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Volumn 66, Issue 8 SUPPL.8, 2013, Pages

A model for incorporating patient and stakeholder voices in a learning health care network: Washington State's comparative effectiveness research translation network

Author keywords

Comparative effectiveness research; Patient centered outcomes research; Patient reported outcomes; Peripheral artery disease; Research infrastructure; Stakeholders

Indexed keywords

ARTICLE; CHECKLIST; COHORT ANALYSIS; COMPARATIVE EFFECTIVENESS; CONCEPTUAL FRAMEWORK; FOLLOW UP; HEALTH CARE; HUMAN; LEARNING; NON INVASIVE PROCEDURE; OUTCOME ASSESSMENT; PATIENT ASSESSMENT; PERIPHERAL OCCLUSIVE ARTERY DISEASE; PRIORITY JOURNAL; QUALITY OF LIFE; RESEARCH;

EID: 84880229178     PISSN: 08954356     EISSN: 18785921     Source Type: Journal    
DOI: 10.1016/j.jclinepi.2013.04.007     Document Type: Article
Times cited : (37)

References (38)
  • 1
    • 77957859521 scopus 로고    scopus 로고
    • Seventy-five trials and eleven systematic reviews a day: How will we ever keep up?
    • H. Bastian, P. Blasziou, and I. Chalmers Seventy-five trials and eleven systematic reviews a day: how will we ever keep up? PLoS Med 7 2010 e1000326
    • (2010) PLoS Med , vol.7 , pp. 1000326
    • Bastian, H.1    Blasziou, P.2    Chalmers, I.3
  • 2
    • 79751468962 scopus 로고    scopus 로고
    • The clinical research enterprise
    • M.D. Zilberberg The clinical research enterprise JAMA 305 2011 604 605
    • (2011) JAMA , vol.305 , pp. 604-605
    • Zilberberg, M.D.1
  • 3
    • 67651148219 scopus 로고    scopus 로고
    • Comparative-effectiveness research - Implications of the Federal Coordinating Council's report
    • P.H. Conway, and C. Clancy Comparative-effectiveness research - implications of the Federal Coordinating Council's report N Engl J Med 36 2009 328 330
    • (2009) N Engl J Med , vol.36 , pp. 328-330
    • Conway, P.H.1    Clancy, C.2
  • 4
    • 77955752863 scopus 로고    scopus 로고
    • Comparative effectiveness research: Policy context, methods development and research infrastructure
    • S.R. Tunis, J. Benner, and M. McClellan Comparative effectiveness research: policy context, methods development and research infrastructure Stat Med 29 2010 1963 1976
    • (2010) Stat Med , vol.29 , pp. 1963-1976
    • Tunis, S.R.1    Benner, J.2    McClellan, M.3
  • 5
    • 0038293333 scopus 로고    scopus 로고
    • Deliberations about deliberative methods: Issues in the design and evaluation of public participation processes
    • DOI 10.1016/S0277-9536(02)00343-X, PII S027795360200343X
    • J. Abelson, P.G. Forest, J. Eyles, P. Smith, E. Martin, and F.P. Vauvin Deliberations about deliberative methods: issues in the design and evaluation of public participation processes Soc Sci Med 57 2 2003 239 251 (Pubitemid 36582667)
    • (2003) Social Science and Medicine , vol.57 , Issue.2 , pp. 239-251
    • Abelson, J.1    Forest, P.-G.2    Eyles, J.3    Smith, P.4    Martin, E.5    Gauvin, F.-P.6
  • 6
    • 68149169848 scopus 로고    scopus 로고
    • Developing stakeholder involvement for introducing public health genomics into public policy
    • H. Burton, M. Adams, R. Bunton, and P. SchroderBack Developing stakeholder involvement for introducing public health genomics into public policy Public Health Genomics 12 2008 11 19
    • (2008) Public Health Genomics , vol.12 , pp. 11-19
    • Burton, H.1    Adams, M.2    Bunton, R.3    Schroderback, P.4
  • 7
    • 34447544161 scopus 로고    scopus 로고
    • Operationalizing a model framework for consumer and community participation in health and medical research
    • C. Saunders, S. Crossing, A. Girgis, P. Butow, and A. Penman Operationalizing a model framework for consumer and community participation in health and medical research Aust New Zealand Health Policy 4 1 2007 13
    • (2007) Aust New Zealand Health Policy , vol.4 , Issue.1 , pp. 13
    • Saunders, C.1    Crossing, S.2    Girgis, A.3    Butow, P.4    Penman, A.5
  • 9
    • 0036085994 scopus 로고    scopus 로고
    • Consumer involvement in health research: A review and research agenda
    • DOI 10.1016/S0168-8510(01)00214-7, PII S0168851001002147
    • J. Boote, R. Telford, and C. Cooper Consumer involvement in health research: a review and research agenda Health Policy 61 2 2002 213 236 (Pubitemid 34669916)
    • (2002) Health Policy , vol.61 , Issue.2 , pp. 213-236
    • Boote, J.1    Telford, R.2    Cooper, C.3
  • 10
    • 79952118534 scopus 로고    scopus 로고
    • How best to engage patients, doctors, and other stakeholders in designing comparative effectiveness studies
    • A. Hoffman, R. Montgomery, W. Aubry, and S.R. Tunis How best to engage patients, doctors, and other stakeholders in designing comparative effectiveness studies Health Aff (Millwood) 29 10 2010 1834 1841
    • (2010) Health Aff (Millwood) , vol.29 , Issue.10 , pp. 1834-1841
    • Hoffman, A.1    Montgomery, R.2    Aubry, W.3    Tunis, S.R.4
  • 11
    • 84859864850 scopus 로고    scopus 로고
    • The Patient-Centered Outcomes Research Institute (PCORI) national priorities for research and initial research agenda
    • J.V. Selby, A.C. Beal, and L. Frank The Patient-Centered Outcomes Research Institute (PCORI) national priorities for research and initial research agenda JAMA 307 2012 1583 1584
    • (2012) JAMA , vol.307 , pp. 1583-1584
    • Selby, J.V.1    Beal, A.C.2    Frank, L.3
  • 14
    • 84870524790 scopus 로고    scopus 로고
    • Stakeholder participation in comparative effectiveness research: Defining a framework for effective engagement
    • P.A. Deverka, D.C. Lavallee, P.J. Desai, L.C. Esmail, S.D. Ramsey, and D.L. Veenstra Stakeholder participation in comparative effectiveness research: defining a framework for effective engagement J Comp Eff Res 1 2 2012 181 194
    • (2012) J Comp Eff Res , vol.1 , Issue.2 , pp. 181-194
    • Deverka, P.A.1    Lavallee, D.C.2    Desai, P.J.3    Esmail, L.C.4    Ramsey, S.D.5    Veenstra, D.L.6
  • 16
    • 84859874828 scopus 로고    scopus 로고
    • Continuous patient engagement in comparative effectiveness research
    • C.D. Mullins, A.M. Abdulhalim, and D.C. Lavallee Continuous patient engagement in comparative effectiveness research JAMA 307 2012 1587 1588
    • (2012) JAMA , vol.307 , pp. 1587-1588
    • Mullins, C.D.1    Abdulhalim, A.M.2    Lavallee, D.C.3
  • 17
    • 27744523577 scopus 로고    scopus 로고
    • Washington State's approach to variability in surgical processes/Outcomes: Surgical Clinical Outcomes Assessment Program (SCOAP)
    • DOI 10.1016/j.surg.2005.07.026, PII S0039606005004034
    • D.R. Flum, N. Fisher, J. Thompson, M. Marcus-Smith, M. Florence, and C.A. Pellegrini Washington State's approach to surgical variability in surgical processes/outcomes: surgical Clinical Outcomes Assessment Program (SCOAP) Surgery 138 2005 821 828 (Pubitemid 41608475)
    • (2005) Surgery , vol.138 , Issue.5 , pp. 821-828
    • Flum, D.R.1    Fisher, N.2    Thompson, J.3    Marcus-Smith, M.4    Florence, M.5    Pellegrini, C.A.6
  • 18
    • 84880245107 scopus 로고    scopus 로고
    • Accessed March 5, 2013
    • Foundation for Healthcare Quality. Available at http://www.qualityhealth. org/. Accessed March 5, 2013.
    • Foundation for Healthcare Quality
  • 19
    • 84880227816 scopus 로고    scopus 로고
    • Accessed March 5, 2013
    • Life Sciences Discovery Fund. Available at http://www.lsdfa.org/. Accessed March 5, 2013.
    • Life Sciences Discovery Fund
  • 20
    • 84855821622 scopus 로고    scopus 로고
    • Creating a learning healthcare system in surgery: Washington State's Surgical Care and Outcomes Assessment Program (SCOAP) at 5 years
    • SCOAP Collaborative Writing Group for the SCOAP Collaborative
    • S. Kwon, M. Florence, P. Gragas, M. Horton, K. Horvath, M. Johnson SCOAP Collaborative Writing Group for the SCOAP Collaborative Creating a learning healthcare system in surgery: Washington State's Surgical Care and Outcomes Assessment Program (SCOAP) at 5 years Surgery 151 2012 146 152
    • (2012) Surgery , vol.151 , pp. 146-152
    • Kwon, S.1    Florence, M.2    Gragas, P.3    Horton, M.4    Horvath, K.5    Johnson, M.6
  • 21
    • 33846497950 scopus 로고    scopus 로고
    • Inter-society consensus for the management of peripheral arterial disease (TASC II)
    • TASC II Working Group
    • L. Norgren, W.R. Hiatt, J.A. Dormandy, M.R. Nehler, K.A. Harris, F.G. Fowkes TASC II Working Group Inter-society consensus for the management of peripheral arterial disease (TASC II) J Vasc Surg 45 suppl S 2007 S5
    • (2007) J Vasc Surg , vol.45 , Issue.SUPPL S , pp. 5
    • Norgren, L.1    Hiatt, W.R.2    Dormandy, J.A.3    Nehler, M.R.4    Harris, K.A.5    Fowkes, F.G.6
  • 22
    • 4043152705 scopus 로고    scopus 로고
    • Prevalence of and risk factors for peripheral arterial disease in the United States: Results from the National Health and Nutrition Examination Survey, 1999-2000
    • E. Selvin, and T.P. Erlinger Prevalence of and risk factors for peripheral arterial disease in the United States: results from the National Health and Nutrition Examination Survey, 1999-2000 Circulation 110 2004 738
    • (2004) Circulation , vol.110 , pp. 738
    • Selvin, E.1    Erlinger, T.P.2
  • 23
    • 55249092477 scopus 로고    scopus 로고
    • National health care costs of peripheral arterial disease in the Medicare population
    • A.T. Hirsch, L. Hartman, R.J. Town, and B.A. Virnig National health care costs of peripheral arterial disease in the Medicare population Vasc Med 13 2008 209 215
    • (2008) Vasc Med , vol.13 , pp. 209-215
    • Hirsch, A.T.1    Hartman, L.2    Town, R.J.3    Virnig, B.A.4
  • 26
    • 84858645799 scopus 로고    scopus 로고
    • Prospective observational studies to assess comparative effectiveness: The ISPOR good research practices task force report
    • M.L. Berger, N. Dreyer, F. Anderson, A. Towse, A. Sedrakyan, and S.L. Normand Prospective observational studies to assess comparative effectiveness: the ISPOR good research practices task force report Value Health 15 2012 217 230
    • (2012) Value Health , vol.15 , pp. 217-230
    • Berger, M.L.1    Dreyer, N.2    Anderson, F.3    Towse, A.4    Sedrakyan, A.5    Normand, S.L.6
  • 28
    • 70350780206 scopus 로고    scopus 로고
    • Good research practices for comparative effectiveness research: Approaches to mitigate bias and confounding in the design of non-randomized studies of treatment effects using secondary data sources: The ISPOR good research practices for retrospective database analysis task force-Part II
    • E. Cox, B.C. Martin, T. Van Staa, E. Garbe, U. Siebert, and M.L. Johnson Good research practices for comparative effectiveness research: approaches to mitigate bias and confounding in the design of non-randomized studies of treatment effects using secondary data sources: the ISPOR good research practices for retrospective database analysis task force-Part II Value Health 12 2009 1053 1061
    • (2009) Value Health , vol.12 , pp. 1053-1061
    • Cox, E.1    Martin, B.C.2    Van Staa, T.3    Garbe, E.4    Siebert, U.5    Johnson, M.L.6
  • 29
    • 70350776529 scopus 로고    scopus 로고
    • Good research practices for comparative effectiveness research: Analytic methods to improve causal inference from nonrandomized studies of treatment effects using secondary data sources: The ISPOR good research practices for retrospective database analysis task force report - Part III
    • M.L. Johnson, W. Crown, B.C. Martin, C.R. Dormuth, and U. Siebert Good research practices for comparative effectiveness research: analytic methods to improve causal inference from nonrandomized studies of treatment effects using secondary data sources: the ISPOR good research practices for retrospective database analysis task force report - Part III Value Health 12 2009 1062 1073
    • (2009) Value Health , vol.12 , pp. 1062-1073
    • Johnson, M.L.1    Crown, W.2    Martin, B.C.3    Dormuth, C.R.4    Siebert, U.5
  • 30
    • 0036112505 scopus 로고    scopus 로고
    • Assessing health status and quality-of-life instruments: Attributes and review criteria
    • Assessing health status and quality-of-life instruments: attributes and review criteria Qual Life Res 11 2002 193 205
    • (2002) Qual Life Res , vol.11 , pp. 193-205
  • 31
    • 67649208666 scopus 로고    scopus 로고
    • The walking impairment questionnaire: An effective tool to assess the effect of treatment in patients with intermittent claudication
    • S.P. Nicolai, L.M. Kruidenier, E.V. Rouwet, K. Graffius, M.H. Prins, and J.A. Teijink The walking impairment questionnaire: an effective tool to assess the effect of treatment in patients with intermittent claudication J Vasc Surg 50 2009 89 94
    • (2009) J Vasc Surg , vol.50 , pp. 89-94
    • Nicolai, S.P.1    Kruidenier, L.M.2    Rouwet, E.V.3    Graffius, K.4    Prins, M.H.5    Teijink, J.A.6
  • 32
    • 0025688231 scopus 로고
    • EuroQol-A new facility for the measurement of health-related quality of life
    • EuroQol Group
    • EuroQol Group EuroQol-A new facility for the measurement of health-related quality of life Health Policy 16 1990 199 208
    • (1990) Health Policy , vol.16 , pp. 199-208
  • 33
    • 0035318604 scopus 로고    scopus 로고
    • Developing the Vascular Quality of Life Questionnaire: A new disease-specific quality of life measure for use in lower limb ischemia
    • DOI 10.1067/mva.2001.112326
    • M.B. Morgan, T. Crayford, B. Murrin, and S.C. Fraser Developing the Vascular Quality of Life Questionnaire: a new disease-specific quality of life measure for use in lower limb ischemia J Vasc Surg 33 2001 679 687 (Pubitemid 33586617)
    • (2001) Journal of Vascular Surgery , vol.33 , Issue.4 , pp. 679-687
    • Morgan, M.B.F.1    Crayford, T.2    Murrin, B.3    Fraser, S.C.A.4
  • 35
    • 64349091498 scopus 로고    scopus 로고
    • The NIH stimulus - The recovery Act and biomedical research
    • R. Steinbrook The NIH stimulus - the recovery Act and biomedical research N Engl J Med 36 2009 1479 1481
    • (2009) N Engl J Med , vol.36 , pp. 1479-1481
    • Steinbrook, R.1
  • 36
    • 84870784469 scopus 로고    scopus 로고
    • HealthCare.gov. Accessed March 5, 2013
    • The Affordable Care Act. HealthCare.gov. Available at http://www.healthcare.gov/law/full/index.html. Accessed March 5, 2013.
    • The Affordable Care Act


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.