The Role of Psychology in a Pediatric Outpatient Cardiology Setting: Preliminary Results from a New Clinical Program

Journal of Clinical Psychology in Medical Settings

Volumn 21, Issue 4, 2014, Pages 337-346

  Brosig, Cheryl ^a,b   Yang, Kai ^a   Hoffmann, Raymond G ^a   Dasgupta, Mahua ^a   Mussatto, Kathleen ^b  

^a MEDICAL COLLEGE OF WISCONSIN   (United States)

^b CHILDREN S HOSPITAL OF WISCONSIN   (United States)

Author keywords

Congenital heart disease; Outcomes; Program development; Quality of life

Indexed keywords

ARTICLE; BEHAVIOR DISORDER; CHILD; CHILD BEHAVIOR CHECKLIST; CHILD HEALTH CARE; CLINICAL PRACTICE; CONGENITAL HEART DISEASE; CONTROLLED STUDY; FEMALE; HEALTH PROGRAM; HUMAN; LEARNING DISORDER; MAJOR CLINICAL STUDY; MALE; MENTAL HEALTH SERVICE; OUTPATIENT; PEDIATRIC CARDIOLOGY; POPULATION; PRESCHOOL CHILD; PSYCHOLOGIC ASSESSMENT; PSYCHOLOGIST; QUALITY OF LIFE; SCHOOL CHILD; SOCIAL PSYCHOLOGY; TEACHER; ADOLESCENT; COMPLICATION; CONGENITAL HEART MALFORMATION; MENTAL DISORDERS; PATIENT REFERRAL; PEDIATRICS; PROCEDURES; PROGRAM EVALUATION; PSYCHOLOGY; QUESTIONNAIRE;

ADOLESCENT; CHILD; CHILD, PRESCHOOL; FEMALE; HEART DEFECTS, CONGENITAL; HUMANS; MALE; MENTAL DISORDERS; OUTPATIENTS; PEDIATRICS; PROGRAM EVALUATION; QUALITY OF LIFE; QUESTIONNAIRES; REFERRAL AND CONSULTATION;

EID: 84919921658     PISSN: 10689583     EISSN: 15733572     Source Type: Journal    
DOI: 10.1007/s10880-014-9404-5     Document Type: Article

References (46)

1. Achenbach, T.M. & Rescorla, L. (2000). Manual for the ASEBA Preschool Forms and Profiles. Burlington, VT: University of Vermont, Research Center for Children, Youth & Families.
2. Armstrong, N., Herbert, G., Aveling, E., Dixon-Woods, M., & Martin, G. (2013). Optimizing patient involvement in quality improvement. Health Expectations,16, e36–e47. doi:10.1111/hex.12039.
3. Barth, J., Schumacher, M., & Herrmann-Lingen, C. (2004). Depression as a risk factor for mortality in patients with coronary heart disease: a meta-analysis. Psychosomatic Medicine,66, 802–813. doi:10.1097/01.psy.0000146332.53619.b2.
4. Blount, A., Schoenbaum, M., Kathol, R., Rollman, B., Thomas, M., O’Donohue, W., et al. (2007). The economics of behavioral health services in medical settings: a summary of the evidence. Professional Psychology: Research and Practice,38, 290–297. doi:10.1037/0735-7028.38.3.290.
5. Brosig, C. L. (2012). Commentary: The use of health and behavior codes in a pediatric cardiology setting. Journal of Pediatric Psychology,3, 514–518. doi:10.1093/jpepsy/jsr125.
6. Brosig, C. L., Mussatto, K. A., Kuhn, E. M., & Tweddell, J. S. (2007). Psychosocial outcomes for preschool children and families after surgery for complex congenital heart disease. Pediatric Cardiology,28, 255–262. doi:10.1077/s00246-006-0013-4.
7. Brosig Soto, C., Olude, O., Hoffmann, R. G., Bear, L., Chin, A., Dasgupta, M., et al. (2011). Implementation of a routine developmental follow-up program for children with congenital heart disease: Early results. Congenital Heart Disease,6, 451–460. doi:10.1111/j.1747-0803.2011.00546.x.
8. Collins, C., Hewson, D., Munger, R., & Wade, T. (2010). Evolving models of behavioral health integration in primary care. Retrieved from Milbank Memorial Fund website, http://www.milbank.org/reports/10430EvolvingCare/EvolvingCare.pdf. Accessed 1 Feb 2014.
9. Farber, E., Hodari, K., Motley, V., Pereira, B., Yonker, M., Sharma, S., et al. (2012). Integrating behavioral health with medical services: Lessons from HIV care. Professional Psychology: Research and Practice,43, 650–657. doi:10.1037/a0028788.
10. Ferguson, M., & Kovacs, A. (2013). Quality of life in children and young adults with cardiac conditions. Current Opinions in Cardiology,28, 115–121. doi:10.1097/HCO.0b013e32835d7eba.
11. Garcia Guerra, G., Robertson, C., Alton, G., Joffe, A., Dinu, I., Nicholas, D., et al. (2013). Quality of life 4 years after complex heart surgery in infancy. Journal of Thoracic and Cardiovascular Surgery,145, 482–488. doi:10.1016/j.jtcvs.2012.03.050.
12. Goldberg, S., Janus, M., Washington, J., Simmons, R., MacLusky, I., & Fowler, R. (1997). Prediction of preschool behavioral problems in healthy and pediatric samples. Developmental and Behavioral Pediatrics,18, 304–313.
13. Gordon, H. S., Street, R. L., Kelly, P. A., Souchek, J., & Wray, N. P. (2005). Physician-patient communication following invasive procedures: An analysis of post-angiogram consultations. Social Science and Medicine,61, 1015–1025. doi:10.1016/j.socscimed.2004.12.021.
14. Herrmann-Lingen, C. (2011). Steps towards integrated psychosomatic medicine: The example of psychocardiology. Journal of Psychosomatic Research,70, 111–115. doi:10.1016/j.jpsycores.2010.09.019.
15. Hoffman, J. I., & Kaplan, S. (2002). The incidence of congenital heart disease. Journal of the American College of Cardiology,39, 1890–1900.
16. Hollingshead, A. (1975). Four factor index of social status. New Haven, CT: Department of Sociology, Yale University.
17. Hoogwegt, M. T., Theuns, D., Jordaens, L., Kupper, N., Zijlstra, W., & Pedersen, S. (2012). Undertreatment of anxiety and depression in patients with an implantable cardioverter-defibrillator: Impact on health status. Health Psychology,31, 745–753. doi:10.1037/a0028018.
18. Karsdorp, P., Everaerd, W., Kindt, M., & Mulder, B. (2007). Psychological and cognitive functioning in children and adolescents with congenital heart disease: A meta-analysis. Journal of Pediatric Psychology,32, 527–541. doi:10.1093/jpepsy/js1047.
19. Kornovsky, J., & Salihu, H. (2008). Getting to the heart of the matter: Epidemiology of cyanotic heart defects. Pediatric Cardiology,29, 484–497. doi:10.1007/s00246-007-9185-9.
20. Kovacs, A. H., Silversides, C., Saidi, A., & Sears, S. F. (2006). The role of the psychologist in adult congenital heart disease. Cardiology Clinics,24, 607–618. doi:10.1016/j.ccl.2006.08.003.
21. Latal, B., Helfricht, S., Fischer, J., Bauersfeld, U., & Landolt, M. (2009). Psychological adjustment and quality of life in children and adolescents following open-heart surgery for congenital heart disease: a systematic review. BMC Pediatrics,9, 6. doi:10.1186/1471-2431-9-6.
22. Lawoko, S., & Soares, J. J. (2003). Quality of life among parents of children with congenital heart disease, parents of children with other diseases and parents of healthy children. Quality of Life Research,12, 655–666.
23. Lerner, C., Cheung, C., & Klaber, R. (2013). An introduction to quality improvement in paediatrics and child health. Archives of Disease in Childhood: Education and Practice Edition,98, 175–180. doi:10.1136/archdischild-2013-304325.
24. Linden, W., Phillips, J., & Leclerc, J. (2007). Psychological treatment of cardiac patients: a meta-analysis. European Heart Journal,28, 2784–2972. doi:10.1093/eurheartj/ehm504.
25. Maddux, M., Bass, J., Geraghty-Sirridge, C., Carpenter, E., & Christenson, K. (2013). Assessing psychosocial functioning among youth with newly diagnosed inflammatory bowel disease (IBD): An interdisciplinary clinic approach. Clinical Practice in Pediatric Psychology,1, 333–343.
26. Marino, B. S., Lipkin, P. H., Newburger, J. W., Peacock, G., Gerdes, M., Gaynor, J. W., et al. (2012). Neurodevelopmental outcomes in children with congenital heart disease: Evaluation and management: a scientific statement from the American Heart Association. Circulation,126, 1143–1172. doi:10.1161/CIR.0b013e318265ee8a.
27. McCusker, C. G., Doherty, N. N., Molloy, B., Casey, F., Rooney, N., Mulholland, C., et al. (2007). Determinants of neuropsychological and behavioural outcomes in early childhood survivors of congenital heart disease. Archives of Diseases in Childhood,92, 137–141. doi:10.1136/adc.2005.092320.
28. Pinquart, M., & Shen, Y. (2011). Behavior problems in children and adolescents with chronic physical illness: A metanalysis. Journal of Pediatric Psychology,36, 1003–1016. doi:10.1093/jpepsy/jsro42.
29. Rempel, G., Ravindran, V., Rogers, L., & Magill-Evans, J. (2013). Parenting under pressure: A grounded theory of parenting young children with life-threatening congenital heart disease. Journal of Advanced Nursing,69, 619–630. doi:10.1111/j.1365-2648.2012.06044.x.
30. Roest, A. M., Martens, E. J., Denollet, J., & deJonge, P. (2010). Prognostic association of anxiety post myocardial infarction with mortality and new cardiac events: A meta-analysis. Psychosomatic Medicine,72, 563–569. doi:10.1097/PSY.0b013e3181dbff97.
31. Sananes, R., Manlhiot, C., Kelly, E., Hornberger, L., Williams, W., MacGregor, D., et al. (2012). Neurodevelopmental outcomes after open heart operations before 3 months of age. Annals of Thoracic Surgery,93, 1577–1583. doi:10.1016/j.athoracsur.2012.02.011.
32. Sarajuuri, A., Lonnquist, T., Schmitt, F., Almquist, F., & Jokinen, E. (2011). Patients with univentricular heart in early childhood: Parenting stress and child behavior. Acta Paediatrica,101, 252–257. doi:10.1111/j.1651-2227.2011.02509.x.
33. Shillingford, A., Glanzman, M., Ittenbach, R., Clancy, R., Gaynor, J., & Wernovsky, G. (2008). Inattention, hyperactivity, and school performance in a population of school-age children with complex congenital heart disease. Pediatrics, 121, e759–767. doi:10.1542/peds.2007-1066.
34. Snookes, S. H., Gunn, J. K., Eldridge, B. J., Donath, S. M., Hunt, R. W., Galea, M. P., & Shekerdemian, L. (2009). A systematic review of motor and cognitive outcomes after early surgery for congenital heart disease. Pediatrics, 125, e818–827. doi:10.1542/peds.2009-1959.
35. Stone, D., Banerjee, M., Dupuis, J., Leleszi, J., Allasio, D., & Singh, T. P. (2006). Association of parental pretransplant psychosocial assessment with post-transplant morbidity in pediatric heart transplant recipients. Pediatric Transplantation,10, 602–607. doi:10.1111/j.1399-3046.2006.00543.x.
36. Struemph, K., Sood, E., Barhight, L., Thacker, D., & Gidding, S. (April, 2013). Implementing a psychosocial screening tool in an outpatient cardiology clinic. Poster presented at the Society of Pediatric Psychology National Conference, New Orleans, LA.
37. Sullivan, M. (2003). The new subjective medicine: Taking the patient’s point of view on healthcare and health. Social Science and Medicine,56, 1595–1604.
38. Tweddell, J. S., Hoffman, G. M., Mussatto, K. A., Fedderly, R. T., Berger, S., Jaquiss, R. D., et al. (2002). Improved survival of patients undergoing palliation of hypoplastic left heart syndrome: lessons learned from 115 consecutive patients. Circulation,106(12 Suppl 1), 182–189. doi:10.1161/01.cir.0000032878.55215.bd.
39. Uzark, K., & Jones, K. (2003). Parenting stress and children with heart disease. Journal of Pediatric Health Care,17, 163–168. doi:10.1067/mph.2003.22.
40. Uzark, K., Jones, K., Slusher, J., Limbers, C. A., Burwinkle, T. M., & Varni, J. W. (2008). Quality of life in children with heart disease as perceived by children and parents. Pediatrics,121, e1060–e1067. doi:10.1542/peds.2006-3778.
41. Varni, J. W., Burwinkle, T. M., Seid, M., & Skarr, D. (2003). The PedsQL 4.0 as a pediatric population health measure: feasibility, reliability, and validity. Ambulatory Pediatrics,3, 329–341.
42. Varni, J. W., Seid, M., & Murtin, P. S. (2001). PedsQL™ 4.0: reliability and validity of the pediatric quality of life inventory version 4.0 generic core scales in healthy and patient populations. Medical Care,39, 800–812.
43. Warnes, C. A. (2005). The adult with congenital heart disease: born to be bad? Journal of the American College of Cardiology,46, 1–8. doi:10.1016/j.jacc.2005.02.083.
44. Wernovsky, G. (2006). Current insights regarding neurological and developmental abnormalities in children and young adults with complex congenital cardiac disease. Cardiology in the Young,16, 92–104. doi:10.1017/S1047951105002398.
45. Wetter, J., Belli, E., Sinzobahamvya, N., Blaschzok, H., Brecher, A., & Urban, A. (2001). Transposition of the great arteries associated with ventricular septal defect: surgical results and long-term outcome. European Journal of Cardio-Thoracic Surgery,20, 816–823. doi:10.1016/S1010-7940(01)00912-5.
46. Wildman, B. G., & Langkamp, D. L. (2012). Impact of location and availability of behavioral health services for children. Journal of Clinical Psychology in Medical Settings, 19, 393–400. doi:10.1007/s10880-012-9324-1.