Progress on incorporating the patient perspective in outcome assessment in rheumatology and the emergence of life impact measures at OMERACT 9

Journal of Rheumatology

Volumn 36, Issue 9, 2009, Pages 2071-2076

  Kirwan, John R ^a   Newman, Stanton ^b   Tugwell, Peter S ^c   Wells, George A ^c   Hewlett, Sarah ^d   Idzera, Leanne ^c   Laslo, Britta ^c   March, Lyn M ^e   Minnock, Patricia ^f   Montie, Pam ^g   Nicklin, Jo ^d   Rader, Tamara ^c   Richards, Pamela ^a   Sanderson, Tessa C ^d   Suarez Almazor, Maria ^h   Tanjong Ghogomu, Elizabeth ^c   Ueffing, Erin ^c   Welch, Vivian ^c  

^a UNIVERSITY OF BRISTOL   (United Kingdom)

^b UNIVERSITY COLLEGE LONDON   (United Kingdom)

^c UNIVERSITY OF OTTAWA   (Canada)

^d UNIVERSITY OF THE WEST OF ENGLAND   (United Kingdom)

^e UNIVERSITY OF SYDNEY   (Australia)

^f ST VINCENT S UNIVERSITY HOSPITAL   (Ireland)

^g OMERACT Patient Partner   (Canada)

^h BAYLOR COLLEGE OF MEDICINE   (United States)

Author keywords

Consumers; Educational; Interventions; Measures; Outcomes; Psychological; Sleep

Indexed keywords

CLINICAL ARTICLE; CONFERENCE PAPER; FATIGUE; HUMAN; INTERNATIONAL CLASSIFICATION OF FUNCTIONING, DISABILITY AND HEALTH; OUTCOME ASSESSMENT; PATIENT EDUCATION; PATIENT PARTICIPATION; PRIORITY JOURNAL; QUALITY OF LIFE; QUESTIONNAIRE; RATING SCALE; RHEUMATOID ARTHRITIS; RHEUMATOLOGY; SLEEP DISORDER; SOCIAL PSYCHOLOGY;

EID: 70349264142     PISSN: 0315162X     EISSN: None     Source Type: Journal    
DOI: 10.3899/jrheum.090360     Document Type: Conference Paper

References (11)

1. Kirwan J, Hewlett S. Patient Perspective Workshop: Reasons and methods for measuring fatigue in rheumatoid arthritis. J Rheumatol 2007;34:1171-1173
2. Kirwan J, Minnock P, Adebajo A, et al. Patient perspective workshop: Fatigue as a recommended patient-centered outcome measure in rheumatoid arthritis. J Rheumatol 2007;34:1174-1177 (Pubitemid 46774870)
3. Felson DT, Anderson JJ, Boers M, et al. The American College of Rheumatology preliminary core set of disease activity measures for rheumatoid arthritis clinical trials. Arthritis Rheum 1993;36:729-740 (Pubitemid 23175613)
4. Kirwan J, Newman S, Tugwell P, Wells G. Patient perspective on outcomes in rheumatology - A position paper for OMERACT 9. J Rheumatol 2009;36:2067-2070
5. Kristjansson E, Tugwell PS, Wilson AJ, et al. Development of the effective musculoskeletal consumer scale. J Rheumatol 2007;34:1392-1400 (Pubitemid 46898127)
6. Santesso N, Rader T, Wells GA, et al. Responsiveness of the Effective Consumer Scale (EC-17). J Rheumatol 2009;36:2087-2091
7. O'Connor AM, Tugwell P, Wells GA, et al. A decision aid for women considering hormone therapy after menopause: decision support framework and evaluation. Patient Educ Couns 2004;3:119.
8. Elwyn G, O'Connor A, Stacey D, et al. International Patient Decision Aids Standards (IPDAS) Collaboration. Developing a quality criteria framework for patient decision aids: online international Delphi consensus process. BMJ 2006;26:417.
9. Wells G, Li T, Kirwan J, et al. Assessing quality of sleep in patient with rheumatoid arthritis. J Rheumatol 2009;36:2077-2086
10. Mulligan K, Newman SP, Taal E, Hazes M, Rasker JJ; OMERACT 7 Special Interest Group. The design and evaluation of psychoeducational/self-management interventions. J Rheumatol 2005;32:2470-2474
11. World Health Organization. International Classification of Functioning, Disability and Health: ICF. Geneva: WHO; 2001.