The new subjective medicine: Taking the patient's point of view on health care and health

Social Science and Medicine

Volumn 56, Issue 7, 2003, Pages 1595-1604

  Sullivan, Mark ^a  

^a UNIVERSITY OF WASHINGTON   (United States)

Author keywords

Chronic disease; Health policy; Patient autonomy; Patient outcomes; Quality of life; USA

Indexed keywords

HEALTH CARE;

COST EFFECTIVENESS ANALYSIS; ETHICS; HEALTH; HEALTH CARE; HEALTH CARE POLICY; HEALTH STATUS; HUMAN; MEDICAL CARE; PERCEPTION; QUALITY OF LIFE; REVIEW;

EID: 0037400292     PISSN: 02779536     EISSN: None     Source Type: Journal    
DOI: 10.1016/S0277-9536(02)00159-4     Document Type: Article

References (50)

1. Allison P.J., Locker D., Feine J.S. Quality of life. A dynamic construct Social Science & Medicine. 45:1997;221-230.
2. Bala M.V., Wood L.L., Zarkin G.A., Norton E.C., Gafni A., O'Brien B. Valuing outcomes in health care. A comparison of willingness to pay and quality-adjusted life years Journal of Clinical Epidemiology. 51:1998;667-676.
3. Birnie E., Monincx W.M., Zondervan H.A., Bossuyt P.M.M., Bonsel G.J. Comparing treatment valuations between and within subjects in clinical trials. Does it make a difference Journal of Clinical Epidemiology. 53:2000;39-45.
4. Bonomi A.E., Patrick D.L., Bushnell D.M., Martin M. Quality of life measurement. Will we ever be satisfied? Journal of Clinical Epidemiology. 53:2000;19-23.
5. Brock D. Quality of life measures in health care and medical ethics. Sen A., Nussbaum M.C. The quality of life. 1993;133-165 Oxford University Press, New York.
6. Callahan D. The sanctity of life. Cutler D.R. Updating life and death: Essays in ethics and medicine. 1969;181-251 Beacon Press, Boston.
7. Callahan D. Death and the research imperative. New England Journal of Medicine. 342:2000;654-666.
8. Clark D.O., Kroenke K., Callahan C.M., McDonald C.J. Validity and utility of patient-reported health measures on hospital admission. Journal of Clinical Epidemiology. 52:1999;65-71.
9. Cleary P.C. The increasing importance of patient surveys. British Medical Journal. 319:1999;720-721.
10. Daniels N. Just health care. 1985;Cambridge University Press, New York.
11. Davis M.A., Ettinger W.H., Neuhaus J.M., Barclay J.D., Segal M.R. Correlates of knee pain among US adults with and without radiographic knee osteoarthritis. Journal of Rheumatology. 19:1992;1943-1949.
12. Elkington J.R. Medicine and the quality of life. Annals of Internal Medicine. 64:1966;711-714.
13. Ellwood P.M. Shattuck Lecture Outcomes management. A technology of patient experience New England Journal of Medicine. 318:1988;1550-1556.
14. Engelhardt H.T. The foundations of bioethics. 1986;Oxford University Press, London.
15. Feinstein A. Clinimetrics. 1987;Yale University Press, New Haven.
16. Field, M.J., & Gold, M.R. (Eds.). (1998). Summarizing population health: Directions for the development and application of population metrics. Washington, DC: Institute of Medicine/National Academy Press.
17. Foucault, M. (1973). The birth of the clinic (p. 129). New York: Pantheon.
18. Gill T.M., Feinstein A.R. A critical appraisal of the quality of Quality of Life Instruments. Journal of the American Medical Association. 272:1994;619-626.
19. Goodwin J.S. Geriatrics and the limits of modern medicine. New England Journal of Medicine. 340:1999;1283-1285.
20. Guyatt G.H., Cook D.J. Health status, quality of life and the individual. Journal of the American Medical Association. 272:1994;630-631.
21. Hanita M. Self-report measures of patient utility. Should we trust them? Journal of Clinical Epidemiology. 53:2000;469-476.
22. Jonsen A. Birth of bioethics. 1998;Oxford University Press, New York.
23. Kane R.L., Rockwood T., Philip I., Finch M. Differences in valuation of functional status components among consumers and professionals in Europe and the United States. Journal of Clinical Epidemiology. 51:1998;657-666.
24. Karnofsky D.A., Burchenal J.H. The clinical evaluation of chemotherapeutic agents in cancer. Macleod C.M. Evaluation of chemotherapeutic agents. 1949;199-205 Columbia University Press, New York.
25. Kubler-Ross E. On death and dying. 1969;Macmillan, New York.
26. Lenert, L., & Kaplan, R.M. (2000). Validity and interpretation of preference-based measures of health-related quality of life. Medical Care, 38, II138-II150.
27. Leplege A., Hunt S. The problem of quality of life in medicine. Journal of the American Medical Association. 278:1997;47-50.
28. Lustman P.J., Griffith L.S., Clouse R.E., Cryer P.E. Psychiatric illness in diabetes mellitus. Relationship to symptoms and glucose control. Journal of Nervous and Mental Disease. 174:1986;736-742.
29. Manns P.J., Chad K.E. Determining the relation between quality of life, handicap, fitness, and physical activity for persons with spinal cord injury. Archives of Physical Medical Rehabilitation. 80:1999;1566-1571.
30. Menzel P., Gold M.R., Nord E., Pinto-Prades J.L., Richardson J., Ubel P. Toward a broader view of values in cost-effectiveness analysis. Hastings Center Report. 29:1999;7-15.
31. Morris, D. (1998). Illness and Culture (p. 242). Berkeley: University of California Press.
32. Nagel T. The view from nowhere. 1999;Oxford University Press, New York.
33. Nusselder W.J., van der Velden K., van Sonsbeek J.L., Lenior M.E., van den Bos G.A. The elimination of selected chronic diseases in a population. The compression and expansion of morbidity American Journal of Public Health. 86:1996;187-194.
34. Olshansky S.J., Ault A.B. The fourth stage of the epidemiologic transition. The age of delayed degenerative diseases Milbank Quarterly. 64:1986;355-391.
35. Olshansky S.J., Carnes B.A., Cassel C. In search of Methuselah. Estimating the upper limits to human longevity Science. 250:1990;634-640.
36. Pearlman R.A., Jonsen A. The use of quality-of-life considerations in medical decision-making. Journal of the American Geriatrics Society. 33:1985;344-352.
37. President's Commission for the Study of Ethical Problems in Medicine and Biomedical and Behavioral Research (1983). Deciding to forego life-sustaining treatment: A report on the ethical, medical and legal issues in treatment decisions. Washington, DC: US Government Printing Office.
38. Ramsey, P. (1970). The patient as person: explorations in medical ethics (p. 123). New Haven: Yale University Press.
39. Roper W.L., Hackbarth G.M. HCFA's agenda for promoting high quality care. Health Affairs. 7:1988;91-98.
40. Roper W.L., Winkenwerder W., Hackbarth G.M., Krakauer H. Effectiveness in health care. An initiative to evaluate and improve medical practice New England Journal of Medicine. 319:1988;1197-1202.
41. Saunders D.C., Baines M. Living with dying. The management of terminal disease:1983;Oxford University Press, New York.
42. Schneider C.E. The practice of autonomy. 1998;Oxford University Press, New York.
43. Sullivan M.D., LaCroix A.X., Baum C., Resnick A., Grothaus L., Pabiniak C.et al. Coronary disease severity and functional impairment. How strong is the relation? Journal of the American Geriatrics Society. 44:1996;1461-1465.
44. Testa M.A. Interpretation of quality-of-life outcomes. Medical Care. 38:2000;II166-II174.
45. The SUPPORT Principal Investigators (1996). A controlled trial to improve care for seriously ill hospitalized patients: The study to understand prognoses and preferences for outcomes and risks of treatment (SUPPORT). Journal of the American Medical Association, 274, 1591-1598.
46. Tsevat J. What do utilities measure? Medical Care. 38:2000;II160-II164.
47. Ubel P.A. How stable are people's preferences for giving priority to severely ill patients? Social Science & Medicine. 49:1999;895-903.
48. Ware J.E., Brook R.H., Davies A.R., Lohr K.N. Choosing measures of health status for individuals in general populations. American Journal of Public Health. 71:1981;620-625.
49. Wilson I.B., Cleary P.D. Linking clinical variables with health-related quality of life. Journal of the American Medical Association. 273:1995;59-65.
50. Wood-Dauphine S. Assessing quality of life in clinical research. From where have we come and where are we going? Journal of Clinical Epidemiology. 52:1999;355-363.