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Volumn 24, Issue 5, 2015, Pages 1069-1076

Patient and public engagement in health-related quality of life and patient-reported outcomes research: what is important and why should we care? Findings from the first ISOQOL patient engagement symposium

Author keywords

Health related quality of life research; ISOQOL; Patient and public involvement; Patient engagement in research; Patient reported outcomes; World caf

Indexed keywords

ARTICLE; AUTHORITY; CULTURAL FACTOR; EMPOWERMENT; EVIDENCE BASED PRACTICE; EXPECTATION; EXPLORATORY BEHAVIOR; FINANCIAL MANAGEMENT; HUMAN; MEDICAL RESEARCH; METHODOLOGY; OUTCOMES RESEARCH; PATIENT INFORMATION; PATIENT PARTICIPATION; PERSONAL EXPERIENCE; PRACTICE GUIDELINE; QUALITY OF LIFE; REWARD; SELECTION BIAS; SOCIAL ASPECT; SUPPORT GROUP; SYMPOSIUM; THEMATIC ANALYSIS; HEALTH SERVICES RESEARCH; HEALTH STATUS; MALE; MIDDLE AGED; ORGANIZATION; OUTCOME ASSESSMENT; PROCEDURES; SELF REPORT;

EID: 84928780482     PISSN: 09629343     EISSN: None     Source Type: Journal    
DOI: 10.1007/s11136-014-0796-3     Document Type: Article
Times cited : (59)

References (27)
  • 1
    • 84880285430 scopus 로고    scopus 로고
    • Patient and public involvement in research: future challenges
    • PID: 23749800
    • Staniszewska, S., & Denegri, S. (2013). Patient and public involvement in research: future challenges. Evidence Based Nursing,16(3), 69.
    • (2013) Evidence Based Nursing , vol.16 , Issue.3 , pp. 69
    • Staniszewska, S.1    Denegri, S.2
  • 2
    • 84880229178 scopus 로고    scopus 로고
    • A model for incorporating patient and stakeholder voices in a learning health care network: Washington State’s Comparative Effectiveness Research Translation Network
    • PID: 23849146
    • Devine, E. B., et al. (2013). A model for incorporating patient and stakeholder voices in a learning health care network: Washington State’s Comparative Effectiveness Research Translation Network. Journal of Clinical Epidemiology,66(8 Suppl), S122–S129.
    • (2013) Journal of Clinical Epidemiology , vol.66 , pp. 122-129
    • Devine, E.B.1
  • 3
    • 84870524790 scopus 로고    scopus 로고
    • Stakeholder participation in comparative effectiveness research: defining a framework for effective engagement
    • PID: 22707880
    • Deverka, P. A., et al. (2012). Stakeholder participation in comparative effectiveness research: defining a framework for effective engagement. Journal of Comparative Effectiveness Research,1(2), 181–194.
    • (2012) Journal of Comparative Effectiveness Research , vol.1 , Issue.2 , pp. 181-194
    • Deverka, P.A.1
  • 4
    • 84859982367 scopus 로고    scopus 로고
    • Patient and public involvement in patient-reported outcome measures: evolution not revolution
    • PID: 22428752
    • Staniszewska, S., et al. (2012). Patient and public involvement in patient-reported outcome measures: evolution not revolution. Patient,5(2), 79–87.
    • (2012) Patient , vol.5 , Issue.2 , pp. 79-87
    • Staniszewska, S.1
  • 5
    • 84876902259 scopus 로고    scopus 로고
    • A practice-based tool for engaging stakeholders in future research: A synthesis of current practices
    • PID: 23497857
    • Guise, J. M., et al. (2013). A practice-based tool for engaging stakeholders in future research: A synthesis of current practices. Journal of Clinical Epidemiology,66(6), 666–674.
    • (2013) Journal of Clinical Epidemiology , vol.66 , Issue.6 , pp. 666-674
    • Guise, J.M.1
  • 6
    • 84928801387 scopus 로고    scopus 로고
    • The World Cafe. Shaping Our Futures Through Conversations That Matter (p. 765). Berrett-Koehler Publishers
    • Brown, J. I. D. (2005). The World Cafe. Shaping Our Futures Through Conversations That Matter (p. 765). Berrett-Koehler Publishers. Inc.
    • (2005) Inc
    • Brown, J.I.D.1
  • 7
    • 84868303170 scopus 로고    scopus 로고
    • A creative approach to the development of an agenda for knowledge utilization: outputs from the 11th international knowledge utilization colloquium (KU 11)
    • PID: 22849391
    • Wilkinson, J. E., et al. (2012). A creative approach to the development of an agenda for knowledge utilization: outputs from the 11th international knowledge utilization colloquium (KU 11). Worldviews on Evidence Based Nursing,9(4), 195–199.
    • (2012) Worldviews on Evidence Based Nursing , vol.9 , Issue.4 , pp. 195-199
    • Wilkinson, J.E.1
  • 8
    • 84928792461 scopus 로고    scopus 로고
    • Introduction to Research Methods in Psychology (2nd Edition)
    • Howitt, D. C. D. (2008). Introduction to Research Methods in Psychology (2nd Edition). Pearson Education Ltd.
    • (2008) Pearson Education Ltd
    • Howitt, D.C.D.1
  • 10
    • 84958357832 scopus 로고
    • Disabled people, service users, user involvement and representation
    • Beresford, P., & Campbell, J. (1994). Disabled people, service users, user involvement and representation. Disability and Society,9(3), 315–325.
    • (1994) Disability and Society , vol.9 , Issue.3 , pp. 315-325
    • Beresford, P.1    Campbell, J.2
  • 11
    • 49749112403 scopus 로고    scopus 로고
    • Citizens’ juries in planning research priorities: Process, engagement and outcome
    • PID: 18816323
    • Gooberman-Hill, R., Horwood, J., & Calnan, M. (2008). Citizens’ juries in planning research priorities: Process, engagement and outcome. Health Expectations,11(3), 272–281.
    • (2008) Health Expectations , vol.11 , Issue.3 , pp. 272-281
    • Gooberman-Hill, R.1    Horwood, J.2    Calnan, M.3
  • 12
    • 84928781214 scopus 로고    scopus 로고
    • Involving consumers in research and development in the NHS, Briefing notes for researchers:
    • Hanley, B., Bradburn, J., Gorin, S. et al. (2000). Involving consumers in research and development in the NHS: Briefing notes for researchers.
    • (2000) et al
    • Hanley, B.1    Bradburn, J.2    Gorin, S.3
  • 14
    • 79952057259 scopus 로고    scopus 로고
    • Collaboration with patients in the design of patient-reported outcome measures: capturing the experience of fatigue in rheumatoid arthritis
    • PID: 20496429
    • Nicklin, J., et al. (2010). Collaboration with patients in the design of patient-reported outcome measures: capturing the experience of fatigue in rheumatoid arthritis. Arthritis Care and Research,62(11), 1552–1558.
    • (2010) Arthritis Care and Research , vol.62 , Issue.11 , pp. 1552-1558
    • Nicklin, J.1
  • 15
    • 70349264142 scopus 로고    scopus 로고
    • Progress on incorporating the patient perspective in outcome assessment in rheumatology and the emergence of life impact measures at OMERACT 9
    • PID: 19738216
    • Kirwan, J. R., et al. (2009). Progress on incorporating the patient perspective in outcome assessment in rheumatology and the emergence of life impact measures at OMERACT 9. Journal of Rheumatology,36(9), 2071–2076.
    • (2009) Journal of Rheumatology , vol.36 , Issue.9 , pp. 2071-2076
    • Kirwan, J.R.1
  • 16
    • 84925934320 scopus 로고    scopus 로고
    • Mapping the impact of patient and public involvement on health and social care research: a systematic review. Health Expect
    • Brett, J., et al. (2012). Mapping the impact of patient and public involvement on health and social care research: a systematic review. Health Expect. doi:10.1111/j.1369-7625.2012.00795.x.
    • (2012) doi:10.1111/j.1369-7625.2012.00795.x
    • Brett, J.1
  • 17
    • 84885348617 scopus 로고    scopus 로고
    • de Wit, M., Abma, T., Koelewijn-van Loon, M., Collins, S., & Kirwan, J. (2013). Facilitating and inhibiting factors for long-term involvement of patients at outcome conferences–lessons learnt from a decade of collaboration in OMERACT: a qualitative study. BMJ Open,3(8), e003311.
    • de Wit, M., Abma, T., Koelewijn-van Loon, M., Collins, S., & Kirwan, J. (2013). Facilitating and inhibiting factors for long-term involvement of patients at outcome conferences–lessons learnt from a decade of collaboration in OMERACT: a qualitative study. BMJ Open,3(8), e003311. doi:10.1136/bmjopen-2013-003311.
  • 18
    • 84878391110 scopus 로고    scopus 로고
    • de Wit, M., Abma, T., Koelewijn-van Loon, M., Collins, S., & Kirwan, J. (2013). Involving patient research partners has a significant impact on outcomes research: A responsive evaluation of the international OMERACT conferences. BMJ Open,3(5). pii: e002241.
    • de Wit, M., Abma, T., Koelewijn-van Loon, M., Collins, S., & Kirwan, J. (2013). Involving patient research partners has a significant impact on outcomes research: A responsive evaluation of the international OMERACT conferences. BMJ Open,3(5). pii: e002241. doi:10.1136/bmjopen-2012-002241.
  • 19
    • 84891552285 scopus 로고    scopus 로고
    • If i wasn’t this robust: Patients’ expectations and experiences at the outcome measures in rheumatology conference 2010
    • PID: 23736943
    • de Wit, M. P., et al. (2013). If i wasn’t this robust: Patients’ expectations and experiences at the outcome measures in rheumatology conference 2010. Patient,6(3), 179–187.
    • (2013) Patient , vol.6 , Issue.3 , pp. 179-187
    • de Wit, M.P.1
  • 20
    • 84859874828 scopus 로고    scopus 로고
    • Continuous patient engagement in comparative effectiveness research
    • COI: 1:CAS:528:DC%2BC38XmtFaktrs%3D, PID: 22511684
    • Mullins, C. D., Abdulhalim, A. M., & Lavallee, D. C. (2012). Continuous patient engagement in comparative effectiveness research. JAMA,307(15), 1587–1588.
    • (2012) JAMA , vol.307 , Issue.15 , pp. 1587-1588
    • Mullins, C.D.1    Abdulhalim, A.M.2    Lavallee, D.C.3
  • 21
    • 84864423456 scopus 로고    scopus 로고
    • A new taxonomy for stakeholder engagement in patient-centered outcomes research
    • PID: 22528615
    • Concannon, T. W., et al. (2012). A new taxonomy for stakeholder engagement in patient-centered outcomes research. Journal of General Internal Medicine,27(8), 985–991.
    • (2012) Journal of General Internal Medicine , vol.27 , Issue.8 , pp. 985-991
    • Concannon, T.W.1
  • 22
    • 84855871355 scopus 로고    scopus 로고
    • The impact of patient and public involvement on UK NHS health care: A systematic review
    • PID: 22109631
    • Mockford, C., et al. (2012). The impact of patient and public involvement on UK NHS health care: A systematic review. International Journal for Quality in Health Care,24(1), 28–38.
    • (2012) International Journal for Quality in Health Care , vol.24 , Issue.1 , pp. 28-38
    • Mockford, C.1
  • 23
    • 84855909579 scopus 로고    scopus 로고
    • The GRIPP checklist: strengthening the quality of patient and public involvement reporting in research
    • PID: 22004782
    • Staniszewska, S., et al. (2011). The GRIPP checklist: strengthening the quality of patient and public involvement reporting in research. International Journal of Technology Assessment in Health Care,27(4), 391–399.
    • (2011) International Journal of Technology Assessment in Health Care , vol.27 , Issue.4 , pp. 391-399
    • Staniszewska, S.1
  • 25
    • 84874371892 scopus 로고    scopus 로고
    • Reporting of patient-reported outcomes in randomized trials: the CONSORT PRO extension
    • COI: 1:CAS:528:DC%2BC3sXjsFCrsbY%3D, PID: 23443445
    • Calvert, M., et al. (2013). Reporting of patient-reported outcomes in randomized trials: the CONSORT PRO extension. JAMA,309(8), 814–822.
    • (2013) JAMA , vol.309 , Issue.8 , pp. 814-822
    • Calvert, M.1
  • 27
    • 84858864242 scopus 로고    scopus 로고
    • Quality and acceptability of patient-reported outcome measures used in chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME): A systematic review
    • PID: 21590511
    • Haywood, K. L., Staniszewska, S., & Chapman, S. (2012). Quality and acceptability of patient-reported outcome measures used in chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME): A systematic review. Quality of Life Research,21(1), 35–52.
    • (2012) Quality of Life Research , vol.21 , Issue.1 , pp. 35-52
    • Haywood, K.L.1    Staniszewska, S.2    Chapman, S.3


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.