Pinterest as a Resource for Health Information on Chronic Obstructive Pulmonary Disease (COPD): A Social Media Content Analysis

American Journal of Health Education

Volumn 46, Issue 4, 2015, Pages 241-251

  Paige, Samantha R ^a   Stellefson, Michael ^a   Chaney, Beth H ^b   Alber, Julia M ^c  

^a UNIVERSITY OF FLORIDA   (United States)

^b EAST CAROLINA UNIVERSITY   (United States)

^c UNIVERSITY OF PENNSYLVANIA   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

EID: 84938510775     PISSN: 19325037     EISSN: 21683751     Source Type: Journal    
DOI: 10.1080/19325037.2015.1044586     Document Type: Article

References (72)

1. Centers for Disease Control and Prevention. Chronic obstructive pulmonary disease among adults—United States, 2011. http://www.cdc.gov/mmwr/preview/mmwrhtml/mm6146a2.htm. Published November 23, 2012. Accessed January 29, 2015.
2. Centers for Disease Control and Prevention. Public health strategic framework for COPD prevention. http://www.cdc.gov/copd/pdfs/Framework_for_COPD_Prevention.pdf. Published 2011. Accessed January 29, 2015.
3. American Lung Association. Taking her breath away: the rise of COPD in women. http://www.lung.org/assets/documents/publications/lung-disease-data/rise-of-copd-in-women-summary.pdf. Published June 2013. Accessed January 29, 2015.
4. T.A.Omachi, U.Sarkar, E.H.Yelin, et al. Lower health literacy is associated with poorer health status and outcomes in chronic obstructive pulmonary disease. J Gen Intern Med. 2012;28:74-81.
5. N.K.Roberts, R.Ghiassi, M.R.Partridge. Health literacy in COPD. Int J Chron Obstruct Pulmon Dis. 2008;3:499-507.
6. H.Q.Nguyen, V.Carrieri-Kohlman, S.H.Rankin, et al. Is internet-based support for dyspnea self-management in patients with chronic obstructive pulmonary disease possible? Results of a pilot study. Heart Lung. 2005;34:51-62.
7. L.Nici. A bill of “rights” for patients with COPD: the “right” therapy for the “right” patient at the “right” time. Thorax. 2010;65:1-2.
8. E.Simpson, M.C.Jones. An exploration of self-efficacy and self-management in COPD patients. Br J Nurs. 2013;22:1105-1109.
9. M.Sommaruga, P.Gremigni, V.Zagá, et al. Self-efficacy and quality of life in COPD patients. Eur Respir J. 2012;40:1462.
10. M.Stellefson, B.Tennant, J.D.Chaney. A critical review of effects of COPD self-management education on self-efficacy. ISRN Public Health. 2012;2012:Art. 152047.
11. T.Bodenheimer, K.Lorig, H.Holman, et al. Patient self-management of chronic disease in primary care. JAMA. 2002;288:2469-2475.
12. A.Warsi, P.S.Wang, M.P.LaValley, et al. Self-management education programs in chronic disease: a systematic review and methodological critique of the literature. Arch Intern Med. 2004;164:1641-1649.
13. K.R.Lorig, H.Holman. Self-management education: history, definition, outcomes, and mechanisms. Ann Behav Med. 2003;26:1-7.
14. J.K.Wigal, T.L.Creer, H.Kotses. The COPD self-efficacy scale. Chest. 1991;99:1193-1196.
15. M.Warwick, R.Gallagher, L.Chenoweth, et al. Self-management and symptom monitoring among older adults with chronic obstructive pulmonary disease. J Adv Nurs. 2010;66:784-793.
16. T.W.Effing, J.Bourbeau, J.Vercoulen, et al. Self-management programmes for COPD: moving forward. Chron Respir Dis. 2012;9:27-35.
17. R.B.Anderson. Vicarious and persuasive influences on efficacy expectations and intentions to perform breast self-examination. Public Relat Rev. 2000;26:97-114.
18. K.M.Hagen, T.B.Gutkin, C.P.Wilson, et al. Using vicarious experience and verbal persuasion to enhance self-efficacy in pre-service teachers: “priming the pump” for consultation. Sch Psychol Q. 1998;13(2):169-178.
19. L.Lamarche, A.M.Gionfriddo, L.E.Cline, et al. What would you do? The effect of verbal persuasion on task choice. Gait Posture. 2014;39:583-587.
20. A.Bandura. The explanatory and predictive scope of self-efficacy theory. Br J Soc Clin Psychol. 1986;4:359-373.
21. A.Bandura. Social cognitive theory of mass communication. Media Psychol. 2001;3:265-299.
22. K.Glanz, B.K.Rimer, K.Viswanath. Health Behavior and Health Education: Theory, Research, and Practice 4th ed. San Francisco, CA: John Wiley & Sons, Inc; 2008.
23. A.A.Kaptein, M.J.Fischer, M.Scharloo. Self-management in patients with COPD: theoretical context, content, outcomes, and integration into clinical care. Int J Chron Obstruct Pulmon Dis. 2014;9:907-917.
24. J.Bourbeau, J.van der Palen. Promoting effective self-management programmes to improve COPD. Eur Respir J. 2009;33:461-463.
25. J.A.Greene, N.K.Choudhry, E.Kilabuk, et al. Online social networking by patients with diabetes: a qualitative evaluation of communication with Facebook. J Gen Intern Med. 2011;26:287-292.
26. S.Fox, K.Purcell. Chronic disease and the Internet. http://www.pewinternet.org/2010/03/24/chronic-disease-and-the-internet/. Published March 24, 2010. Accessed January 29, 2015.
27. C.H.Martinez, B.L.St Jean, C.A.Plauschinar, et al. Internet access and use by COPD patients in the national emphysema/COPD association survey. BMC Pulm Med. 2014;14(66):1-11.
28. Pew Research Center's Internet and American Life Project. Social networking fact sheet. http://www.pewinternet.org/fact-sheets/social-networking-fact-sheet/. Published January 2014. Updated September 2014. Accessed April 7, 2015.
29. M.Stellefson, B.Chaney, A.E.Barry, et al. Web 2.0 chronic disease self-management for older adults: a systematic review. J Med Internet Res. 2013;15: (2)e35.
30. S.Fox. The social life of health information, 2011. http://www.pewinternet.org/2011/05/12/the-social-life-of-health-information-2011/. Published May 12, 2011. Accessed January 29, 2015.
31. M.Merolli, K.Gray, F.Martin-Sanchez. The outcomes and related effects of using social media in chronic disease management: a literature review and analysis of affordances. J Biomed Inform. 2013;46:957-969.
32. D.Samoocha, D.J.Bruinvels, N.A.Elbers, et al. Effectiveness of web-based interventions on patient empowerment: a systematic review and meta-analysis. J Med Internet Res. 2010;12(2):e23.
33. M.Stellefson, B.Chaney, K.Ochipa, et al. YouTube as a source of chronic obstructive pulmonary disease patient education: a social media content analysis. Chron Resp Dis. 2014;11(2):61-71.
34. M.Ennis-O'Connor. Three healthcare users who get Pinterest right. http://healthworkscollective.com/marie-ennis-oconnor/145306/3-healthcare-users-who-got-pinterest-right-and-what-you-can-learn-them. Published January 15, 2014. Accessed March 24, 2015.
35. A.Carranza. How to champion the visual discovery tool Pinterest. http://www.socialmediatoday.com/content/how-champion-visual-discovery-tool-pinterest. Published September 2, 2014. Accessed January 29, 2015.
36. C.C.Marshall, S.Bly. Sharing encountered information: digital libraries get a social life. Paper presented at: 2004 Joint ACM/IEEE Conference. June 7–11, 2004; Tucson, AZ. http://ieeexplore.ieee.org/xpl/articleDetails.jsp?reload = true&arnumber = 1336125. Accessed April 2, 2015.
37. Z.Wilkinson. Oh, how Pinteresting! An introduction to Pinterest. Library Hi Tech News. 2013;30:1-4.
38. L.O'Reilly. Pinterest is tooling up to act a lot more like Facebook. http://www.businessinsider.com/pinterest-poached-ronald-macdonald-from-google-2014-9. Published September 30, 2015. Accessed January 29, 2015.
39. M.Duggan, N.B.Ellison, C.Lampe, A.Lenhart, M.Madden. Demographics of key social networking platforms. http://www.pewinternet.org/2015/01/09/demographics-of-key-social-networking-platforms-2/. Published January 9, 2015. Accessed April 7, 2015.
40. M.M.Mackert, L.Kahlor, D.Tyler, et al. Designing e-health interventions for low-health-literate culturally diverse parents: addressing the obesity epidemic. Telemed J E Health. 2009;15:672-677.
41. P.S.Houts, R.Bachrach, J.T.Witmer, et al. Using pictographs to enhance recall of spoken medical instructions. Patient Educ Couns. 1998;35(2):83-88.
42. P.S.Houts, C.C.Doak, L.G.Doak, et al. The role of pictures in improving health communication: a review of research on attention, comprehension, recall, and adherence. Patient Educ Couns. 2006;61:173-190.
43. P.S.Houts, J.T.Witmer, H.E.Egeth, et al. Using pictographs to enhance recall of spoken medical instructions II. Patient Educ Couns. 2001;43:231-242.
44. S.Hawley, B.Zikmund-Fisher, P.Ubel, et al. The impact of the format of graphical presentation on health-related knowledge and treatment choices. Patient Educ Couns. 2008;73:448-455.
45. A.R.Tait, T.Voepel-Lewis, B.J.Zikmund-Fisher, et al. The effect of format on parents' understanding of the risks and benefits of clinical research: a comparison between text, tables, and graphics. J Health Commun. 2010;15:487-501.
46. A.R.Dietz, K.Hux, M.L.McKelvey, et al. Reading comprehension by people with chronic aphasia: a comparison of three levels of visuographic contextual support. Aphasiology. 2009;23:1053-1064.
47. T.A.Rose, L.E.Worrall, L.M.Hickson, et al. Guiding principles for printed education materials: design preferences of people with aphasia. Int J Speech Lang Pathol. 2012;14:11-23.
48. MDG Advertising. Healthcare brands using Pinterest to improve patient education. http://www.mdgadvertising.com/blog/healthcare-brands-using-pinterest-to-improve-patient-education/. Published November 12, 2012. Accessed January 29, 2015.
49. Centers for Disease Control and Prevention. Science says: findings you can use. http://www.cdc.gov/healthliteracy/sciencesays/. Published September 4, 2012. Accessed January 29, 2015.
50. D.Riffe, S.Lacy, F.Fico. Analyzing Media Messages: Using Quantitative Content Analysis in Research 3rd ed. New York, NY: Routledge; 2014.
51. National Institutes of Health. COPD. http://www.nlm.nih.gov/medlineplus/copd.html. Published January 8, 2015. Accessed January 29, 2015.
52. M.Lombard, J.Snyder-Duch, C.C.Bracken. Content analysis in mass communication: assessment and reporting of intercoder reliability. Hum Commun Res. 2002;28:587-604.
53. N.Mouter, D.Vonk Noordegraaf. Intercoder reliability for qualitative research: you win some, but do you lose some as well? http://repository.tudelft.nl/assets/uuid:905f391d-4b25-40cf-9292-e253b7e55db2/288162.pdf. Published October 2012. Accessed January 29, 2015.
54. Y.Tian, J.D.Robinson. Content analysis. In: B.B.Whaley, ed. Research Methods in Health Communication: Principles and Application. New York, NY: Routledge; 2014.
55. A.F.Hayes, K.Krippendorff. Answering the call for a standard reliability measure for coding data. Commun Methods Meas. 2007;1:77-89.
56. K.Krippendorff. Reliability in content analysis: some common misconceptions and recommendations. Hum Commun Res. 2004;30:411-433.
57. K.Krippendorff. Computing Krippendorff's alpha reliability. http://repository.upenn.edu/cgi/viewcontent.cgi?article = 1043&context = asc_papers. Published January 25, 2011. Accessed April 7, 2015.
58. National Heart, Lung, and Blood Institute. Explore COPD. http://www.nhlbi.nih.gov/health/health-topics/topics/copd. Published July 31, 2013. Accessed January 29, 2015.
59. H.Osborne. Helath literacy: How visuals can help tell the healthcare story. http://www.healthliteracy.com/uploads/J_of_Vis_Comm_3-06.pdf. Published March 2006. Accessed January 29, 2015.
60. B.L.Neiger, R.Thackeray, S.A.Van Wagenen, et al. Use of social media in health promotion: purposes, key performance indicators, and evaluation metrics. Health Promot Pract. 2012;13(2):159-164.
61. IBM Corp. SPSS statistics. http://www-01.ibm.com/software/analytics/spss/products/statistics. Accessed January 29, 2015.
62. J.Bourbeau, D.Nault. Self-management strategies in chronic obstructive pulmonary disease. Clin Chest Med. 2007;28:617-628.
63. M.G.Katz, S.Kripalani, B.D.Weiss. Use of pictorial aids in medication instructions: a review of the literature. Am J Health Syst Pharm. 2006;63:2391-2397.
64. C.I.Speros. More than words: promoting health literacy in older adults. Online J Issues Nurs. 2009;14(3):Art. 5.
65. K.Farrell, M.N.Wicks, J.C.Martin. Chronic disease self-management improved with enhanced self-efficacy. Clin Nurs Res. 2004;13(4):289-308.
66. H.Katch, H.Mead. The role of self-efficacy in cardiovascular disease self-management: a review of effective programs. Patient Intell. 2010;2:33-44.
67. H.Cho. Health Communication Message Design: Theory and Practice. Washington, DC: SAGE Publications, Inc; 2012.
68. M.Smiciklas. Infographics: Using Pictures to Communicate and Connect With Your Audiences. Indianapolis, IN: Pearson Education, Inc; 2012.
69. American College of Sports Medicine. Exercise for persons with chronic obstructive pulmonary disease. https://www.acsm.org/docs/current-comments/exerciseforpersonswithcopd.pdf?sfvrsn = 4. Accessed April 7, 2015.
70. R.Rozenblum, D.W.Bates. Patient-centered healthcare, social media, and the Internet: the perfect storm? BMJ Qual Saf. 2012;22:251-255.
71. K.E.Artnak, R.M.McGraw, V.F.Stanley. Health care accessibility for chronic illness management and end-of-life care: a view from rural America. J Law Med Ethics. 2011;9(2):140-155.
72. F.Brundisini, M.Giacomini, D.DeJean, et al. Chronic disease patients' experiences with accessing health care in rural and remote areas: a systematic review and qualitative meta-synthesis. Ont Health Technol Assess Ser. 2013;13(15):1-33.