Caregiver burden and satisfaction in families of individuals with schizophrenia

Nursing Research

Volumn 63, Issue 4, 2014, Pages 260-269

  Hsiao, Chiu Yueh ^a   Tsai, Yun Fang ^b  

^a CHUNG SHAN MEDICAL UNIVERSITY HOSPITAL   (Taiwan)

^b CHANG GUNG UNIVERSITY   (Taiwan)

Author keywords

Family caregivers; Schizophrenia; Taiwan

Indexed keywords

ADAPTIVE BEHAVIOR; ADOLESCENT; ADULT; AGED; CAREGIVER; CHILD; CROSS-SECTIONAL STUDY; FAMILY; FEMALE; HUMAN; MALE; MENTAL STRESS; MIDDLE AGED; PRESCHOOL CHILD; PSYCHOLOGY; SATISFACTION; SCHIZOPHRENIA; STATISTICAL MODEL; TAIWAN; YOUNG ADULT;

ADAPTATION, PSYCHOLOGICAL; ADOLESCENT; ADULT; AGED; CAREGIVERS; CHILD; CHILD, PRESCHOOL; CROSS-SECTIONAL STUDIES; FAMILY; FEMALE; HUMANS; LINEAR MODELS; MALE; MIDDLE AGED; PERSONAL SATISFACTION; SCHIZOPHRENIA; STRESS, PSYCHOLOGICAL; TAIWAN; YOUNG ADULT;

EID: 84903716639     PISSN: 00296562     EISSN: 15389847     Source Type: Journal    
DOI: 10.1097/NNR.0000000000000047     Document Type: Article

References (38)

1. Aggarwal, M., Avasthi, A., Kumar, S., & Grover, S. (2011). Experience of caregiving in schizophrenia: A study from India. International Journal of Social Psychiatry, 57, 224-236. doi:10.1177/0020764009352822
2. Anderson, D. M., Keith, J., Novak, P. D., & Elliot, M. A. (Eds.) (2002). Mosby'smedical, nursing, and allied heath dictionary (6th ed.). St. Louis, MO: Mosby.
3. Andrén, S., & Elmståhl, S. (2008). The relationship between caregiver burden, caregivers' perceived health and their sense of coherence in caring for elders with dementia. Journal of Clinical Nursing, 17, 790-799. doi:10.1111/j.1365-2702.2007.02066.x
4. Antonovsky, A. (1987). Unraveling themystery of health: How peoplemanage stress and stay well. San Francisco, CA: Jossey-Bass.
5. Archbold, P. G., Stewart, B. J., Greenlick, M. R., & Harvath, T. (1990). Mutuality and preparedness as predictors of caregiver role strain. Research in Nursing & Health, 13, 375-384. doi:10.1002/nur.4770130605
6. Chien, F.-P., & Greenberg, J. S. (2004). A positive aspect of caregiving: The influence of social support on caregiving gains for family members of relatives with schizophrenia. Community Mental Health Journal, 40, 423-435. doi:10.1023/B:COMH.0000040656.89143.82 (Pubitemid 39221577)
7. Chien, W.-T., Chan, S.W. C., & Morrissey, J. (2007). Theperceivedburden among Chinese family caregivers of people with schizophrenia. Journal of Clinical Nursing, 16, 1151-1161. doi:10.1111/j.1365-2702.2007.01501. x
8. Cohen, J. (1992). A power primer. Psychological Bulletin, 112, 155-159. doi:10.1037/0033-2909.112.1.155
9. Dillman, D. A. (2007). Mail and internet surveys: The tailored design method (2nd ed.). New York, NY: Wiley.
10. Donner, A., & Klar, N. (2000). Design and analysis of cluster randomization trials in health research. London, England: Arnold.
11. Eriksson, M., & Lindström, B. (2005). Validity of Antonovsky's sense of coherence scale: A systematic review. Journal of Epidemiology and Community Health, 59, 460-466. doi:10.1136/jech.2003.018085 (Pubitemid 40791030)
12. Folkman, S., & Moskowitz, J. T. (2000). Positive affect and the other side of coping. American Psychologist, 55, 647-654. doi:10.1037/0003-066X.55.6. 647
13. Grover, S., Chakrabarti, S., Aggarwal, M., Avasthi, A., Kulhara, P., Sharma, S., & Khehra, N. (2012). Comparative study of the experience of caregiving in bipolar affective disorder and schizophrenia. International Journal of Social Psychiatry, 58, 614-622. doi:10.1177/0020764011419054
14. Hadryś, T., Adamowski, T., & Kiejna, A. (2011). Mental disorder in Polish families: Is diagnosis a predictor of caregiver's burden? Social Psychiatry and Psychiatric Epidemiology, 46, 363-372. doi:10.1007/s00127-010-0200-8
15. Hou, S.-Y., Ke, C.-L. K., Su, Y.-C., Lung, F.-W., & Huang, C.-J. (2008). Exploring the burden of the primary family caregivers of schizophrenia patients in Taiwan. Psychiatry and Clinical Neurosciences, 62, 508-514. doi:10.1111/j.1440-1819.2008.01843.x
16. Hsiao, C.-Y., & Van Riper, M. (2009). Individual and family adaptation in Taiwanese families of individuals with severe and persistent mental illness (SPMI). Research in Nursing & Health, 32, 307-320. doi:10.1002/nur.20322
17. Hsiao, C.-Y., & Van Riper, M. (2011). Individual and family adaptation in Taiwanese families living with Down syndrome. Journal of Family Nursing, 17, 182-201. doi:10.1177/1074840711405205
18. Huang, X.-Y., Hung, B.-J., Sun, F. K., Lin, J.-D., & Chen, C.-C. (2009). The experiences of carers in Taiwanese culture who have longterm schizophrenia in their families: A phenomenological study. Journal of Psychiatric and Mental Health Nursing, 16, 874-883. doi:10.1111/j.1365-2850. 2009.01468.x
19. Hunt, C. K. (2003). Concepts in caregiver research. Journal of Nursing Scholarship, 35, 27-32. doi:10.1111/j.1547-5069.2003.00027.x (Pubitemid 38591683)
20. Kate, N., Grover, S., Kulhara, P., & Nehra, R. (2013). Positive aspects of caregiving and its correlates in caregivers of schizophrenia: A study from north India. East Asian Archives of Psychiatry, 23, 45-55.
21. Kenny, D. A., & Kashy, D. A. (1991). Analyzing interdependence in dyads. In Montgomery, B. M. & Duck, S. (Eds.), Studying interpersonal interaction (pp. 275-285). New York, NY: Guilford Press.
22. Knafl, G. J., Dixon, J. K., O'Malley, J. P., Grey, M., Detrick, J. A., Gallo, A. M., & Knafl, K. (2009). Analysis of cross-sectional univariate measurements for family dyads using linear mixed modeling. Journal of Family Nursing, 15, 130-151. doi:10.1177/107484 0709331641
23. Kuuppelomäki, M., Sasaki, A., Yamada, K., Asakawa, N., & Shimanouchi, S. (2004). Family carers for older relatives: Sources of satisfaction and related factors in Finland. Internaitonal Journal of Nursing Studies, 41, 497-505. doi:10.1016/j.ijnurstu.2003.11.004 (Pubitemid 38569545)
24. Lawton, M., Moss, M., Kleban, M., Glicksman, A., & Rovine, M. (1991). A two-factor model of caregiving appraisal and psychological well-being. Journal of Gerontology, 46, 181-189.
25. Liu, Y., Insel, K. C., Reed, P. G., & Crist, J. D. (2012). Family caregiving of older Chinese people with dementia: Testing amodel. Nursing Research, 61, 39-50. doi:10.1097/NNR.0b013e31823bc451
26. López, J., López-Arrieta, J., & Crespo, M. (2005). Factors associated with the positive impact of caring for elderly and dependent relatives. Archives of Gerontology and Geriatrics, 41, 81-94. doi:10.1016/j.archger.2004.12.001 (Pubitemid 40725396)
27. McCubbin, H. I., & Patterson, J. (1996a). Family Stressors Index. In McCubbin, H. I., Thompson, A. I., & McCubbin, M. A. (Eds.), Family assessment: Resiliency, coping and adaptation-inventories for research and practice (p. 833). Madison, WI: University of Wisconsin.
28. McCubbin, H. I., & Patterson, J. (1996b). Family Strains Index. In McCubbin, H. I., Thompson, A. I., & McCubbin, M. A. (Eds.), Family assessment: Resiliency, coping and adaptation-inventories for research and practice (p. 834). Madison, WI: University of Wisconsin.
29. McCubbin, H. I., Thompson, A. I., & McCubbin, M. A. (1996). Family assessment: Resiliency, coping and adaptation Inventories for research and practice. Madison, WI: University of Wisconsin.
30. Ministry of Health and Welfare, Republic of China. (2013). Health and welfare statistical report. [Chinese]. Retrieved from http://www.mohw.gov.tw/ cht/DOS/Statistic.aspx?f-list-no=312&fod-list-no=2741
31. Nolan, M., Grant, G., & Keady, J. (1996). Understanding family care: Amulti-dimensionalmodel of caring and coping. Buckingham, UK/Philadelphia, PA: Open University Press.
32. Shyu, Y.-I. L., Yang, C.-T., Huang, C.-C., Kuo, H.-C., Chen, S.-T., & Hsu, W.-C. (2010). Influences of mutuality, preparedness, and balance on caregivers of patients with dementia. Journal of Nursing Research, 18, 155-163. doi:10.1097/JNR.0b013e3181ed5845
33. Singer, J. D. (1998). Using SAS PROC MIXED to fit multilevel models, hierarchical models, and individual growth models. Journal of Educational and Behavioral Statistics, 23, 323-355. doi:10.3102/10769986023004323 (Pubitemid 128474255)
34. Song, L. Y. (2002). The development and validation of a caregiver burden scale: A focus on practice applicability [Chinese]. Social Policy and Social Work, 6, 61-100.
35. Suresky, M. J., Zauszniewski, J. A., & Bekhet, A. K. (2008). Sense of coherence and quality of life in women family members of the seriouslymentally ill. Issues in Mental Health Nursing, 29, 265-278. doi:10.1080/01612840701869601
36. Tang, S. T., & Dixon, J. (2002). Instrument translation and evaluation of equivalence and psychometric properties: The Chinese sense of coherence scale. Journal of Nursing Management, 10, 59-76. doi:10.1891/jnum.10. 1.59.52544
37. Weimand, B. M., Hedelin, B., Sóllatróm, C., & Hall-Lord, M.-L. (2010). Burden and health in relatives of persons with severe mental illness: A Norwegian cross-sectional study. Issues in Mental Health Nursing, 31, 804-815. doi:10.3109/01612840.2010.520819
38. World Federation for Mental Health. (2010). Caring for the caregiver: Why your mental health matters when you are caring for others. Woodbridge, VA: Author. http://wfmh.com/wp-content/uploads/2013/11/WFMH-GIAS- CaringForTheCaregiver.pdf