Where is the evidence? a systematic review of shared decision making and patient outcomes

Medical Decision Making

Volumn 35, Issue 1, 2015, Pages 114-131

  Aubree Shay, L ^a   Lafata, Jennifer Elston ^b  

^a UNIVERSITY OF TEXAS SCHOOL OF PUBLIC HEALTH   (United States)

^b VIRGINIA COMMONWEALTH UNIVERSITY   (United States)

Author keywords

Medical decision making; Patient outcomes; Shared decision making; Systematic review

Indexed keywords

DECISION MAKING; HEALTH BEHAVIOR; HUMAN; PATIENT COMPLIANCE; PATIENT PARTICIPATION; PATIENT SATISFACTION; PSYCHOLOGY; QUALITY OF LIFE; TREATMENT OUTCOME; TRUST;

DECISION MAKING; HEALTH BEHAVIOR; HUMANS; PATIENT COMPLIANCE; PATIENT PARTICIPATION; PATIENT SATISFACTION; QUALITY OF LIFE; TREATMENT OUTCOME; TRUST;

EID: 84919498026     PISSN: 0272989X     EISSN: 1552681X     Source Type: Journal    
DOI: 10.1177/0272989X14551638     Document Type: Review

References (73)

1. Weston WW. Informed and shared decision-making: the crux of patient-centred care. CMAJ. 2001 ; 165 (4). 438-9
2. Godolphin W. The role of risk communication in shared decision making. BMJ. 2003 ; 327 (7417). 692-3
3. Washington, DC: President's Commission for the Study of Ethical Problems in Medicine and Biomedical and Behavioral Research ; 1982 :
4. Berwick DM. A user's manual for the IOM's "Quality Chasm" report. Health Aff. 2002 ; 21 (3). 80-90
5. Sheridan S, Harris R, Woolf S. Shared decision making about screening and chemoprevention. a suggested approach from the U.S. Preventive Services Task Force. Am J Prev Med. 2004 ; 26 (1). 56-66
6. Emanuel EJ, Pearson SD. Physician autonomy and health care reform. JAMA. 2012 ; 307 (4). 367-8
7. Chewning B, Bylund CL, Shah B, Arora NK, Gueguen JA, Makoul G. Patient preferences for shared decisions: a systematic review. Patient Educ Couns. 2012 ; 86 (1). 9-18
8. Brody DS. The patient's role in clinical decision-making. Ann Intern Med. 1980 ; 93 (5). 718-22
9. Charles C, Gafni A, Whelan T. Shared decision-making in the medical encounter: what does it mean? (or it takes at least two to tango). Soc Sci Med. 1997 ; 44 (5). 681-92
10. Wennberg JE. Dealing with medical practice variations: a proposal for action. Health Aff. 1984 ; 3 (2). 6-32
11. Frosch DL, Kaplan RM. Shared decision making in clinical medicine: past research and future directions. Am J Prev Med. 1999 ; 17 (4). 285-94
12. Epstein RM, Street RL Bethesda, MD: National Cancer Institute ; 2007 :
13. Hamann J, Mendel R, Meier A, et al. "How to speak to your psychiatrist": shared decision-making training for inpatients with schizophrenia. Psychiatr Serv. 2011 ; 62 (10). 1218-21
14. Wilkins EG, Lowery JC, Copeland LA, Goldfarb SL, Wren PA, Janz NK. Impact of an educational video on patient decision making in early breast cancer treatment. Med Decis Making. 2006 ; 26 (6). 589-98
15. Légaré F, Labrecque M, LeBlanc A, et al. Training family physicians in shared decision making for the use of antibiotics for acute respiratory infections: a pilot clustered randomized controlled trial. Health Expect. 2011 ; 14: 96-110
16. Street R, Makoul G, Arora N, Epstein R. How does communication heal? Pathways linking clinician-patient communication to health outcomes. Patient Educ Couns. 2009 ; 74 (3). 295-301
17. Kreps G, O'Hair D, Clowers M. The influences of human communication on health outcomes. Am Behav Sci. 1994 ; 38: 248-56
18. Stacey D, Bennett CL, Barry MJ, et al. Decision aids for people facing health treatment or screening decisions. Cochrane Database Syst Rev. 2011 ; (10). CD001431
19. Makoul G, Clayman M. An integrative model of shared decision making in medical encounters. Patient Educ Couns. 2006 ; 60 (3). 301-12
20. Scholl I, Koelewijn-van Loon M, Sepucha K, et al. Measurement of shared decision making - a review of instruments. Z Evid Fortbild Qual Gesundheitswes. 2011 ; 105 (4). 313-24
21. Ross LE, Grigoriadis S, Mamisashvili L, et al. Quality assessment of observational studies in psychiatry: an example  from perinatal psychiatric research. Int J Methods Psychiatr Res. 2011 ; 20 (4). 224-34
22. Betancourt TS, Borisova I, Williams TP, et al. Psychosocial adjustment and mental health in former child soldiers - systematic review of the literature and recommendations for future research. J Child Psychol Psychiatry. 2013 ; 54 (1). 17-36
23. Washington, DC: Institute of Medicine ; 2011 :
24. Brody DS, Miller SM, Lerman CE, Smith DG, Caputo GC. Patient perception of involvement in medical care: relationship to illness attitudes and outcomes. J Gen Intern Med. 1989 ; 4 (6). 506-11
25. Lerman CE, Brody DS, Caputo GC, Smith DG, Lazaro CG, Wolfson HG. Patients' Perceived Involvement in Care Scale: relationship to attitudes about illness and medical care. J Gen Intern Med. 1990 ; 5 (1). 29-33
26. Chambers CV, Markson L, Diamond JJ, Lasch L, Berger M. Health beliefs and compliance with inhaled corticosteroids by asthmatic patients in primary care practices. Respir Med. 1999 ; 93 (2). 88-94
27. Gattellari M, Butow PN, Tattersall MH. Sharing decisions in cancer care. Soc Sci Med. 2001 ; 52: 1865-78
28. Golin C, DiMatteo MR, Duan N, Leake B, Gelberg L. Impoverished diabetic patients whose doctors facilitate their participation in medical decision making are more satisfied with their care. J Gen Intern Med. 2002 ; 17: 857-66
29. Heisler M, Bouknight RR, Hayward RA, Smith DM, Kerr EA. The relative importance of physician communication, participatory decision making, and patient understanding in diabetes self-management. J Gen Intern Med. 2002 ; 17: 243-52
30. Keating NL, Guadagnoli E, Landrum MB, Borbas C, Weeks JC. Treatment decision making in early-stage breast cancer: should surgeons match patients' desired level of involvement?. J Clin Oncol. 2002 ; 20 (6). 1473-9
31. Heisler M, Vijan S, Anderson RM, Ubel PA, Bernstein SJ, Hofer TP. When do patients and their physicians agree on diabetes treatment goals and strategies, and what difference does it make?. J Gen Intern Med. 2003 ; 18: 893-902
32. Legare F, Tremblay S, O'Connor AM, Graham ID, Wells GA, Jacobsen MJ. Factors associated with the difference in score between women's and doctors' decisional conflict about hormone therapy: a multilevel regression analysis. Health Expect. 2003 ; 6: 208-21
33. Ananian P, Houvenaeghel G, Protiere C, et al. Determinants of patients' choice of reconstruction with mastectomy for primary breast cancer. Ann Surg Oncol. 2004 ; 11: 762-71
34. Lantz PM, Janz NK, Fagerlin A, et al. Satisfaction with surgery outcomes and the decision process in a population-based sample of women with breast cancer. Health Serv Res. 2005 ; 40: 745-67
35. Katz SJ, Lantz PM, Janz NK, et al. Patient involvement in surgery treatment decisions for breast cancer. J Clin Oncol. 2005 ; 23: 5526-33
36. Bleicher RJ, Abrahamse P, Hawley ST, Katz SJ, Morrow M. The influence of age on the breast surgery decision-making process. Ann Surg Oncol. 2008 ; 15 (3). 854-62
37. Nekhlyudov L, Bower M, Herrinton LJ, et al. Women's decision-making roles regarding contralateral prophylactic mastectomy. J Natl Cancer Inst Monogr. 2005 ; (35). 55-60
38. Thapar AK, Roland MO. General practitioner attitudes to the care of people with epilepsy: an examination of clustering within practices and prediction of patient-rated quality of care. BMC Fam Pract. 2005 ; 6: 9
39. Clever SL, Ford DE, Rubenstein LV, et al. Primary care patients' involvement in decision-making is associated with improvement in depression. Med Care. 2006 ; 44: 398-405
40. Loh A, Leonhart R, Wills CE, Simon D, Harter M. The impact of patient participation on adherence and clinical outcome in primary care of depression. Patient Educ Couns. 2007 ; 65: 69-78
41. Mandelblatt J, Kreling B, Figeuriedo M, Feng S. What is the impact of shared decision making on treatment and outcomes for older women with breast cancer?. J Clin Oncol. 2006 ; 24: 4908-13
42. Swanson KA, Bastani R, Rubenstein LV, Meredith LS, Ford DE. Effect of mental health care and shared decision making on patient satisfaction in a community sample of patients with depression. Med Care Res Rev. 2007 ; 64: 416-30
43. Mahone IH. Shared decision making and serious mental illness. Arch Psychiatr Nurs. 2008 ; 22: 334-43
44. Deinzer A, Veelken R, Kohnen R, Schmieder RE. Is a shared decision-making approach effective in improving hypertension management?. J Clin Hypertens (Greenwich). 2009 ; 11 (5). 266-70
45. Hawley ST, Griggs JJ, Hamilton AS, et al. Decision involvement and receipt of mastectomy among racially and ethnically diverse breast cancer patients. J Natl Cancer Inst. 2009 ; 101: 1337-47
46. Janssen C, Ommen O, Pfaff H, Lefering R, Neugebauer E. Pre-traumatic, trauma- and treatment-related determinants of self-rated health after a severe trauma. Langenbecks Arch Surg. 2009 ; 394 (3). 539-46
47. van den Bergh RC, Essink-Bot ML, Roobol MJ, et al. Anxiety and distress during active surveillance for early prostate cancer. Cancer. 2009 ; 115 (17). 3868-78
48. Burton D, Blundell N, Jones M, Fraser A, Elwyn G. Shared decision-making in cardiology: do patients want it and do doctors provide it?. Patient Educ Couns. 2010 ; 80: 173-9
49. Ommen O, Thuem S, Pfaff H, Janssen C. The relationship between social support, shared decision-making and patient's trust in doctors: a cross-sectional survey of 2,197 inpatients using the Cologne Patient Questionnaire. Int J Public Health. 2011 ; 56 (3). 319-27
50. Glass KE, Wills CE, Holloman C, et al. Shared decision making and other variables as correlates of satisfaction with health care decisions in a United States national survey. Patient Educ Couns. 2012 ; 88: 100-5
51. Johnson MO, Sevelius JM, Dilworth SE, Saberi P, Neilands TB. Preliminary support for the construct of health care empowerment in the context of treatment for human immunodeficiency virus. Patient Prefer Adherence. 2012 ; 6: 395-404
52. Lim JW, Baik OM, Ashing-Giwa KT. Cultural health beliefs and health behaviors in Asian American breast cancer survivors: a mixed-methods approach. Oncol Nurs Forum. 2012 ; 39: 388-97
53. Mo HN, Shin DW, Woo JH, et al. Is patient autonomy a critical determinant of quality of life in Korea? End-of-life decision making from the perspective of the patient. Palliat Med. 2012 ; 26: 222-31
54. Schleife H, Sachtleben C, Finck Barboza C, Singer S, Hinz A. Anxiety, depression, and quality of life in German ambulatory breast cancer patients. Breast Cancer. 2014 ; 21: 208-13
55. Schoenthaler AM, Schwartz BS, Wood C, Stewart WF. Patient and physician factors associated with adherence to diabetes medications. Diabetes Educ. 2012 ; 38: 397-408
56. Thum S, Janssen C, Pfaff H, Lefering R, Neugebauer EA, Ommen O. The association between psychosocial care by physicians and patients' trust: a retrospective analysis of severely injured patients in surgical intensive care units. Psychosoc Med. 2012 ; 9: Doc04
57. Wallen GR, Brooks AT. To tell or not to tell: shared decision making, CAM use and disclosure among underserved patients with rheumatic diseases. Integr Med Insights. 2012 ; 7: 15-22
58. Heisler M, Tierney E, Ackermann RT, et al. Physicians' participatory decision-making and quality of diabetes care processes and outcomes: results from the triad study. Chronic Illn. 2009 ; 5: 165-76
59. Goossensen A, Zijlstra P, Koopmanschap M. Measuring shared decision making processes in psychiatry: skills versus patient satisfaction. Patient Educ Couns. 2007 ; 67: 50-6
60. Singh S, Butow P, Charles M, Tattersall MH. Shared decision making in oncology: assessing oncologist behaviour in consultations in which adjuvant therapy is considered after primary surgical treatment. Health Expect. 2010 ; 13: 244-57
61. Politi MC, Clark MA, Ombao H, Dizon D, Elwyn G. Communicating uncertainty can lead to less decision satisfaction: a necessary cost of involving patients in shared decision making?. Health Expect. 2011 ; 14 (1). 84-91
62. Smith A, Juraskova I, Butow P, et al. Sharing vs. caring - the relative impact of sharing decisions versus managing emotions on patient outcomes. Patient Educ Couns. 2011 ; 82: 233-9
63. Butow P, Juraskova I, Chang S, Lopez AL, Brown R, Bernhard J. Shared decision making coding systems: how do they compare in the oncology context?. Patient Educ Couns. 2010 ; 78 (2). 261-8
64. Langseth MS, Shepherd E, Thomson R, Lord S. Quality of decision making is related to decision outcome for patients with cardiac arrhythmia. Patient Educ Couns. 2012 ; 87: 49-53
65. Degner LF, Sloan JA, Venkatesh P. The Control Preferences Scale. Can J Nurs Res. 1997 ; 29 (3). 21-43
66. Wunderlich T, Cooper G, Divine G, et al. Inconsistencies in patient perceptions and observer ratings of shared decision making: the case of colorectal cancer screening. Patient Educ Couns. 2010 ; 80 (3). 358-63
67. Kasper J, Heesen C, Kpke S, Fulcher G, Geiger F. Patients' and observers' perceptions of involvement differ: validation study on inter-relating measures for shared decision making. PLoS One. 2011 ; 6 (10). e26255 - e
68. Elwyn G, Hutchings H, Edwards A, et al. The OPTION scale: measuring the extent that clinicians involve patients in decision-making tasks. Health Expect. 2005 ; 8 (1). 34-42
69. Symons AB, Swanson A, McGuigan D, Orrange S, Akl EA. A tool for self-assessment of communication skills and professionalism in residents. BMC Med Educ. 2009 ; 9: 1
70. Stewart MA. Effective physician-patient communication and health outcomes: a review. CMAJ. 1995 ; 152 (9). 1423-33
71. Bernhard J, Butow P, Aldridge J, Juraskova I, Ribi K, Brown R. Communication about standard treatment options and clinical trials: can we teach doctors new skills to improve patient outcomes?. Psychooncology. 2012 ; 21 (12). 1265-74
72. Dwamena F, Holmes-Rovner M, Gaulden CM, et al. Interventions for providers to promote a patient-centred approach in clinical consultations. Cochrane Database Syst Rev. 2012 ; (12). CD003267
73. Lafata JE, Morris HL, Dobie E, Heisler M, Werner RM, Dumenci L. Patient-reported use of collaborative goal setting and glycemic control among patients with diabetes. Patient Educ Couns. 2013 ; 92 (1). 94-9