Bioethics in popular science: Evaluating the media impact of the Immortal Llife of Henrietta Lacks on the biobank debate

BMC Medical Ethics

Volumn 14, Issue 1, 2013, Pages

  Nisbet, Matthew C ^a   Fahy, Declan ^a  

^a AMERICAN UNIVERSITY   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; AUSTRALIA; CANADA; ETHICS; HEALTH CARE FACILITY; HELA CELL; HUMAN; INFORMED CONSENT; LITERATURE; MASS MEDIUM; MORALITY; NEW ZEALAND; PRIVACY; PUBLISHING; SOCIAL BEHAVIOR; UNITED KINGDOM; UNITED STATES; VULNERABLE POPULATION;

AUSTRALIA; BIOLOGICAL SPECIMEN BANKS; CANADA; GREAT BRITAIN; HELA CELLS; HUMANS; INFORMED CONSENT; JOURNALISM, MEDICAL; LITERATURE, MODERN; MASS MEDIA; MORAL OBLIGATIONS; NEW ZEALAND; PRIVACY; SOCIAL RESPONSIBILITY; UNITED STATES; VULNERABLE POPULATIONS;

MLCS; MLOWN;

EID: 84874392177     PISSN: None     EISSN: 14726939     Source Type: Journal    
DOI: 10.1186/1472-6939-14-10     Document Type: Article

References (39)

1. Biobanks need publicity. Gaskell G, Gottweis H, Nature 2011 471 159 160 10.1038/471159a 21390108
2. Biobankonomics: developing a sustainable business model approach for the formation of a human tissue biobank. Vaught J, Rodgers J, Carolin T, Compton C, J Natl Cancer Inst Monogr 2009 42 24 31
3. Eisman E, Haga SB, Handbook of Human Tissue Sources: A National Resource of Human Tissue Samples Santa Monica, CA: RAND 1999
4. Personal medicine-the new banking crisis. Thomas Scott C, Caulfield T, Borgelt E, Illes J, Nat Biotechnol 2012 30 141 147 10.1038/nbt.2116 22318029
5. Skloot R, The Immortal Life of Henrietta Lacks New York: Crown 2010
6. Andrews L, Nelkin D, Body Bazaar: The Market for Human Tissue in the Biotechnology Age New York: Crown 2001
7. Public expectations for return of results from large-cohort genetic research. Murphy J, Am J Bioethics 2008 8 11 36 43 10.1080/15265160802513093
8. Genetics and Public Policy Center receives funding for public consultation project http://www.dnapolicy.org/news.release.php?action= detail&pressrelease-id=134
9. Public engagement and dialogue: A research review. Einsiedel E, Handbook of public communication on science and technology London: Routledge, Bucchi M, Smart B, 2008 173 184
10. Williams S, The genetic town hall: Public opinion about research on genes, environment, and health Baltimore, MD: Johns Hopkins University Genetics & Public Policy Center 2009
11. What's next for science communication? Promising directions and lingering distractions. Nisbet MC, Scheufele DA, Am J Bot 2009 96 1767 1778 10.3732/ajb.0900041 21622297
12. Fascination, at the cellular level. Bancroft C, Edmonton J 2011 1 4
13. A woman's undying gift to science. Garner D, New York Times 2010 3 1
14. She changed medicine, but her family can't afford health care. Roston E, The Washington Post 2010 31 01
15. The incredible story of the most important woman in the history of modern medicine. Cornwell R, The Independent on Sunday 2010 7 36
16. Henrietta's legacy: Hilary Mantel traces one woman's extraordinary medical afterlife. Mantel H, The Guardian 2010 Review:7
17. National Academies Communication Awards 2011 Winners and Finalists http://www8.nationalacademies.org/onpinews/newsitem.aspx?RecordID=01052012a
18. Why should we care about science books? Lewenstein BV, JCOM 2007 6 1 1 7
19. Telling stories about global climate change: measuring the impact of narratives on issue cycles. McComas K, Shanahan J, Communic Res 1999 26 30 57 10.1177/009365099026001003
20. The value of narrativity in the representation of reality. White H, Critical Inquiry 1980 1980 7 1 5 27
21. Communicating climate change: why frames matter to public engagement. Nisbet MC, Environment 2009 51 2 514 518
22. Rebecca Skloot on narrating history. Pitzer A, Nieman Storyboard 2010 http://www.niemanstoryboard.org/2010/07/16/rebecca-skloot-immortal-life-of- henrietta-lacks-interview-narrative/)
23. Whose life is it, anyway? Appleyard B, The Sunday Times 2010 38 40 Culture
24. Putting a face on scientific research. Kolker J, WSJ 2010 24 1
25. Cell division. Volmers E, Calgary Herald 2010 10
26. Taking the least of you. Skloot R, New York Times Sunday Magazine 2006
27. What is the body worth? Shulman AN, New Atlantis: A Journal of Technology and Society 2012 35 99 115
28. Beauchamp TL, Childress JF, Principles of biomedical ethics New York: Oxford University Press 5 2001
29. Getting down to cases: the revival of casuistry in bioethics. Arras J, J Med Philos 1991 16 29 51 10.1093/jmp/16.1.29 2010719
30. Attention cycles and frames in the plant biotechnology debate: Managing power and participation through the press/policy connection. Nisbet MC, Huge M, Harv Int J PressPolitics 2006 11 2 3 40 10.1177/1081180X06286701 (Pubitemid 43384521)
31. Framing science: The stem cell controversy in an age of press/politics. Nisbet MC, Brossard D, Kroepsch A, Harv Int J PressPolitics 2003 8 2 36 70 10.1177/1081180X02251047 (Pubitemid 36719570)
32. Books: The Immortal Life of Henrietta Lacks. James E, Mother Jones 2010 87
33. HeLa cells casts shadow on research. Zoller M, Intern Med News 2011 44 63
34. Compelling tale of cell appropriation, ethics. Forbes S, Winnipeg Free Press 2010 9
35. Story 'fed this deep fear for research'. Sabulis T, Atlanta J Constitution 2010 3B
36. Severson L, Ethics involved with blood and tissue research: Religion and Ethics Newsweekly. Public Broadcasting Service. 2010 June 25 6:00 p.m EST
37. Who owns your cells?New book tackles thorny issue. Joelving F, Reuters 2010 Available from: [ http://www.reuters.com/article/2010/02/12/us-owns-cells- idUSTRE61B42N20100212 ]. [Accessed: 25 Feburary 2013]
38. A lasting gift to medicine that wasn't really a gift. Grady D, NYT 2010 2 5
39. Biobanks, consent and claims of consensus. Master Z, Nelson E, Murdoch B, Caulfield C, Nat Methods 2012 9 885 888 10.1038/nmeth.2142 22936169