Self-management in patients with COPD: Theoretical context, content, outcomes, and integration into clinical care

International Journal of COPD

Volumn 9, Issue , 2014, Pages 907-917

  Kaptein, Ad A ^a   Fischer, Maarten J ^a   Scharloo, Margreet ^a  

^a LEIDEN UNIVERSITY MEDICAL CENTER   (Netherlands)

Author keywords

Biopsychosocial model; Chronic obstructive pulmonary disease; Medical humanities; Psychology; Quality of life; Self management

Indexed keywords

CHRONIC OBSTRUCTIVE LUNG DISEASE; CLINICAL DECISION MAKING; COPING BEHAVIOR; DISEASE EXACERBATION; FUNCTIONAL STATUS; HEALTH EDUCATION; HUMAN; MEDICAL CARE; MEDICAL RESEARCH; MOTIVATION; OUTCOME ASSESSMENT; PSYCHOSOCIAL CARE; PULMONARY REHABILITATION; QUALITY OF LIFE; REVIEW; SELF CARE; SELF CONCEPT; ADAPTIVE BEHAVIOR; ATTITUDE TO HEALTH; HEALTH BEHAVIOR; HISTORY; INTEGRATED HEALTH CARE SYSTEM; LUNG; PATHOPHYSIOLOGY; PATIENT; PSYCHOLOGY; PULMONARY DISEASE, CHRONIC OBSTRUCTIVE; TREATMENT OUTCOME;

ADAPTATION, PSYCHOLOGICAL; DELIVERY OF HEALTH CARE, INTEGRATED; HEALTH BEHAVIOR; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HISTORY, 20TH CENTURY; HISTORY, 21ST CENTURY; HUMANS; LUNG; PATIENTS; PULMONARY DISEASE, CHRONIC OBSTRUCTIVE; QUALITY OF LIFE; SELF CARE; TREATMENT OUTCOME;

EID: 84907158865     PISSN: 11769106     EISSN: 11782005     Source Type: Journal    
DOI: 10.2147/COPD.S49622     Document Type: Review

References (78)

1. Neff TA, Petty TL. Outpatient care for patients with chronic airway obstruction - emphysema and bronchitis. Chest. 1971;60 Suppl: 11S-17S.
2. Petrie KP, Weinman J. Why illness perceptions matter. Clin Med. 2006;6:536-539.
3. Fan VS, Gaziano JM, Lew R, et al. A comprehensive care management program to prevent chronic obstructive pulmonary disease hospitalizations: a randomized, controlled trial. Ann Intern Med. 2012;156:673-683.
4. Wagg K. Unravelling self-management for COPD. What next? Chron Respir Dis. 2012;9:5-7.
5. Huber M, Knottnerus JA, Green L, et al. How should we define health? BMJ. 2011;343:d4163.
6. Kaplan RM. Behavior as the central outcome in health care. Am Psychol. 1990;45:1211-1220.
7. Global initiative for chronic Obstructive Lung Disease. Global Strategy for the Diagnosis, Management, and Prevention of Chronic Obstructive Pulmonary Disease. Bethesda (MD): GOLD; 2014.
8. Webb MW, Lawton AH. Basic personality characteristics of patients with primary obstructive pulmonary emphysema. J Am Geriatr Soc. 1961;9:590-610.
9. Agle DP, Baum GL, Chester EH, Wendt M. Multidiscipline treatment of chronic pulmonary insufficiency. 1. Psychologic aspects of rehabilitation. Psychosom Med. 1973;35:41-49.
10. Kinsman RA, Yaroush RA, Fernandez E, Dirks JF, Schocket M, Fukuhara J. Symptoms and experiences in chronic bronchitis and emphysema. Chest. 1983;83:755-761.
11. Atkins CJ, Kaplan RM, Timms RM, Reinsch S, Lofback K. Behavioral exercise programs in the management of chronic obstructive pulmonary disease. J Consult Clin Psychol. 1984;52:591-603.
12. Kaptein AA, Scharloo M, Fischer MJ, Snoei L, Weinman J. Chronic obstructive pulmonary disease (COPD). In: S Newman, L Steed, K Mulligan, editors. Chronic Physical Illness: Self-Management and Behavioural Interventions. Maidenhead, UK: McGraw-Hill; 2009:255-271.
13. Leventhal H, Brissette I, Leventhal EA. The common-sense model of self-regulation of health and illness. In: Cameron LD, Leventhal H, editors. The Self-Regulation of Health and Illness Behaviour. London: Routledge; 2003:42-65.
14. Fischer MJ, Scharloo M, Abbink JJ, et al. The dynamics of illness perceptions: testing assumptions of Leventhal's common-sense model in a pulmonary rehabilitation setting. Br J Health Psychol. 2010;15:887-903.
15. Fischer MJ, Scharloo M, Abbink JJ, et al. Concerns about exercise are related to walk test results in pulmonary rehabilitation for patients with COPD. Int J Behav Med. 2012;19:39-47.
16. Kaptein AA, Scharloo M, Fischer MJ, et al. 50 years of psychological research on patients with COPD - road to ruin or highway to heaven? Respir Med. 2009;103:3-11.
17. Kaptein A, Meulenberg F, Smyth JM. Do art lovers make better doctors? Lancet Respir Med. 2013;1:769-770.
18. Scharloo M, Kaptein AA, Weinman J, et al. Illness perceptions, coping and functioning in patients with rheumatoid arthritis, chronic obstructive pulmonary disease and psoriasis. J Psychosom Res. 1988;44:573-585.
19. Scharloo M, Kaptein AA, Schlösser M, et al. Illness perceptions and quality of life in patients with chronic obstructive pulmonary disease. J Asthma. 2007;45:575-581.
20. Barlow J, Wright C, Sheasby J, Turner A, Hainsworth J. Self-management approaches for people with chronic conditions: a review. Pat Educ Counsel. 2002;48:177-187.
21. Grant I, Heaton RK, McSweeny, et al. Neuropsychologic findings in hypoxemic chronic obstructive pulmonary disease. Arch Intern Med. 1982;142:1470-1476.
22. Guyatt GH, Berman LB, Townsend M, et al. A measure of quality of life for clinical trials in chronic lung disease. Thorax. 1987;42:773-778.
23. Peytremann-Brideveaux I, Staeger P, Brideveaux PO, Ghali WA, Burnand B. Effectiveness of COPD disease management programs: systematic review and meta-analysis. Am J Med. 2008;121: 433-443.
24. Ellrodt G, Cook DJ, Lee J, Cho M, Hunt D, Weingarten S. Evidence-based disease management. JAMA. 1997;278:1687-1692.
25. Bodenheimer T, Lorig K, Holman K, Grumbach K. Patient self-management of chronic disease in primary care. JAMA. 2002;288:2469-2475.
26. Adams SG, Smith PK, Allan PF, Anzueto A, Pugh JA, Cornell JE. Systematic review of the chronic care model in COPD prevention and disease. Arch Intern Med. 2007;167:551-561.
27. Spruit MA, Singh SJ, Garvey C, et al. An official American Thoracic Society/European Respiratory Society statement: key concepts and advances in pulmonary rehabilitation. Am J Respir Crit Care Med. 2013;188:e13-e64.
28. Effing T, Monninkhof EE, van der Valk PP, et al. Self-management education for patients with chronic obstructive pulmonary disease. Cochrane Database Syst Rev. 2007;(4):CD002990.
29. Walters JA, Turnock AC, Walters EH, Wood-Baker R. Action plans with limited patient education only for exacerbations of chronic obstructive pulmonary disease. Cochrane Database Syst Rev. 2010;(5):CD005074.
30. Rice KL, Dewan N, Bloomfield HE, et al. Disease management program for chronic obstructive pulmonary disease: a randomized controlled trial. Am J Respir Crit Care Med. 2010;182:890-896.
31. Koff PB, Jones RH, Cashman JM, Voelkel NF, Vandivier RW. Proactive integrated care improves quality of life in patients with COPD. Eur Respir J. 2009;33:1031-1038.
32. Bischoff EW, Akkermans R, Bourbeau J, van Weel C, Vercoulen JH, Schermer TR. Comprehensive self management and routine monitoring in chronic obstructive pulmonary disease patients in general practice: randomised controlled trial. BMJ. 2012;345:e7642.
33. Bischoff EW, Hamd DH, Sedeno M, et al. Effects of written action plan adherence on COPD exacerbation recovery. Thorax. 2011;66: 26-31.
34. Trappenburg JC, Monninkhof EM, Bourbeau J, et al. Effect of an action plan with ongoing support by a case manager on exacerbation-related outcome in patients with COPD: a multicentre randomised controlled trial. Thorax. 2011;66:977-984.
35. Bucknall CE, Miller G, Lloyd SM, et al. Glasgow supported self-management trial (GSuST) for patients with moderate to severe COPD: randomized controlled trial. BMJ. 2012;344:e1060.
36. Effing TW, Bourbeau J, Vercoulen J, et al. Self-management programmes for COPD: moving forward. Chron Respir Dis. 2012;9:27-35.
37. Jonsdottir H. Self-management programmes for people living with chronic obstructive pulmonary disease: a call for a reconceptualisation. J Clin Nurs. 2013;22:621-637.
38. Nici L, Bontly TD, Zuwallack R, Gross N. Self-management in chronic obstructive pulmonary disease. Time for a paradigm shift? Ann Am Thorac Soc. 2014;11:101-107.
39. Effing T, van der Palen J, Frith P. Education in COPD self-management: only part of the game. Respirology. 2014;19:151-152.
40. Disler RT, Gallagher RD, Davidson PM. Factors influencing self-management in chronic obstructive pulmonary disease: an integrative review. Int J Nurs Stud. 2012;49:230-242.
41. Lenferink A, Frith P, van der Valk P, et al. A self-management approach using self-initiated action plans for symptoms with ongoing nurse support in patients with chronic obstructive pulmonary disease (COPD) and comorbidities: the COPE-III study protocol. Contemp Clin Trials. 2013;36:81-89.
42. Zwerink M, Brusse-Keizer M, van der Valk P, et al. Self management for patients with chronic obstructive pulmonary disease. Cochrane Database of Syst Rev. 2014;(3):CD002990
43. Lorig KR, Holman H. Self-management education: history, definition, outcomes, and mechanisms. Ann Behav Med. 2003;26:1-7.
44. Benzo R. Collaborative self-management in chronic obstructive pulmonary disease: learning ways to promote patient motivation and behavioral change. Chron Respir Dis. 2012;9:257-258.
45. Nici L, ZuWallack R. An official American Thoracic Society workshop report: the integrated care of the COPD patient. Proc Am Thorac Soc. 2012;9:9-18.
46. Benzo R, Vickers K, Ernst D, Tucker S, McEvoy C, Lorig K. Development and feasibility of a self-management intervention for chronic obstructive pulmonary disease delivered with motivational interviewing strategies. J Cardiopulm Rehabil Prev. 2013;33:113-123.
47. Benzo RP. Mindfulness and motivational interviewing: two candidate methods for promoting self-management. Chron Respir Dis. 2013;10: 175-182.
48. Kuo CC, Lin CC, Lin SY, Yang YH, Chang CS, Chen CH. Effects of self-regulation protocol on physiological and psychological measures in patients with chronic obstructive pulmonary disease. J Clin Nurs. 2013;22:2800-2811.
49. Eikelenboom N, van Lieshout J, Wensing M, Smeele I, Jacobs AE. Implementation of personalized self-management support using the self-management screening questionnaire SeMaS; a study protocol for a cluster randomized trial. Trials. 2013;14:336.
50. Cruz J, Brooks D, Marques A. Home telemonitoring effectiveness in COPD: a systematic review. Int J Clin Pract. 2014;68:369-378.
51. Pinnock H, Hanley J, McCloughan L, et al. Effectiveness of telemonitoring integrated into existing clinical services on hospital admission for exacerbation of chronic obstructive pulmonary disease: researcher blind, multicentre, randomised controlled trial. BMJ. 2013;347:f6070.
52. Cartwright M, Hirani SP, Rixon L, et al. Effect of telehealth on quality of life and psychological outcomes over 12 months (Whole Systems Demonstrator telehealth questionnaire study): nested study of patient reported outcomes in a pragmatic, cluster randomised controlled trial. BMJ. 2013;346:f653.
53. Moullec G, Ninot G. An integrated programme after pulmonary rehabilitation in patients with chronic obstructive pulmonary disease: effect on emotional and functional dimensions of quality of life. Clin Rehabil. 2010;24:122-136.
54. Chavannes NH, Grijsen M, van den Akker M, et al. Integrated disease management improves one-year quality of life in primary care COPD patients: a controlled clinical trial. Prim Care Respir J. 2009;18:171-176.
55. Blumenthal JA, Keefe FJ, Babyak MA, et al. Caregiver-assisted coping skills training for patients with COPD: background, design, and methodological issues for the INSPIRE-II study. Clin Trials. 2009;6:172-184.
56. Jowsey T, Pearce-Brown C, Douglas KA, Yen L. What motivates Australian health service users with chronic illness to engage in self-management behaviour? Health Expect. 2014;17:267-277.
57. Coventry PA, Bower P, Keyworth C, et al. The effect of complex interventions on depression and anxiety in chronic obstructive pulmonary disease: systematic review and meta-analysis. PLoS One. 2013;8:e60532.
58. Wortz K, Cade A, Menard JR, et al. A qualitative study of patients' goals and expectations for self-management of COPD. Prim Care Respir J. 2012;21:384-391.
59. Gabriel R, Figueiredo D, Jácome C, Cruz J, Marques A. Day-to-day living with severe chronic obstructive pulmonary disease: towards a family-based approach to the illness impacts. Psychol Health. 2014;29:967-983.
60. Bourbeau J. The role of self-management in pulmonary rehabilitation. Semin Respir Crit Care Med. 2009;30:700-707.
61. Lacasse Y, Goldstein R, Lasserson TJ, Martin S. Pulmonary rehabilitation for chronic obstructive pulmonary disease. Cochrane Database Syst Rev. 2006;(4):CD003793.
62. Coventry PA, Hind D. Comprehensive pulmonary rehabilitation for anxiety and depression in adults with chronic obstructive pulmonary disease: systematic review and meta-analysis. J Psychosom Res. 2007;63:551-565.
63. Arnold R, de Jongste MJ, Otten V, et al. Changes in personal control as a predictor of quality of life after pulmonary rehabilitation. Patient Educ Couns. 2006;61:99-108.
64. Vincent E, Sewell L, Wagg K, Deacon S, Williams J, Singh S. Measuring a change in self-efficacy following pulmonary rehabilitation: an evaluation of the praise tool. Chest. 2011;140:1534-1539.
65. Casaburi R. Activity promotion: a paradigm shift for chronic obstructive pulmonary disease therapeutics. Proc Am Thorac Soc. 2011;8: 334-337.
66. Ng LW, Mackney J, Jenkins S, Hill K. Does exercise training change physical activity in people with COPD? A systematic review and meta-analysis. Chron Respir Dis. 2012;9:17-26.
67. Egan C, Deering BM, Blake C, et al. Short term and long term effects of pulmonary rehabilitation on physical activity in COPD. Respir Med. 2012;106:1671-1679.
68. Hoogendoorn M, Feenstra TL, Hoogenveen RT, Rutten-van Mölken MP. Long-term effectiveness and cost-effectiveness of smoking cessation interventions in patients with COPD. Thorax. 2010;65:711-718.
69. Beauchamp MK, Evans R, Janaudis-Ferreira T, Goldstein RS, Brooks D. Systematic review of supervised exercise programs after pulmonary rehabilitation in individuals with COPD. Chest. 2013;144: 1124-1133.
70. Broadbent E, Petrie KJ, Ellis CJ, Ying J, Gamble G. A picture of health - myocardial infarction patients' drawings of their hearts and subsequent disability. A longitudinal study. J Psychosom Res. 2004;57: 583-587.
71. Luthy C, Cedraschi C, Pasquina P, Uldry C, Perron NJ, Janssens JP. Perception of chronic respiratory impairments in patients' drawings. J Rehab Med. 2013;45:694-700.
72. Brody H. Defining the medical humanities: three conceptions and three narratives. J Med Humanit. 2011;32:1-7.
73. Murray JF. Willing suspension of disbelief. Am J Respir Crit Care Med. 2013;187:465-467.
74. Kaptein AA, Meulenberg F, Smyth JM. A breath of fresh air: images of respiratory illness in novels, poems, movies, music, and paintings. J Health Psychol. In press 2014.
75. Boulet LP, Bourbeau J, Skomro R, Gupta S. Major care gaps in asthma, sleep and chronic obstructive pulmonary disease: a road map for knowledge translation. Can Respir J. 2013;20:265-269.
76. Janssen DJ, Spruit MA, Wouters EF, Schols JM. Family caregiving in advanced chronic organ failure. J Am Med Dir Assoc. 2012;13: 394-399.
77. Perez X, Wisnivesky JP, Lurslurchachai L, Kleinman LC, Kronish IM. Barriers to adherence to COPD guidelines among primary care providers. Respir Med. 2012;106:374-381.
78. Williamson JM, Skinner CI, Hocken DB. Death and illness as depicted in the media. Int J Clin Pract. 2011;65:547-551.