0037359958 scopus 로고    scopus 로고
    • Conflicts of interest: Experiences of close relatives of patients suffering from amyotrophic lateral sclerosis
    • Bolmsjö I, Hermerén G. Conflicts of interest: experiences of close relatives of patients suffering from amyotrophic lateral sclerosis. Nurs Ethics. 2003;10(2):186-198.
    • (2003) Nurs Ethics. , vol.10 , Issue.2 , pp. 186-198
    • Bolmsjö, I.1    Hermerén, G.2
  • 60
    • 84904420661 scopus 로고    scopus 로고
    • Dying with motor neurone disease, what can we learn from family caregivers?
    • Epub April 19
    • Ray RA, Brown J, Street AF. Dying with motor neurone disease, what can we learn from family caregivers? Health Expect. Epub April 19, 2012.
    • (2012) Health Expect.
    • Ray, R.A.1    Brown, J.2    Street, A.F.3
  • 61
    • 84860381148 scopus 로고    scopus 로고
    • Predictors of emergent feeding tubes and tracheostomies in amyotrophic lateral sclerosis (ALS)
    • Tsou AY, Karlawish J, McCluskey L, Xie SX, Long JA. Predictors of emergent feeding tubes and tracheostomies in amyotrophic lateral sclerosis (ALS). Amyotroph Lat Scler. 2012;13(3):318-325.
    • (2012) Amyotroph Lat Scler. , vol.13 , Issue.3 , pp. 318-325
    • Tsou, A.Y.1    Karlawish, J.2    McCluskey, L.3    Xie, S.X.4    Long, J.A.5
  • 62
    • 77956629840 scopus 로고    scopus 로고
    • Neurobehavioral symptoms in ALS are negatively related to caregivers' burden and quality of life
    • Chiò A, Vignola A, Mastro E, etal. Neurobehavioral symptoms in ALS are negatively related to caregivers' burden and quality of life. European J Neurol. 2010;17(10):1298-1303.
    • (2010) European J Neurol. , vol.17 , Issue.10 , pp. 1298-1303
    • Chiò, A.1    Vignola, A.2    Mastro, E.3
  • 64
    • 84866648680 scopus 로고    scopus 로고
    • A comparison of strategies to recruit older patients and carers to end-of-life research in primary care
    • Hanratty B, Lowson E, Holmes L, etal. A comparison of strategies to recruit older patients and carers to end-of-life research in primary care. BMC Health Serv Res. 2012;12(1):342.
    • (2012) BMC Health Serv Res. , vol.12 , Issue.1 , pp. 342
    • Hanratty, B.1    Lowson, E.2    Holmes, L.3


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.