The Role of the Psychologist in Adult Congenital Heart Disease

Cardiology Clinics

Volumn 24, Issue 4, 2006, Pages 607-618

  Kovacs, Adrienne H ^a   Silversides, Candice ^a   Saidi, Arwa ^b   Sears, Samuel F ^c  

^a UNIVERSITY HEALTH NETWORK   (Canada)

^b UNIVERSITY OF FLORIDA COLLEGE OF MEDICINE   (United States)

^c UNIVERSITY OF FLORIDA   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ANXIETY; BEHAVIOR MODIFICATION; CONGENITAL HEART DISEASE; COPING BEHAVIOR; DEVICE; DISTRESS SYNDROME; DOCTOR PATIENT RELATION; FAMILY RELATION; HEALTH SERVICE; HUMAN; LIFESTYLE; MATERNAL MORTALITY; MEDICAL DECISION MAKING; MEDICAL RESEARCH; PATIENT COMPLIANCE; PEER GROUP; PREOPERATIVE CARE; PRIORITY JOURNAL; PSYCHOLOGICAL ASPECT; PSYCHOLOGIST; PSYCHOLOGY; QUALITY OF LIFE; REVIEW; SOCIAL ADAPTATION; TRAINING; VOCATIONAL EDUCATION;

ADOLESCENT; ADULT; HEART DEFECTS, CONGENITAL; HUMANS; PATIENT CARE TEAM; PATIENT COMPLIANCE; PSYCHOLOGY, CLINICAL; QUALITY OF LIFE; REFERRAL AND CONSULTATION; SOCIAL ADJUSTMENT;

EID: 33750842366     PISSN: 07338651     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.ccl.2006.08.003     Document Type: Review

References (79)

1. Warnes C.A. The adult with congenital heart disease: born to be bad?. J Am Coll Cardiol 46 1 (2005) 1-8
2. Webb G. Improving the care of Canadian adults with congenital heart disease. Can J Cardiol 21 10 (2005) 833-838
3. Rozanski A., Blumenthal J.A., and Kaplan J. Impact of psychological factors on the pathogenesis of cardiovascular disease and implications for therapy. Circulation 99 16 (1999) 2192-2217
4. Carney R.M., Freedland K.E., Sheline Y.I., et al. Depression and coronary heart disease: a review for cardiologists. Clin Cardiol 20 3 (1997) 196-200
5. Kovacs A.H., Sears S.F., and Saidi A. Biopsychosocial experiences of adults with congenital heart disease: review of the literature. Am Heart J 150 2 (2005) 193-201
6. Moons P., De Geest S., and Budts W. Comprehensive care for adults with congenital heart disease: expanding roles for nurses. Eur J Cardiovasc Nurs 1 1 (2002) 23-28
7. Care of the Adult with Congenital Heart Disease. Presented at the 32nd Bethesda Conference. Bethesda, Maryland, October 2-3, 2000. J Am Coll Cardiol 2001;37:1161-98.
8. Connelly M.S., Webb G.D., Somerville J., et al. Canadian Consensus Conference on Adult Congenital Heart Disease 1996. Can J Cardiol 14 3 (1998) 395-452
9. The Task Force on the Management of Grown Up Congenital Heart Disease, European Society of Cardiology, ESC Committee for Practice Guidelines. Management of grown up congenital heart disease. Eur Heart J 24 11 (2003) 1035-1084
10. Brandhagen D.J., Feldt R.H., and Williams D.E. Long-term psychological implications of congenital heart disease: a 25-year follow-up. Mayo Clin Proc 66 5 (1991) 474-479
11. Horner T., Liberthson R., and Jellinek M.S. Psychosocial profile of adults with complex congenital heart disease. Mayo Clin Proc 75 1 (2000) 31-36
12. Popelova J., Slavik Z., and Skovranek J. Are cyanosed adults with congenital cardiac malformations depressed?. Cardiol Young 11 4 (2001) 379-384
13. Bromberg J.I., Beasley P.J., D'Angelo E.J., et al. Depression and anxiety in adults with congenital heart disease: a pilot study. Heart Lung 32 2 (2003) 105-110
14. Utens E.M., Verhulst F.C., Erdman R.A., et al. Psychosocial functioning of young adults after surgical correction for congenital heart disease in childhood: a follow up study. J Psychosom Res 38 7 (1994) 745-758
15. Utens E.M., Bieman H.J., Verhulst F.C., et al. Psychopathology in young adults with congenital heart disease: follow up results. Eur Heart J 19 4 (1998) 647-651
16. Van Rijen E.H., Utens E.M., Roos-Hesselink J.W., et al. Psychosocial functioning of the adult with congenital heart disease: a 20-33 years follow up. Eur Heart J 24 7 (2003) 673-683
17. Cox D., Lewis G., Stuart G., et al. A cross-sectional study of the prevalence of psychopathology in adults with congenital heart disease. J Psychosom Res 52 2 (2002) 65-68
18. van Rijen E.H., Utens E.M., Roos-Hesselink J.W., et al. Medical predictors for psychopathology in adults with operated congenital heart disease. Eur Heart J 25 18 (2004) 1605-1613
19. van Rijen E.H., Utens E.M., Roos-Hesselink J.W., et al. Longitudinal development of psychopathology in an adult congenital disease cohort. Int J Cardiol 99 2 (2005) 315-323
20. Engel G.L. The need for a new medical model: a challenge for biomedicine. Science 196 4286 (1977) 129-136
21. Moons P., Marquet K., Budts W., et al. Validity, reliability and responsiveness of the "Schedule for the Evaluation of Individual Quality of Life-Direct Weighting" (SEIQoL-DW) in congenital heart disease. Health Qual Life Outcomes 2 (2004) 27
22. Moons P., Van Deyk K., Marquet K., et al. Individual quality of life in adults with congenital heart disease: a paradigm shift. Eur Heart J 26 3 (2005) 298-307
23. Kamphuis M., Ottenkamp J., Vliegen H.W., et al. Health related quality of life and health status in adult survivors with previously operated complex congenital heart disease. Heart 87 4 (2002) 356-362
24. Lane D.A., Lip G.Y., and Millane T.A. Quality of life in adults with congenital heart disease. Heart 88 1 (2002) 71-75
25. Simko L.C., and McGinnis K.A. Quality of life experienced by adults with congenital heart disease. AACN Clin Issues 14 1 (2003) 42-53
26. Rose M., Kohler K., Kohler F., et al. Determinants of the quality of life of patients with congenital heart disease. Qual Life Res 14 1 (2005) 35-43
27. Gersony W.M., Hayes C.J., Driscoll D.J., et al. Second natural history study of congenital heart defects. Quality of life of patients with aortic stenosis, pulmonary stenosis, or ventricular septal defect. Circulation 87 2 Suppl (1993) I52-I65
28. Saliba Z., Butera G., Bonnet D., et al. Quality of life and perceived health status in surviving adults with univentricular heart. Heart 86 1 (2001) 69-73
29. Immer F.F., Althaus S.M., Berdat P.A., et al. Quality of life and specific problems after cardiac surgery in adolescents and adults with congenital heart diseases. Eur J Cardiovasc Prev Rehabil 12 2 (2005) 138-143
30. Fekkes M., Kamphuis R.P., Ottenkamp J., et al. Health-related quality of life in young adults with minor congenital heart disease. Psychol Health 16 2 (2001) 239-250
31. Rietveld S., Mulder B.J., van Beest I., et al. Negative thoughts in adults with congenital heart disease. Int J Cardiol 86 1 (2002) 19-26
32. Simko L.C., and McGinnis K.A. What is the perceived quality of life of adults with congenital heart disease and does it differ by anomaly?. J Cardiovasc Nurs 20 3 (2005) 206-214
33. Ternestedt B.M., Wall K., Oddsson H., et al. Quality of life 20 and 30 years after surgery in patients operated on for tetralogy of Fallot and for atrial septal defect. Pediatr Cardiol 22 2 (2001) 128-132
34. Moons P., Van Deyk K., De Geest S., et al. Is the severity of congenital heart disease associated with the quality of life and perceived health of adult patients?. Heart 91 (2005) 1193-1198
35. McMurray R., Kendall L., Parson J.M., et al. A life less ordinary: growing up and coping with congenital heart disease. Coron Health Care 5 1 (2001) 51-57
36. Kokkonen J., and Paavilainen T. Social adaptation of young adults with congenital heart disease. Int J Cardiol 36 1 (1992) 23-29
37. Tong E.M., Sparacino P.S., Messias D.K., et al. Growing up with congenital heart disease: the dilemmas of adolescents and young adults. Cardiol Young 8 3 (1998) 303-309
38. Claessens P., Moons P., de Casterle B.D., et al. What does it mean to live with a congenital heart disease? A qualitative study on the lived experiences of adult patients. Eur J Cardiovasc Nurs 4 1 (2005) 3-10
39. Kamphuis M., Vogels T., Ottenkamp J., et al. Employment in adults with congenital heart disease. Arch Pediatr Adolesc Med 156 11 (2002) 1143-1148
40. Somerville J. The woman with congenital heart disease. Eur Heart J 19 12 (1998) 1766-1775
41. Williams R.G., Pearson G.D., Barst R.J., et al. Report of the National Heart, Lung, and Blood Institute working group on research in adult congenital heart disease. J Am Coll Cardiol 47 4 (2006) 701-707
42. Yusuf S., Hawken S., Ounpuu S., et al., on behalf of the INTERHEART Study Investigators. Effect of potentially modifiable risk factors associated with myocardial infarction in 52 countries (the INTERHEART Study): case-control study. Lancet 364 (2004) 937-952
43. Rozanski A., Blumenthal J.A., Davidson K.W., et al. The epidemiology, pathophysiology, and management of psychosocial risk factors in cardiac practice: the emerging field of behavioral cardiology. J Am Coll Cardiol 45 5 (2005) 637-651
44. Zellweger M.J., Osterwalder R.H., Langewitz W., et al. Coronary artery disease and depression. Eur Heart J 25 1 (2004) 3-9
45. van Melle J.P., de Jonge P., Spijkerman T.A., et al. Prognostic association of depression following myocardial infarction with mortality and cardiovascular events: a meta-analysis. Psychosom Med 66 6 (2004) 814-822
46. Eifert G.H., Zvolensky M.J., and Lejuez C.W. Heart-focused anxiety and chest pain: a conceptual and clinical review. Clin Psychol Sci Prac 7 (2000) 403-417
47. Pauli P., Wiedemann G., Dengler W., et al. Anxiety in patients with an automatic implantable cardioverter defibrillator: what differentiates them from panic patients?. Psychosom Med 61 1 (1999) 69-76
48. Rietveld S., Karsdorp P.A., and Mulder B.J. Heartbeat sensitivity in adults with congenital heart disease. Int J Behav Med 11 4 (2004) 203-211
49. Price B. Illness careers: the chronic illness experience. J Adv Nurs 24 2 (1996) 275-279
50. Mueller P.S., Hook C.C., and Hayes D.L. Ethical analysis of withdrawal of pacemaker or implantable cardioverter-defibrillator support at the end of life. Mayo Clin Proc 78 (2003) 959-963
51. Quill T.E., Barold S.S., and Sussman B.L. Discontinuing an implantable cardioverter defibrillator as a life-sustaining treatment. Am J Cardiol 74 2 (1994) 205-207
52. Kiecolt-Glaser J.K., Page G.G., Marucha P.T., et al. Psychological influences on surgical recovery: perspectives from psychoneuroimmunology. Am Psychol 53 11 (1998) 1209-1218
53. Devine E.C. Effects of psychoeducational care for adult surgical patients: a meta-analysis of 191 studies. Patient Educ Couns 19 2 (1992) 129-142
54. Johnston M., and Vogele C. Benefits of psychological preparation for surgery: a meta-analysis. Ann Beh Med 15 (1993) 245-256
55. Seskevich J.E., Crater S.W., Lane J.D., et al. Beneficial effects of noetic therapies on mood before percutaneous intervention for unstable coronary syndromes. Nurs Res 53 2 (2004) 116-121
56. Gatzoulis K., Frogoudaki A., Brili S., et al. Implantable defibrillators: from the adult cardiac to the grown up congenital heart disease patient. Int J Cardiol 97 (2004) 117-122
57. Herbst J.H., Goodman M., Feldstein S., et al. Health related quality of life assessment of patients with life-threatening ventricular arrhythmias. Pacing Clin Electrophysiol 22 (1999) 915-926
58. Schron E.B., Exner D.V., Yao O., et al. Quality of life in the antiarrhythmics versus implantable defibrillators trial: impact of therapy and influence of adverse symptoms and defibrillator shocks. Circulation 105 5 (2002) 589-594
59. Sears S.F., and Conti J.B. Quality of life and psychological functioning of ICD patients. Heart 87 5 (2002) 488-493
60. Irvine J., Dorian P., Baker B., et al. Quality of life in the Canadian Implantable Defibrillator Study (CIDS). Am Heart J 144 2 (2002) 282-289
61. Sears S.F., Todaro J.F., Lewis T.S., et al. Examining the psychosocial impact of implantable cardioverter defibrillators: a literature review. Clin Cardiol 22 7 (1999) 481-489
62. Sears S.F., Kovacs A.H., Azzarello L., et al. Innovations in health psychology: the psychosocial care of adults with implantable cardioverter defibrillators. Prof Psychol Res Pract 35 5 (2004) 520-526
63. Reid G.J., Irvine M.J., McCrindle B.W., et al. Prevalence and correlates of successful transfer from pediatric to adult health care among a cohort of young adults with complex congenital heart defects. Pediatrics 113 (2004) e197-e205
64. Dusseldorp E., van Elderen T., Maes S., et al. A meta-analysis of psychoeducational programs for coronary heart disease patients. Health Psychol 18 5 (1999) 506-519
65. Reybrouck T., and Mertens L. Physical performance and physical activity in grown-up congenital heart disease. Eur J Cardiovasc Prev Rehabil 12 5 (2005) 498-502
66. Kulkarni S.P., Alexander K.P., Lytle B., et al. Long-term adherence with cardiovascular drug regimens. Am Heart J 151 1 (2006) 185-191
67. DiMatteo M.R., Lepper H.S., and Croghan T.W. Depression is a risk factor for noncompliance with medical treatment. Meta-analysis of the effects of anxiety and depression on patient adherence. Arch Intern Med 160 14 (2000) 2102-2107
68. Ziegelstein R.C., Fauerbach J.A., Stevens S.S., et al. Patients with depression are less likely to follow recommendations to reduce cardiac risk during recovery from a myocardial infarction. Arch Intern Med 160 12 (2000) 1818-1823
69. Morgan A.L., Masoudi F.A., Havranek E.P., et al. Difficulty taking medications, depression, and health status in heart failure patients. J Card Fail 12 1 (2006) 54-60
70. Daliento L., Mapelli D., and Volpe B. Measurement of cognitive outcome and quality of life in congenital heart disease. Heart 92 4 (2006) 569-574
71. Bass J.L., Corwin M., Gozal D., et al. The effect of chronic or intermittent hypoxia on cognition in childhood: a review of the evidence. Pediatrics 114 3 (2004) 805-816
72. Wray J., and Sensky T. Congenital heart disease and cardiac surgery in childhood: effects on cognitive function and academic ability. Heart 85 6 (2001) 687-691
73. Daliento L., Mapelli D., Russo G., et al. Health related quality of life in adults with repaired tetralogy of Fallot: psychosocial and cognitive outcomes. Heart 91 (2005) 213-218
74. Griffin K.J., Elkin T.D., and Smith C.J. Academic outcomes in children with congenital heart disease. Clin Pediatr 42 5 (2003) 401-409
75. Kamphuis M., Zwinderman K.H., Vogels T., et al. A cardiac-specific health related quality of life module for young adults with congenital heart disease: development and validation. Qual Life Res 13 4 (2004) 735-745
76. Lip G.Y., Lane D.A., Millane T.A., et al. Psychological interventions for depression in adolescent and adult congenital heart disease. Cochrane Database Syst Rev 3 (2003) CD004394
77. Bassett A.S., Chow E.W., Husted J., et al. Clinical features of 78 adults with 22ql Deletion Syndrome. Am J Med Genet 138A (2005) 307-313
78. Street R.L., Gordon H.S., Ward M.M., et al. Patient participation in medical consultations: why some patients are more involved than others. Med Care 43 10 (2005) 960-969
79. Salzer M.U. Highlights of the meeting of the Psychosocial Working Group of the Association for European Paediatric Cardiology. Cardiol Young 15 1 (2005) 111-113