Labor market productivity costs for caregivers of children with spina bifida: A population-based analysis

Medical Decision Making

Volumn 29, Issue 1, 2009, Pages 23-32

  Tilford, John M ^a,d   Grosse, Scott D ^b   Goodman, Allen C ^c   Li, Kemeng ^c  

^a UNIVERSITY OF ARKANSAS FOR MEDICAL SCIENCES   (United States)

^b NATIONAL CENTER ON BIRTH DEFECTS AND DEVELOPMENTAL DISABILITIES   (United States)

^c WAYNE STATE UNIVERSITY   (United States)

^d Center for Applied Research and Evaluation   (United States)

Author keywords

Children; Cost effectiveness analysis; Disability; Lifetime costs; Productivity

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; BIRTH DEFECT; CAREGIVER; CHILD; COST CONTROL; COST EFFECTIVENESS ANALYSIS; COST OF ILLNESS; DEMOGRAPHY; DISABILITY; DISEASE SEVERITY; ECONOMIC ASPECT; EMPLOYMENT; FEMALE; HEALTH CARE COST; HOSPITAL CARE; HUMAN; MAJOR CLINICAL STUDY; MARKETING; OUTCOME ASSESSMENT; POPULATION BASED CASE CONTROL STUDY; PRESCHOOL CHILD; PRODUCTIVITY; REGRESSION ANALYSIS; SCHOOL CHILD; SPINA BIFIDA;

ADOLESCENT; AGED; ARKANSAS; CAREGIVERS; CASE-CONTROL STUDIES; CHILD; CHILD, PRESCHOOL; COST OF ILLNESS; COST-BENEFIT ANALYSIS; EFFICIENCY, ORGANIZATIONAL; EMPLOYMENT; HUMANS; MODELS, ECONOMIC; REGISTRIES; REGRESSION ANALYSIS; SEVERITY OF ILLNESS INDEX; SPINAL DYSRAPHISM;

EID: 59549084568     PISSN: 0272989X     EISSN: 1552681X     Source Type: Journal    
DOI: 10.1177/0272989X08322014     Document Type: Article

References (45)

1. Luce BR, Manning WG, Siegel JE, Lipscomb J. Estimating costs in cost-effectiveness analysis. In: Gold MR, Siegel JE, Russell LB, Weinstein MC, eds. Cost-Effectiveness in Health and Medicine. New York, Oxford: Oxford University Press ; 1996. p 176-213.
2. van den Berg B., Brouwer WB, Koopmanschap MA Economic valuation of informal care. An overview of methods and applications. Eur J Health Econ. 2004 ; 5: 36-45.
3. Stone PW, Chapman RH, Sandberg EA, Liljas B., Neumann PJ Measuring costs in cost-utility analyses. Variations in the literature. Int J Technol Assess Health Care. 2000 ; 16: 111-24.
4. Tranmer JE, Guerriere DN, Ungar WJ, Coyte PC Valuing patient and caregiver time: a review of the literature. Pharmacoeconomics. 2005 ; 23: 449-59.
5. Basu A., Meltzer D. Implications of spillover effects within the family for medical cost-effectiveness analysis. J Health Econ. 2005 ; 24: 751-73.
6. Brouwer WBF, Van Exel NJA, Koopmanschap MA, Rutten FFH. The valuation of informal care in economic appraisal. Int J Technol Assess Health Care. 1999 ; 15: 147-60.
7. Breslau N., Salkever D. Women's labor force activity and responsibilities for disabled dependents: a study of families with disabled children. J Health Soc Behav. 1982 ; 23: 169-83.
8. Anderson D., Dumont S., Jacobs P., Azzaria L. The personal costs of caring for a child with a disability: a review of the literature. Public Health Rep. 2007 ; 122: 3-16.
9. Gould E. Decomposing the effects of children's health on mother's labor supply: is it time or money ? Health Econ. 2004 ; 13: 525-41.
10. Powers ET Children's health and maternal work activity: estimates under alternative disability definitions. Journal of Human Resources. 2003 ; 38: 522-56.
11. Salkever DS Children's health problems: implications for parental labor supply and earnings. In: Fuchs VR, ed. Economic Aspects of Health. Chicago: University of Chicago Press ; 1982. p 221-51.
12. Carmichael F., Charles S. The labour market costs of community care. J Health Econ. 1998 ; 17: 747-65.
13. Grosse SD, Waitzman NJ, Romano PS, Mulinare J. Reevaluating the benefits of folic acid fortification in the United States: economic analysis, regulation, and public health. Am J Public Health. 2005 ; 95: 1917-22.
14. Kelly AE, Haddix AC, ScanlonKS, Helmick CG, Mulinare J. Cost-effectiveness of strategies to prevent neural tube defects. In: Siegel JE, Russell LB, Weinstein MC, Gold MR, eds. Cost-Effectiveness in Health and Medicine. New York, Oxford: Oxford University Press ; 1996. p 312-49.
15. Prevention of neural tube defects: results of the Medical Research Council Vitamin Study. MRC Vitamin Study Research Group. Lancet. 1991 ; 338: 131-7.
16. Berry RJ, Li Z., Erickson JD, et al. Prevention of neural-tube defects with folic acid in China: China-U.S. Collaborative Project for Neural Tube Defect Prevention [corrected; erratum to be published]. N Engl J Med. 1999 ; 341: 1485-90.
17. Czeizel AE Primary prevention of neural-tube defects and some other major congenital abnormalities: recommendations for the appropriate use of folic acid during pregnancy. Paediatr Drugs. 2000 ; 2: 437-49.
18. Lipscomb J. Human capital, willingness-to-pay, and cost-effectiveness analyses of screening for birth defects in North Carolina. Presented at the annual meeting of the American Economic Association, December 1986, New Orleans.
19. Tilford JM, Robbins JM, Hobbs CA Improving estimates of caregiver time cost and family impact associated with birth defects. Teratology. 2001 ; 64 (Suppl 1). S37-41.
20. Haddix AC, Teutsch SM, Phaedra S. Corso PS, eds. Prevention Effectiveness: A Guide to Decision Analysis and Economic Evaluation. New York: Oxford University Press ; 1996.
21. Miller TR, Romano EO, Spicer RS The cost of childhood unintentional injuries and the value of prevention. Future Child. 2000 ; 10: 137-63.
22. Waitzman NJ, Scheffler RM, Romano PS The Costs of Birth Defects: Estimates of the Value of Prevention. New York, London, Lanham: University Press of America Inc.; 1996.
23. Berkowitz N., Gupta S., Silberman G. Estimates of the lifetime direct costs of treatment for metastatic breast cancer. Value Health. 2000 ; 3: 23-30.
24. Chen L., Hay JW Cost-effectiveness of primary implanted cardioverter defibrillator for sudden death prevention in congestive heart failure. Cardiovasc Drugs Ther. 2004 ; 18: 161-70.
25. Alemayehu B., Warner KE The lifetime distribution of health care costs. Health Serv Res. 2004 ; 39: 627-42.
26. Lipscomb J., Weinstein MC, Torrance GW Time preference. In: Gold MR, Siegel JE, Russell LB, Weinstein MC, eds. Cost Effectiveness in Health and Medicine. New York, Oxford: Oxford University Press ; 1996. p 214-46.
27. Bradley CJ, Neumark D., Bednarek HL, Schenk M. Short-term effects of breast cancer on labor market attachment: results from a longitudinal study. J Health Econ. 2005 ; 24: 137-60.
28. Bradley CJ, Bednarek HL, Neumark D. Breast cancer survival, work, and earnings. J Health Econ. 2002 ; 21: 757-79.
29. Tilford JM, Grosse SD, Robbins JM, Pyne JM, Cleves MA, Hobbs CA Health state preference scores of children with spina bifida and their caregivers. Qual Life Res. 2005 ; 14: 1087-98.
30. Bradley CJ, Neumark D., Oberst K., Luo Z., Brennan S., Schenk M. Combining registry, primary, and secondary data sources to identify the impact of cancer on labor market outcomes. Med Decis Making. 2005 ; 25: 534-47.
31. Waitzman NJ, Romano PS, Grosse SD The half-life of cost of illness estimates: the case of spina bifida. In: Wyszynski DF, ed. Neural Tube Defects: From Origin to Treatment. New York: Oxford University Press ; 2005. p 342-51.
32. Wong LY, Paulozzi LJ Survival of infants with spina bifida: a population study, 1979-94. Paediatr Perinat Epidemiol. 2001 ; 15: 374-8.
33. Grosse SD Productivity loss tables. In: Haddix AC, Teutsch SM, Corso PS, eds. Prevention Effectiveness: A Guide to Decision Analysis and Economic Evaluation. 2 nd ed. London: Oxford University Press ; 2003. p 245-57.
34. Williams LJ, Rasmussen SA, Flores A., Kirby RS, Edmonds LD Decline in the prevalence of spina bifida and anencephaly by race/ethnicity: 1995-2002. Pediatrics. 2005 ; 116: 580-6.
35. Brehaut JC, Kohen DE, Raina P., et al. The health of primary caregivers of children with cerebral palsy: how does it compare with that of other Canadian caregivers? Pediatrics. 2004 ; 114: e182-91.
36. Kuhlthau KA, Perrin JM Child health status and parental employment. Arch Pediatr Adolesc Med. 2001 ; 155: 1346-50.
37. Guerriere DN, Tullis E., Ungar WJ, et al. Economic burden of ambulatory and home-based care for adults with cystic fibrosis. Treat Respir Med. 2006 ; 5: 351-9.
38. Hamermesh DS, Frazis H., Stewart J. The American time use survey. J Econ Perspect. 2005 ; 19: 221-32.
39. Russell LB, Ibuka Y., Abraham KG Health-related activities in the American Time Use Survey. Med Care. 2007 ; 45: 680-5.
40. Ettner SL The impact of ''parent care'' on female labor supply decisions. Demography. 1995 ; 32: 63-80.
41. Cantor SB, Levy LB, Cardenas-Turanzas M., et al. Collecting direct non-health care and time cost data: application to screening and diagnosis of cervical cancer. Med Decis Making. 2006 ; 26: 265-72.
42. Romano PS, Waitzman NJ, Scheffler RM, Pi RD Folic acid fortification of grain: an economic analysis. Am J Public Health. 1995 ; 85: 667-76.
43. Busby A., Armstrong B., Dolk H., et al. Preventing neural tube defects in Europe: a missed opportunity. Reprod Toxicol. 2005 ; 20: 393-402.
44. Oakley GP, Mandel JS Folic acid fortification remains an urgent health priority. BMJ. 2004 ; 329: 1376.
45. Stevenson RE, Allen WP, Pai GS, et al. Decline in prevalence of neural tube defects in a high-risk region of the United States. Pediatrics. 2000 ; 106: 677-83