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Volumn 24, Issue 3, 2015, Pages 491-502

Increasing Participation in Genomic Research and Biobanking Through Community-Based Capacity Building

Author keywords

Community based participatory research; Community capacity building for research; Genetics; Genomics; Health disparities

Indexed keywords

ADOLESCENT; ADULT; AGED; BIOBANK; CAPACITY BUILDING; GENETICS; GENOMICS; HUMAN; INFORMATION PROCESSING; MIDDLE AGED; NEW YORK; PARTICIPATORY RESEARCH; YOUNG ADULT;

EID: 84929310920     PISSN: 10597700     EISSN: 15733599     Source Type: Journal    
DOI: 10.1007/s10897-014-9768-6     Document Type: Article
Times cited : (31)

References (84)
  • 1
    • 84878835954 scopus 로고    scopus 로고
    • Cohort profile of the CARTaGENE study: Quebec’s population-based biobank for public health and personalized genomics
    • PID: 23071140
    • Awadalla, P., Boileau, C., Payette, Y., Idaghdour, Y., Goulet, J. P., Knoppers, B., & on behalf of the CARTaGENE Project. (2013). Cohort profile of the CARTaGENE study: Quebec’s population-based biobank for public health and personalized genomics. International Journal of Epidemiology, 42(5), 1285–1299. doi:10.1093/ije/dys160.
    • (2013) International Journal of Epidemiology , vol.42 , Issue.5 , pp. 1285-1299
    • Awadalla, P.1    Boileau, C.2    Payette, Y.3    Idaghdour, Y.4    Goulet, J.P.5    Knoppers, B.6
  • 2
    • 84870789057 scopus 로고    scopus 로고
    • Public health action in genomics is now needed beyond newborn screening
    • COI: 1:STN:280:DC%2BC38bnvVemsQ%3D%3D, PID: 22986915
    • Bowen, M. S., Kolor, K., Dotson, W. D., Ned, R. M., & Khoury, M. J. (2012). Public health action in genomics is now needed beyond newborn screening. Public Health Genomics, 15(6), 327–334. doi:10.1159/000341889.
    • (2012) Public Health Genomics , vol.15 , Issue.6 , pp. 327-334
    • Bowen, M.S.1    Kolor, K.2    Dotson, W.D.3    Ned, R.M.4    Khoury, M.J.5
  • 3
    • 84869386942 scopus 로고    scopus 로고
    • Public health genomics and personalized healthcare: a pipeline from cell to society
    • COI: 1:CAS:528:DC%2BC2cXmtFaitrs%3D, PID: 23104820
    • Brand, A. (2012). Public health genomics and personalized healthcare: a pipeline from cell to society. Drug Metabolism and Drug Interactions, 27(3), 121–123. doi:10.1515/dmdi-2012-0028.
    • (2012) Drug Metabolism and Drug Interactions , vol.27 , Issue.3 , pp. 121-123
    • Brand, A.1
  • 4
    • 84880174380 scopus 로고    scopus 로고
    • Black African immigrant community leaders’ views on participation in genomics research and DNA biobanking
    • PID: 23219004
    • Buseh, A. G., Underwood, S. M., Stevens, P. E., Townsend, L., & Kelber, S. T. (2013). Black African immigrant community leaders’ views on participation in genomics research and DNA biobanking. Nursing Outlook, 61(4), 196–204. doi:10.1016/j.outlook.2012.10.004.
    • (2013) Nursing Outlook , vol.61 , Issue.4 , pp. 196-204
    • Buseh, A.G.1    Underwood, S.M.2    Stevens, P.E.3    Townsend, L.4    Kelber, S.T.5
  • 6
    • 0004288452 scopus 로고    scopus 로고
    • Department of Health and Human Services, Washington
    • Clinical and Translational Science Awards Consortium Community Engagement Key Function Committee Task Force on the Principles of Community Engagement. (2011). Principles of community engagement (2nd ed.). Washington: Department of Health and Human Services.
    • (2011) Principles of community engagement
  • 7
    • 84929354126 scopus 로고    scopus 로고
    • Colorado DNA familial search policy
    • Colorado Bureau of Investigation. (2013). Colorado DNA familial search policy. from http://www.denverda.org/DNA_Documents/Policies/CO%20FS%20Policy.pdf.
    • (2013) from
  • 8
    • 84929354127 scopus 로고    scopus 로고
    • Commonwealth of Virginia. (2013). policy relating to familial DNA searching. from
    • Commonwealth of Virginia. (2013). policy relating to familial DNA searching. from http://www.denverda.org/DNA_Documents/Policies/VA%20FS%20Policy.pdf.
  • 9
    • 0033054450 scopus 로고    scopus 로고
    • The continuing legacy of the Tuskegee syphilis study: considerations for clinical investigation
    • COI: 1:STN:280:DyaK1M7gslartg%3D%3D, PID: 9892266
    • Corbie-Smith, G. (1999a). The continuing legacy of the Tuskegee syphilis study: considerations for clinical investigation. American Journal of the Medical Sciences, 317(1), 5–8.
    • (1999) American Journal of the Medical Sciences , vol.317 , Issue.1 , pp. 5-8
    • Corbie-Smith, G.1
  • 10
    • 0033516404 scopus 로고    scopus 로고
    • Tuskegee as a metaphor
    • COI: 1:CAS:528:DyaK1MXksVCktbc%3D, PID: 10428700, author reply 49–50
    • Corbie-Smith, G. (1999b). Tuskegee as a metaphor. Science, 285(5424), 47. author reply 49–50.
    • (1999) Science , vol.285 , Issue.5424 , pp. 47
    • Corbie-Smith, G.1
  • 12
    • 23844484979 scopus 로고    scopus 로고
    • What about focus group interaction data?
    • PID: 15961879
    • Duggleby, W. (2005). What about focus group interaction data? Qualitative Health Research, 15(6), 832–840. doi:10.1177/1049732304273916.
    • (2005) Qualitative Health Research , vol.15 , Issue.6 , pp. 832-840
    • Duggleby, W.1
  • 14
    • 84942292495 scopus 로고    scopus 로고
    • Community engagement with genetics: public perceptions and expectations about genetics research
    • PID: 23968492
    • Etchegary, H., Green, J., Parfrey, P., Street, C., & Pullman, D. (2013). Community engagement with genetics: public perceptions and expectations about genetics research. Health Expectations. doi:10.1111/hex.12122.
    • (2013) Health Expectations
    • Etchegary, H.1    Green, J.2    Parfrey, P.3    Street, C.4    Pullman, D.5
  • 15
    • 0141508890 scopus 로고    scopus 로고
    • Elevated asthma and indoor environmental exposures among Puerto Rican children of East Harlem
    • PID: 14529106
    • Findley, S., Lawler, K., Bindra, M., Maggio, L., Penachio, M. M., & Maylahn, C. (2003). Elevated asthma and indoor environmental exposures among Puerto Rican children of East Harlem. Journal of Asthma, 40(5), 557–569.
    • (2003) Journal of Asthma , vol.40 , Issue.5 , pp. 557-569
    • Findley, S.1    Lawler, K.2    Bindra, M.3    Maggio, L.4    Penachio, M.M.5    Maylahn, C.6
  • 16
    • 79953293812 scopus 로고    scopus 로고
    • Forward: CDC health disparities and inequalities report - United States, 2011
    • Frieden, T. R., Centers for Disease, C., & Prevention. (2011). Forward: CDC health disparities and inequalities report - United States, 2011. MMWR Surveill Summ, 60 Suppl, 1–2.
    • (2011) MMWR Surveill Summ, 60 Suppl
  • 17
    • 84878044697 scopus 로고    scopus 로고
    • The RE-AIM framework: a systematic review of use over time
    • PID: 23597377
    • Gaglio, B., Shoup, J. A., & Glasgow, R. E. (2013). The RE-AIM framework: a systematic review of use over time. American Journal of Public Health, 103(6), e38–46. doi:10.2105/AJPH.2013.301299.
    • (2013) American Journal of Public Health , vol.103 , Issue.6 , pp. 38-46
    • Gaglio, B.1    Shoup, J.A.2    Glasgow, R.E.3
  • 19
    • 84875584597 scopus 로고    scopus 로고
    • Under-representation of minority ethnic groups in cardiovascular research: a semi-structured interview study
    • PID: 22987456
    • Gill, P. S., Plumridge, G., Khunti, K., & Greenfield, S. (2013). Under-representation of minority ethnic groups in cardiovascular research: a semi-structured interview study. Family Practice, 30(2), 233–241. doi:10.1093/fampra/cms054.
    • (2013) Family Practice , vol.30 , Issue.2 , pp. 233-241
    • Gill, P.S.1    Plumridge, G.2    Khunti, K.3    Greenfield, S.4
  • 20
    • 84876061050 scopus 로고    scopus 로고
    • Public health genomics and the new molecular epidemiology of bacterial pathogens
    • COI: 1:STN:280:DC%2BC3srhs1ynuw%3D%3D, PID: 23548714
    • Gilmour, M. W., Graham, M., Reimer, A., & Van Domselaar, G. (2013). Public health genomics and the new molecular epidemiology of bacterial pathogens. Public Health Genomics, 16(1–2), 25–30. doi:10.1159/000342709.
    • (2013) Public Health Genomics , vol.16 , Issue.1-2 , pp. 25-30
    • Gilmour, M.W.1    Graham, M.2    Reimer, A.3    Van Domselaar, G.4
  • 21
    • 84878067206 scopus 로고    scopus 로고
    • Use of RE-AIM to address health inequities: application in a low-income community health center based weight loss and hypertension self-management program
    • Glasgow, R. E., Askew, S., Purcell, P., Levine, E., Warner, E. T., Stange, K. C., & Bennett, G. G. (2013). Use of RE-AIM to address health inequities: application in a low-income community health center based weight loss and hypertension self-management program. Translational Behaviour Medicine, 3(2), 200–210. doi:10.1007/s13142-013-0201-8.
    • (2013) Translational Behaviour Medicine , vol.3 , Issue.2 , pp. 200-210
    • Glasgow, R.E.1    Askew, S.2    Purcell, P.3    Levine, E.4    Warner, E.T.5    Stange, K.C.6    Bennett, G.G.7
  • 22
    • 34250650978 scopus 로고    scopus 로고
    • Community engagement in genetic research: results of the first public consultation for the Quebec CARTaGENE project
    • PID: 17575459
    • Godard, B., Marshall, J., & Laberge, C. (2007). Community engagement in genetic research: results of the first public consultation for the Quebec CARTaGENE project. Community Genetics, 10(3), 147–158. doi:10.1159/000101756.
    • (2007) Community Genetics , vol.10 , Issue.3 , pp. 147-158
    • Godard, B.1    Marshall, J.2    Laberge, C.3
  • 23
    • 84873696289 scopus 로고    scopus 로고
    • Whole exome sequencing suggests much of non-BRCA1/BRCA2 familial breast cancer is due to moderate and low penetrance susceptibility alleles
    • COI: 1:CAS:528:DC%2BC3sXjtVKgtrw%3D, PID: 23409019
    • Gracia-Aznarez, F. J., Fernandez, V., Pita, G., Peterlongo, P., Dominguez, O., de la Hoya, M., & Benitez, J. (2013). Whole exome sequencing suggests much of non-BRCA1/BRCA2 familial breast cancer is due to moderate and low penetrance susceptibility alleles. PLoS One, 8(2), e55681. doi:10.1371/journal.pone.0055681.
    • (2013) PLoS One , vol.8 , Issue.2 , pp. 55681
    • Gracia-Aznarez, F.J.1    Fernandez, V.2    Pita, G.3    Peterlongo, P.4    Dominguez, O.5    de la Hoya, M.6    Benitez, J.7
  • 24
    • 1242331407 scopus 로고    scopus 로고
    • Qualitative content analysis in nursing research: concepts, procedures and measures to achieve trustworthiness
    • COI: 1:STN:280:DC%2BD2c%2FmvVKquw%3D%3D, PID: 14769454
    • Graneheim, U. H., & Lundman, B. (2004). Qualitative content analysis in nursing research: concepts, procedures and measures to achieve trustworthiness. Nurse Education Today, 24(2), 105–112. doi:10.1016/j.nedt.2003.10.001.
    • (2004) Nurse Education Today , vol.24 , Issue.2 , pp. 105-112
    • Graneheim, U.H.1    Lundman, B.2
  • 26
    • 84867404708 scopus 로고    scopus 로고
    • Low rates of African American participation in genetic counseling and testing for BRCA1/2 mutations: racial disparities or just a difference?
    • PID: 22790832
    • Halbert, C. H., Kessler, L., Collier, A., Weathers, B., Stopfer, J., Domchek, S., & McDonald, J. A. (2012). Low rates of African American participation in genetic counseling and testing for BRCA1/2 mutations: racial disparities or just a difference? Journal of Genetic Counseling, 21(5), 676–683. doi:10.1007/s10897-012-9485-y.
    • (2012) Journal of Genetic Counseling , vol.21 , Issue.5 , pp. 676-683
    • Halbert, C.H.1    Kessler, L.2    Collier, A.3    Weathers, B.4    Stopfer, J.5    Domchek, S.6    McDonald, J.A.7
  • 27
    • 16444363608 scopus 로고    scopus 로고
    • Confronting genetic testing disparities: knowledge is power
    • COI: 1:CAS:528:DC%2BD2MXjtlWlsb4%3D, PID: 15827320
    • Hall, M., & Olopade, O. I. (2005). Confronting genetic testing disparities: knowledge is power. JAMA, 293(14), 1783–1785. doi:10.1001/jama.293.14.1783.
    • (2005) JAMA , vol.293 , Issue.14 , pp. 1783-1785
    • Hall, M.1    Olopade, O.I.2
  • 28
    • 33646537461 scopus 로고    scopus 로고
    • Disparities in genetic testing: thinking outside the BRCA box
    • PID: 16682739
    • Hall, M. J., & Olopade, O. I. (2006). Disparities in genetic testing: thinking outside the BRCA box. Journal of Clinical Oncology, 24(14), 2197–2203. doi:10.1200/JCO.2006.05.5889.
    • (2006) Journal of Clinical Oncology , vol.24 , Issue.14 , pp. 2197-2203
    • Hall, M.J.1    Olopade, O.I.2
  • 29
    • 84929354129 scopus 로고    scopus 로고
    • Harlem Hospital Center, N. Y. C. H. a. H. C. (2013). Harlem Hospital Center 2013 needs assessment and implementation strategy
    • Harlem Hospital Center, N. Y. C. H. a. H. C. (2013). Harlem Hospital Center 2013 needs assessment and implementation strategy.
  • 30
    • 84873160825 scopus 로고    scopus 로고
    • Exome sequencing of germline DNA from non-BRCA1/2 familial breast cancer cases selected on the basis of aCGH tumor profiling
    • COI: 1:CAS:528:DC%2BC3sXis1ylurc%3D, PID: 23383274
    • Hilbers, F. S., Meijers, C. M., Laros, J. F., van Galen, M., Hoogerbrugge, N., Vasen, H. F., & Devilee, P. (2013). Exome sequencing of germline DNA from non-BRCA1/2 familial breast cancer cases selected on the basis of aCGH tumor profiling. PLoS One, 8(1), e55734. doi:10.1371/journal.pone.0055734.
    • (2013) PLoS One , vol.8 , Issue.1 , pp. 55734
    • Hilbers, F.S.1    Meijers, C.M.2    Laros, J.F.3    van Galen, M.4    Hoogerbrugge, N.5    Vasen, H.F.6    Devilee, P.7
  • 31
    • 84893094390 scopus 로고    scopus 로고
    • Community perceptions of genomic research: implications for addressing health disparities
    • PID: 24316767
    • Isler, M. R., Sutton, K., Cadigan, R. J., & Corbie-Smith, G. (2013). Community perceptions of genomic research: implications for addressing health disparities. North Carolina Medical Journal, 74(6), 470–476.
    • (2013) North Carolina Medical Journal , vol.74 , Issue.6 , pp. 470-476
    • Isler, M.R.1    Sutton, K.2    Cadigan, R.J.3    Corbie-Smith, G.4
  • 32
    • 0031839915 scopus 로고    scopus 로고
    • Review of community-based research: assessing partnership approaches to improve public health
    • COI: 1:STN:280:DyaK1c3nsVGmsw%3D%3D, PID: 9611617
    • Israel, B. A., Schulz, A. J., Parker, E. A., & Becker, A. B. (1998). Review of community-based research: assessing partnership approaches to improve public health. Annual Review of Public Health, 19, 173–202. doi:10.1146/annurev.publhealth.19.1.173.
    • (1998) Annual Review of Public Health , vol.19 , pp. 173-202
    • Israel, B.A.1    Schulz, A.J.2    Parker, E.A.3    Becker, A.B.4
  • 33
    • 84929354130 scopus 로고    scopus 로고
    • M.: Focus group guide from
    • Jackson, F. M. (2013). Focus group guide from http://drfledamjackson.com/biography.
    • (2013)
  • 36
    • 0035345007 scopus 로고    scopus 로고
    • Focus groups as a tool for critical social research in nurse education
    • COI: 1:STN:280:DC%2BD38%2FgvFKgtA%3D%3D, PID: 11339876
    • Kevern, J., & Webb, C. (2001). Focus groups as a tool for critical social research in nurse education. Nurse Education Today, 21(4), 323–333. doi:10.1054/nedt.2001.0563.
    • (2001) Nurse Education Today , vol.21 , Issue.4 , pp. 323-333
    • Kevern, J.1    Webb, C.2
  • 37
    • 80053515901 scopus 로고    scopus 로고
    • Population sciences, translational research, and the opportunities and challenges for genomics to reduce the burden of cancer in the 21st century
    • PID: 21795499
    • Khoury, M. J., Clauser, S. B., Freedman, A. N., Gillanders, E. M., Glasgow, R. E., Klein, W. M., & Schully, S. D. (2011). Population sciences, translational research, and the opportunities and challenges for genomics to reduce the burden of cancer in the 21st century. Cancer Epidemiology, Biomarkers and Prevention, 20(10), 2105–2114. doi:10.1158/1055-9965.EPI-11-0481.
    • (2011) Cancer Epidemiology, Biomarkers and Prevention , vol.20 , Issue.10 , pp. 2105-2114
    • Khoury, M.J.1    Clauser, S.B.2    Freedman, A.N.3    Gillanders, E.M.4    Glasgow, R.E.5    Klein, W.M.6    Schully, S.D.7
  • 38
    • 79960687454 scopus 로고    scopus 로고
    • An education model for integrating genetics and genomics into social work practice
    • PID: 21707348
    • Kingsberry, S. Q., Mickel, E., Wartel, S. G., & Holmes, V. (2011). An education model for integrating genetics and genomics into social work practice. Social Work in Public Health, 26(4), 392–404. doi:10.1080/10911350902990924.
    • (2011) Social Work in Public Health , vol.26 , Issue.4 , pp. 392-404
    • Kingsberry, S.Q.1    Mickel, E.2    Wartel, S.G.3    Holmes, V.4
  • 39
    • 84891935604 scopus 로고    scopus 로고
    • An iterative consensus-building approach to revising a genetics/genomics competency framework for nurse education in the UK
    • Kirk, M., Tonkin, E., & Skirton, H. (2013). An iterative consensus-building approach to revising a genetics/genomics competency framework for nurse education in the UK. Journal of Advanced Nursing. doi:10.1111/jan.12207.
    • (2013) Journal of Advanced Nursing
    • Kirk, M.1    Tonkin, E.2    Skirton, H.3
  • 40
    • 84869212065 scopus 로고    scopus 로고
    • Genes and environments: moving toward personalized medicine in the context of health disparities
    • Kittles, R. (2012). Genes and environments: moving toward personalized medicine in the context of health disparities. Ethnicity and Disease, 22(3 Suppl 1), S1-43–46.
    • (2012) Ethnicity and Disease , vol.22 , pp. 43-46
    • Kittles, R.1
  • 41
    • 33745253118 scopus 로고    scopus 로고
    • A common nonsense mutation in EphB2 is associated with prostate cancer risk in African American men with a positive family history
    • COI: 1:CAS:528:DC%2BD28XmvVKksb8%3D, PID: 16155194
    • Kittles, R. A., Baffoe-Bonnie, A. B., Moses, T. Y., Robbins, C. M., Ahaghotu, C., Huusko, P., & Carpten, J. D. (2006). A common nonsense mutation in EphB2 is associated with prostate cancer risk in African American men with a positive family history. Journal of Medical Genetics, 43(6), 507–511. doi:10.1136/jmg.2005.035790.
    • (2006) Journal of Medical Genetics , vol.43 , Issue.6 , pp. 507-511
    • Kittles, R.A.1    Baffoe-Bonnie, A.B.2    Moses, T.Y.3    Robbins, C.M.4    Ahaghotu, C.5    Huusko, P.6    Carpten, J.D.7
  • 43
    • 84872246252 scopus 로고    scopus 로고
    • Ethics of clear health communication: applying the CLEAN Look approach to communicate biobanking information for cancer research
    • PID: 23124500
    • Koskan, A., Arevalo, M., Gwede, C. K., Quinn, G. P., Noel-Thomas, S. A., Luque, J. S., & Meade, C. D. (2012). Ethics of clear health communication: applying the CLEAN Look approach to communicate biobanking information for cancer research. Journal of Health Care for the Poor and Underserved, 23(4 Suppl), 58–66. doi:10.1353/hpu.2012.0192.
    • (2012) Journal of Health Care for the Poor and Underserved , vol.23 , pp. 58-66
    • Koskan, A.1    Arevalo, M.2    Gwede, C.K.3    Quinn, G.P.4    Noel-Thomas, S.A.5    Luque, J.S.6    Meade, C.D.7
  • 47
    • 84892484725 scopus 로고    scopus 로고
    • Duty to warn at-risk family members of genetic disease
    • PID: 23199459
    • Laberge, A. M., & Burke, W. (2009). Duty to warn at-risk family members of genetic disease. Virtual Mentor, 11(9), 656–660. doi:10.1001/virtualmentor.2009.11.9.ccas1-0909.
    • (2009) Virtual Mentor , vol.11 , Issue.9 , pp. 656-660
    • Laberge, A.M.1    Burke, W.2
  • 48
    • 77950490045 scopus 로고    scopus 로고
    • Clinical and public health implications of emerging genetic technologies
    • PID: 20347647
    • Laberge, A. M., & Burke, W. (2010). Clinical and public health implications of emerging genetic technologies. Seminars in Nephrology, 30(2), 185–194. doi:10.1016/j.semnephrol.2010.01.009.
    • (2010) Seminars in Nephrology , vol.30 , Issue.2 , pp. 185-194
    • Laberge, A.M.1    Burke, W.2
  • 49
    • 78650224612 scopus 로고    scopus 로고
    • Clinical and genetic knowledge and attitudes of patients with myotonic dystrophy type 1
    • COI: 1:STN:280:DC%2BC3M%2FhvFOksg%3D%3D, PID: 20689257
    • Laberge, L., Prevost, C., Perron, M., Mathieu, J., Auclair, J., Gaudreault, M., & Veillette, S. (2010). Clinical and genetic knowledge and attitudes of patients with myotonic dystrophy type 1. Public Health Genomics, 13(7–8), 424–430. doi:10.1159/000316238.
    • (2010) Public Health Genomics , vol.13 , Issue.7-8 , pp. 424-430
    • Laberge, L.1    Prevost, C.2    Perron, M.3    Mathieu, J.4    Auclair, J.5    Gaudreault, M.6    Veillette, S.7
  • 51
    • 33745768427 scopus 로고    scopus 로고
    • Eugenics, medical education, and the public health service: another perspective on the Tuskegee syphilis experiment
    • PID: 16809865
    • Lombardo, P. A., & Dorr, G. M. (2006). Eugenics, medical education, and the public health service: another perspective on the Tuskegee syphilis experiment. Bulletin of the History of Medicine, 80(2), 291–316. doi:10.1353/bhm.2006.0066.
    • (2006) Bulletin of the History of Medicine , vol.80 , Issue.2 , pp. 291-316
    • Lombardo, P.A.1    Dorr, G.M.2
  • 53
    • 84929324945 scopus 로고    scopus 로고
    • Enhancing the participation of african americans in health-related genetic research: findings of a collaborative academic and community-based research study
    • PID: 24369499
    • Millon Underwood, S., Buseh, A. G., Kelber, S. T., Stevens, P. E., & Townsend, L. (2013). Enhancing the participation of african americans in health-related genetic research: findings of a collaborative academic and community-based research study. Nursing Research Practice, 2013, 749563. doi:10.1155/2013/749563.
    • (2013) Nursing Research Practice , vol.2013 , pp. 749563
    • Millon Underwood, S.1    Buseh, A.G.2    Kelber, S.T.3    Stevens, P.E.4    Townsend, L.5
  • 54
    • 84878720938 scopus 로고    scopus 로고
    • A meta-analysis identifies new loci associated with body mass index in individuals of African ancestry
    • COI: 1:CAS:528:DC%2BC3sXlsl2gtLs%3D, PID: 23583978
    • Monda, K. L., Chen, G. K., Taylor, K. C., Palmer, C., Edwards, T. L., Lange, L. A., & Haiman, C. A. (2013). A meta-analysis identifies new loci associated with body mass index in individuals of African ancestry. Nature Genetics, 45(6), 690–696. doi:10.1038/ng.2608.
    • (2013) Nature Genetics , vol.45 , Issue.6 , pp. 690-696
    • Monda, K.L.1    Chen, G.K.2    Taylor, K.C.3    Palmer, C.4    Edwards, T.L.5    Lange, L.A.6    Haiman, C.A.7
  • 56
    • 84929354134 scopus 로고    scopus 로고
    • Retrieved October 30, 2013
    • National DNA Index System-Combined DNA Index System (2013). Retrieved October 30, 2013, from http://www.fbi.gov/about-us/lab/biometric-analysis/codis/ndis-statistics/#Nebraska.
    • (2013) from
  • 58
    • 84874392177 scopus 로고    scopus 로고
    • Bioethics in popular science: evaluating the media impact of the immortal life of Henrietta Lacks on the biobank debate
    • PID: 23446115
    • Nisbet, M. C., & Fahy, D. (2013). Bioethics in popular science: evaluating the media impact of the immortal life of Henrietta Lacks on the biobank debate. BMC Medical Ethics, 14, 10. doi:10.1186/1472-6939-14-10.
    • (2013) BMC Medical Ethics , vol.14 , pp. 10
    • Nisbet, M.C.1    Fahy, D.2
  • 59
    • 84876052833 scopus 로고    scopus 로고
    • Genomics for public health improvement: relevant international ethical and policy issues around genome-wide association studies and biobanks
    • COI: 1:STN:280:DC%2BC3srhs1ymtw%3D%3D, PID: 23548720
    • Pang, T. (2013). Genomics for public health improvement: relevant international ethical and policy issues around genome-wide association studies and biobanks. Public Health Genomics, 16(1–2), 69–72. doi:10.1159/000341500.
    • (2013) Public Health Genomics , vol.16 , Issue.1-2 , pp. 69-72
    • Pang, T.1
  • 60
    • 84885741248 scopus 로고    scopus 로고
    • Public health genomics and personalized prevention: lessons from the COGS project
    • COI: 1:STN:280:DC%2BC2c%2FntVeqsA%3D%3D, PID: 24127941
    • Pashayan, N., Hall, A., Chowdhury, S., Dent, T., Pharoah, P. D., & Burton, H. (2013). Public health genomics and personalized prevention: lessons from the COGS project. Journal of Internal Medicine, 274(5), 451–456. doi:10.1111/joim.12094.
    • (2013) Journal of Internal Medicine , vol.274 , Issue.5 , pp. 451-456
    • Pashayan, N.1    Hall, A.2    Chowdhury, S.3    Dent, T.4    Pharoah, P.D.5    Burton, H.6
  • 61
    • 84856793738 scopus 로고    scopus 로고
    • Successful recruitment of healthy African American men to genomic studies from high-volume community health fairs: implications for future genomic research in minority populations
    • PID: 21766294
    • Patel, Y. R., Carr, K. A., Magjuka, D., Mohammadi, Y., Dropcho, E. F., Reed, A. D., & Hahn, N. M. (2012). Successful recruitment of healthy African American men to genomic studies from high-volume community health fairs: implications for future genomic research in minority populations. Cancer, 118(4), 1075–1082. doi:10.1002/cncr.26328.
    • (2012) Cancer , vol.118 , Issue.4 , pp. 1075-1082
    • Patel, Y.R.1    Carr, K.A.2    Magjuka, D.3    Mohammadi, Y.4    Dropcho, E.F.5    Reed, A.D.6    Hahn, N.M.7
  • 62
    • 4344595375 scopus 로고    scopus 로고
    • Predicting asthma morbidity in Harlem emergency department patients
    • PID: 15347544
    • Pesola, G. R., Xu, F., Ahsan, H., Sternfels, P., Meyer, I. H., & Ford, J. G. (2004). Predicting asthma morbidity in Harlem emergency department patients. Academic Emergency Medicine, 11(9), 944–950. doi:10.1197/j.aem.2004.03.020.
    • (2004) Academic Emergency Medicine , vol.11 , Issue.9 , pp. 944-950
    • Pesola, G.R.1    Xu, F.2    Ahsan, H.3    Sternfels, P.4    Meyer, I.H.5    Ford, J.G.6
  • 63
    • 84880540786 scopus 로고    scopus 로고
    • Under-representation of minority ethnic groups in research–call for action
    • PID: 23834862
    • Redwood, S., & Gill, P. S. (2013). Under-representation of minority ethnic groups in research–call for action. British Journal of General Practice, 63(612), 342–343. doi:10.3399/bjgp13X668456.
    • (2013) British Journal of General Practice , vol.63 , Issue.612 , pp. 342-343
    • Redwood, S.1    Gill, P.S.2
  • 64
    • 50249099764 scopus 로고    scopus 로고
    • Special treatment”: BiDil, Tuskegee, and the logic of race
    • Reverby, S. M. (2008). “Special treatment”: BiDil, Tuskegee, and the logic of race. The Journal of Law, Medicine & Ethics, 36(3), 478–484. doi:10.1111/j.1748-720X.2008.294.x.
    • (2008) The Journal of Law, Medicine & Ethics , vol.36 , Issue.3 , pp. 478-484
    • Reverby, S.M.1
  • 65
    • 77955996053 scopus 로고    scopus 로고
    • Invoking “Tuskegee”: problems in health disparities, genetic assumptions, and history
    • PID: 20675943
    • Reverby, S. M. (2010). Invoking “Tuskegee”: problems in health disparities, genetic assumptions, and history. Journal of Health Care for the Poor and Underserved, 21(3 Suppl), 26–34. doi:10.1353/hpu.0.0354.
    • (2010) Journal of Health Care for the Poor and Underserved , vol.21 , pp. 26-34
    • Reverby, S.M.1
  • 66
    • 78650418116 scopus 로고    scopus 로고
    • The contribution of health technology assessment, health needs assessment, and health impact assessment to the assessment and translation of technologies in the field of public health genomics
    • COI: 1:STN:280:DC%2BC3M%2FjtFSisQ%3D%3D, PID: 20926845
    • Rosenkotter, N., Vondeling, H., Blancquaert, I., Mekel, O. C., Kristensen, F. B., & Brand, A. (2011). The contribution of health technology assessment, health needs assessment, and health impact assessment to the assessment and translation of technologies in the field of public health genomics. Public Health Genomics, 14(1), 43–52. doi:10.1159/000318317.
    • (2011) Public Health Genomics , vol.14 , Issue.1 , pp. 43-52
    • Rosenkotter, N.1    Vondeling, H.2    Blancquaert, I.3    Mekel, O.C.4    Kristensen, F.B.5    Brand, A.6
  • 67
    • 77954359839 scopus 로고    scopus 로고
    • Analyzing focus group data: content and interaction
    • PID: 20367789
    • Rothwell, E. (2010). Analyzing focus group data: content and interaction. Journal for Specialists in Pediatric Nursing, 15(2), 176–180. doi:10.1111/j.1744-6155.2010.00237.x.
    • (2010) Journal for Specialists in Pediatric Nursing , vol.15 , Issue.2 , pp. 176-180
    • Rothwell, E.1
  • 68
    • 84865338380 scopus 로고    scopus 로고
    • Health disparities in the genomic era: the case for diversifying ethnic representation
    • PID: 22929582
    • Rotimi, C. N. (2012). Health disparities in the genomic era: the case for diversifying ethnic representation. Genome Medicine, 4(8), 65. doi:10.1186/gm366.
    • (2012) Genome Medicine , vol.4 , Issue.8 , pp. 65
    • Rotimi, C.N.1
  • 69
    • 84871618131 scopus 로고    scopus 로고
    • Whole exome sequencing reveals uncommon mutations in the recently identified Fanconi anemia gene SLX4/FANCP
    • COI: 1:CAS:528:DC%2BC3sXit1al, PID: 23033263
    • Schuster, B., Knies, K., Stoepker, C., Velleuer, E., Friedl, R., Gottwald-Muhlhauser, B., & Schindler, D. (2013). Whole exome sequencing reveals uncommon mutations in the recently identified Fanconi anemia gene SLX4/FANCP. Human Mutation, 34(1), 93–96. doi:10.1002/humu.22221.
    • (2013) Human Mutation , vol.34 , Issue.1 , pp. 93-96
    • Schuster, B.1    Knies, K.2    Stoepker, C.3    Velleuer, E.4    Friedl, R.5    Gottwald-Muhlhauser, B.6    Schindler, D.7
  • 71
    • 18944407494 scopus 로고    scopus 로고
    • Project Sugar: a recruitment model for successful African-American participation in health research
    • Spruill, I. (2004). Project Sugar: a recruitment model for successful African-American participation in health research. Journal of National Black Nurses Association, 15(2), 48–53.
    • (2004) Journal of National Black Nurses Association , vol.15 , Issue.2 , pp. 48-53
    • Spruill, I.1
  • 72
    • 84929354132 scopus 로고    scopus 로고
    • State of New York. (2103). CODAS
    • State of New York. (2103). CODAS.
  • 74
    • 84929354133 scopus 로고    scopus 로고
    • Early engagement helps overcome skepticism about Biobanking. Retrieved October 31
    • Susman, E. (2010). Early engagement helps overcome skepticism about Biobanking. Retrieved October 31, 2013 from http://www.cancernetwork.com/articles/early-engagement-healthcare-professionals-helps-overcome-public-skepticism-about-biobanking.
    • (2010) 2013 from
    • Susman, E.1
  • 75
    • 70349653916 scopus 로고    scopus 로고
    • Barriers to the use of genetic testing: a study of racial and ethnic disparities
    • PID: 19752639
    • Suther, S., & Kiros, G. E. (2009). Barriers to the use of genetic testing: a study of racial and ethnic disparities. Genetics in Medicine, 11(9), 655–662. doi:10.1097/GIM.0b013e3181ab22aa.
    • (2009) Genetics in Medicine , vol.11 , Issue.9 , pp. 655-662
    • Suther, S.1    Kiros, G.E.2
  • 76
    • 84929354134 scopus 로고    scopus 로고
    • Retrieved October 30, 2013
    • Texas CODIS. (2013). Retrieved October 30, 2013, from http://www.denverda.org/DNA_Documents/Familial_DNA/Tx%20FS%20policy.pdf.
    • (2013) from
    • Texas, C.O.D.I.S.1
  • 77
    • 84899044783 scopus 로고    scopus 로고
    • Community perspectives on public health biobanking: an analysis of community meetings on the Michigan BioTrust for Health
    • PID: 23893769
    • Thiel, D. B., Platt, T., Platt, J., King, S. B., & Kardia, S. L. (2013). Community perspectives on public health biobanking: an analysis of community meetings on the Michigan BioTrust for Health. Journal of Community Genetics. doi:10.1007/s12687-013-0162-0.
    • (2013) Journal of Community Genetics
    • Thiel, D.B.1    Platt, T.2    Platt, J.3    King, S.B.4    Kardia, S.L.5
  • 78
    • 84883038356 scopus 로고    scopus 로고
    • You don’t have to keep everything on paper”: African American women’s use of family health history tools
    • PID: 23397492
    • Thompson, T., Seo, J., Griffith, J., Baxter, M., James, A., & Kaphingst, K. A. (2013). “You don’t have to keep everything on paper”: African American women’s use of family health history tools. Journal of Community Genetics, 4(2), 251–261. doi:10.1007/s12687-013-0138-0.
    • (2013) Journal of Community Genetics , vol.4 , Issue.2 , pp. 251-261
    • Thompson, T.1    Seo, J.2    Griffith, J.3    Baxter, M.4    James, A.5    Kaphingst, K.A.6
  • 79
    • 0035406451 scopus 로고    scopus 로고
    • Validity in qualitative research
    • COI: 1:STN:280:DC%2BD3MvnslOhtA%3D%3D, PID: 11521609
    • Whittemore, R., Chase, S. K., & Mandle, C. L. (2001). Validity in qualitative research. Qualitative Health Research, 11(4), 522–537.
    • (2001) Qualitative Health Research , vol.11 , Issue.4 , pp. 522-537
    • Whittemore, R.1    Chase, S.K.2    Mandle, C.L.3
  • 80
    • 78650420338 scopus 로고    scopus 로고
    • Public health genomics: the interface with public health intelligence and the role of public health observatories
    • COI: 1:STN:280:DC%2BC3M%2FislCjsA%3D%3D, PID: 20339286
    • Wilkinson, J. R., Ells, L. J., Pencheon, D., Flowers, J., & Burton, H. (2011). Public health genomics: the interface with public health intelligence and the role of public health observatories. Public Health Genomics, 14(1), 35–42. doi:10.1159/000294170.
    • (2011) Public Health Genomics , vol.14 , Issue.1 , pp. 35-42
    • Wilkinson, J.R.1    Ells, L.J.2    Pencheon, D.3    Flowers, J.4    Burton, H.5
  • 81
    • 84859590638 scopus 로고    scopus 로고
    • The public health genomics translation gap: what we don’t have and why it matters
    • COI: 1:STN:280:DC%2BC38rjsFOqsQ%3D%3D, PID: 22488455
    • Williams, M. S. (2012). The public health genomics translation gap: what we don’t have and why it matters. Public Health Genomics, 15(3–4), 132–138. doi:10.1159/000334341.
    • (2012) Public Health Genomics , vol.15 , Issue.3-4 , pp. 132-138
    • Williams, M.S.1
  • 82
    • 84929354136 scopus 로고    scopus 로고
    • BioBank seeks thousands of minority participants for study
    • Wormser, D. (2011). BioBank seeks thousands of minority participants for study. from http://www.utsouthwestern.edu/newsroom/center-times/year-2011/september/ct-biobank.html.
    • (2011) from
    • Wormser, D.1
  • 83
    • 84875180124 scopus 로고    scopus 로고
    • Exome profiling of primary, metastatic and recurrent ovarian carcinomas in a BRCA1-positive patient
    • COI: 1:CAS:528:DC%2BC3sXotVKitro%3D, PID: 23522120
    • Zhang, J., Shi, Y., Lalonde, E., Li, L., Cavallone, L., Ferenczy, A., & Majewski, J. (2013). Exome profiling of primary, metastatic and recurrent ovarian carcinomas in a BRCA1-positive patient. BMC Cancer, 13, 146. doi:10.1186/1471-2407-13-146.
    • (2013) BMC Cancer , vol.13 , pp. 146
    • Zhang, J.1    Shi, Y.2    Lalonde, E.3    Li, L.4    Cavallone, L.5    Ferenczy, A.6    Majewski, J.7
  • 84
    • 84859581546 scopus 로고    scopus 로고
    • The impact of genomics on public health practice: the case for change
    • COI: 1:STN:280:DC%2BC38rjsFOqsw%3D%3D, PID: 22488453
    • Zimmern, R. L., & Khoury, M. J. (2012). The impact of genomics on public health practice: the case for change. Public Health Genomics, 15(3–4), 118–124. doi:10.1159/000334840.
    • (2012) Public Health Genomics , vol.15 , Issue.3-4 , pp. 118-124
    • Zimmern, R.L.1    Khoury, M.J.2


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