Current subjective state of health, and longitudinal psychological well-being over a period of 10 years, in a cohort of adults with congenital cardiac disease

Cardiology in the Young

Volumn 15, Issue 2, 2005, Pages 168-175

  van Rijen, Elisabeth H M ^a,c   Utens, Elisabeth M W J ^a   Roos Hesselink, Jolien W ^b   Meijboom, Folkert J ^b   van Domburg, Ron T ^b   Roelandt, Jos R T C ^b   Bogers, Ad J J ^b   Verhulst, Frank C ^a  

^a SOPHIA CHILDREN S HOSPITAL   (Netherlands)

^b ERASMUS MEDICAL CENTER   (Netherlands)

^c ERASMUS UNIVERSITY ROTTERDAM   (Netherlands)

Author keywords

Adult congenital heart disease; Congenital cardiac malformations; Follow up; Psychology; Quality of life

Indexed keywords

ADULT; ARTERIAL TRUNK; ARTICLE; COHORT ANALYSIS; CONGENITAL HEART MALFORMATION; CONTROLLED STUDY; DATA ANALYSIS; EMOTIONAL DISORDER; FALLOT TETRALOGY; FEMALE; FOLLOW UP; GREAT VESSELS TRANSPOSITION; HEALTH STATUS; HEALTH SURVEY; HEART ATRIUM SEPTUM DEFECT; HEART VENTRICLE SEPTUM DEFECT; HUMAN; LONGITUDINAL STUDY; MAJOR CLINICAL STUDY; MALE; MEDICAL EXAMINATION; PAIN; PHYSICAL CAPACITY; PSYCHOLOGIC TEST; PSYCHOLOGICAL ASPECT; PSYCHOLOGIST; PULMONARY VALVE STENOSIS; QUESTIONNAIRE; SOCIAL INTERACTION; SURGICAL TECHNIQUE; WELLBEING; MIDDLE AGED; SEX DIFFERENCE; TIME;

ADULT; COHORT STUDIES; FEMALE; HEALTH STATUS; HEALTH SURVEYS; HEART DEFECTS, CONGENITAL; HUMANS; MALE; MIDDLE AGED; QUESTIONNAIRES; SEX FACTORS; TIME FACTORS;

EID: 24944452406     PISSN: 10479511     EISSN: None     Source Type: Journal    
DOI: 10.1017/S1047951105000351     Document Type: Article

References (24)

1. Meijboom F, Hess J, Szatmari A, et al. Long-term follow-up (9 to 20 years) after surgical closure of atrial septal defect at a young age. Am J Cardiol 1993; 72: 1431-1434.
2. Meijboom F, Szatmari A, Utens E, et al. Long-term follow-up after surgical closure of ventricular septal defect in infancy and childhood. J Am Coll Cardiol 1994; 24: 1358-1364.
3. Meijboom F, Szatmari A, Deckers JW, et al. Cardiac status and health-related quality of life in the long term after surgical repair of tetralogy of Fallot in infancy and childhood. J Thorac Cardiovasc Surg 1995; 110(4 Pt 1): 883-891.
4. Meijboom F, Szatmari A, Deckers JW, et al. Long-term follow-up (10 to 17 years) after Mustard repair for transposition of the great arteries. J Thorac Cardiovasc Surg 1996; 111: 1158-1168.
5. Roos-Hesselink JW, Meijboom FJ, et al. Excellent survival and low incidence of arrhythmias, stroke and heart failure long-term after surgical ASD closure at young age. A prospective follow-up study of 21-33 years. Eur Heart J 2003; 24: 190-197.
6. Fekkes M, Kamphuis RP, Ottenkamp J, et al. Health-related quality of life in young adults with minor congenital heart disease. Psychology and Health 2001; 16: 239-250.
7. Ternestedt BM, Wall K, Oddsson H, Riesenfeld T, Groth I, Schollin J. Quality of life 20 and 30 years after surgery in patients operated on for tetralogy of Fallot and for atrial septal defect. Pediatr Cardiol 2001; 22: 128-132.
8. Kamphuis M, Ottenkamp J, Vliegen HW, et al. Health related quality of life and health status in adult survivors with previously operated complex congenital heart disease. Heart 2002; 87: 356-362.
9. World Health Organization. Constitution of the World Health Organization basic documents. World Health Organization, Geneva, 1948.
10. Greenwood R. Living with heart: a study of health-related quality of life in adults with congenital heart disease. Dissertation Abstracts International: Section B: the Sciences & Engineering 2000; 60(12-B): 6020.
11. Gersony WM, Hayes CJ, Driscoll DJ, et al. Second natural history study of congenital heart defects. Quality of life of patients with aortic stenosis, pulmonary stenosis, or ventricular septal defect. Circulation 1993; 87(2 Suppl): I52-I65.
12. Lane DA, Lip GYH, Millane TA. Quality of life in adults with congenital heart disease. Heart 2002; 88: 71-75.
13. Utens EMWJ, Verhulst FC, Meijboom FJ, et al. Behavioural and emotional problems in children and adolescents with congenital heart disease. Psychological Medicine 1993; 23: 415-424.
14. Utens EMWJ, Verhulst FC, Erdman RAM, et al. Psychosocial functioning of young adults after surgical correction for congenital heart disease in childhood: a follow-up study. Journal of Psychosomatic Research 1994; 38: 745-758.
15. Utens EM, Versluis-Den Bieman HJ, Verhulst FC, Meijboom FJ, Erdman RA, Hess J. Psychopathology in young adults with congenital heart disease. Follow-up results. Eur Heart J 1998; 19: 647-651.
16. Aaronson NK, Muller M, Cohen PDA, et al. Translation, validation, and norming of the Dutch language version of the SF-36 Health Survey in community and chronic disease populations. J Clin Epidemiol 1998; 51: 1055-1068.
17. Ware JE Jr, Sherbourne CD. The MOS 36-item short-form health survey (SF-36). I. Conceptual framework and item selection. Med Care 1992; 30: 473-483.
18. Erdman RAM. Manual for the Heart Patient Psychological Questionnaire. Handleiding bij de Medisch Psychologische Vragenlijst voor Hartpatienten. Swets & Zeitlinger B.V.; 1982.
19. Utens EMWJ, Verhulst FC, Erdman RAM, Meijboom FJ, Duivenvoorden HJ, Hess J. Psychosociaal functioneren van jeugdigen en jong-volwassenen 9 jaar en langer na operatieve behandeling van een aangeboren hartafwijking op de kinderleeftijd. Ned Tijdschr Geneeskd 1996; 140: 1126-1130.
20. van Rijen EHM, Utens EMWJ, Roos-Hesselink JW, et al. Psychosocial functioning of the adult with congenital heart disease: a 20-33 years follow-up. Eur Heart J 2003; 24: 673-683.
21. van Rijen EHM, Utens EMWJ, Roos-Hesselink JW, et al. Longitudinal development of psychopathology in an adult congenital heart disease cohort. Int J Cardiol, in press.
22. van Rijen EHM, Utens EMWJ, Roos-Hesselink JW, et al. Styles of coping and social support in a cohort of adults with congenital heart disease. Cardiol Young 2004; 14: 122-130.
23. Saliba Z, Butera G, Bonnet D, et al. Quality of life and perceived health status in surviving adults with univentricular heart. Heart 2001; 86: 69-73.
24. van Rijen EHM, Utens EMWJ, Roos-Hesselink JW, et al. Medical predictors for psychopathology in adults with operated congenital heart disease. Eur Heart J 2004; 25: 1605-1613.