The importance of socio-demographic factors for the quality of life of adults with congenital heart disease

Quality of Life Research

Volumn 20, Issue 2, 2011, Pages 169-177

  Vigl, Matthäus ^a   Niggemeyer, Eva ^a   Hager, Alfred ^b   Schwedler, Gerda ^a   Kropf, Siegfried ^c   Bauer, Ulrike ^a  

^a DEUTSCHES HERZZENTRUM BERLIN   (Germany)

^b TECHNICAL UNIVERSITY OF MUNICH   (Germany)

^c OTTO VON GUERICKE UNIVERSITY   (Germany)

Author keywords

Adults; Chronic disease; Congenital heart disease; Quality of life; Socio demographic factors

Indexed keywords

ADULT; ARTICLE; CHRONIC DISEASE; CONGENITAL HEART MALFORMATION; CROSS-SECTIONAL STUDY; ECONOMICS; FEMALE; HOSPITALIZATION; HUMAN; MALE; MIDDLE AGED; PATHOPHYSIOLOGY; PSYCHOLOGICAL ASPECT; QUALITY OF LIFE; SOCIOECONOMICS;

ADULT; CHRONIC DISEASE; CROSS-SECTIONAL STUDIES; FEMALE; HEART DEFECTS, CONGENITAL; HUMANS; MALE; MIDDLE AGED; QUALITY OF LIFE; SEVERITY OF ILLNESS INDEX; SOCIOECONOMIC FACTORS; YOUNG ADULT;

EID: 79952251526     PISSN: 09629343     EISSN: None     Source Type: Journal    
DOI: 10.1007/s11136-010-9741-2     Document Type: Article

References (34)

1. L Daliento D Mapelli G Russo P Scarso F Limongi P Iannizzi, et al. 2005 Health related quality of life in adults with repaired tetralogy of Fallot: psychosocial and cognitive outcomes Heart 91 2 213 218 1:STN:280: DC%2BD2M%2FjtVahsA%3D%3D 10.1136/hrt.2003.029280 15657236
2. KA Mussatto 2006 Beyond survival: what are the outcomes that really matter to our patients? Cardiology in the Young 16 2 125 127 10.1017/S1047951106000035 16553972 (Pubitemid 44269391)
3. IB Wilson PD Cleary 1995 Linking clinical variables with health-related quality of life. A conceptual model of patient outcomes Journal of the American Medical Association 273 1 59 65 1:STN:280:DyaK2M%2FovFWgtA%3D%3D 10.1001/jama.273.1.59 7996652
4. P Moons K Van Deyk S De Geest M Gewillig W Budts 2005 Is the severity of congenital heart disease associated with the quality of life and perceived health of adult patients? Heart 91 9 1193 1198 1:STN:280:DC%2BD2MvjsFOnsg%3D%3D 10.1136/hrt.2004.042234 16103557 (Pubitemid 41192398)
5. YE Balon KL Then JA Rankin T Fung 2008 Looking beyond the biophysical realm to optimize health: results of a survey of psychological well-being in adults with congenital cardiac disease Cardiology in the Young 18 5 494 501 10.1017/S1047951108002606 18634713
6. A Hager J Hess 2005 Comparison of health related quality of life with cardiopulmonary exercise testing in adolescents and adults with congenital heart disease Heart 91 4 517 520 1:STN:280:DC%2BD2M7ktVSjtg%3D%3D 10.1136/hrt.2003.032722 15772218 (Pubitemid 40432788)
7. H Hemingway A Nicholson M Stafford R Roberts M Marmot 1997 The impact of socioeconomic status on health functioning as assessed by the SF-36 questionnaire: the Whitehall II Study American Journal of Public Health 87 9 1484 1490 1:STN:280:DyaK2svmtVCiuw%3D%3D 10.2105/AJPH.87.9.1484 9314801 (Pubitemid 27415006)
8. Grobe, T. G.; & Schwartz, F. W. (2003). Arbeitslosigkeit und Gesundheit. Berlin: Robert Koch Institut.
9. P Moons K Van Deyk K Marquet L De Bleser S De Geest W Budts 2009 Profile of adults with congenital heart disease having a good, moderate, or poor quality of life: A cluster analytic study European Journal of Cardiovascular Nursing 8 2 151 157 10.1016/j.ejcnurse.2008.11.001 19097943
10. Z Saliba G Butera D Bonnet P Bonhoeffer E Villain J Kachaner, et al. 2001 Quality of life and perceived health status in surviving adults with univentricular heart Heart 86 1 69 73 1:STN:280:DC%2BD3Mzksleltw%3D%3D 10.1136/heart.86.1.69 11410565 (Pubitemid 32977784)
11. J Kokkonen T Paavilainen 1992 Social adaptation of young adults with congenital heart disease International Journal of Cardiology 36 1 23 29 1:STN:280:DyaK3s%2Flt1yrug%3D%3D 10.1016/0167-5273(92)90104-B 1428249
12. Robert Koch Institut. (2000). Public Use File BGS98, Bundesgesundheitssurvey 1998. Berlin: Robert Koch Institut.
13. Bullinger, M.; Ravens-Sieberer, U.; & Siegrist, J. (2000). Gesundheitsbezogene Lebensqualität in der Medizin-eine Einführung. In M. Bullinger, U. Ravens-Sieberer, & J. Siegrist (Eds.), Lebensqualitä tsforschung aus medizinpsychologischer und soziologischer Perspektive. Jahrbuch der Medizinischen Psychologie. Band 18 (pp. 12-21). Göttingen Bern Toronto Seattle: Hogrefe.
14. Bullinger, M.; & Kirchberger, I. (1998). SF-36 Fragebogen zum Gesundheitszustand, Handanweisungen. Göttingen: Hogrefe Verlag für Psychologie.
15. CA McHorney JE Ware Jr AE Raczek 1993 The MOS 36-Item Short-Form Health Survey (SF-36): II. Psychometric and clinical tests of validity in measuring physical and mental health constructs Medical Care 31 3 247 263 1:STN:280:DyaK3s7ps1antA%3D%3D 10.1097/00005650-199303000-00006 8450681
16. M Bullinger 1995 German translation and psychometric testing of the SF-36 Health Survey: preliminary results from the IQOLA Project. International Quality of Life Assessment Social Science and Medicine 41 10 1359 1366 1:STN:280:DyaK287jtFygsw%3D%3D 10.1016/0277-9536(95)00115-N 8560303
17. DS Bailis A Segall JG Chipperfield 2003 Two views of self-rated general health status Social Science and Medicine 56 2 203 217 10.1016/S0277-9536(02) 00020-5 12473308 (Pubitemid 35430335)
18. EL Idler LB Russell D Davis 2001 Survival, functional limitations, self-rated health in the NHANES I Epidemiologic Follow-up Study, 1992. First National Health and Nutrition Examination Survey American Journal of Epidemiology 152 9 874 883 10.1093/aje/152.9.874
19. EL Idler Y Benyamini 1997 Self-Rated Health and Mortality: A Review of Twenty-Seven Community Studies Journal of Health and Social Behavior 38 1 21 37 1:STN:280:DyaK2s3ltF2jsg%3D%3D 10.2307/2955359 9097506 (Pubitemid 127454450)
20. KB DeSalvo N Bloser K Reynolds J He P Muntner 2006 Mortality prediction with a single general self-rated health question. A meta-analysis Journal of General Internal Medicine 21 3 267 275 10.1111/j.1525-1497.2005.00291.x 16336622
21. T Beckie L Hayduk 1997 Measuring quality of life Social Indicators Research 42 1 21 39 10.1023/A:1006881931793 (Pubitemid 127508934)
22. Sloan, J.A.; Aaronson, N.; Cappelleri, J.C.; Fairclough, D.L.; Varricchio, C.,Clinical Significance Consensus Meeting Group. (2002). Assessing the clinical significance of single items relative to summated scores. Mayo Clinic Proceedings, 77(5), 479-87. (Pubitemid 34465156)
23. Y Chida A Steptoe 2008 Positive psychological well-being and mortality: a quantitative review of prospective observational studies Psychosomatic Medicine 70 7 741 756 10.1097/PSY.0b013e31818105ba 18725425
24. AG de Boer JJ van Lanschot PF Stalmeier JW van Sandick JB Hulscher JC de Haes, et al. 2004 Is a single-item visual analogue scale as valid, reliable and responsive as multi-item scales in measuring quality of life? Quality of Life Research 13 2 311 320 10.1023/B:QURE.0000018499.64574.1f 15085903 (Pubitemid 38392259)
25. CA Warnes R Liberthson GK Danielson A Dore L Harris JI Hoffman, et al. 2001 Task force 1: the changing profile of congenital heart disease in adult life Journal of the American College of Cardiology 37 5 1170 1175 1:STN:280:DC%2BD3M3gvFGrsg%3D%3D 10.1016/S0735-1097(01)01272-4 11300418
26. GC Chow 1960 Tests of equality between sets of coefficients in two linear regression Econometrica 26 3 591 605 10.2307/1910133
27. EH van Rijen EM Utens JW Roos-Hesselink FJ Meijboom RT van Domburg JR Roelandt, et al. 2005 Current subjective state of health, and longitudinal psychological well-being over a period of 10 years, in a cohort of adults with congenital cardiac disease Cardiology in the Young 15 2 168 175 10.1017/S1047951105000351 15845160 (Pubitemid 41388077)
28. M Kamphuis J Ottenkamp HW Vliegen T Vogels KH Zwinderman RP Kamphuis, et al. 2002 Health related quality of life and health status in adult survivors with previously operated complex congenital heart disease Heart 87 4 356 362 1:STN:280:DC%2BD387nsVGqtw%3D%3D 10.1136/heart.87.4.356 11907011 (Pubitemid 34270949)
29. JL Jefferies JA Noonan BB Keller JF Wilson C Griffith 2004 3rd, Quality of life and social outcomes in adults with congenital heart disease living in rural areas of Kentucky American Journal of Cardiology 94 2 263 266 10.1016/j.amjcard.2004.03.082 15246920 (Pubitemid 38902889)
30. A Gratz J Hess A Hager 2009 Self-estimated physical functioning poorly predicts actual exercise capacity in adolescents and adults with congenital heart disease European Heart Journal 30 4 497 504 10.1093/eurheartj/ehn531 19066211
31. DA Lane GY Lip TA Millane 2002 Quality of life in adults with congenital heart disease Heart 88 1 71 75 1:STN:280:DC%2BD38zisFWmsA%3D%3D 10.1136/heart.88.1.71 12067950 (Pubitemid 34665008)
32. A Green 2004 Outcomes of congenital heart disease: a review Pediatric Nursing 30 4 280 284 15511043
33. P Moons 2004 Why call it health-related quality of life when you mean perceived health status? European Journal of Cardiovascular Nursing 3 4 275 277 10.1016/j.ejcnurse.2004.09.004 15572015 (Pubitemid 39574746)
34. WHO. (1948). Constitution of the World Health Organisation basic documents. Geneva: World Health Organisation.