Analysis of associations between congenital heart defect complexity and health-related quality of life using a meta-analytic strategy

International Journal of Cardiology

Volumn 199, Issue , 2015, Pages 197-203

  Kahr, Peter C ^a   Radke, Robert M ^a   Orwat, Stefan ^a   Baumgartner, Helmut ^a   Diller, Gerhard Paul ^a  

^a UNIVERSITY HOSPITAL MÜNSTER   (Germany)

Author keywords

Congenital heart disease; Meta analysis; Patient reported outcome measures; Quality of life; SF36

Indexed keywords

ARTICLE; CONGENITAL HEART MALFORMATION; DISEASE SEVERITY; EMOTION; FUNCTIONAL STATUS; HUMAN; MENTAL HEALTH; PHYSICAL ACTIVITY; PRIORITY JOURNAL; QUALITATIVE ANALYSIS; QUALITY OF LIFE; QUANTITATIVE ANALYSIS; SELF REPORT; SHORT FORM 36; SOCIAL INTERACTION; SYSTEMATIC REVIEW (TOPIC); ADULT; COMPLICATION; FEMALE; MALE; META ANALYSIS; PSYCHOLOGY; SATISFACTION; TREATMENT OUTCOME;

ADULT; FEMALE; HEART DEFECTS, CONGENITAL; HUMANS; MALE; PERSONAL SATISFACTION; QUALITY OF LIFE; TREATMENT OUTCOME;

EID: 84941630492     PISSN: 01675273     EISSN: 18741754     Source Type: Journal    
DOI: 10.1016/j.ijcard.2015.07.045     Document Type: Article

References (34)

1. B. Macmahon, T. McKeown, and R.G. Record The incidence and life expectation of children with congenital heart disease Br. Heart J. 15 1953 121 129
2. P. Moons, L. Bovijn, W. Budts, A. Belmans, and M. Gewillig Temporal trends in survival to adulthood among patients born with congenital heart disease from 1970 to 1992 in Belgium Circulation 122 2010 2264 2272 10.1161/CIRCULATIONAHA.110.946343
3. J.K. Perloff Pediatric congenital cardiac becomes a postoperative adult. The changing population of congenital heart disease Circulation 47 1973 606 619
4. W.Q. Group Study protocol for the World Health Organization project to develop a Quality of Life assessment instrument (WHOQOL) Qual. Life Res. 2 1993 153 159
5. T. Fteropoulli, J. Stygall, S. Cullen, J. Deanfield, and S.P. Newman Quality of life of adult congenital heart disease patients: a systematic review of the literature Cardiol. Young 23 2013 473 485 10.1017/S1047951112002351
6. R. Knowles, and et al. Newborn screening for congenital heart defects: a systematic review and cost-effectiveness analysis Health Technol. Assess. 9 2005 1 152 (iii-iv, doi:papers3://publication/uuid/B065D504-4C4A-4373-AF04-743C58ECFA98)
7. B. Latal, S. Helfricht, J.E. Fischer, U. Bauersfeld, and M.A. Landolt Psychological adjustment and quality of life in children and adolescents following open-heart surgery for congenital heart disease: a systematic review BMC Pediatr. 9 2009 6 10.1186/1471-2431-9-6
8. P. Moons, W. Budts, and S. De Geest Critique on the conceptualisation of quality of life: a review and evaluation of different conceptual approaches Int. J. Nurs. Stud. 43 2006 891 901 10.1016/j.ijnurstu.2006.03.015
9. C.A. Warnes, and et al. Task force 1: the changing profile of congenital heart disease in adult life J. Am. Coll. Cardiol. 37 2001 1170 1175
10. J.E. Ware Jr., and C.D. Sherbourne The MOS 36-item short-form health survey (SF-36). I. Conceptual framework and item selection Med. Care 30 1992 473 483
11. J.O. Friedrich, N.K. Adhikari, and J. Beyene The ratio of means method as an alternative to mean differences for analyzing continuous outcome variables in meta-analysis: a simulation study BMC Med. Res. Methodol. 8 2008 32 10.1186/1471-2288-8-32
12. W. Viechtbauer Conducting meta analyses in R with the metafor package J. Stat. Softw. 36 2010 1 48
13. H.I. Sairanen, H.P. Nieminen, and E.V. Jokinen Late results and quality of life after pediatric cardiac surgery in Finland: a population-based study of 6461 patients with follow-up extending up to 45 years Semin. Thorac. Cardiovasc. Surg. Pediatr. Card. Surg. Annu. 168-172 2005 10.1053/j.pcsu.2005.01.011
14. P. Opic, and et al. Psychosocial impact of implantable cardioverter defibrillators (ICD) in young adults with Tetralogy of Fallot Clin. Res. Cardiol. 101 2012 509 519 10.1007/s00392-012-0420-x
15. J. Farkas, S. Nabb, L. Zaletel-Kragelj, J.G. Cleland, and M. Lainscak Self-rated health and mortality in patients with chronic heart failure Eur. J. Heart Fail. 11 2009 518 524 10.1093/eurjhf/hfp038
16. J.S. Rumsfeld, and et al. Cardiovascular health: the importance of measuring patient-reported health status: a scientific statement from the American Heart Association Circulation 127 2013 2233 2249 10.1161/CIR.0b013e3182949a2e
17. A. Leplege, and S. Hunt The problem of quality of life in medicine JAMA 278 1997 47 50
18. A. Garratt, L. Schmidt, A. Mackintosh, and R. Fitzpatrick Quality of life measurement: bibliographic study of patient assessed health outcome measures BMJ 324 2002 1417
19. S.P. McKenna Measuring patient-reported outcomes: moving beyond misplaced common sense to hard science BMC Med. 9 2011 86 10.1186/1741-7015-9-86
20. P. Moons, and et al. Quality of life and health status in adults with congenital heart disease: a direct comparison with healthy counterparts Eur. J. Cardiovasc. Prev. Rehabil. 13 2006 407 413
21. S. Apers, K. Luyckx, and P. Moons Quality of life in adult congenital heart disease: what do we already know and what do we still need to know? Curr. Cardiol. Rep. 15 2013 407 10.1007/s11886-013-0407-x
22. P. Moons, and T.M. Norekval Is sense of coherence a pathway for improving the quality of life of patients who grow up with chronic diseases? A hypothesis Eur. J. Cardiovasc. Nurs. 5 2006 16 20 10.1016/j.ejcnurse.2005.10.009
23. S. Apers, and et al. Assessment of Patterns of Patient-Reported Outcomes in Adults with Congenital Heart disease - International Study (APPROACH-IS): rationale, design, and methods Int. J. Cardiol. 179 2015 334 342 10.1016/j.ijcard.2014.11.084
24. M. Vigl, and et al. The importance of socio-demographic factors for the quality of life of adults with congenital heart disease Qual. Life Res. 20 2011 169 177 10.1007/s11136-010-9741-2
25. C.-A. Chen, and et al. Quality of life in adults with congenital heart disease: biopsychosocial determinants and sex-related differences Heart 97 2011 38 43 10.1136/hrt.2010.200709
26. J.L. Jefferies, J.A. Noonan, B.B. Keller, J.F. Wilson, and C. Griffith Iii Quality of life and social outcomes in adults with congenital heart disease living in rural areas of Kentucky AJC 94 2004 263 266 10.1016/j.amjcard.2004.03.082
27. A. Gratz, J. Hess, and A. Hager Self-estimated physical functioning poorly predicts actual exercise capacity in adolescents and adults with congenital heart disease Eur. Heart J. 30 2009 497 504 10.1093/eurheartj/ehn531
28. V.C. Bruto, D.A. Harrison, P.W. Fedak, W. Rockert, and S.C. Siu Determinants of health-related quality of life in adults with congenital heart disease Congenit. Heart Dis. 2 2007 301 313 10.1111/j.1747-0803.2007.00117.x
29. P. Moons, and et al. Health status, functional abilities, and quality of life after the Mustard or Senning operation Ann. Thorac. Surg. 77 2004 1359 1365 10.1016/j.athoracsur.2003.09.073 (discussion 1365)
30. P. Moons, K. Van Deyk, S. De Geest, M. Gewillig, and W. Budts Is the severity of congenital heart disease associated with the quality of life and perceived health of adult patients? Heart 91 2005 1193 1198 10.1136/hrt.2004.042234
31. J.C. Lu, T.B. Cotts, P.P. Agarwal, A.K. Attili, and A.L. Dorfman Relation of right ventricular dilation, age of repair, and restrictive right ventricular physiology with patient-reported quality of life in adolescents and adults with repaired Tetralogy of Fallot Am. J. Cardiol. 106 2010 1798 1802 10.1016/j.amjcard.2010.08.021
32. E.H. van Rijen, and et al. Current subjective state of health, and longitudinal psychological well-being over a period of 10 years, in a cohort of adults with congenital cardiac disease Cardiol. Young 15 2005 168 175 10.1017/S1047951105000351
33. K. Luyckx, and et al. Parental support, internalizing symptoms, perceived health status, and quality of life in adolescents with congenital heart disease: influences and reciprocal effects J. Behav. Med. 37 2014 145 155 10.1007/s10865-012-9474-5
34. P. Moons, K. Van Deyk, W. Budts, and S. De Geest Caliber of quality-of-life assessments in congenital heart disease: a plea for more conceptual and methodological rigor Arch. Pediatr. Adolesc. Med. 158 2004 1062 1069 10.1001/archpedi.158.11.1062