메뉴 건너뛰기




Volumn 23, Issue 4, 2013, Pages 473-485

Quality of life of adult congenital heart disease patients: A systematic review of the literature

Author keywords

adult; adults with congenital heart disease; congenital heart disease; GUCH; Quality of life; severity

Indexed keywords

ADULT DISEASE; CONGENITAL HEART DISEASE; CYANOSIS; DIAGNOSTIC PROCEDURE; DISEASE CLASSIFICATION; DISEASE SEVERITY; ENVIRONMENTAL FACTOR; EVIDENCE BASED MEDICINE; EXERCISE; FUNCTIONAL STATUS; HEART ARRHYTHMIA; HEART SURGERY; HEART VENTRICLE FUNCTION; HUMAN; OCCUPATION; PALLIATIVE THERAPY; PHYSICAL CAPACITY; QUALITY OF LIFE; QUANTITATIVE ANALYSIS; REVIEW; RISK FACTOR; SOCIAL PSYCHOLOGY; STUDY DESIGN; SYSTEMATIC REVIEW;

EID: 84880241441     PISSN: 10479511     EISSN: 14671107     Source Type: Journal    
DOI: 10.1017/S1047951112002351     Document Type: Review
Times cited : (90)

References (43)
  • 3
    • 1642338383 scopus 로고    scopus 로고
    • The World Health Organization' s WHOQOLBREF quality of life assessment: Psychometric properties and results of the international field trial A report from the WHOQOL group
    • Skevington SM, Lotfy M, O'Connell KA. The World Health Organization's WHOQOLBREF quality of life assessment: psychometric properties and results of the international field trial. A report from the WHOQOL group. Qual Life Res 2004; 13: 299-310.
    • (2004) Qual Life Res , vol.13 , pp. 299-310
    • Skevington, S.M.1    Lotfy, M.2    O'connell, K.3
  • 4
    • 23644437528 scopus 로고    scopus 로고
    • Biopsychosocial experiences of adults with congenital heart disease: Review of the literature
    • Kovacs AH, Sears SF, Saidi AS. Biopsychosocial experiences of adults with congenital heart disease: review of the literature. Am Heart J 2005; 150: 193-201.
    • (2005) Am Heart J , vol.150 , pp. 193-201
    • Kovacs, A.H.1    Sears, S.F.2    Saidi, A.S.3
  • 7
    • 34548715202 scopus 로고    scopus 로고
    • Determinants of healthrelated quality of life in adults with congenital heart disease
    • Bruto VC, Harrison DA, Fedak PWM. Determinants of healthrelated quality of life in adults with congenital heart disease. Congenit Heart Dis 2007; 2: 301-313.
    • (2007) Congenit Heart Dis , vol.2 , pp. 301-313
    • Bruto, V.C.1    Harrison, D.A.2    Fedak, P.W.M.3
  • 8
    • 78651261377 scopus 로고    scopus 로고
    • Quality of life in adults with congenital heart disease: Biopsychosocial determinants and sex-related differences
    • Chen CA, Liao SC, Wang JK, et al. Quality of life in adults with congenital heart disease: biopsychosocial determinants and sex-related differences. Heart 2011; 97: 38-43.
    • (2011) Heart , vol.97 , pp. 38-43
    • Chen, C.A.1    Liao, S.C.2    Wang, J.K.3
  • 9
    • 77649192267 scopus 로고    scopus 로고
    • Psychological functioning and health-related quality of life (HRQoL) in older patients following percutaneous closure of the secundum atrial septal defect (ASD)
    • Cohen M, Daniela M, Yalonetsky S, Gagin R, Lorber A. Psychological functioning and health-related quality of life (HRQoL) in older patients following percutaneous closure of the secundum atrial septal defect (ASD). Arch Gerontol Geriatr 2010; 50: e5-e8.
    • (2010) Arch Gerontol Geriatr , vol.50
    • Cohen, M.1    Daniela, M.2    Yalonetsky, S.3    Gagin, R.4    Lorber, A.5
  • 10
    • 12744255133 scopus 로고    scopus 로고
    • Health related quality of life in adults with repaired tetralogy of Fallot: Psychosocial and cognitive outcomes
    • Daliento L, Mapelli D, Russo G, et al. Health related quality of life in adults with repaired tetralogy of Fallot: psychosocial and cognitive outcomes. Heart 2005; 91: 213-218.
    • (2005) Heart , vol.91 , pp. 213-218
    • Daliento, L.1    Mapelli, D.2    Russo, G.3
  • 11
    • 34547462681 scopus 로고    scopus 로고
    • Long-term functional outcome of patients following the Mustard procedure: The next decade of follow-up
    • Ebenroth ES, Hurwitz RA. Long-term functional outcome of patients following the Mustard procedure: the next decade of follow-up. Congenit Heart Dis 2007; 2: 235-241.
    • (2007) Congenit Heart Dis , vol.2 , pp. 235-241
    • Ebenroth, E.S.1    Hurwitz, R.A.2
  • 12
    • 60749125533 scopus 로고    scopus 로고
    • Self-estimated physical functioning poorly predicts actual exercise capacity in adolescents and adults with congenital heart disease
    • Gratz A, Hess J, Hager A. Self-estimated physical functioning poorly predicts actual exercise capacity in adolescents and adults with congenital heart disease. Eur Heart J 2009; 30: 497-504.
    • (2009) Eur Heart J , vol.30 , pp. 497-504
    • Gratz, A.1    Hess, J.2    Hager, A.3
  • 13
    • 15844376336 scopus 로고    scopus 로고
    • Comparison of health related quality of life with cardiopulmonary exercise testing in adolescents and adults with congenital heart disease
    • Hager A, Hess J. Comparison of health related quality of life with cardiopulmonary exercise testing in adolescents and adults with congenital heart disease. Heart 2005; 91: 517-520.
    • (2005) Heart , vol.91 , pp. 517-520
    • Hager, A.1    Hess, J.2
  • 14
    • 17644420322 scopus 로고    scopus 로고
    • Quality of life and specific problems after cardiac surgery in adolescents and adults with congenital heart diseases
    • Immer FF, Althaus SM, Berdat PA, Saner H, Carrel TP. Quality of life and specific problems after cardiac surgery in adolescents and adults with congenital heart diseases. Eur J Cardiovasc Prev Rehabil 2005; 12: 138-143.
    • (2005) Eur J Cardiovasc Prev Rehabil , vol.12 , pp. 138-143
    • Immer, F.F.1    Althaus, S.M.2    Berdat, P.A.3    Saner, H.4    Carrel, T.P.5
  • 15
    • 28644438058 scopus 로고    scopus 로고
    • Impact of arrhythmias on health-related quality of life in adults with congenital cardiac disease
    • Irtel TA, Vetter C, Stuber T, et al. Impact of arrhythmias on health-related quality of life in adults with congenital cardiac disease. Cardiol Young 2005; 15: 627-631.
    • (2005) Cardiol Young , vol.15 , pp. 627-631
    • Irtel, T.A.1    Vetter, C.2    Stuber, T.3
  • 16
    • 3142602894 scopus 로고    scopus 로고
    • Quality of life and social outcomes in adults with congenital heart disease living in rural areas of Kentucky
    • Jefferies JL, Noonan JA, Keller BB, Wilson JF, Griffith C III. Quality of life and social outcomes in adults with congenital heart disease living in rural areas of Kentucky. Am J Cardiol 2004; 94: 263-266.
    • (2004) Am J Cardiol , vol.94 , pp. 263-266
    • Jefferies, J.L.1    Noonan, J.A.2    Keller, B.B.3    Wilson, J.F.4    Iii., G.C.5
  • 17
    • 1942425876 scopus 로고    scopus 로고
    • The need for cardiac follow-up in adults with mild congenital cardiac disease
    • Kamphuis M, Vliegen HW, Vogels T, et al. The need for cardiac follow-up in adults with mild congenital cardiac disease. Cardiol Young 2002a; 12: 74-478.
    • (2002) Cardiol Young , vol.12 , pp. 74-478
    • Kamphuis, M.1    Vliegen, H.W.2    Vogels, T.3
  • 18
    • 0036217798 scopus 로고    scopus 로고
    • Health related quality of life and health status in adult survivors with previously operated complex congenital heart disease
    • Kamphuis M, Ottenkamp J, Vliegen HW, et al. Health related quality of life and health status in adult survivors with previously operated complex congenital heart disease. Heart 2002b; 87: 356-362.
    • (2002) Heart , vol.87 , pp. 356-362
    • Kamphuis, M.1    Ottenkamp, J.2    Vliegen, H.W.3
  • 19
    • 0036089152 scopus 로고    scopus 로고
    • Quality of life in adults with congenital heart disease
    • Lane DA, Lip GYH, Millane TA. Quality of life in adults with congenital heart disease. Heart 2002; 88: 71-75.
    • (2002) Heart , vol.88 , pp. 71-75
    • Lane, D.A.1    Lip, G.Y.H.2    Millane, T.A.3
  • 21
    • 78649710210 scopus 로고    scopus 로고
    • Relation of right ventricular dilation, age of repair, and restrictive right ventricular physiology with patient-reported quality of life in adolescents and adults with repaired tetralogy of Fallot
    • Lu JC, Cotts TB, Agarwal PP, Attili AK, Dorfman AL. Relation of right ventricular dilation, age of repair, and restrictive right ventricular physiology with patient-reported quality of life in adolescents and adults with repaired tetralogy of Fallot. Am J Cardiol 2010; 106: 1798-1802.
    • (2010) Am J Cardiol , vol.106 , pp. 1798-1802
    • Lu, J.C.1    Cotts, T.B.2    Agarwal, P.P.3    Attili, A.K.4    Dorfman, A.L.5
  • 22
    • 80051555962 scopus 로고    scopus 로고
    • Clinical outcome and health-related quality of life after right-ventricularoutflow- tract reconstruction with an allograft conduit
    • Mokhles MM, van de Woestijne PC, de Jong PL, et al. Clinical outcome and health-related quality of life after right-ventricularoutflow- tract reconstruction with an allograft conduit. Eur J Cardiothorac Surg 2011; 40: 571-578.
    • (2011) Eur J Cardiothorac Surg , vol.40 , pp. 571-578
    • Mokhles, M.M.1    Van De Woestijne, P.C.2    De Jong, P.L.3
  • 23
    • 11144354400 scopus 로고    scopus 로고
    • Health status, functional abilities, and quality of life after the Mustard or Senning operation
    • Moons P, De Bleser L, Budts W, et al. Health status, functional abilities, and quality of life after the Mustard or Senning operation. Ann Thorac Surg 2004; 77: 1359-1365.
    • (2004) Ann Thorac Surg , vol.77 , pp. 1359-1365
    • Moons, P.1    De Bleser, L.2    Budts, W.3
  • 24
    • 23944498070 scopus 로고    scopus 로고
    • Is the severity of congenital heart disease associated with the quality of life and perceived health of adult patients?
    • Moons P, Van Deyk K, De Geest S, Gewillig M, Budts W. Is the severity of congenital heart disease associated with the quality of life and perceived health of adult patients? Heart 2005; 91: 1193-1198.
    • (2005) Heart , vol.91 , pp. 1193-1198
    • Moons, P.1    Van Deyk, K.2    De Geest, S.3    Gewillig, M.4    Budts, W.5
  • 25
    • 33748268904 scopus 로고    scopus 로고
    • Quality of life and health status in adults with congenital heart disease: A direct comparison with healthy counterparts
    • Moons P, Van Deyk K, De Bleser L, et al. Quality of life and health status in adults with congenital heart disease: a direct comparison with healthy counterparts. Eur J Cardiovasc Prev Rehabil 2006; 13: 407-413.
    • (2006) Eur J Cardiovasc Prev Rehabil , vol.13 , pp. 407-413
    • Moons, P.1    Van Deyk, K.2    De Bleser, L.3
  • 26
    • 79960179710 scopus 로고    scopus 로고
    • Exercise performance and quality of life is more impaired in Eisenmenger syndrome than in complex cyanotic congenital heart disease with pulmonary stenosis
    • Muller J, Hess J, Hager A. Exercise performance and quality of life is more impaired in Eisenmenger syndrome than in complex cyanotic congenital heart disease with pulmonary stenosis. Int J Cardiol 2010; 150: 177-181.
    • (2010) Int J Cardiol , vol.150 , pp. 177-181
    • Muller, J.1    Hess, J.2    Hager, A.3
  • 27
    • 0036828776 scopus 로고    scopus 로고
    • Negative thoughts in adults with congenital heart disease
    • Rietveld S, Mulder BJM, van Beest I, et al. Negative thoughts in adults with congenital heart disease. Int J Cardiol 2002; 86: 19-26.
    • (2002) Int J Cardiol , vol.86 , pp. 19-26
    • Rietveld, S.1    Mulder, B.J.M.2    Van Beest, I.3
  • 29
    • 0034758383 scopus 로고    scopus 로고
    • Quality of life and perceived health status in surviving adults with univentricular heart
    • Saliba Z, Butera G, Bonnet D, et al. Quality of life and perceived health status in surviving adults with univentricular heart. Heart 2001; 86: 69-73.
    • (2001) Heart , vol.86 , pp. 69-73
    • Saliba, Z.1    Butera, G.2    Bonnet, D.3
  • 30
    • 0037314421 scopus 로고    scopus 로고
    • Quality of life experienced by adults with congenital heart disease
    • Simko LC, McGinnis KA. Quality of life experienced by adults with congenital heart disease. AACN Adv Crit Care 2003; 14: 42-53.
    • (2003) AACN Adv Crit Care , vol.14 , pp. 42-53
    • Simko, L.C.1    McGinnis, K.A.2
  • 31
    • 20644452864 scopus 로고    scopus 로고
    • What is the perceived quality of life of adults with congenital heart disease and does it differ by anomalY
    • Simko LC, McGinnis KA. What is the perceived quality of life of adults with congenital heart disease and does it differ by anomalY JCN 2005; 20: 206-214.
    • (2005) JCN , vol.20 , pp. 206-214
    • Simko, L.C.1    McGinnis, K.2
  • 32
    • 0035121845 scopus 로고    scopus 로고
    • Quality of life 20 and 30 years after surgery in patients operated on for tetralogy of Fallot and for atrial septal defect
    • Ternestedt B-M, Wall K, Oddsson H, Riesenfeld T, Groth I, Schollin J. Quality of life 20 and 30 years after surgery in patients operated on for tetralogy of Fallot and for atrial septal defect. Pediatr Cardiol 2001; 22: 128-132.
    • (2001) Pediatr Cardiol , vol.22 , pp. 128-132
    • Ternestedt, B.-M.1    Wall, K.2    Oddsson, H.3    Riesenfeld, T.4    Groth, I.5    Schollin, J.6
  • 34
    • 54549093795 scopus 로고    scopus 로고
    • Relation of physical activity, cardiac function, exercise capacity, and quality of life in patients with systemic right ventricle
    • Winter MM, Bouma BJ, van Dijk APJ, et al. Relation of physical activity, cardiac function, exercise capacity, and quality of life in patients with systemic right ventricle. Am J Cardiol 2008; 102: 1258-1262.
    • (2008) Am J Cardiol , vol.102 , pp. 1258-1262
    • Winter, M.M.1    Bouma, B.J.2    Van Dijk, A.P.J.3
  • 35
    • 77957753970 scopus 로고    scopus 로고
    • Sexuality in adult patients with congenital heart disease and their partners
    • Winter MM, Reisma C, Kedde H, et al. Sexuality in adult patients with congenital heart disease and their partners. Am J Cardiol 2010; 106: 1163-1168.
    • (2010) Am J Cardiol , vol.106 , pp. 1163-1168
    • Winter, M.M.1    Reisma, C.2    Kedde, H.3
  • 36
    • 14644394353 scopus 로고    scopus 로고
    • Longitudinal development of psychopathology in an adult congenital heart disease cohort
    • van Rijen EHM, Utens EMWJ, Roos-Hesselink JW, et al. Longitudinal development of psychopathology in an adult congenital heart disease cohort. Int J Cardiol 2005; 99: 315-323.
    • (2005) Int J Cardiol , vol.99 , pp. 315-323
    • Van Rijen, E.H.M.1    Utens, E.M.W.J.2    Roos-Hesselink, J.W.3
  • 37
    • 13844254309 scopus 로고    scopus 로고
    • What does it mean to live with a congenital heart disease? A qualitative study on the lived experiences of adult patients
    • Claessens P, Moons P, de Casterlé BD, Cannaerts N, Budts W, Gewillig M. What does it mean to live with a congenital heart disease? A qualitative study on the lived experiences of adult patients. Eur J Cardiovasc Nurs 2005; 4: 3-10.
    • (2005) Eur J Cardiovasc Nurs , vol.4 , pp. 3-10
    • Claessens, P.1    Moons, P.2    De Casterlé, B.D.3    Cannaerts, N.4    Budts, W.5    Gewillig, M.6
  • 38
    • 32244446024 scopus 로고    scopus 로고
    • Is sense of coherence a pathway for improving the quality of life of patients who grow up with chronic diseases? A hypothesis
    • Moons P, Norekvai TM. Is sense of coherence a pathway for improving the quality of life of patients who grow up with chronic diseases? A hypothesis. Eur J Cardiovasc Nurs 2005; 5: 16-20.
    • (2005) Eur J Cardiovasc Nurs , vol.5 , pp. 16-20
    • Moons, P.1    Norekvai, T.M.2
  • 39
    • 0033022984 scopus 로고    scopus 로고
    • Methodological approaches for assessing response shift in longitudinal health-related quality-oflife research
    • Schwartz CE, Sprangers MAG. Methodological approaches for assessing response shift in longitudinal health-related quality-oflife research. Soc Sci Med 1999; 48: 1531-1548.
    • (1999) Soc Sci Med , vol.48 , pp. 1531-1548
    • Schwartz, C.E.1    Sprangers, M.A.G.2
  • 40
    • 67349213210 scopus 로고    scopus 로고
    • Profile of adults with congenital heart disease having a good, moderate, or poor quality of life: A cluster analytic study
    • Moons P, van Deyk K, Marquet K, De Bleser L, De Geest S, Budts W. Profile of adults with congenital heart disease having a good, moderate, or poor quality of life: a cluster analytic study. Eur J Cardiovasc Nurs 2009; 8: 151-157.
    • (2009) Eur J Cardiovasc Nurs , vol.8 , pp. 151-157
    • Moons, P.1    Van Deyk, K.2    Marquet, K.3    De Bleser, L.4    De Geest, S.5    Budts, W.6
  • 41
    • 0032809256 scopus 로고    scopus 로고
    • Distinguishing between quality of life and health status in quality of life research: A metaanalysis
    • Smith KW, Avis NE, Assmann SF. Distinguishing between quality of life and health status in quality of life research: a metaanalysis. Qual Life Res 1999; 8: 447-459.
    • (1999) Qual Life Res , vol.8 , pp. 447-459
    • Smith, K.W.1    Avis, N.E.2    Assmann, S.F.3
  • 42
    • 33846208380 scopus 로고    scopus 로고
    • Health-related quality of life: A closer look at related research in patients who have undergone the Fontan operation over the last decade
    • Pike NA, Evangelista LS, Doering LV, Koniak-Griffin D, Lewis AB, Child AS. Health-related quality of life: a closer look at related research in patients who have undergone the Fontan operation over the last decade. Heart Lung 2007; 36 (1): 3-15.
    • (2007) Heart Lung , vol.36 , Issue.1 , pp. 3-15
    • Pike, N.A.1    Evangelista, L.S.2    Doering, L.V.3    Koniak-Griffin, D.4    Lewis, A.B.5    Child, A.S.6
  • 43
    • 7644226158 scopus 로고    scopus 로고
    • Caliber of qualityof- life assessments in congenital heart disease
    • Moons P, van Deyk K, Budts W, De Geest S. Caliber of qualityof- life assessments in congenital heart disease. Arch Pediatr Adolesc Med 2004; 158: 1062-1069.
    • (2004) Arch Pediatr Adolesc Med , vol.158 , pp. 1062-1069
    • Moons, P.1    Van Deyk, K.2    Budts, W.3    De Geest, S.4


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.