Academic outcomes of children with isolated orofacial clefts compared with children without a major birth defect

Cleft Palate-Craniofacial Journal

Volumn 52, Issue 3, 2015, Pages 259-268

  Knight, Jessica ^a   Cassell, Cynthia H ^b   Meyer, Robert E ^c   Strauss, Ronald P ^d  

^a EMORY UNIVERSITY   (United States)

^b NATIONAL CENTER ON BIRTH DEFECTS AND DEVELOPMENTAL DISABILITIES   (United States)

^c NORTH CAROLINA DEPARTMENT OF HEALTH AND HUMAN SERVICES   (United States)

^d UNIVERSITY OF NORTH CAROLINA   (United States)

Author keywords

Academic outcomes; Cleft lip; Cleft palate; Orofacial clefts

Indexed keywords

ACADEMIC ACHIEVEMENT; ADULT; ARTICLE; BIRTH CERTIFICATE; CHILD; CLEFT LIP; CLEFT LIP PALATE; CLEFT PALATE; CONGENITAL MALFORMATION; CONTROLLED STUDY; DEVELOPMENTAL DISORDER; FEMALE; HEARING DISORDER; HUMAN; LIKERT SCALE; MAJOR CLINICAL STUDY; MALE; MOTHER; OPEN ENDED QUESTIONNAIRE; PRIMARY SCHOOL; PRIORITY JOURNAL; RANDOM SAMPLE; SCHOOL CHILD; SPEECH DISORDER; UNITED STATES; COMPARATIVE STUDY; EDUCATION; HANDICAPPED CHILD; NORTH CAROLINA; PRESCHOOL CHILD; PSYCHOLOGY; QUESTIONNAIRE; TREATMENT OUTCOME;

CHILD; CHILD, PRESCHOOL; CLEFT LIP; CLEFT PALATE; DISABLED CHILDREN; EDUCATIONAL MEASUREMENT; FEMALE; HUMANS; MALE; MOTHERS; NORTH CAROLINA; SURVEYS AND QUESTIONNAIRES; TREATMENT OUTCOME;

EID: 84929309005     PISSN: 10556656     EISSN: 15451569     Source Type: Journal    
DOI: 10.1597/13-293     Document Type: Article

References (40)

1. Broder HL, Richman LC, Matheson PB. Learning disability, school achievement, and grade retention among children with cleft: a two-center study. Cleft Palate Craniofac J, 1998;35:127-131.
2. Broen PA, Devers MC, Doyle SS, Prouty JM, Moller KT. Acquisition of linguistic and cognitive skills by children with cleft palate. J Speech Lang Hear Res 1998;41:676-687.
3. Cassell CH, Krohmer A, Mendez DD, Strauss RP, Meyer RE. Factors associated with distance and time traveled to cleft and craniofacial care. Birth Defects Res A Clin Mol Teratol. 2013;97:685-695.
4. Cassell CH, Mendez DD, Strauss RP. Maternal perspectives: qualitative responses about perceived barriers to care among children with orofacial clefts in North Carolina. Cleft Palate Craniofac J. 2012;49:262-269.
5. Collett BR, Leroux B, Speltz ML. Language and early reading among children with orofacial clefts. Cleft Palate Craniofac J. 2010a;47:284-292.
6. Collett BR, Stott-Miller M, Kapp-Simon KA, Cunningham ML, Speltz ML. Reading in children with orofacial clefts versus controls. J Pediatr Psychol. 2010b;35:199-208.
7. Edwards TC, Patrick DL, Topolski TD, Aspinall CL, Mouradian WE, Speltz ML. Approaches to craniofacial-specific quality of life assessment in adolescents. Cleft Palate Craniofac J. 2005;42:19-24.
8. Eide MG, Skjaerven R, Irgens LM, Bjerkedal T, Oyen N. Associations of birth defects with adult intellectual performance, disability and mortality: population-based cohort study. Pediatr Res. 2006;59: 848-853.
9. Estes RE, Morris HL. Relationships among intelligence, speech proficiency, and hearing sensitivity in children with cleft palates. Cleft Palate J. 1970;7:763-773.
10. Fox D, Lynch J, Brookshire B. Selected developmental factors of cleft palate children between two and thirty-three months of age. Cleft Palate J. 1978;15:239-245.
11. Goodstein LD. Intellectual impairment in children with cleft palates. J Speech Hear Res. 1961;4:287-294.
12. Hentges F, Hill J, Bishop DV, Goodacre T, Moss T, Murray L. The effect of cleft lip on cognitive development in school-aged children: a paradigm for examining sensitive period effects. J Child Psychol Psychiatr. 2011;52:704-712.
13. Jocelyn LJ, Penko MA, Rode HL. Cognition, communication, and hearing in young children with cleft lip and palate and in control children: a longitudinal study. Pediatrics. 1996;97:529-534.
14. Kapp-Simon KA, Krueckeberg S. Mental development in infants with cleft lip and/or palate. Cleft Palate Craniofac J. 2000;37:65-70.
15. Kommers MS, Sullivan MD. Written language skills of children with cleft palate. Cleft Palate J. 1979;16:81-85.
16. Maternal and Child Health Bureau. National Survey of Children's Health, 2007. Available at http://www.cdc.gov/nchs/data/slaits/NSCH-Questionnaire.pdf. Accessed March 15, 2013.
17. National Birth Defects Prevention Network (NBDPN). Guidelines for Conducting Birth Defects Surveillance. In: Sever LE, ed. Atlanta: National Birth Defects Prevention Network; 2004.
18. National Birth Defects Prevention Network (NBDPN). State birth defects surveillance program directory. Birth Defects Res A Clin Mol Teratol. 2011;91:1028-1049.
19. North Carolina Institute of Medicine. Chapter 11: Socioeconomic Determinants of Health. In: Prevention for the Health of North Carolina: Prevention Action Plan. Morrisville: North Carolina Institute of Medicine:2009; 246.
20. North Carolina State Center for Health Statistics, DHHS. Selected Vital Statistics for 1996, 1997, 1998, 1999, 2000, 2001, and 2002. Available at http://www.schs.state.nc.us/data/vital.cfm. Accessed October 16, 2013a.
21. North Carolina State Center for Health Statistics, DHHS. N.C. Birth Defects, Statewide Totals. Available at http://www.schs.state.nc.us/schs/data/bdefects/defectsbystate.cfm. Accessed October 16, 2013b.
22. Parker SE, Mai CT, Canfield MA, Rickard R, Wang Y, Meyer RE, National Birth Defects Prevention Network. Updated national birth prevalence estimates for selected birth defects in the United States, 2004-2006. Birth Defects Res A Clin Mol Teratol. 2010;88:1008-1016.
23. Patrick DL, Edwards TC, Topolski TD. Adolescent quality of life, part II: initial validation of a new instrument. J Adolesc. 2002;25:287-300.
24. Persson M, Becker M, Svensson H. General intellectual capacity of young men with cleft lip with or without cleft palate and cleft palate alone. Scand J Plast Reconstr Surg Hand Surg. 2008;42:14-16.
25. Persson M, Becker M, Svensson H. Academic achievement in individuals with cleft: a population-based register study. Cleft Palate Craniofac J. 2012;49:153-159.
26. Rasmussen SA, Olney RS, Holmes LB, Lin AE, Keppler-Noreuil KM, Moore CA. Guidelines for case classification for the National Birth Defects Prevention Study. Birth Defects Res A Clin Mol Teratol. 2003;67:193-201.
27. Richman LC. Behavior and achievement of cleft palate children. Cleft Palate J. 1976;13:4-10.
28. Richman LC, Eliason MJ, Lindgren SD. Reading disability in children with clefts. Cleft Palate J. 1988;25:21-25.
29. Richman LC, McCoy TE, Conrad AL, Nopoulos PC. Neuropsychological, behavioral, and academic sequelae of cleft: early developmental, school age, and adolescent/young adult outcomes. Cleft Palate Craniofac J. 2012;49:387-396.
30. Schalock RL, Luckasson RA, Shogren KA, Borthwick-Duffy S, Bradley V, Buntinx WH, Coulter DL, Craig EM, Gomez SC, Lachapelle Y, et al. The renaming of mental retardation: understanding the change to the term intellectual disability. Intellect Dev Disabil. 2007;45:116-124.
31. Speltz ML, Endriga MC, Hill S, Maris CL, Jones K, Omnell ML. Cognitive and psychomotor development of infants with orofacial clefts. J Pediatr Psychol. 2000;25:185-190.
32. Strauss RP, Broder H. Children with cleft lip/palate and mental retardation: a subpopulation of cleft-craniofacial team patients. Cleft Palate Craniofac J. 1993;30:548-556.
33. Strauss RP, Sharp MC, Lorch SC, Kachalia B. Physicians and the communication of "bad news": parent experiences of being informed of their child's cleft lip and/or palate. Pediatrics. 1995;96:82-89.
34. Tilford JM, Grosse SD, Goodman AC, Li K. Labor market productivity costs for caregivers of children with spina bifida: a population-based analysis. Med Decis Making. 2009;29:23-32.
35. Topolski TD, Edwards TC, Patrick DL. Quality of life: how do adolescents with facial differences compare with other adolescents? Cleft Palate Craniofac J. 2005;42:25-32.
36. Varni JW, Burwinkle TM, Seid M. The PedsQL 4.0 as a school population health measure: feasibility, reliability, and validity. Qual Life Res. 2006;15:203-215.
37. Varni JW, Burwinkle TM, Sherman SA, Hanna K, Berrin SJ, Malcarne VL, Chambers HG. Health-related quality of life of children and adolescents with cerebral palsy: hearing the voices of the children. Dev Med Child Neurol. 2005;47:592-597.
38. Wehby GL, Tyler MC, Lindgren S, Romitti P, Robbins J, Damiano P. Oral clefts and behavioral health of young children. Oral Dis. 2012;18:74-84.
39. Yang J, Carmichael SL, Canfield M, Song J, Shaw GM, National Birth Defects Prevention Study. Socioeconomic status in relation to selected birth defects in a large multicentered US case-control study. Am J Epidemiol. 2008;167:145-154.
40. Yazdy MM, Autry AR, Honein MA, Frias JL. Use of special education services by children with orofacial clefts. Birth Defects Res A Clin Mol Teratol. 2008;82:147-154.